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Medical Forum / Diseases and Disorders / Epilepsy / February 2007Frisium 10
Hi, When we used those drag. Doctor gave me it 2x10 mg probably as supportive in other drugs for epi. Orfiril, Lamitrin and Frisium. Doctor told me, that if Lamitrin didn't help me, he change Lanmitrin at Gabitril or Neurontil. And it's reason why I asked You for those drugs in other mail. I seek it but, it's still less for me. I saw that You help me much more. Thanx > Hi, > When we used those drag. Doctor gave me it 2x10 mg probably as [quoted text clipped - 4 lines] > You help me much more. > Thanx I use Tegretol CR (not the other drugs you are using), but had Frisium 10mg added in 1995 and 1996, for Complex Partial (Temporal Lobe) seizures. Like other pills it's important to take dose the Doctor says, and *not to miss any doses. That keeps level in blood stream, for better control. Take it with Food, Milk or Juice. (I *don't use Grapefruit Juice, since it conflicts with Tegretol, but Apple or other fruit juices without that are O.K. ) When I first used it we started at half a pill each morning and night (5mg), then raised it to 10mg at night, and 10mg in morning, when I still had some seizures. The *last seizure I had was June 1998. Before the Tegretol and Frisium (above), in 1993, my Doctor told me I could have 2-3 CP seizures each month **even with pills. But all my seizures stopped with those 2 pills. Frisium is usually taken with *Another Seizure pill (or 2 in your case), and it's important to take it at the rate they tell you, and not to *miss any doses or forget to take it. When the amount is reached for what he wants you to take, that will give you more even control if it works for you. If it doesn't, what he means is he might still have to use Frisium but he might change the Orifiril *or the Lamitrine (Lamictal ? ), to some other pill to try get better control. Each seizure type can be different (your's from mine) so that's why you will be using some different pills to mine. I had *no side effects, sleepness nights or other side effects from using Frisium, but my seizures have stopped, and I don't get the Aura or dizzy feelings I once did with just the Tegretol, as we got near full control. Let us know how you are doing as you try this. Other people might read here who use the same pills or have same seizure type as you, and they can learn from how well it works (or *doesn't work) for your seizure type. G./ >> Hi, >> When we used those drag. Doctor gave me it 2x10 mg probably as [quoted text clipped - 15 lines] >night (5mg), then raised it to 10mg at night, and 10mg in morning, when >I still had some seizures. It's interesting with this fruit etc. My doctor never said me about it. So, meaby I talk with him only about epi seizures etc, not about diet. And, when You took Frisium in 10 mg in morning Your seizyres Complex Partial was stopped? I take 10mg morning and 10mg evening, but it help not completly. What exaclyseizures have You got, that You must took Frisum? This same like me? > The *last seizure I had was June 1998. Before the Tegretol and >Frisium (above), in 1993, my Doctor told me I could have 2-3 CP >seizures each month **even with pills. But all my seizures stopped >with those 2 pills. How look like Your Complex Partial that doctor told You that You could have 2-3 per mouth? It's very good, that Your seizures stopped with 2 pills > Frisium is usually taken with *Another Seizure pill (or 2 in your >case), and it's important to take it at the rate they tell you, and not [quoted text clipped - 4 lines] >but he might change the Orifiril *or the Lamitrine (Lamictal ? ), to >some other pill to try get better control. Exacly. Probably I will change Lamiitrin at Gabril or Neurontin. But why this? Docotr told me that I've main General. Lamitrin Is more effectly for General, but Gabril and Naurontin for CP. For General only a bit. > Each seizure type can be different (your's from mine) so that's why >you will be using some different pills to mine. I had *no side >effects, sleepness nights or other side effects from using Frisium, but >my seizures have stopped, and I don't get the Aura or dizzy feelings I >once did with just the Tegretol, as we got near full control. I'm happy that You don't have a seizures. I wish You a good health and Your seizures never back. > Let us know how you are doing as you try this. Other people might >read here who use the same pills or have same seizure type as you, and >they can learn from how well it works (or *doesn't work) for your >seizure type. G./ I have got a questions for You. Could You work physically? My doctor told me, that I can't. And I can't work in the night. I added some new comments at **s and bottom, as I didn't see your note on 6th until now.. ! :-< > >> Hi, > >> When we used those drag. Doctor gave me it 2x10 mg probably as [quoted text clipped - 10 lines] > >Doctor says, and *not to miss any doses. That keeps level in blood > >stream, for better control. Take it with Food, Milk or Juice. > > (I *don't use *Grapefruit Juice, since it conflicts with **Tegretol, > >but Apple or other fruit juices without that are O.K. ) > > When I first used it (*** I Meant FRISIUM Here !!) we started at half a pill each morning and night (5mg), then raised it to 10mg at night, and 10mg in morning, when > >I still had some seizures. > It's interesting with this fruit etc. My doctor never said me about > it. **G.--(The Grapefruit problem is **only with my Tegretol, not, so far as I know, with the Pills you are using.) // So, meaby I talk with him only about epi seizures etc, not about > diet. And, when You took Frisium in 10 mg in morning Your seizyres > Complex Partial was stopped? I take 10mg morning and 10mg evening, but [quoted text clipped - 8 lines] > have 2-3 per month? It's very good, that Your seizures stopped with 2 > pills. G. I had *complex partial seizures, and those ones start with dizzy feeling, then spread to where I'd lose consciousness and collapse. I'd wake up either when an Ambulance arrived or in the hospital. Later I'd wake up at home after about 1 hour, when I got closer to full control. Dates above are the last Large seizure I've had, and *no change in any pills since about 1995. (I still take them.) / > > Frisium is usually taken with *Another Seizure pill (or 2 in your > >case), and it's important to take it at the rate they tell you, and not [quoted text clipped - 19 lines] > >they can learn from how well it works (or *doesn't work) for your > >seizure type. G./ > I have got a questions for You. Could You work physically? My doctor > told me, that I can't. And I can't work in the night. ***G* Some people get tired more easily late at night. *That was never a problem for me (at home). I expect if I was working somewhere, where I might become over tired but not able to stop or rest, that I might risk more seizures. Usually when we get too tired we can get more risk of seizures than when we're more rested. I'm retired now, so can stop and rest whenever I want.. :-> G./ >I added some new comments at **s and bottom, as I didn't see your note >on 6th until now.. ! :-< Sorry. I send full news in last news. And in this I write at Your's news. >> >> Hi, >> >> When we used those drag. Doctor gave me it 2x10 mg probably as [quoted text clipped - 19 lines] >> it. **G.--(The Grapefruit problem is **only with my Tegretol, not, so far as I know, with the Pills you are using.) // > So, meaby I talk with him only about epi seizures etc, not about Meabe. But better is warning, so thanks for Your news, advise. >> diet. And, when You took Frisium in 10 mg in morning Your seizyres >> Complex Partial was stopped? I take 10mg morning and 10mg evening, but [quoted text clipped - 14 lines] > Dates above are the last Large seizure I've had, and *no change in any >pills since about 1995. (I still take them.) / So, after this that You had dizzy feeling, You falled down (at ground?) ? It's good that drug help You. Do You take the same doze of this drug still? I hope that You never get this again. Do You have other (for example) petit mal? I hope that know. >> > Frisium is usually taken with *Another Seizure pill (or 2 in your >> >case), and it's important to take it at the rate they tell you, and not [quoted text clipped - 28 lines] >of seizures than when we're more rested. > I'm retired now, so can stop and rest whenever I want.. :-> G./ When You worked few years ago etc, You work phisical or in night? If yes, do You had seizures? If I good understand, You musn't work yet, because You are in retired. Isn't it? If yes, I hope that Your health will be better now. What I wish You. It's all what I was and all Your's news without last. >> Hi, >> When we used those drag. Doctor gave me it 2x10 mg probably as [quoted text clipped - 15 lines] >night (5mg), then raised it to 10mg at night, and 10mg in morning, when >I still had some seizures. It's interesting with this fruit etc. My doctor never said me about it. So, meaby I talk with him only about epi seizures etc, not about diet. And, when You took Frisium in 10 mg in morning Your seizyres Complex Partial was stopped? I take 10mg morning and 10mg evening, but it help not completly. What exaclyseizures have You got, that You must took Frisum? This same like me? > The *last seizure I had was June 1998. Before the Tegretol and >Frisium (above), in 1993, my Doctor told me I could have 2-3 CP >seizures each month **even with pills. But all my seizures stopped >with those 2 pills. How look like Your Complex Partial that doctor told You that You could have 2-3 per mouth? It's very good, that Your seizures stopped with 2 pills > Frisium is usually taken with *Another Seizure pill (or 2 in your >case), and it's important to take it at the rate they tell you, and not [quoted text clipped - 4 lines] >but he might change the Orifiril *or the Lamitrine (Lamictal ? ), to >some other pill to try get better control. Exacly. Probably I will change Lamiitrin at Gabril or Neurontin. But why this? Docotr told me that I've main General. Lamitrin Is more effectly for General, but Gabril and Naurontin for CP. For General only a bit. > Each seizure type can be different (your's from mine) so that's why >you will be using some different pills to mine. I had *no side >effects, sleepness nights or other side effects from using Frisium, but >my seizures have stopped, and I don't get the Aura or dizzy feelings I >once did with just the Tegretol, as we got near full control. I'm happy that You don't have a seizures. I wish You a good health and Your seizures never back. > Let us know how you are doing as you try this. Other people might >read here who use the same pills or have same seizure type as you, and >they can learn from how well it works (or *doesn't work) for your >seizure type. G./ I have got a questions for You. Could You work physically? My doctor told me, that I can't. And I can't work in the night. > It's all what I was and all Your's news without last. > > [quoted text clipped - 19 lines] > > > It's interesting with this fruit etc. **** THE Grapefruit (I mentioned above) *only applies, so far as I know to Tegretol (Carbamazepine) and related Family of PILLS, not necessarily to Other Anti Epilepsy pills. I included that in case you might have been using Tegretol or Teg. XR or CR or Retard versions for ***Complex Partial Seizures*** . I've had NO pill changes since 1996 to either Frisium dose Or Tegretol dose I reached then. G./ My doctor never said me about > it. So, meaby I talk with him only about epi seizures etc, not about > diet. And, when You took Frisium in 10 mg in morning Your seizyres > Complex Partial was stopped? I take 10mg morning and 10mg evening, but > it help not completly. What exaclyseizures have You got, that You > must took Frisum? This same like me? ** My type seizures are listed above at **Grapefruit line. Others here might use Tegretol for other szr. types, but Frisium is usually an Add-on pill -- Added with a Primary (first) pill, like my Tegretol CR. G./ > > The *last seizure I had was June 1998. Before the Tegretol and > >Frisium (above), in 1993, my Doctor told me I could have 2-3 CP > >seizures each month **even with pills. But all my seizures stopped > >with those 2 pills. > How look like Your Complex Partial that doctor told You that You could > have 2-3 per mouth? It's very good, that Your seizures stopped with 2 > pills. **** The Doctor said above after seeing my EEGs and MRI scan of Brain Damage I had from Encephalitis in 1979. The seizures didn't **start until 1993**, when most of my tests were done. /G. > > Frisium is usually taken with *Another Seizure pill (or 2 in your > >case), and it's important to take it at the rate they tell you, and not [quoted text clipped - 4 lines] > >but he might change the Orifiril *or the Lamitrine (Lamictal ? ), to > >some other pill to try get better control. > Exacly. Probably I will change Lamiitrin at Gabril or Neurontin. But > why this? Doctor told me that I've main General. Lamitrin Is more > effectly for General, but Gabril and Neurontin for CP. For General > only a bit. *** You might be having some seizures of Both types, sometimes one type, sometimes another. One type might be starting, for example in one part of brain, and other times it might be starting in one of the Temporal Lobes (a part of brain behind cheeks, above your mouth inside). /G. > > Each seizure type can be different (your's from mine) so that's why > >you will be using some different pills to mine. I had *no side [quoted text clipped - 3 lines] > I'm happy that You don't have a seizures. I wish You a good health and > Your seizures never back. G./ > I have got a questions for You. Could You work physically? My doctor > told me, that I can't. And I can't work in the night. After the brain damage from the Encephalitis (to Right Temporal Lobe) that affected Memory and Learning, I wasn't able to work at what I was doing. My Insurance I had bought (with my Company) pays part of what I would have been paid to replace the work I can't do. That's why I'm retired, and in 2 years I'll be at "Normal Retirement Age" for Canada. (I'm not paid as much as I was being paid in 1980. ) /G. >> It's all what I was and all Your's news without last. >> > [quoted text clipped - 24 lines] >might have been using Tegretol or Teg. XR or CR or Retard versions for >***Complex Partial Seizures*** . Understand. So it's reason why he didn't talk me this. Because I don't take Carbamazepina or Oxcarbamazepina. But when I used this, he also have told me this > I've had NO pill changes since 1996 to either Frisium dose Or >Tegretol dose I reached then. G./ It's great news. Ot's good that drugs help You, and You haven't seizures. > My doctor never said me about >> it. So, meaby I talk with him only about epi seizures etc, not about [quoted text clipped - 7 lines] >Add-on pill -- Added with a Primary (first) pill, like my Tegretol CR. >G./ So it could be add-on Orfiril? I'm going to see with my doctor at tuesday or thursday. And we see does he change me drugs orr not. >> > The *last seizure I had was June 1998. Before the Tegretol and >> >Frisium (above), in 1993, my Doctor told me I could have 2-3 CP [quoted text clipped - 7 lines] >Damage I had from Encephalitis in 1979. The seizures didn't **start >until 1993**, when most of my tests were done. /G. So if I good understand, You haven't change(worst) in brain, since 1979 or 1993? >> > Frisium is usually taken with *Another Seizure pill (or 2 in your >> >case), and it's important to take it at the rate they tell you, and not [quoted text clipped - 14 lines] >Temporal Lobes (a part of brain behind cheeks, above your mouth >inside). /G. Understand. >> > Each seizure type can be different (your's from mine) so that's why >> >you will be using some different pills to mine. I had *no side [quoted text clipped - 14 lines] >"Normal Retirement Age" for Canada. (I'm not paid as much as I was >being paid in 1980. ) /G. So since You got brain demage, Insurence paid You some money, because You can't work. Am I right? So You have this for 2 years since now, and later You could work, and Insurenc will not paid You. Yes? Do You have this, that Your behavior is changing very offten per day? Since happy to sad? You are happy and suddenly You are sad, and in other side? > >> It's all what I was and all Your's news without last. > [quoted text clipped - 45 lines] > >> How look like Your Complex Partial that doctor told You that You could > >> have 2-3 per mouth? *** He had said that from MRI Scans and other tests they did in *1993-- that was when the seizures started not the older date. It took until about 1996 to get a pill mix that controlled my type of Right Temporal Lobe seizures. Last seizure I've had was 1998. / It's very good, that Your seizures stopped with 2 pills. > >**** The Doctor said above after seeing my EEGs and MRI scan of Brain Damage I had from Encephalitis in 1979. The seizures didn't **start until 1993**, when most of my tests were done. /G. So if I good understand, You haven't change(worst) in brain, since 1979 or 1993? --> G. Seizures started 1993, seizures stopped 1998. Pills still to now, that control seizures. / > >> > Frisium is usually taken with *Another Seizure pill (or 2 in your case), and it's important to take at rate they tell you, not *miss any doses or forget to take it. When the amount is reached --what he wants you to take, will give you more even control if it works for you. > >> > If it doesn't, what he means is he might still have to use Frisium but might change Orifiril *or the Lamitrine (Lamictal ? ), to some other pill to try get better control. [quoted text clipped - 15 lines] > >> I have got a questions for You. Could You work physically? My doctor > >> told me, that I can't. And I can't work in the night. **** The Insurance I paid for said I couldn't (shouldn't) work where I was-- it pays me part of what I used to get, while I'm not working-- that's what insurance pays for. Some of us are also more sensitive to Night Time or Low Light, causing some types of seizures. OR your Doctor might not want you to work where you can become over-tired. When we get too tired, we can have more risk of having a seizure. Other people might not be so sensitive, but *we are, and have to be careful, or the seizures can come back. / > > After the brain damage from the Encephalitis (to Right Temporal Lobe) that affected Memory and Learning, I wasn't able to work at what I was doing. My Insurance I had bought (with my Company) pays part of what I would have been paid to replace the work I can't do. That's why I'm retired, and in 2 years I'll be at "Normal Retirement Age" for Canada. (I'm not paid as much as I was being paid in 1980.) /G. So since You got brain demage, Insurance paid You some money, because > You can't work. Am I right? So You have this for 2 years since now, and later You could work, and Insurenc will not paid You. Yes? ** I've had it more than 20 years, and can't do the kind of work I used to, because of the Memory Damage where the seizures came from. I used to work 44-50 hours a week. I don't have to now. / > Do You have this, that Your behavior is changing very often per day? > Since happy to sad? You are happy and suddenly You are sad, and in > other side? **** I don't get that (it's sometimes listed on websites as "Moodswings" if you try any searches, where your mood can go rapidly from happy to sad etc. ?? ) I had more of those before I took more of the pills (Frisium and Tegretol for me, and when I got the seizures controlled, the Mood Swings stopped too. / G. >> >> It's all what I was and all Your's news without last. >> [quoted text clipped - 49 lines] >about 1996 to get a pill mix that controlled my type of Right Temporal >Lobe seizures. Last seizure I've had was 1998. / So drugs stops seizures and change damage in brain. Isn't it? > It's very good, that Your seizures stopped with 2 pills. >> >**** The Doctor said above after seeing my EEGs and MRI scan of Brain Damage I had from Encephalitis in 1979. The seizures didn't **start until 1993**, when most of my tests were done. /G. And You have Encephalitis still? You didn't have to this befor 1979? So what did it done? What is Encephalities exaclly? >So if I good understand, You haven't change(worst) in brain, since >1979 or 1993? --> G. Seizures started 1993, seizures stopped 1998. >Pills still to now, that control seizures. / So it's good that thanks drugs You haven't any seizures. >> >> > Frisium is usually taken with *Another Seizure pill (or 2 in your case), and it's important to take at rate they tell you, not *miss any doses or forget to take it. When the amount is reached --what he wants you to take, will give you more even control if it works for you. >> >> > If it doesn't, what he means is he might still have to use Frisium but might change Orifiril *or the Lamitrine (Lamictal ? ), to some other pill to try get better control. I was in my doctor. I told him about my headache and this hand. He said "ups" :) and I must take in this day extra pills. Ones more Orfiril 600 mg, so even it will be at the evening I must take 1200 not 600 or for example if I took in evening 600 and have a worst evening so I must immidiatlly take this drugs ones again. I read my cards of life which is at the doctor. He wrote "probably petit mal (simple seizures) which is with or because grand mal. >> >> Exacly. Probably I will change Lamiitrin at Gabril or Neurontin. But >> >> why this? Doctor told me that I've main General. Lamitrin Is more [quoted text clipped - 9 lines] >> >> I'm happy that You don't have a seizures. I wish You a good health and >> >> Your seizures never back. G./ Thanks. I wish You too. :) >> >> I have got a questions for You. Could You work physically? My doctor >> >> told me, that I can't. And I can't work in the night. [quoted text clipped - 7 lines] >sensitive, but *we are, and have to be careful, or the seizures can >come back. / Exaclly. In hard work I could take a seizures. When I have EEG when is fast breathing I have then a seizures too. When You have a EEG have You the same? >> > After the brain damage from the Encephalitis (to Right Temporal Lobe) that affected Memory and Learning, I wasn't able to work at what I was doing. My Insurance I had bought (with my Company) pays part of what I would have been paid to replace the work I can't do. That's why I'm retired, and in 2 years I'll be at "Normal Retirement Age" for Canada. (I'm not paid as much as I was being paid in 1980.) /G. > So since You got brain demage, Insurance paid You some money, because >> You can't work. Am I right? So You have this for 2 years since now, and later You could work, and Insurenc will not paid You. Yes? > ** I've had it more than 20 years, and can't do the kind of work I >used to, because of the Memory Damage where the seizures came from. >I used to work 44-50 hours a week. I don't have to now. / So now is better, isn't it? If yes I'm happy. >> Do You have this, that Your behavior is changing very often per day? >> Since happy to sad? You are happy and suddenly You are sad, and in >> other side? >**** I don't get that (it's sometimes listed on websites >as "Moodswings" if you try any searches, where your mood can go >rapidly from happy to sad etc. ?? ) That's right. > I had more of those before I took more of the pills (Frisium and >Tegretol for me, and when I got the seizures controlled, the Mood >Swings stopped too. / G. Understand. You know, probably Carbamazepina and Oxycarbamazepina have that behavior is better and calm our mood. But I don't know why, in my example isn't work :) Now frisium a bit work but we will see how long and how much. Now isn't much.
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