First let me start out by saying how FRUSTRATED I am with this. These
stupid "seizures" I am having got me fired from my job! I can't go out
into public for a long time or have a lot of sensory or photo
something stimulation without tiring very quickly and ending up in
one. I do not remember much about my past but I do remember getting
many EEG's done as a kid starting from age 13. ALL of my EEG's came
back abnormal. The doctor had me on tegretol and by age 16 took me off
of it. I never knew why I was forced to take the medication as no one
has explained to me much of what was going on. Throughout the years I
have been going through occasional blackouts in which I cannot tell
you what happened and the people around me just kept saying it was
weird. I got spacey frequently and sometimes go through occasions when
I forget what I was talking about in the middle of a sentence. My
short term memory seems to be affected as I forget things quite easily
and just a few years back would even forget I had something in my hand
and drop it. I never went to the hospital during any of these
happenings because I hate going to the doctor. Sometimes my body
twitches for a while then stop. On occasions I would have odd head
movements in which my head shakes and moves to the left. In the
beginning of November 2007 I had my first big so called seizure. I
call them so called because I can't accept that I am told I am having
them. I am going to give you an account of what I was told happened by
a friend who was present during them as I was completely unaware of
anything happening. I began with that odd head shaking I told you
about. Then my left arm started jerking slightly. I remember that
part. My friend said that out of no where my slight jerking turned
into stiffing then full body jerking with my eyes rolling in the back
of my head and my hands contorted. Afterword I would gasp for air
because during my seizures I do not breathe. I remember coming out of
the seizure because I feel very very tired and normally fall asleep.
Sometimes I am tired but attempt to get up. I never can walk after the
seizure and my speech is slurred and simple. Almost as if I an a child
again. Before these started I had this fuzzy feelings in my head and
my head hurts really bad on the right side. I went to the hospital
after having 6 of them in one day and 5 the next. they did an MRI on
me and it came back normal. I was back in the hospital 2 days later
because I dropped and went into several back to back seizures. the MRI
came back normal again but my EEG was abnormal. My medical records
mention something about some rare bursts of eptiform waves or
something like that. I now have a nueroligist. First they had me on
Tegretol 200mg. She changed it to 750mg per day on Keppra. Now they
changed it to 750mg Keppra twice a day and 100mg of Dilantin twice a
day. The Dilantin seems to be causing more problems than solutions.
The very first day I took it I had 3 hours of back to back seizures.
They started with a Grand mal seizure and turned into fast and
frequent blinking. Then I spaced out and went back to the blinking and
odd movements of my mouth which caused me to bite my tongue several
times. Then I spaced out again and started it all over again. By the
end of it I had a huge headache and extreme fatigue. An hour later I
had to go to the bathroom and had assistance. I had trouble walking,
talking and even grabbing things. It was if I couldn't control my
limbs. I tried drinking water from a straw and I couldn't drink or
swallow the right way. I couldn't even lay on my back because my body
was so tired I kept choking on my tongue. Can someone give me some
advice or if you've had similar things happen to you let me know what
you did and what kind of doctor you went to? My neurologist referred
me to the epilepsy center because I have about 3 big seizures a day
and several absent seizures during the course of the day. Sorry so long