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Medical Forum / Diseases and Disorders / Epilepsy / September 2003

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changes in siezures

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RICHARD SCHMITZ - 26 Sep 2003 06:31 GMT
Hello. I have grand mal siezures, about once every 6-8 months, but I've gone
1 1/2 years between siezures or 3 months apart. This began when I was in my
early 30s. I take dilantin. Three months ago I began to get siezures that
did not go all the way, just the aura part (couldn't read), and then I would
have to sleep for 3 hours. But these are coming every few weeks. Began after
a death in the family, so I have been told its anxiety disorder and I take
atavan when I feel it happening. Any thoughts?
Richard in Alaska
billx - 26 Sep 2003 19:43 GMT
Hi Richard,

I started taking Dilantin three months ago after having one grand mal and
haven't had any seizures involving loss of motor control since.  However
within the past month I started having what might be described as panic
attacks accompanied by my auro (which is strong tingling down right side).
Had my blood levels tested twice and second time it came back normal so
eliminated that as the problem.  Focusing on relaxing when the sensation
strikes seems to help.  There are drugs for anxiety (like Atavan) but I
wouldn't take them as being on the Dilantin is bad enough.  IMHO mixing
meds. is something to be avoided.  Hope things work out for you though.

Regards, Bill

> Hello. I have grand mal siezures, about once every 6-8 months, but I've gone
> 1 1/2 years between siezures or 3 months apart. This began when I was in my
[quoted text clipped - 4 lines]
> atavan when I feel it happening. Any thoughts?
> Richard in Alaska
gaross - 29 Sep 2003 19:27 GMT
 I don't think I ever used Atavan ( below) while I used Dilantin for
Temporal Lobe (Complex Partial) seizures.   But I had such crumbie control
with Dilantin while others here have been able to use it without much
problem.
  Within about 6 months, we moved over (mine) to Tegretol Controlled
Release and after about 12-18 months my 2-3 szrs. a month dropped to 1-2 in
6 months to zero now since 1998.  (I use a second med. with the Tegretol
reduced dose since 1996 - 2 years into tegretol.)

  That's not why I posted here.  Your Doctor will determine what is 'bad
enough for you'.  Granted you should be in charge of your own treatment and
decisions for health, but 'mixing meds. is bad enough' without a
Pharmacist's Licence is probably not wise advice.
  I used Atavan Sublingual (1mg tablet that goes under the tongue if you
feel Aura that precedes a Complex Partial and some other szr. types).    It
meant the difference between a wasted trip to Emerg. when I lost
consciousness in the middle of a Large Shopping Centre, and a 5 minute 'sit
down' until the Aura Cleared and the atavan got into my bloodstream.
  It's also used for some people with Strokes? and other conditions too.
The last Atavan I used was when I responded to help someone injured in a car
accident (1998), and just ahead of my Daughter's Wedding ("who gives away
this young lady.. etc.").
   I haven't needed it or used it since then.   But while we were getting
to a Stable Level of the Tegretol and Frisium, it saved me Several trips to
Hospital by relaxing the C.P. seizure onset.   It may not be the alternative
of choice for some Meds. or seizure types, but it's a relaxant that might be
enough to prevent having to move to other or stronger meds, if the
conditions are caused by e.g. reaching the optimum level for a particular
pill (discussed a few days ago while I was away),  OR while levels get
stabilized for your metabolism, body weight, etc.    Some of the AEDs that
work for a 'semi-sedentary' person of130 pounds, might not work properly for
a Cross Country Runner who runs 50 Km a day, but weighs 200 lbs....

 Atavan is Potentially habit forming, but I was careful not to over-use it,
since it worked so well *for me* that I didn't want to lose that control
when I was going into a Large Crowd (meeting) of 150 people or other
stressful environments that might affect some of us C.P.ers. It is also a
Relaxant, so you might be tempted to curl up somewhere an hour later for a
nap.  Other than that I had no problems with it.  (I think it's one that
shouldn't be used with Alcohol too, but Most of the Anti-Ep. Drugs (AEDs)
have that on the advisories anyway.)

 ***BOY!!***  While I was away, and Since back, this Norton Virus scanner
has trapped about 100-130 of those swen worms!!  Too bad I don't go FISHING
for Swens...
  I Hope y'all have up to date Virus Scanners in place.   No point bringing
Fresh Infections here...  Just keep our Infectious sense de Humours.

O.T.Beaches were Excellent,  Bride was Radiant,  Groom is now Married and
Committed so I can sleep nights.   G./

> Hi Richard,
> I started taking Dilantin three months ago after having one grand mal and
[quoted text clipped - 21 lines]
> > atavan when I feel it happening. Any thoughts?
> > Richard in Alaska
gaross - 29 Sep 2003 23:51 GMT
Minor Correction (for speelchekers).  Ativan (Lorazepam) is spelled that
way, Not Atavan  as  I spelled it on earlier note (below also).  G.

"gaross"  wrote in message ...
>   I don't think I ever used Atavan ( below) while I used Dilantin for
> Temporal Lobe (Complex Partial) seizures.   But I had such crumbie control
[quoted text clipped - 5 lines]
> consciousness in the middle of a Large Shopping Centre, and a 5 minute 'sit
> down' until the Aura Cleared and the atavan got into my bloodstream.
<ditto snippo>

>   Atavan is Potentially habit forming, but I was careful not to over-use it,
> since it worked so well *for me* that I didn't want to lose that control
[quoted text clipped - 7 lines]
> O.T.Beaches were Excellent,  Bride was Radiant,  Groom is now Married and
> Committed so I can sleep nights.   G./

 At least til we get Dave hitched....

> "billx" wrote in message
> > Hi Richard,
[quoted text clipped - 11 lines]
> > "RICHARD SCHMITZ" wrote in message
> > > Hello. I have grand mal siezures, about once every 6-8 months, but
I've  gone
> > > 1 1/2 years between siezures or 3 months apart. This began when I was
in my
> > > early 30s. I take dilantin. Three months ago I began to get siezures
that
> > > did not go all the way, just the aura part (couldn't read), and then I
would
> > > have to sleep for 3 hours. But these are coming every few weeks. Began
after
> > > a death in the family, so I have been told its anxiety disorder and I
take
> > > atavan when I feel it happening. Any thoughts?
> > > Richard in Alaska
Michael - 27 Sep 2003 14:10 GMT
Hi Richard

Could be anxiety disorder; however, it could also
be partial seizures due to your body building up a
tolerance to the Dilantin. Unfortunately, stress (such
as the death of a family member) can lead to an anxiety
dirorder and stress is also a major trigger for many
persons with  seizure disorders.

My advice is always....talk with your neurologist. If you
honestly feel that he/she is not meeting your needs, find
someone else.

Good luck!
Michael

> Hello. I have grand mal siezures, about once every 6-8 months, but I've gone
> 1 1/2 years between siezures or 3 months apart. This began when I was in my
[quoted text clipped - 4 lines]
> atavan when I feel it happening. Any thoughts?
> Richard in Alaska
Richard Stickman - 27 Sep 2003 18:40 GMT
Hi,
Coming sso soon after a loss in your family, I would suggest the change is
due tto your greiving and  stress,  etc?????
Hope you are ssoon well, Ricch.

> Hello. I have grand mal siezures, about once every 6-8 months, but I've gone
> 1 1/2 years between siezures or 3 months apart. This began when I was in my
[quoted text clipped - 4 lines]
> atavan when I feel it happening. Any thoughts?
> Richard in Alaska
Julie - 30 Sep 2003 23:50 GMT
Hi Richard, welcome to the group.  We have a couple things in common.  I have
grand mal (tonic clonic) seizures also and I grew up in the Matanuska Valley
(that's in Alaska for those of you who are OUTSIDE in the lower 48 or other
parts of the world).

Several years ago I was having panic attacks that the neruo said could be a type
of seizure that could lead to tonic clonic seizures.  I made note of what was
happening and kept the doctor informed.  I pay close attention to what my body
is telling me and try to keep my life stress free.  The panic attacks went away
and I haven't had a tonic clonic seizure for over 8 years now.

Take care,
Julie

> Hello. I have grand mal siezures, about once every 6-8 months, but I've gone
> 1 1/2 years between siezures or 3 months apart. This began when I was in my
[quoted text clipped - 4 lines]
> atavan when I feel it happening. Any thoughts?
> Richard in Alaska

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