I have an appointment soon with my neurologist. At my last one, he told me I
had epilepsy. But, I'm not so sure and am looking for what I should be
asking him about the basis of his diagnosis.
A brief history: Last August I ended up in the hospital with a cerebral
hemmorhage due to a AVM rupture (the same thing that happened to that
Senator from South Dakota). At the time, as a precautionary measure, I was
put on Dilantin. Over the next five months I had a number of procedures
done, culminating in the actual removal of the AVM in January. A few days
after my second procedure in early December (an Embolization, which
involved sending a little wire up through the arteries to the arteries
feeding the AVM and squirting a little glue in them, in an attempt to lessen
the flow of blood to the AVM) I had a couple of seizures, a few hours apart.
I sort of remember the first one coming on (which lead to a fall) and I was
taken to the hospital. I have a few vague memories of the various treatments
and tests, but I don't remember the second seizure (apparently a full
tonic-clonic one) that happened at the hospital. I was put on Keppra, in
addition to the dilantin, and, at this point, am only taking Keppra.
I haven't had a seizure since. But I've been reading up on epilepsy. I see
that one diagnosis is more than one seizure. So I wonder if that was the
basis of my diagnosis. If so, isn't it possible that, because my only two
seizures occurred a few hours apart, they were just an anomolous occurrence,
a reaction to the Embolization procedure? Now, of course, during my
adventures, I have had a whole host of tests like Cat Scans, MRI's and the
like. Could there have been something definitive in them that confirmed the
diagnosis?
Of course, I could just try stopping the meds. But, unless there is a reason
to think I may not really have a seizure disorder, I am afraid to do so. I
don't want another seizure (I don't think my wife could take it and besides,
I only have another month and a half before I can drive again).
Eric Jacobs
J. T. Laurie - 17 Apr 2007 09:58 GMT
be extremely careful about meds. do not stop or start them without seeing
your neuro. I only did becuase he had me on clearly the wrong meds.
its possible, but I'm not sure.
>I have an appointment soon with my neurologist. At my last one, he told me
>I had epilepsy. But, I'm not so sure and am looking for what I should be
[quoted text clipped - 32 lines]
>
> Eric Jacobs
Jim - 17 Apr 2007 13:32 GMT
> I have an appointment soon with my neurologist. At my last one, he told me I
> had epilepsy. But, I'm not so sure and am looking for what I should be
[quoted text clipped - 30 lines]
>
> Eric Jacobs
Don't stop your medication without the blessing of your doctor. He is
following the corrrect, required medical treatment because anytime
the symmetry of your right and left hemisheres of your brain are
effected whether by surgery or by any brain trauma will result in a
seizure disorder which will be with you for life. A close family
member of mine suffered a severe head injury and now must take and
will be on seizure medication for life. Your doctor can verify this
for you when you see him. As long as my Nephew takes his medication he
can lead a normal life and that includes driving. Don't feel hopeless
because this a a fully manageable condition which will not alter your
quality of life as long as you follow your doctors instructions and
continue taking your medication. Keep reading this group to learn more
about medications. Best to you and your family.
Jim
flopper - 17 Apr 2007 16:39 GMT
If you want that license back keep doing what you are now.
I too had an AVM removed, but the had way. I also had the bleed twice
& hemmorhages can cause seizures for life. Same way those that have a
stroke can be nailed w/ seizures forever. Give it more time to let
that brain heal.
Robert A. Fink, M. D. - 19 Apr 2007 00:15 GMT
>Of course, I could just try stopping the meds. But, unless there is a reason
>to think I may not really have a seizure disorder, I am afraid to do so. I
>don't want another seizure (I don't think my wife could take it and besides,
>I only have another month and a half before I can drive again).
>
>Eric Jacobs
Your seizures are most likely related to the AVM. Even though the AVM
has been treated (embolized), you may still be prone to seizures. I
would NOT stop the medicine until you have discussed this matter with
your treating doctors.
Best,
Bob
Robert A. Fink, M. D.
Neurological Surgery
2500 Milvia Street Suite 222
Berkeley, CA 94704-2636 USA
510-849-2555
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NOTE: The material above is not "medical
advice". Medical advice can only be
given after an in-person contact between
doctor and patient.
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