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Medical Forum / Diseases and Disorders / Epilepsy / January 2007Neurontin
Hi, Do somebody know when is Neurontin used? What sort of epi etc. Thanks > Hi, > Do somebody know when is Neurontin used? What sort of epi etc. > > Thanks It is also used fror partial seizures and certain nerve disorders: http://www.neurontin.com/ >> Hi, >> Do somebody know when is Neurontin used? What sort of epi etc. [quoted text clipped - 3 lines] >It is also used fror partial seizures and certain nerve disorders: >http://www.neurontin.com/ In Your opinion it's more for nerve disorders or partial seizures? >>> Hi, >>> Do somebody know when is Neurontin used? What sort of epi etc. [quoted text clipped - 4 lines] > > In Your opinion it's more for nerve disorders or partial seizures? It is one that I take myself and it is the first one that gave me any help. It was not enough help, but it did help some. I still take it for epi and so do a lot of other people. But maybe you ask what percentage is used for nerve disorders and what percent for epi. I don't know the actual percentages, but I do know that it is popular for peripheral neuropathy where the nerves cause pain in the extermities/peripherals (feet and hands). A personal friend takes Neurontin/gabapentin for that. >>>> Hi, >>>> Do somebody know when is Neurontin used? What sort of epi etc. [quoted text clipped - 14 lines] >extermities/peripherals (feet and hands). A personal friend takes >Neurontin/gabapentin for that. So if my feet and hand sometimes tremble a short time (from a few seconds to about 2 minutes) and sometimes jump back, is it a good drugs? My old doctor thought that it's mioclonic, but a new doctor told me that it's a petit mal. Now when I take frisium my hand doesn't jump back, but still foots and hands tremble. You can also that, or You can only (at the luck) Grand mal? I wish You good health and never seizures Best wishes >>>>> Hi, >>>>> Do somebody know when is Neurontin used? What sort of epi etc. [quoted text clipped - 16 lines] > seconds to about 2 minutes) and sometimes jump back, is it a good > drugs? That is a different situation. In your case, that is your seizures causing that. People with peripheral neuropathy have pain and their nerve condition is different than your seizures. Therefore, we can't learn anything from that situation that would tell us if Neurontin/gabapentin would help you. It might, but we can't tell from that. > My old doctor thought that it's mioclonic, but a new doctor > told me that it's a petit mal. That's interesting. > Now when I take frisium my hand doesn't > jump back, but still foots and hands tremble. Do you ever have a grand mal any more? or was that only years ago? >> So if my feet and hand sometimes tremble a short time (from a few >> seconds to about 2 minutes) and sometimes jump back, is it a good [quoted text clipped - 5 lines] >situation that would tell us if Neurontin/gabapentin would help you. It might, >but we can't tell from that. For about one-two weeks I'm going to doctor. Probably he will give me Neurontin or Gabapentin. So this what I wrote in Your opinion are seizures petit mal or something what is caused my seizures? >> My old doctor thought that it's mioclonic, but a new doctor >> told me that it's a petit mal. > >That's interesting. Yes, I'll also was surprised. But when I told him that other doctor (his colleague) told that it's petit mal he said "It could be this" >> Now when I take frisium my hand doesn't >> jump back, but still foots and hands tremble. > >Do you ever have a grand mal any more? or was that only years ago? I allways had a grand mal. And allways is epileptic state. Also my last seizures was 10 years ago (grand mal) and when was tring to stopped taking drugs for me, in EEG still was seizures. Every years, EEG was the badest. Seizures was registered in whole brain, and fires was more and more. Offen waves fast with slowly. Since about year or two, as I see started that I heard that somebody shout me, but didn't or sound which wasn't. I have absence and what I told You this with my hands and legs. Because the EEG is sa bad, a both doctors told me that probably I will never stopped drugs, and at least nearest time. In RMI I have something change. Probably it's not very danger, but it probably had get when I had first seizures and was 10 hours without consciousness. Just like heart. And probably this change in the brain could doing my seizures. Angels wrote: <edited> > So if my feet and hand sometimes tremble a short time (from a few > seconds to about 2 minutes) and sometimes jump back, [quoted text clipped - 8 lines] > Yes, I'll also was surprised. But when I told him that other doctor > (his colleague) told that it's petit mal he said "It could be this" Whether they are defined as petit mal or myoclonic would seem to depend on whether the muscle twitching sometimes has (eye) staring and momentary loss of consciousness to go along with it. I'm not so sure that these names are very helpful to an understanding and the description of what really happens to you is the most important part. Here is some information. * Myoclonic seizures. Myoclonic seizures may cause the muscles to jerk and twitch in a part of the body such as an arm or leg, or in the whole body. * Petit Mal (Absence seizures) Absence seizures, also called petit mal (which means "little sickness"), cause a momentary loss of consciousness. These episodes usually last less than 30 seconds and may be so brief that they go unnoticed. People with absence epilepsy can experience as many as 50 to 100 of these seizures a day. They may look as though they are simply staring off into space or they may go rigid or jerk and twitch. The website has good descriptions. http://www.ehealthmd.com/library/epilepsy/EPI_kinds.html >>> Now when I take frisium my hand doesn't >>> jump back, but still foots and hands tremble. >> Do you ever have a grand mal any more? or was that only years ago? > > I allways had a grand mal. And allways is epileptic state. Also my > last seizures was 10 years ago (grand mal) and when was tring to > stopped taking drugs for me, I'm still confused about that. :-) Let me ask - Did you have a grand mal in 2006? In 2005? I had thought that the last full grand mal you had was 10-11 year ago and that you now had arm & leg twitching. > in EEG still was seizures. Every years, > EEG was the badest. Seizures was registered in whole brain, and fires [quoted text clipped - 3 lines] > hands and legs. Because the EEG is sa bad, a both doctors told me that > probably I will never stopped drugs, and at least nearest time. There aren't very many of us who will ever be able to stop using the drugs. I will never be able to stop. You are not alone there. > In RMI > I have something change. Probably it's not very danger, but it > probably had get when I had first seizures and was 10 hours without > consciousness. Just like heart. And probably this change in the brain > could doing my seizures. Is that a recent change in your MRI? Do you mean there was a new one in the year 2006 that was different than years before? What was different? Did they tell you what it was? The event you had when you were 6 1/2 years old probably wasn't a seizure, but is probably responsible for the later problems. I remember that one doctor said it was cytomegalia. >Angels wrote: <edited> >> [quoted text clipped - 20 lines] >Myoclonic seizures may cause the muscles to jerk and twitch in a part of the >body such as an arm or leg, or in the whole body. Could it be, for a few seconds to about one-two minutes? Just like me. >* Petit Mal (Absence seizures) >Absence seizures, also called petit mal (which means "little sickness"), cause a [quoted text clipped - 3 lines] >though they are simply staring off into space or they may go rigid or jerk and >twitch. Becouse a few people know about my seizures and know what is what and I spend not many time with him, I can't told You how many times I have got a day. I know that ceintanty 2-3 per day, that it could be not every day. I don't know is it reason that I have drugs for it, or I've got I and it doesn't it. Look, my doctor told eny day, that it isn't. Just like Myoclonic seizures. Exaclly he said that I have myoclonic, but it have every people? (?) What surprisly me. And when I goes to second doctor, he said as You know with other news, that it's Myoclonic Seizures (exaclly Petit mal). >The website has good descriptions. >http://www.ehealthmd.com/library/epilepsy/EPI_kinds.html [quoted text clipped - 11 lines] >2006? In 2005? I had thought that the last full grand mal you had was 10-11 year >ago and that you now had arm & leg twitching. No probably I didn't have in this years Grand mal. Someday doctor told that I could be in the night, but he's not sure. Yes, You've got right. But why in results EEG I still have more bad and more seizures register? What does it mean? >> in EEG still was seizures. Every years, >> EEG was the badest. Seizures was registered in whole brain, and fires [quoted text clipped - 6 lines] >There aren't very many of us who will ever be able to stop using the drugs. I >will never be able to stop. You are not alone there. It's pity, that You must take drugs for a full life. But You know what? I don't know what exaclly doctor had a mind, but it's getting to started experince that epi could be stopped when You take very big dose of steroid. But it does that Your immunological system stopped. And they experience with people this. >> In RMI >> I have something change. Probably it's not very danger, but it [quoted text clipped - 5 lines] >2006 that was different than years before? What was different? Did they tell you >what it was? When I was first time (I can't remember how many years ago, about 5 (?) ) I was main change in occipital. Now it didn't write about it an result. It was that I have "moderate widening of grooves both of cerebral hemispheres on the background of the small cortical disappearance" And it could be due when I was first seizure (grand mal and was 10 hours without concusioness). But for a first MRI, doctor told me that if was change so, it change will be always. So I don't know what is'it and how it's with that. Organic change isn't stopped or disapper. >The event you had when you were 6 1/2 years old probably wasn't a seizure, but >is probably responsible for the later problems. I remember that one doctor said >it was cytomegalia. Yes, You've got right. But later he didn't said about it. Said only that we don't know which is reason. The thout that it was some type of fever. But I didn't it. And why I was full symtoms Grand mal? They wanted me brain surgery olso. >> Angels wrote: <edited> >> >> * Myoclonic seizures. >> Myoclonic seizures may cause the muscles to jerk and twitch in a part of the >> body such as an arm or leg, or in the whole body. > Could it be, for a few seconds to about one-two minutes? Just like me. That's probably the case. >> * Petit Mal (Absence seizures) >> Absence seizures, also called petit mal (which means "little sickness"), cause a [quoted text clipped - 3 lines] >> though they are simply staring off into space or they may go rigid or jerk and >> twitch. > Becouse a few people know about my seizures and know what is what and > I spend not many time with him, I can't told You how many times I have > got a day. I know that ceintanty 2-3 per day, So the people who know you well enough are with you only long enough to see you have 2-3 in a day and perhaps you would know about more if they saw you for a longer time? > that it could be not every day. Then you think there is no reason why other days would be any different and it must be the same number, or almost the same number, every day? > I don't know is it reason that I have drugs for it, or I've > got I and it doesn't it. Look, my doctor told eny day, that it isn't. > Just like Myoclonic seizures. Exaclly he said that I have myoclonic, > but it have every people? (?) You mean some leg jerks at night? My doctor also said that was normal. But the twitching during your seizures would certainly be worse without your leks and could become a Grand Mal without them. > What surprisly me. And when I goes to > second doctor, he said as You know with other news, that it's > Myoclonic Seizures (exaclly Petit mal). There is a close connection it seems. My understanding is that those types of seizures all come from the frontal lobes. I used to think that you had temporal lobe partial seizures, but I see now that your partial seizures are from the frontal lobes. >> I'm still confused about that. :-) Let me ask - Did you have a grand mal in >> 2006? In 2005? I had thought that the last full grand mal you had was 10-11 year >> ago and that you now had arm & leg twitching. > No probably I didn't have in this years Grand mal. Someday doctor told > that I could be in the night, but he's not sure. Yes, You've got > right. This is good then. It means that your drugs are helping. If I understand correctly, your condition does not include *Primary* Generalized seizures. Yours would be *Secondarily* Generalized and they would come only from a Partial seizure that got out of control. If the Partial Seizure is controlled (to some extent) then it does not become *Secondarily* Generalized into a Grand Mal. > But why in results EEG I still have more bad and more seizures > register? What does it mean? >>> in EEG still was seizures. Every years, >>> EEG was the badest. Seizures was registered in whole brain, and fires >>> was more and more. Offen waves fast with slowly. I haven't studied what effect, if any, the drugs would have on the brain waves, so I can't answer that question. Let me just say that, if you aren't having actual Grand Mal seizures, then it doesn't matter what the EEG says. You aren't having Grand Mals. >>> Since about year or >>> two, as I see started that I heard that somebody shout me, but didn't >>> or sound which wasn't. I have absence and what I told You this with my >>> hands and legs. Because the EEG is sa bad, a both doctors told me that >>> probably I will never stopped drugs, and at least nearest time. >> There aren't very many of us who will ever be able to stop using the drugs. I >> will never be able to stop. You are not alone there. > It's pity, that You must take drugs for a full life. It only means that I have to take a few pills every day. That's not so bad. > But You know > what? I don't know what exaclly doctor had a mind, but it's getting to > started experince that epi could be stopped when You take very big > dose of steroid. But it does that Your immunological system stopped. > And they experience with people this. They should stop getting people's hopes up like that. >>> In RMI >>> I have something change. Probably it's not very danger, but it [quoted text clipped - 14 lines] > know what is'it and how it's with that. Organic change isn't stopped > or disapper. I see and there was a misunderstanding. Just a little language problem. :) The first MRI showed the condition which was a *change* from normal. The most recent MRI does not show any change from that previous observation, only that the "change from normal" condition is still there and hasn't gotten worse. >> The event you had when you were 6 1/2 years old probably wasn't a seizure, but >> is probably responsible for the later problems. I remember that one doctor said [quoted text clipped - 3 lines] > fever. But I didn't it. And why I was full symtoms Grand mal? They > wanted me brain surgery olso. >>> Angels wrote: <edited> >>> [quoted text clipped - 26 lines] >Then you think there is no reason why other days would be any different and it >must be the same number, or almost the same number, every day? Yes, I don't know what is the reason. It's not this same number of this behavior. But I have it every day. I think that in evening is this more. And You know what? Usually it's only one side of my body. Right or left. >> I don't know is it reason that I have drugs for it, or I've >> got I and it doesn't it. Look, my doctor told eny day, that it isn't. [quoted text clipped - 4 lines] >twitching during your seizures would certainly be worse without your leks and >could become a Grand Mal without them. Yes, at night. But since I took drugs (Frisium and Lamitrin) this is much less but is still. >> What surprisly me. And when I goes to >> second doctor, he said as You know with other news, that it's [quoted text clipped - 4 lines] >lobe partial seizures, but I see now that your partial seizures are from the >frontal lobes. Hm. Once day ago, doctor told me that it's temporal lobe. But now I didn't ask him, was it still the same. >>> I'm still confused about that. :-) Let me ask - Did you have a grand mal in >>> 2006? In 2005? I had thought that the last full grand mal you had was 10-11 year [quoted text clipped - 9 lines] >seizure that got out of control. If the Partial Seizure is controlled (to some >extent) then it does not become *Secondarily* Generalized into a Grand Mal. Hm. You know, a few years ago, doctor also thought that I have secondary generalized. But know he's sure that primary. If I good understand him, I could get primary generalized, petit mal, or Partial seizures which to do Grand mal (secondary generalized). But as You know, I don't talk enoght about this with my doctor, and I thought and saw that he didn't told me anything in time. After a (for example) few mouths he told me that was worst, that my last EEG was worst what now (when I was last - not in this) he said that isn't bad, etc. >> But why in results EEG I still have more bad and more seizures >> register? What does it mean? [quoted text clipped - 6 lines] >actual Grand Mal seizures, then it doesn't matter what the EEG says. You aren't >having Grand Mals. My EEG was anytime bad. Was waves, waves slow-fast, fires etc, or every thing of this. But in almost every result EEG was that I have seizures. Also doctor wrote this in results EEG. As You know my last Grand Mal was about 10 years ago, when he stopped me drugs. After about 3 month after stopped taking drus by me. >>>> Since about year or >>>> two, as I see started that I heard that somebody shout me, but didn't [quoted text clipped - 8 lines] > >It only means that I have to take a few pills every day. That's not so bad. So good. I wish You that every day will be averything good. >> But You know >> what? I don't know what exaclly doctor had a mind, but it's getting to [quoted text clipped - 27 lines] >MRI does not show any change from that previous observation, only that the >"change from normal" condition is still there and hasn't gotten worse. Sorry, my language is still improved. :) Yes, it's good that it's nod worse that ago. I told You, that about 12-15 years ago, doctor thought that I have tumor or something other like this. But after a few years since this happened, he said that it was it this. And as You know, and I wrote a times ago, he not this ago, he said that he's sure that it's not this. >>> The event you had when you were 6 1/2 years old probably wasn't a seizure, but >>> is probably responsible for the later problems. I remember that one doctor said [quoted text clipped - 3 lines] >> fever. But I didn't it. And why I was full symtoms Grand mal? They >> wanted me brain surgery olso. are these myclonic seizures bad is you have grand mals? does this mean it ends up badly like uncontrollable shaking? this scares me, i have been doing the jerking every now and again, sometimes just one sometimes a few in a hour. this line right here is what scares me:Progressive myoclonic epilepsy: The rare syndromes in this category feature a combination of myoclonic seizures and tonic-clonic seizures. Treatment is usually not successful for very long, as the patient deteriorates over time.DETERIORATES OVER TIME? does that mean i could end up in a wheel chair or worse? Now im scared!! > >>>> Hi, > >>>> Do somebody know when is Neurontin used? What sort of epi etc. [quoted text clipped - 24 lines] > > Best wishes > are these myclonic seizures bad is you have grand mals? does this mean it > ends up badly like uncontrollable shaking? this scares me, i have been doing [quoted text clipped - 4 lines] > very long, as the patient deteriorates over time.DETERIORATES OVER TIME? > does that mean i could end up in a wheel chair or worse? Now im scared!! You probably don't need to worry about that one. It's rare and if you had it you would know by now. The symptoms that you have reported here in the past would not line up with such a diagnosis. Relax! :) That's right. Probably this is reason why I have Grand mal, and I must take diffrent drugs to haven't got grand mal or my haed so many pain that this also could started Grand Mal. I compassion You. And Your drugs doesn't help it to stopped it? Have You got any Grand Mal? I cheer up. So, that I have that, it doesn't mean that You must also have that. You know, I started Grand Mal when I was 6,5 years. Myoclonic seizures I and other my close person saw from about 1-2 years. Also doctor don't know is that Petit mal since when I started had Grand mal, or for a few years. Probably I've got both and Petit could started Grand and this could have a one reason. But it's only suspicion. So don't worry about You. Have You got MRI or something that? What is in Your result EEG? I wish You good health >are these myclonic seizures bad is you have grand mals? does this mean it >ends up badly like uncontrollable shaking? this scares me, i have been doing [quoted text clipped - 37 lines] >> >> Best wishes
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