Hi.  We had about 12-15 people posting from abuot 10 different
timezones from 1998 to last year late.   Then 'a kid' came on the
group and posted a bunch of 'dumb stuff,'  faking several of the
poster's identifications, and Post Volumes dropped to less than 8-10 a
month (from 15-20 a *day).
  (I think he was taken offline by either some headers I filed or
another regular who was here, so he hasn't returned and, as he was
disrupting several groups, probably doesn't know which ones had his
network service cancelled for terms of service violations. )

   Some of the Regulars may resubscribe eventually, if you look at
the group from time to time.  Depending what your Timezone is, some of
the regulars were in North America (Canada, U.S. and Mexico), England,
parts of Europe (Germany, Italy and others), plus New Zealand and
Australia. That was handy as you could post a question or concern and
over the next 2-3 days get answers or suggestions as the various
Timezones saw the message and replied to it.

   Do you have links to sites about Medications, First AId for
Seizures, and commonly asked questions?  If you don't, I can see if I
can find an olde post I used to do with about 5 links, then cut and
paste it here. They were handy to bookmark, as sometimes the
conditions or medications can change, and some have different things
that can affect their success and proper use.   (Many shouldn't be
used with Alcohol or Upset stomach remedies for example.  My Tegretol
is also messed up by Grapefruit Juice, as one of the acids in that
fruit can interfere with the absorption of that particular pill,
etc. )
    I'm in Eastern Daylight Timezone (GMT-5? hours) in Canada, and
comments I might have are specific to Complex Partial Seizures
(formerly Temporal Lobe type), and medications I use are usually
similar to any that are prescribed in Canada or the U.S. for that
type.
    Let me know if you want some other websites and I'll see if I can
cut and paste that older post into this thread, then you can read
through them whenever you might want.      G./

Below is a cut and paste of the Older post I mentioned previously
that lists about 5 websites that might be of use to you.   If you have
particular pills prescribed, you could look in the Prescription link
and see if there's any more information about the types of szrs.
they're used for and if there's more information of use to you.
   I haven't seen West's Syndrome mentioned (that I remember) here
since 1997, but you could look under the Ep. Foundation of America
link (efa.org) and see if it's included there.  It might be a not-Ep.
condition but whose effects could produce seizures, like my
Encephalitis (mentioned on another post) were the source of the damage
that later caused my Right Temporal Lobe seizures that I have.
   Julie's Idaho site has some excellent First Aid for Seizures
charts (one on land and one if in water /swimming), that are worth
printing if you haven't got something like that for others to use.
The U.S. Ep. Foundation site has a Medications Glossary as part of its
content, where you could see if anything you've been prescribed is
listed there.  There's option to produce a Printable page if any info.
is more complete than what you should have received from a Pharmacy if
you are using any prescriptions.

  Note if you can't find much in some of the sites on your's
(West's), you might want to have a look at number '2' (Jan.31/06) that
Howdydave lists in the groups below.  I haven't looked at that group
since he posted that on alt.ep,  but it might have some other links
specific to West's if you do a search OR you could post there *also,
and see if there are people with information that could help you.
Hope some of that helps.     G./

This is from an older (~June) post I did that some others added their
favorite sites to. I'll try shorten it so it only contains most useful
link information and descriptions.  G./
***************
   The Idaho site is one that Julie maintains and has 2 excellent
First Aid charts if you don't have any-- one on land, slight
difference
in water.   Printable Versions come up when you click Printable
Version? button near bottom of page, that takes out background colour
and junk that don't need for black and white.  G./
//////////////////////
Date: 24 Mar 2006 09:24:38 -0800
Subject: A collection of websites I munged from various people a month
ago

Below is an older post I did about 4+ weeks ago, Merged (I hope) with
about 4 **other people (with their postnames/ex-emls) who added
**their
favorite sites regarding Epilepsy issues. I hope some of
these help any Newbies who are looking for some sites to tour for up
to
date information or answers to their questions, not already covered
within the Group. G./

This is the Website post I said I'd post again. The First Aid Site
that
lists what each seizure type looks like is at ***s below. Inside that
link is another one for First Aid in Water (swimming).
If the page has a coloured background, there is a button
that says "Printable Version" and if you Click on that, it takes off
the
colours so you can print it on White Paper to keep. G./

A new site (to me) someone suggested is at http://www.epilepsy.com .

The main Idaho Epilepsy News site is at http://www.epilepsyidaho.org .
(Julie Walton posts here regularly and maintains the Idaho Website for
people there and us too. )

Within that are links that also go through an Education area called
Learn about Epilepsy -- at http://www.epilepsyidaho.org/learn.htm .

Often some *symptoms people **exhibit give clues to *type of seizures
they're having and best described on a First Aid for Seizures Chart.
These are my favorites -- also from Epilepsy Idaho. One is
http://www.epilepsyidaho.org/seizure2.htm and that links to
http://www.epilepsyidaho.org/seizure.htm . One of those is easier to
print, although both display well for information or reference.

There is also a separate page for First Aid in Water I didn't include,
although those sites might link to it. What to do when someone is
swimming is somewhat different that if they were to collapse 'on
land'.
/////////
Howdy Dave has a site he put together ~10? years ago and he regularly
updates. He was also one of the oldest :-< members of this group and
someone told me he was one of the Founders too. Most people don't know
that, so he doesn't get a swelled head or anything.. :-> His site is
at
http://www.howdydave.com .
//////////
The main U.S. Ep. Foundation website is at http://efa.org . THIS SITE
Has a Medication Glossary, although I found my own pharmacist a useful
source of information if I had Side Effects or Questions about a
particular prescribed pill.
// G./

2 From: howdydave
Date: Tues, Jan 31 2006 8:52 pm
Email: "howdydave" <>
Groups: alt.support.epilepsy

Howdy!
Another good site is the BrainTalk Forums.
Brain Talk has forums related to just about every neurological disease
and disorder under the sun.

The Epilepsy forum is:
http://brain.hastypastry.net/forums/forumdisplay.php?f=133

At the present time they are having server problems so the response is
VERY slow... but There's a LOT of good information there.

3 From: guitarmom
Date: Wed, Feb 1 2006 8:00 am
Email: "guitarmom" <>
Groups: alt.support.epilepsy

Great sites! Thanks G for adding them. I find so much information on
Emedicine to help understand seizures as well as the syndromes, EEG,
and variants. it is based on articles that neurologists have written
and peers have edited and reviewed. There is a place for definitions
as
well -->

http://www.emedicine.com/neuro/topic415.htm You can do a
search there for all things epilepsy or neurology as well.

http://www.neuropat.dote.hu/epilepsy.htm Internet handbook for
neurology has a great number of quality sites as well. this is
compiled
by a neuro in Hungary.
Ginny

4 From: howdydave
Date: Wed, Feb 1 2006 11:41 pm
Email: "howdydave" <>
Groups: alt.support.epilepsy

Let's not forget:
Strathearn Neurological Access Point
aka: SNAP
http://www.sol.co.uk/k/keir/snap1.htm

Set up by Dave Ferguson (the REAL founder of this group) in Scotland.

5 From: Rocking4Epilepsy
Date: Wed, Feb 8 2006 12:01 pm
Email: "Rocking4Epilepsy" <>
Groups: alt.support.epilepsy

You also may find all your first aid and satey precautions on our site
below
http://dannyjr.proboards44.com/index.cgi

6 From: polaris
Date: Thurs, Feb 2 2006 2:54 pm
Email: polaris <>
Groups: alt.support.epilepsy

BrainTalk looks very good. (listed above at #2 )
Thanks for the suggestion.

7 From: guitarmom
Date: Thurs, Feb 9 2006 8:37 am
Email: "guitarmom" <>
Groups: alt.support.epilepsy

Another great site that I have found is
http://www.epilepsy.ca/eng/mainSet.html

if you go to the opening page where it has English or French it does
have a flickering candle. This page does not have it.
There is a great deal of information here, well done and easy to
manuever.

Basic facts, myth busters, info for children, teens and adults,
research, safety, coping!
Hope this helps someone.
Gin
********* There, some light reading !! I hope is ~ up to date for a
while... /G./