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Medical Forum / Diseases and Disorders / Epilepsy / March 2007

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I'm a newbie too

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dustyandreb - 05 Mar 2007 14:15 GMT
Hello everyone,

I am also new to this group.  I appreciate this forum and any insight
you all may provide.  I also have questions about side effects of
medication.

I am 32, and I was epileptic as a child.  I had my first seizure at 3
and stopped meds at 12.  I think I had my last seizure at 11.  I don't
know what kind they were.  My mom didn't do any investigation into
anything.  She followed the doctors orders blindly in all aspects of
my upbringing.  I only had siezures at night, about 1 hour after I
fell asleep I think.  Only my first few seizures were during the day.
They were more like going into a coma like state staring blankly and
drooling, unresponsive.  The ones I had at night, I would sit up in
bed and call for my mom and couldn't move one side of my body (I think
the right side), my mom and dad would carry me to the bathroom, where
I would throw up, my mom would hold me while my dad would call my name
until I could focus my eyes on him.  (During the seizure they would be
rolled back in my head.)

I was on phenobarbitol.  I don't know the mg, but I do know I took 3
bitter little pills every night.  I just started counseling for
depression, and some questions are coming up.  I basically haven't
thought about epilepsy and phenobarbitol for a long time, and am just
now starting to wonder what long term effects I have.  I'm just now
wondering if some of these dots can be connected.....

I have some questions.  Could these be side effects?

*  I don't remember my childhood.  Hardly a thing.  My memories begin
at about 13.  Is this because
   a)  I was so doped up on barbituates that  I didn't do anything
memorable?  or
   b)  Do the drugs affect memory?
I shared a room with my sister, 10 years older than me, and I only
have 1 memory of her in my bedroom.

*  I still have a hard time with memory.  I forget so many things that
I should remember.  My friends' names from high school, my friends'
names from last year at church, details about my childrens' births,
details about their growing, when they talked, walked, etc (They're
only 7, 5, 4).  Could phenobarbitol have permanently affected my
capability to remember?

*  Can being on phenobarbitol for so long during my brain's formative
years set me up for chronic depression?  I was very depressed during
my childhood, I forgot about this, but I found a diary from my 10th
year and it was horrible!  My teenage years were a blast.  I had so
much fun, I was very happy, as soon as I started having children, I
became very depressed.  (postpartum?)

And of course, my report cards went from C's and D's to A's and B's
the year I came off phenobarbitol.

Any information would be so very much appreciated.  I have been
reading posts for a couple weeks, now, and I hope and pray for
everyone of you that you will "grow out of it" like I did, and if you
don't that you'll find the best medications/therapies/doctors for
you.  I feel for you.

Blessings~~*

Rebekah
Sofia - 09 Mar 2007 00:05 GMT
> *  I don't remember my childhood.  Hardly a thing.  My memories begin
> at about 13.  Is this because
[quoted text clipped - 3 lines]
> I shared a room with my sister, 10 years older than me, and I only
> have 1 memory of her in my bedroom.

Hi Dusty, I'm a little older than you now, turned 41 in early January,
and I started having blank spells and bumping into lamposts at the age of
9 years of age, but I was first given epilim as a child to control my
seizures, which was later mixed with phenytoin, but as a teenager, my exam
results began to fall lower and lower the more doped up I began to
feel, so I think maybe it's possible on either the drugs themselves
causing memory loss, or even perhaps just the dose the doctor gives you!

Perhaps it's the seizure's themselves that's causing our memory loss -
after all, we all have them don't we and not the drugs at all?

Sorry couldn't be of more help


Sofie  

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ryanne@gmail.com - 09 Mar 2007 08:16 GMT
> *  I still have a hard time with memory.  I forget so many things that
> I should remember.  My friends' names from high school, my friends'
> names from last year at church, details about my childrens' births,
> details about their growing, when they talked, walked, etc (They're
> only 7, 5, 4).  Could phenobarbitol have permanently affected my
> capability to remember?

My fiance was on phenobarbitol for 4 years as a child, after he would
have begun forming concrete memories. He is often frustrated with the
fact that he has no memory of those years. His parents will visit us
and tell some story about something that happened, or say something
like "Don't you remember that?" and he doesn't, and it makes him feel
dumb. Other people I know who took it have poor memories of the time
on it. I was on it for three weeks about 8 years ago, and I can't
remember a thing from those three weeks. I'm going to try to do some
research on the Internet and see if I can come up with any studies
that prove this.

-RyAnne
Simple Partial Seizures for 8 years.
Absence Seizures as a child.

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