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Medical Forum / Diseases and Disorders / Epilepsy / February 2008

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RuthDollar@gmail.com - 25 Dec 2007 17:20 GMT
Hi everbody

I have epilepsy. I am 64 years old. My firsg seizure was when
I was six years old.

I started with absence szeizures (petit mal). They increased to
grand mal when I was 21 years old. They have been increasing
to different types of seizures.

I have been allergic to many medicines over the years.

This is my history of my epilepsy.
I hope to get to know everybody in the group. It is important that we
be a family and support each other.

Love Ruth
G. - 25 Dec 2007 19:14 GMT
On Dec 25, 12:20 pm, RuthDol...@gmail.com wrote:
> Hi everbody
>
[quoted text clipped - 12 lines]
>
> Love Ruth

Hi.   The group has been quiet for a while (Sept.) after a couple of
students (who didn't have seizures) were around.  They should be off
line now, but I suspect several of the regulars (there were 8-10 of us
in about 10 timezones, including N.and South America, Europe,
Australia and New Zealand), just moved away from the group.
   That was handy as you could post a question and within 24 hours
someone who might have comments or experiences would give what
information they had about a pill or seizure type or a site they had
found useful.  Also some treatments might vary by country so if
something hadn't worked e.g. in Canada, an alternative treatment or
idea might turn up from Europe or Australia that was actually
available but not tried yet with a specific seizure type.
   If you need any websites to look at, I did a post a few weeks ago
where I list about 6-8 I had picked up over last ~9 years (!).   Some
of them have information about medications and possible side effects,
and a few of the older posters had reactions (not so much allergies?)
to some of the more common Anti Ep Drugs (AEDs).
   Are your seizures mainly Grand Mal? or are there any other types
too? (like Complex Partial etc.)   If others know the names of any
szr. types, they may have that particular type too and might have some
ideas or workarounds they've tried that had worked for them.
   We can see if any of the 'regulars' turn up after Christmas stuff
is done with.  It *was an excellent source of information when it was
most active.      G./    (I'm on Eastern Timezone in Canada, so only
read groups list later in the day around 8-12PM GMT =3-7+ PM my time.)
RuthDollar@gmail.com - 03 Jan 2008 21:45 GMT
> On Dec 25, 12:20�pm, RuthDol...@gmail.com wrote:
>
[quoted text clipped - 42 lines]
>
> - Show quoted text -

Hi

My father's name was Robert Dollar. I have grand mals, complex
partials, petit mal (now known as abscence szeizures, STATUS
EPILEPITCUS, drop seizures. The doctors have changed the name of some
of the names. They changed grand mals to another name but I cannot
remember it now. I have a
bad memory. I also have Diabetes type 2.
I was in a coma in 1979. The doctor told my husband to prepare for my
funeral.
I am still here. I had a Status Epilepticus seizure, that caused the
coma. I heard
what the doctor said. People in a coma can hear some things. Anyone
who
talks to a person in a coma talk as they hear you. Believe me they
will hear
some things. Well, I will be coming back soon. I hope others join us
to.
Info - 02 Jan 2008 19:26 GMT
> Hi everbody
>
[quoted text clipped - 12 lines]
>
> Love Ruth

Ruth (it's my mother's name, too)

Sorry to hear you have reason to be here.  I'm one of the not-so-often
posters, but I'm here a lot.  My grand mals began when I was 11; stopped
when I was in my early 20s and complex partials moved in with a vengeance to
fill the void. I'm in Seattle. Where do you live?
RuthDollar@gmail.com - 03 Jan 2008 21:58 GMT
> <RuthDol...@gmail.com> wrote in message
>
[quoted text clipped - 25 lines]
>
> - Show quoted text -

Hi, I am not sorry to be here. I hope you post more often so I can get
to know
you. My petitmals began when I was 6 years old. When I was 20 years,
my
seizures went from petit mal to grand mal. Later on, I do not remember
when
it also became STATUS EPILEPTICUS. I also have complex partials. I am
now 64 years old and I have learned to have a good attitude and be
positive.I live in California. Love Ruth
Rev21-4 - 12 Feb 2008 18:53 GMT
Hi, Ruth,
I'm new, too.  Welcome!  I'm 56 and have had seizures since I was 21.  I
had atonic/clonic seizures and a little more than a year ago I developed
what my neurologist calls complex partial (but I'm not so sure that's what
they are and plan on seeing an Epilepsy expert soon).

I also have hypothyroidism which has impacted me greatly.

Blessings to you!

--
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