Below is part of an older post I put together of various websites we
had appear here over last ~5 years.  It's not complete, but a
collection of ones of use to newer people to get started with.  G./
-->
This is from an older (~June) post I did that some others added their
favorite sites to. I'll try shorten it so it only contains most useful
link information and descriptions.  G./
***************
   The Idaho site is one that Julie maintains and has 2 excellent
First Aid charts if you don't have any-- one on land, slight different
in water.   Printable Versions come up when you click Printable
Version? button near bottom of page, that takes out background colour
and junk that don't need for black and white.  G./
//////////////////////
  While I think of it, do you have an AntiViral scanner set up? I had
*2 sets of Virii blocked overnight and this AM, and it did a Full Scan
(about 1 hour each).
Old post is below -->
Messages 1 - 7 of 7
1 From: G.
Date: Tues, Jan 31 2006 9:47 am
Groups: alt.support.epilepsy
Websites about Epilepsy

This is the Website post I said I'd post again. The First Aid Site
that
lists what each seizure type looks like is at ***s below. Inside that
link is another one for First Aid in Water (swimming).
If the page has a coloured background, there is a button
that says "Printable Version" and if you Click on that, it takes off
the
colours so you can print it on White Paper to keep. G./

A new site (to me) someone suggested is at http://www.epilepsy.com .

The main Idaho Epilepsy News site is at http://www.epilepsyidaho.org .
(Julie Walton posts here regularly and maintains the Idaho Website for
people there and us too. )

Within that are links that also go through an Education area called
Learn about Epilepsy -- at http://www.epilepsyidaho.org/learn.htm.

Often some *symptoms people **exhibit give clues to *type of seizures
they're having and best described on a First Aid for Seizures Chart.
These are my favorites -- also from Epilepsy Idaho. One is
http://www.epilepsyidaho.org/seizure2.htm and that links to
http://www.epilepsyidaho.org/seizure.htm . One of those is easier to
print, although both display well for information or reference.

There is also a separate page for First Aid in Water I didn't include,
although those sites might link to it. What to do when someone is
swimming is somewhat different that if they were to collapse 'on
land'.
/////////
Howdy Dave has a site he put together ~10? years ago and he regularly
updates. He was also one of the oldest :-< members of this group and
someone told me he was one of the Founders too. Most people don't know
that, so he doesn't get a swelled head or anything.. :-> His site is
at
http://www.howdydave.com .
//////////
The main U.S. Ep. Foundation website is at http://efa.org . THIS SITE
Has a Medication Glossary, although I found my own pharmacist a useful
source of information if I had Side Effects or Questions about a
particular prescribed pill.
// G./

2 From: howdydave
Date: Tues, Jan 31 2006 8:52 pm
Email: "howdydave" <>
Groups: alt.support.epilepsy

Howdy!
Another good site is the BrainTalk Forums.

Brain Talk has forums related to just about every neurological disease
and disorder under the sun.

The Epilepsy forum is:
http://brain.hastypastry.net/forums/forumdisplay.php?f=133

At the present time they are having server problems so the response is
VERY slow... but There's a LOT of good information there.
****** G. ON A LATER POST the Website of above one that Howdy Dave
posted had **Changed to this one.  (I left them both in case this
second doesn't link to the site he mentioned.)  The LATER Post listed
this -->
http://brain.hastypastry.net/forums/forumdisplay.php?=144  /

3 From: guitarmom
Date: Wed, Feb 1 2006 8:00 am
Email: "guitarmom" <>
Groups: alt.support.epilepsy

Great sites! Thanks G for adding them. I find so much information on
Emedicine to help understand seizures as well as the syndromes, EEG,
and variants. it is based on articles that neurologists have written
and peers have edited and reviewed. There is a place for definitions
as
well -->

http://www.emedicine.com/neuro/topic415.htm You can do a
search there for all things epilepsy or neurology as well.

http://www.neuropat.dote.hu/epilepsy.htm Internet handbook for
neurology has a great number of quality sites as well. this is
compiled
by a neuro in Hungary.
Ginny

4 From: howdydave
Date: Wed, Feb 1 2006 11:41 pm
Email: "howdydave" <>
Groups: alt.support.epilepsy

Let's not forget:
Strathearn Neurological Access Point
aka: SNAP
http://www.sol.co.uk/k/keir/snap1.htm

Set up by Dave Ferguson (the REAL founder of this group) in Scotland.

5 From: Rocking4Epilepsy
Date: Wed, Feb 8 2006 12:01 pm
Email: "Rocking4Epilepsy" <>
Groups: alt.support.epilepsy

You also may find all your first aid and satey precautions on our site
below
http://dannyjr.proboards44.com/index.cgi

6 From: polaris
Date: Thurs, Feb 2 2006 2:54 pm
Email: polaris <>
Groups: alt.support.epilepsy

BrainTalk looks very good. (listed above at #2 )
Thanks for the suggestion.

7 From: guitarmom
Date: Thurs, Feb 9 2006 8:37 am
Email: "guitarmom" <>
Groups: alt.support.epilepsy

Another great site that I have found is
http://www.epilepsy.ca/eng/mainSet.html

if you go to the opening page where it has English or French it does
have a flickering candle. This page does not have it.
There is a great deal of information here, well done and easy to
manuever.

Basic facts, myth busters, info for children, teens and adults,
research, safety, coping!
Hope this helps someone.
Gin
********* There, some light reading !! I hope is ~ up to date for a
while... /G./