Medical Forum / Diseases and Disorders / Epilepsy / December 2006
Absences - duration-counting ?
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Onemomentplease - 28 Nov 2006 04:51 GMT Before medication I had deja-vu´s followed by absences - of passivity, not convulsions. Now the latter seems to be gone, fortunately. But how can I determine that, when others are not present, and I have no remembrance of such absence? An electronic click-counter with timeline to be transferred to the PC ? Regards. Peter.
G. - 28 Nov 2006 16:03 GMT > Before medication I had deja-vu´s followed by absences - of passivity, not > convulsions. [quoted text clipped - 5 lines] > Regards. > Peter. The Deja Vu is a Simple Partial seizure that commonly can precede a full (right) Temporal Lobe or Complex Partial (newer term) Seizure. Often the latter part can end in loss of consciousness when it ends (so we're on the floor, if it generalized to a full CP).
**If you can't tell about the Absences, those are usually included in the Simple Partial seizure that can be the start of above CP or Grand Mal type seizures, *or can happen on their own then pass... (More detail on some of that can be found on the efa.org site or Julie's Idaho Website, among some websites I posted in one post about a week ago here.)
To answer your question, you probably can't (tell), unless something around your environment gives you some clues. If you had planned to watch a TV show at 10, and you wrote a note to remind you to change the channel (the tv is on), and you look at the note, and it's 1015.. have you just forgot about the note? in front of you, or did you have a 20+ minute absence? (that's what mine were like) You hear water running, and when you go out to the kitchen, the Sink has just started to overflow.... Did you just forget to stay with that, or was that an absence? Here's a note you were making about a book you heard about on the radio, and below it are about 30-100 scribbled lines that cover most of the bottom 2/3 of the page--- who did That I wonder? .... the parts you can read are in *your handwriting. Some or all of those are symptoms of Absences, or Simple Partial szrs., but there could be others. (We have a tv advertisement running here right now from the Alzheimer's Assoc. that suggests they can have similar symptoms too--- forgetting or misplacing things). But it's for reasons like above that several of the Ep. "Safety and Seizures" sites recommend using e.g. Electric Shavers, Electric Kettle with an Auto-Off feature, and other things that take some of the risks out of Absences or Full seizures.
How would you use above timer (in subject line) to count the Duration if you're alone? Did you mean something where you'd have to Hold a button all day and if you Phased-out, would release it and start a counter? That seems like a lot of trouble, and many times our autonomic systems might just **keep that button pressed for the *whole duration of the absence, since it becomes a learned habit, and holding the button down during an Absence is just as easy (or moreso) as holding it down while you're not...
I only found out about Mine, before I was controlled, if I Had one on the phone with someone, and apparently my voice and attention would change, sometimes I'd 'dial the phone' so they'd hear the tones since we were already talking, then I'd hang the phone up! About an hour later, when I called one of them back, she was *really upset, as she didn't know who to call or whether to call an ambulance and explain I was in a locked house and what had happened.. During those periods and until we're sure they're fully controlled, they recommend if we swim we don't do it alone, and if they are frequent we have someone to come along when we go shopping or go out until we reach a medication? or some method of balance that reduces those to near nil. But unless we have someone who knows what our absences look like, if your's were frequent, it's hard to know that you are in fact fully controlled. G./
Onemomentplease - 29 Nov 2006 20:13 GMT Holding-down a button would hardly show anything as I intend to freeze-frame for "only" perhaps 5-20 secs. Whereas clicking would be out of my capacity in those moments. A reference timeline would show the durance of my non-clicking absence-period. But I suppose the market for such a gadget will be rather narrow.
Peter.
Onemomentplease wrote:
> Before medication I had deja-vu´s followed by absences - of passivity, > not [quoted text clipped - 6 lines] > Regards. > Peter. The Deja Vu is a Simple Partial seizure that commonly can precede a full (right) Temporal Lobe or Complex Partial (newer term) Seizure. Often the latter part can end in loss of consciousness when it ends (so we're on the floor, if it generalized to a full CP).
**If you can't tell about the Absences, those are usually included in the Simple Partial seizure that can be the start of above CP or Grand Mal type seizures, *or can happen on their own then pass... (More detail on some of that can be found on the efa.org site or Julie's Idaho Website, among some websites I posted in one post about a week ago here.)
To answer your question, you probably can't (tell), unless something around your environment gives you some clues. If you had planned to watch a TV show at 10, and you wrote a note to remind you to change the channel (the tv is on), and you look at the note, and it's 1015.. have you just forgot about the note? in front of you, or did you have a 20+ minute absence? (that's what mine were like) You hear water running, and when you go out to the kitchen, the Sink has just started to overflow.... Did you just forget to stay with that, or was that an absence? Here's a note you were making about a book you heard about on the radio, and below it are about 30-100 scribbled lines that cover most of the bottom 2/3 of the page--- who did That I wonder? .... the parts you can read are in *your handwriting. Some or all of those are symptoms of Absences, or Simple Partial szrs., but there could be others. (We have a tv advertisement running here right now from the Alzheimer's Assoc. that suggests they can have similar symptoms too--- forgetting or misplacing things). But it's for reasons like above that several of the Ep. "Safety and Seizures" sites recommend using e.g. Electric Shavers, Electric Kettle with an Auto-Off feature, and other things that take some of the risks out of Absences or Full seizures.
How would you use above timer (in subject line) to count the Duration if you're alone? Did you mean something where you'd have to Hold a button all day and if you Phased-out, would release it and start a counter? That seems like a lot of trouble, and many times our autonomic systems might just **keep that button pressed for the *whole duration of the absence, since it becomes a learned habit, and holding the button down during an Absence is just as easy (or moreso) as holding it down while you're not...
I only found out about Mine, before I was controlled, if I Had one on the phone with someone, and apparently my voice and attention would change, sometimes I'd 'dial the phone' so they'd hear the tones since we were already talking, then I'd hang the phone up! About an hour later, when I called one of them back, she was *really upset, as she didn't know who to call or whether to call an ambulance and explain I was in a locked house and what had happened.. During those periods and until we're sure they're fully controlled, they recommend if we swim we don't do it alone, and if they are frequent we have someone to come along when we go shopping or go out until we reach a medication? or some method of balance that reduces those to near nil. But unless we have someone who knows what our absences look like, if your's were frequent, it's hard to know that you are in fact fully controlled. G./
G. - 29 Nov 2006 22:56 GMT > Holding-down a button would hardly show anything as I intend to freeze-frame > for "only" perhaps 5-20 secs. [quoted text clipped - 4 lines] > > Peter. G--> I just wondered how it would have been designed to work (show the absences). When I was having those in 1994-8, *I'd have paid to have something with a bell or vibrator to tell me I had phased out, but I didn't know how *it would know I had. That was the sort of thing I means earlier. It *could possible be used by people with other similar conditions such as ADHD? or things related to symptoms similar to Simple Partials. I didn't intend you throw out a Patent, if it might be something that would work for such things !! :-> G./
> Onemomentplease wrote: > > Before medication I had deja-vu´s followed by absences - of passivity, [quoted text clipped - 21 lines] > around your environment gives you some clues. Did you just forget to stay with > that, or was that an absence?
> Some or all of those are symptoms of Absences, or Simple Partial > szrs., but there could be others. (We have a tv advertisement running [quoted text clipped - 17 lines] > on the phone with someone, and apparently my voice and attention would > change. G./ cancer man - 01 Dec 2006 06:52 GMT Onemomentplease - 03 Dec 2006 19:48 GMT G--> I just wondered how it would have been designed to work (show the absences). When I was having those in 1994-8...............,
Did you gid rid of them by medication and where you able to skip the meds later ? Reg. Peter
G. - 04 Dec 2006 00:20 GMT > G--> I just wondered how it would have been designed to work (show the > absences). When I was having those in 1994-8..............., [quoted text clipped - 3 lines] > Reg. > Peter Hi. When my family told me I was still having them, and I told my Dr. he adjusted the medications I was using (up) parts of solid tablets, until we got full control and the absences stopped. Mine only took about 2 adjustments once we got a pill mix that worked consistently for my Complex Partial szr. types (Dilantin, for me, was extremely erratic, controlling for a week or 2, then 3-4 szrs. in 2 weeks, then stable for 4 etc. Very upsetting as I never knew if Today would be "the day" I'd wake up in hospital without warning.) *I don't miss those days at all, and have been stable since 1998 now. G./ (Still use same dose levels I was using then.)
jva02@yahoo.com - 22 Dec 2006 21:57 GMT Four years ago, I had a benign tumor removed from my right temporal lobe. Since then, I periodically have simple-partial seizures. They seem more or less like strong auras. The first indication is a slight panic attack. After that comes the deja vu and the strange smells. The deja vu seems so real... I swear I can say the words coming out of your mouth as you say them. The smells often remind me of the past. The whole thing last 30 to 60 seconds. Sometimes, I actually wish it would last a bit longer so I could figure out what the smell is. Sometimes it's similar to play dough or burning rubber... but I can never quite put my finger on it. Anyway, I have the overwhelming urge to be alone when these happen. However, I doubt you'd know I was having one unless I told you. Strange stuff. Good luck.
John
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