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Medical Forum / Diseases and Disorders / Epilepsy / December 2006

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cluster?

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flopper - 21 Dec 2006 20:59 GMT
I had posted before, as you can see. When I saw my Epi. last week he
informed me he had not YET gotten any info. about my brief stay from
the hospital. It had been 6 months now. As you can imagine I was far
from happy. I informed him that I had heard from "some one", that they
had heard from "some one" that it was classified as a cluster. Of
course I was rather out of it @ the hospital. So my question is, is a
cluster basically the same as statis, just another word meaning the
same, or was I so loopy they were convinced it was just a "normal"
cluster. And what is a normal cluster anyway? Do you come back
logically like you do after a normal seizure?  The hospital only had my
word to go on since I had been the only one there. Now I wonder what I
told them. :o)
Thanks!

From:  flopper - view profile
Date:  Mon, Sep 25 2006 10:44 am

Not long ago I had a rather long seizure. About a day & a half later,
when I came to the conclusion it was not gonna stop I was hauled to the

hospital. Unlike my "normal" flops I was some what "with it" during
this time. I first thought it might be a stroke when the arm & leg on
one side was not working. It was dead weight. I came to the conclusion
it was not a stoke when I was thinking somewhat clear. I was in & out
most of the day. The leg was pretty much worthless most of the day &
the following day, although not as bad. During the evening I had the
leg doing the spasm ordeal.
I guess my question is was that classified as an epilepsia partials
continua or just a statis epilepticus or neither?

Thanks!
G. - 22 Dec 2006 00:40 GMT
Do you know if they ran an EEG (ElectroEncephalograph) as part of
the tests while you were in hospital?  If they did, why hasn't the Dr.
got the results?
 What you describe below sounded more like a **Stroke (limp limbs
etc.) than Epilepsy. I don't know of any of the main seizure types that
have that as a symptom.
  Second, if you're **aware what is happening during a "seizure", I
had thought that only happened during a Simple Partial seizure, and not
the other 3-4 types which are more intense but where we lose awareness
while we're 'away'.

    You should ask for the results or a **referral to a Neurologist if
they can't get your results interpreted in a timely manner.  ( *Note
I'm not a Doctor, but if that was a Stroke, you'd not Be Here now-- I
had a friend die within 24 hours of the one she had. )

   Most jurisdictions have laws? that require providing Timely
Response to Medical conditions that might be Life Threatening.   If the
Doctor thinks your's wasn't, they should tell you why.

   *Another way to see what type of szrs. they might think you have
(**if they think you're having any) is to look up any Medications you
are being Prescribed. A Seizure Type might be related to the pill type
if you are using any -- there's a Glossary within the U.S. Ep.
Foundation site, that tells what any pills are for, and which szr.
types they're most commonly used to treat.   The Ep. site main address
is http://efa.org  , look for Medications, and scroll to the one, or
type it in, click 'search' ? and see if any *are seizure medications.
I assume it would tell you if it couldn't find the medication you
entered. (I've only entered valid Ep. Medications whenever I've used
it.)

   I think a cluster of seizures might just mean there are multiple
(presumably mild) ones that repeat frequently over a short period.
Did that only happen the one time?
  As you were able to get yourself to the hospital? that was why I
assumed it wasn't some of the stronger szr. types, as you'd be either
unconscious or incapacitated and not able to call an Ambulance or Taxi.

   Within that site or if you do a search on Statis Epilepticus ? (I
think is how it's spelled), that is a Rapid repeated set of seizures
that are like the Brain Fibrillating.  That one can be life threatening
as it disrupts brain and heart functions, and you'd not remember what
happened while it was occurring.  You'd just be gone... if you didn't
come out of it.
   It's difficult to do any Diagnoses over the internet as we can only
speak about what we've experienced on our own, or seen here, posted
previously.   I don't recall the types of symptoms you describe being
posted here, except (numbness etc.) wrt. a stroke, since 1998.  (P.S.
my friend who had the stroke was able to talk to me on the phone and
told me she was having one, so your 'self diagnosis'  at some of ***s
below, doesn't rule that out.)

   I don't understand why the Dr. has not 1) done an EEG or MRI,  2)
Given you a *Timely Response-- is it, or isn't it? due to **internal
damage in the Brain.   It's lucky he doesn't repair Fridges for a
living- he'd be out of business by now.. I expect you guessed that. G./

> I had posted before, as you can see. When I saw my Epi. last week he
> informed me he had not YET gotten any info. about my brief stay from
> the hospital. It had been 6 months now. As you can imagine I was far
************************************************
> from happy. I informed him that I had heard from "some one", that they
> had heard from "some one" that it was classified as a cluster. Of
> course I was rather out of it @ the hospital. So my question is, is a
> cluster basically the same as statis, just another word meaning the
**********************************************
> same, or was I so loopy they were convinced it was just a "normal"
> cluster. And what is a normal cluster anyway? Do you come back
[quoted text clipped - 11 lines]
> this time. I first thought it might be a stroke when the arm & leg on
> one side was not working. It was dead weight. I came to the conclusion
******************************************************
> it was not a stroke when I was thinking somewhat clear. I was in & out
*****************************
> most of the day. The leg was pretty much worthless most of the day &
> the following day, although not as bad. During the evening I had the
> leg doing the spasm ordeal.
> I guess my question is was that classified as an epilepsia partials
> continua or just a statis epilepticus or neither?
> Thanks!
flopper - 22 Dec 2006 02:21 GMT
I had the EEG 2 days later & they came back w/ spikes, as I expected.
The only reason my Epi got the result was because it was done in his
office. He claimed that if I wasn't in the hospital overnight it
couldn't be that importatnt. That was why he didn't bother making sure
his nurse got a copy I'm sure.
A stroke was the first thing I thought it was until I realized I was
making some common sense. There is a Todd's syndrome (or something like
that) that can occur after a seizure, although that was the first time
in 15 years that I ever had that.
I have contacted the hospital I was @ & will be getting the results &
tests myself.
That activity had gone on for over a day before I was able to contact
someone to haul me to the hospital.  I have general, simple & rarely a
GM. I have never had clusters though.
I had a CT scan while @ the hospital & it came back O.K. MRI's I can't
have because of the metal clip in my head, so if it doesn't show on a
CT all we can do is assume & hope it's correct.

Thanks G!

> Do you know if they ran an EEG (ElectroEncephalograph) as part of
> the tests while you were in hospital?  If they did, why hasn't the Dr.
[quoted text clipped - 53 lines]
> damage in the Brain.   It's lucky he doesn't repair Fridges for a
> living- he'd be out of business by now.. I expect you guessed that. G./
howdydave - 22 Dec 2006 13:44 GMT
If MY doctor has an attitude of :
"if you weren't in the hospital overnight it couldn't be that
important"

I would seriously consider finding myself another doctor.

Dave

> I had the EEG 2 days later & they came back w/ spikes, as I expected.
> The only reason my Epi got the result was because it was done in his
[quoted text clipped - 73 lines]
> > damage in the Brain.   It's lucky he doesn't repair Fridges for a
> > living- he'd be out of business by now.. I expect you guessed that. G./
angelicangel7@msn.com - 26 Dec 2006 04:09 GMT
> I had posted before, as you can see. When I saw my Epi. last week he
> informed me he had not YET gotten any info. about my brief stay from
[quoted text clipped - 27 lines]
>
> Thanks!

i think what your decribing are spasms (infantile) or possibly
myoclonic with partial seizures.  The clusters are the spasms possibly
myoclonic if they last only a couple of seconds they are not status
unless they go on for 15 minutes or more. the ones where you pass out
briefly either lose control of all body tone are the partials and they
are very frightening because you lose all control and are just
convulsing for the period and then you recuperate hopefully if someone
is tere or you come out by yourself.  these practically knock the life
out of you and breathing is very laboured.  my daughter gets these and
i just go insane.  you could have suffered a mini stroke-get an mri or
have nerve damage.

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