I recently had an EEG that showed no epileptiform activity. Does that
mean I don't need the meds anymore or is the medication keeping the
EEG from showing siezure activity.
I'd appreciate an opinion from anyone, especially someone who's gone
off the meds after a long period of being siezure free.
Thanks
Tom
tomdaltonz@hotmail.com
On Mar 17, 8:37 am, tomdalt...@hotmail.com wrote:
> I recently had an EEG that showed no epileptiform activity. Does that
> mean I don't need the meds anymore or is the medication keeping the
[quoted text clipped - 5 lines]
> Tom
> tomdalt...@hotmail.com
What does the Dr. say who ran the tests? Normally an EEG can only
measure epileptiform waves that **occur while the test is running.
That's why they often flash lights, sounds etc. during the tests to
try trigger milder reactions that show up on the test while it's
running. Either you didn't have any during that (1? ) test, or the
meds. are controlling them.
The last seizure I had was June 1998. I expect to be using Tegretol
and Frisium for life, since it took from 1993 to 1998 to find a mix
that worked. We've had several people from 1998 to now who've wanted
advice on stopping use of meds. that we can't have enough information
to do. Since each of our seizure types and their causes are
different, that's why the Dr. would have to assess what is right for
you.
I can't find an older post by you in the history file but there
have been 2 or 3 others who've had the same questions or concerns
about long term use? or wanting to stop using something that is
working. I don't have enough medical training to know when one of us
could stop using a particular pill for a particular szr. type. Did
the original Dr. (who's prescribing what you're using?) tell you why
your szrs. started and did they do other tests than just an EEG?
If there's organic damage to some area, then the pills will likely
be needed indefinitely since most brain traumas or injuries won't self-
repair. That's what the medication is supposed to help.
////////////
This group used to have 20-30 regulars posting and reading the
group, in 12+ timezones. Before Christmas a 'kid' thought it would be
fun to take on identities of several posters and post Dumb Stuff here.
Some fun. I expect he's offline-- I would have liked to get his
home address. But most of the regulars who posted from about 7
countries in Europe, New Zealand, Australia and about 12 others in the
U.S. and Canada don't read the group any longer, or intermittently.
You could watch for other replies over next ~week or so, but other
posts ahead of Christmas got about 3 replies total, down from
potential of 10+ and replies didn't often come in right away, so I
suspect most regulars who had useful links etc. for 'newbies' have
left.
I had 4 or 5 websites, but none of them would specifically address
your questions. They are more specific to details on various pills,
seizure types, and first aid etc. for people who are already diagnosed
and accept the treatments that are working for them. G./
Malvern - 19 Mar 2007 11:48 GMT
What was the origin of your epilepsy ? Mine is a structural anomaly,
specifically a scar across my brain, which won't ever go away, ergo, there
is always the potential for seizures without meds.
An EEG is *ancient* as tests go. Have you had a MRI ? Far more definitive,
at least for me.
So it's the old cost/benefit conflict; is the benefit of no seizures WITH
medication worth the possible side effects ? At my age (61), it is as I
don't need to get injured as the result of a seizure. Don't know if this
helps; it's my own evaluation based on past experience.
Malv
> On Mar 17, 8:37 am, tomdalt...@hotmail.com wrote:
> > I recently had an EEG that showed no epileptiform activity. Does that
[quoted text clipped - 48 lines]
> seizure types, and first aid etc. for people who are already diagnosed
> and accept the treatments that are working for them. G./
Robert A. Fink, M. D. - 19 Mar 2007 22:03 GMT
>An EEG is *ancient* as tests go. Have you had a MRI ? Far more definitive,
>at least for me.
Apples and oranges. A MRI is looking at structural (anatomy) changes;
an EEG is looking at functional (physiological) changes. They are
measuring different things, both of which are significant in
evaluating as to epilepsy treatment.
Best,
Bob
Robert A. Fink, M. D.
Neurological Surgery
2500 Milvia Street Suite 222
Berkeley, CA 94704-2636 USA
510-849-2555
**********************************
NOTE: The material above is not "medical
advice". Medical advice can only be
given after an in-person contact between
doctor and patient.
**********************************
Sofia - 25 Mar 2007 00:49 GMT
> Apples and oranges. A MRI is looking at structural (anatomy) changes;
> an EEG is looking at functional (physiological) changes. They are
> measuring different things, both of which are significant in
> evaluating as to epilepsy treatment.
Then how come the neuro' always tells us at the end of our EEG that these
so called functional changes are hardly ever recorded. My last EEG was
several years ago - I hated having those horrid, swidgy glue wires
attached to my head as the technician rummaged through my long, thick,
dark hair and then I distinctly remember being told that the result was
negative - so I spent ages trying to get that bubble gum out of my hair
for absolutely no reason at all - but I still have all different types of
epileptic seizures, and I've had them for years and years.
I reckon I'll be on Tegretol Retard for the rest of my life as every
time my neuro' has attempted to ween me of it in the past, my seizures
have increased. I've also been put on it with more combinations than I
care to remember, at the moment also with Keppra and Zonisamide, so I'll
never stop taking my meds.
The only two MRI's I've had throughout my 41 years have also both come out
beautifully clear on the screen and described in full by the doctors
taking them afterwards! Having an MRI was a great experience, I enjoyed
seeing the pictures of inside my head immensely!
Sofie

Signature
Please visit my deviantART page: http://sofen.deviantart.com/
Tom Dalton - 29 Oct 2007 07:40 GMT
Thanks for answering my post - I guess I was curious as to what the doc
would need the EEG for since my seizures are the result of a lesion across
the motor strip of the right hemisphere. We've been trying to find the
right balance of meds because my seizure activity increases when my Dilantin
levels are higher. In fact, I seem to do best when my levels are between
2 - 5, yet the doc seems to think I should be at 10 -14 because that's
what's considered to be the therapeutic range.
I guess I was hoping I could get an opinion from someone who's seizures have
subsided and were thus able to go without the meds. I've been taking meds
for almost 25 years, and I'm always looking for some alternative that's not
as toxic as drugs are. I was really fired up when I heard that stereostatic
radiosurgery might be a method to cure seizures, but from what I understand
it can be almost as dangerous as a classic lobotomy.
What about stem cells? Is there any research going on into using stem cells
to repair the brain damage that causes seizures?
Tom
--
tomdaltonz@hotmail.com
"You're gonna need a bigger boat"
> On Mar 17, 8:37 am, tomdalt...@hotmail.com wrote:
> > I recently had an EEG that showed no epileptiform activity. Does that
[quoted text clipped - 48 lines]
> seizure types, and first aid etc. for people who are already diagnosed
> and accept the treatments that are working for them. G./