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Medical Forum / Diseases and Disorders / Epilepsy / February 2007Topamax and nosebleeds
Hi Group, Checking back in with my usual load of questions. ;-) Cody just had his second video EEG, which was more fruitful than the one last year. He is going into "Phase 2" with invasive monitoring, hopefully. (waiting for confirmation from the neurosurgical team) In the meantime, they've added Topamax to his Keppra. He's had 2 nosebleeds in the past 24 hours, and I looked it up online. Seems to be a side effect which is more common in kids, but still listed as uncommon. Has anyone here experienced this? Will it go away? Is it something I need to call the doctor about tomorrow, or just wait until he calls me this week about the next step in monitoring? Thanks ! Holly  SignatureHolly F. Sox, RN, RAC-CT Clinical Services Manager Robin Technologies www.careplans.com holly@careplans.com Have been using Topamax (Topimax) for 3 months now and have been exp. only one nosebleed during the period (age 40). It happened during sleep and as far as the blood track on the pillow showed it was quite hefty. Otherwise no problems with noosebleeding. Regards. Pete. > Hi Group, > [quoted text clipped - 15 lines] > > Holly Thanks, Pete, I was FINALLY able to talk with my son's doctor today after 2 weeks of waiting. (A whole other story) He had never heard of nosebleeds being associated with Topamax use. I told him that the Topamax website as well as the PDR listed it as a side effect that is more common in kids/adolescents. He said "Really?? I have never heard this before." I said, "Doc, you are learning something from me." He replied, "You know, sometimes I think moms and dads know more than doctors do. We should just listen to you." Wow..... someone gets it. ;-) Holly SignatureHolly F. Sox, RN, RAC-CT Clinical Services Manager Robin Technologies www.careplans.com holly@careplans.com > Have been using Topamax (Topimax) for 3 months now and have been exp. only > one nosebleed during [quoted text clipped - 23 lines] >> >> Holly > I was FINALLY able to talk with my son's doctor today after 2 weeks of > waiting. (A whole other story) [quoted text clipped - 3 lines] > effect that is more common in kids/adolescents. He said "Really?? I > have never heard this before." I think it must be just children though - I turned 41 earlier this month, and I was on Topamax for several years with absolutely no side effects whatsoever approx two years ago. My neuro' just decided he wanted to try something new to try to rid of my Partials, Complex Partials, and Tonics as well as just my Tonic-Clonic's, so he took me off Topamax and put me on Keppra, which seems to be giving me more side effects than I had before - but I'm being weened off that too now! If this med' is giving your kid nosebleed, you know that you must consult your neuro'/paediatrician to change it to a milder med perhaps, as it sounds much too strong for his body to handle. Maybe when he gets older though it might be prescribed to him again. I remember when I was a child though, I was first given Epilim, by my Paediatrician, followed combined with Phenytoin in my teens a few years later and wasn't offered Topamax till I was in my mid-thirties, but I guess it all depends on the type/s of seizures we have, which meds our doctors give us eh? Sofie SignaturePlease visit my deviantART page: http://sofen.deviantart.com/ > If this med' is giving your kid nosebleed, you know that you must consult > your neuro'/paediatrician to change it to a milder med perhaps, as it > sounds much too strong for his body to handle. Maybe when he gets older > though it might be prescribed to him again. What's so frustrating is that we have tried just about everything else. He had a bad reaction to Lamictal. He's on the maximum adult dose of Keppra and continues to have 4-6 seizures a month. I've taken him off the Topamax, and no more nosebleeds, but he had 2 seizures this week. So I guess I will start it back very slowly and hope he can tolerate it. Thanks, Sofia, for the info. Holly > What's so frustrating is that we have tried just about everything else. > He had a bad reaction to Lamictal. He's on the maximum adult dose of > Keppra and continues to have 4-6 seizures a month. I've taken him off > the Topamax, and no more nosebleeds, but he had 2 seizures this week. So > I guess I will start it back very slowly and hope he can tolerate it. Glad to hear you actually discovered the cause of your sons nosebleeds - sometimes it takes a little time to discover which medication is the actual culprit if he's taking several at once! I actually heard the maximum adult dose of Keppra was something like 4000mg, though it sounds extraordinarily high for a child! I was only on 1500mg twice daily but my neuro' halved it as he's trying to ween me off it, so now I'm on 750mg twice daily, but I also take 800mg Tegretol Retard twice daily, and 150mg Zonisamide twice daily too. Anyway nice to hear his nosebleeds are getting better - hope it works out for him Sofie SignaturePlease visit my deviantART page: http://sofen.deviantart.com/ Thanks, Sofia. He is taking 4000 mg Keppra/day. He takes 2 gms in the morning and 2 gms in the evening. He started back on the Topamax Friday... we'll see if the nosebleeds come back. Holly SignatureHolly F. Sox, RN, RAC-CT Clinical Services Manager Robin Technologies www.careplans.com holly@careplans.com > >> What's so frustrating is that we have tried just about everything else. [quoted text clipped - 17 lines] > > Sofie
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