I don't remember ever having a seizure prior to this year.
My 1st and 2nd ones were in the Dentist chair (but we all thought it
was a Toxic reaction to too much lidocaine). They were both pretty
energetic and were scary, even though I was awake during.
My third one was less vigorous and was at the Allergy Doctor's office
when they injected me with 1/100th of Lidocaine to see if I was
allergic. (I am not).
My 4th one was at home one night just as I was getting ready to go to
sleep and my right shoulder started jerking up and down and I did about
5 ab crunches. This scared my husband and I so much. We went to the
hospital that night. My CT scan was normal. Then I went to a
Neurologist. Got an MRI (normal) got an EEG (normal). And was told to
call if I have any more.
5 months went by and suddenly in October I had 3 at home on three diff
occassions (all at night around bed time) then this month I had 4 (that
I can remember) in ONE NIGHT then the next day I couldn't go to work
b/c my shakiness wouldn't go away and I was sleepy and I had 3 more
that day during the day. It was like it wouldn't ever stop completely.
Then 2 days later I had one at church. Mine always involve my right
shoulder/arm and some ab crunches.
I called my Neuro and got an appt. 2nd MRI is normal. I go for my
Video EEG in the hospital after Thanksgiving to see if they can catch
me having one. I haven't had any more since that Sunday and I am
worried that I wont "show" at the hospital.
Yawning does seem to give my seizures energy when I am having one. and
I am so so very tired after one that it takes me hours or days to
recover After the "never ending one" my right hand has loss some motor
function: I have trouble writing and it is slower than the left during
the tests the Neuro gives. Doctor says it is Epilepsy.
I am not on meds and not allowed to drive right now. My doctor is
waiting until after my Video EEG.
The tired connection I have with my seizures makes me wonder if I ever
have them during the night when I am not aware b/c there are many days
I have "unexplained" tiredness. Feeling tired like that with no good
explaination makes me feel old and lazy. I try to push thru the
exhaustion but that makes me grouchy.
Has anyone else with simple partial seizures had anything similar to
this?
How does the medicine make you feel?
> I don't remember ever having a seizure prior to this year.
> My 1st and 2nd ones were in the Dentist chair (but we all thought it
[quoted text clipped - 38 lines]
> this?
> How does the medicine make you feel?
There was a time that I had seizures after the dentist. We found that
Epinephrine was causing them. The is mixed with the Novicain, but
they also have pure Novocain.
>I don't remember ever having a seizure prior to this year.
> My 1st and 2nd ones were in the Dentist chair (but we all thought it
[quoted text clipped - 38 lines]
> this?
> How does the medicine make you feel?
connie - 23 Nov 2006 08:33 GMT
> There was a time that I had seizures after the dentist. We found that
> Epinephrine was causing them. The is mixed with the Novicain, but
[quoted text clipped - 42 lines]
> > this?
> > How does the medicine make you feel?
Although now quite familiar with Alt Support Epilepsy having followed
postings for many months I am a relative 'newbie' at posting to
newsgroups myself. However this message is a little too close for
comfort and I have to break my silence.
At 51 following extensive dental work and then a minor surgical
procedure to remove a mole from the side of my nose I am told I had two
grand mal seizures while asleep. The event itself didn't phase me
that much - I was certain it was an allergic reaction to local
anaesthesia - my husband like wise. Unfortunately it was my encounter
with those in the medical profession that I found most disturbing as
they all sought to prescribe AEDs
There is no history of epilepsy in my family, all tests proved clear,
I am fit and healthy but highly intolerant of gluten and preservatives
in food - in particular 223 (Sodium metabisulphate) and it is a pity I
didn't think to question the make up of Lidocaine/Xylocaine 1 and 2%
with adrenaline because if I had I would have learnt that adrenaline
products contain 223 as a preservative ( I am no pharmicist believe me
) So too much time and energy researching local anaesthesia and all
things neurological trying to find answers until recently following
health problems which finally could only be ascribed to unlisted
sulphites in basic food items (herb teas, dried fruits and grapes) I
thought to "google" sulphite allergies and seizures and then all became
apparent.
Fourteen seizure and medication free months later and now working in
with a kind and wise doctor I have been prescribed an
Epipen(ironically it contains 223) as we are not sure where this
intolerance is taking me.
I hope this information may benefit others.
Connie
Hi. I am 24. I have had a million problems for the past 10 months. I was
just diagnosed with epilepsy in october of this year. i never had seizures
before in my entire life. I"m incredibly overactive. it's just adult onset
partial epilepsy. I have complex partial and simple partial both with and
without secondary generalization. And they found this out because I finally
had a 24 hour ambulatory EEG done. This is my 3rd neurologist who decided to
do this because I had a friend who always helps me write out a statement of
what happens before, during, after. And I did the same. Anyway, I was
scared it wouldn't show anything because I'm a dance major, dancing all day
and I have crazy muscle spasms mostly in my R side. And I was scared I would
be told I was crazy.
The past year, with my other 2 neurologists, I was actually told I was making
it up, it was all in my head. and that bothered me. my 2nd neuro actually
could see all my muscles constantly contracting and releasing. it was bad
during last semester. i don't know why. almost constant. but he had done a
simple EEG, those 40 min. ones about a month prior to this constant episode
and the results were negative. so that is why "i was making it up." The
first neuro also did an EEG for the migraines I suddenly had every single day
that started Jan 1 of last year. put me on an antiseizure med. tha'ts a
long story and I got off cuz I had a really bad reaction to it. then back on
w/the second neuro, ect. took myself off when i started spasming all the
time cuz it scared me to death. I was sent to the ER 4 times last semester
in school. and blood tests were normal, a million of the same CT scans were
normal. I had an MRI of my brain w/and w/o the injection last March and it
was all normal.
So when I started collapsing after my whole body tensed really hard this
semester several times, it started affecting school and home, etc. My EEG
recorded 5 seizures in that 24 hours. And one was in my sleep. I was
surprised. I thought it would show nothing. I was especially surprised
about the ones in my sleep but it all made sense. some days I was so
exhausted I thought I would collapse in the mornings when I tried to go to
classes. after my bigger seizures, I have to sleep a lot to feel normal
again. I"m finding this semester though everything is getting worse probably
because I dance every single day and don't ahve much time to recover. anyway,
I"m on 2 antiseizure meds right now. I'm still getting adjusted and whatnot.
they make me nauseous, dizzy, fatigued, tired, etc. I sleep alot these days.
but once everything settles down and i get the right stuff, i think i will be
fine.
I do want to tell you, don't let dr's make you think things other than what
you feel. if you know you don't feel right and have had a lot of trouble,
don't take no for an answer. they have not been around your episodes. they
have not seen them and seen what you go through. neither has any ER dr.s I
personally think ER docs are worthless especially in the area I am in. But,
keep pushing for a diagnosis. good luck on your video eeg. good luck
w/everything. you may not find out why you suddenly have seizures at your
age. I doubt I will. it just happened for no reason whatsoever. the only
thing I know is that I had migraines daily and then started having seizures.
and I used to never even get headaches at all until about 4 years ago. it
all started with vertigo really bad. it could have just been "developing"
this entire time. who knows. I am the only one in my family who has
epilepsy. it's weird. but at least it was found. and now it can get taken
care of. good luck to you.
>I don't remember ever having a seizure prior to this year.
>My 1st and 2nd ones were in the Dentist chair (but we all thought it
[quoted text clipped - 38 lines]
>this?
>How does the medicine make you feel?
just diagnosed 2006 - 25 Nov 2006 02:30 GMT
Awight, thanks for your story...you gave me a lot of information and
hope. You are absolutely right about waiting for your side effects to
go away b/c you will have your life back to normal then. What the
doctors did to you sounds frustrating. At least they eventually saw
your 5 seizures during the test. Its a good thing you believed enough
in yourself to keep going. Connie's post re: her preservative allergy
is another example -- she had to research the ingredients of Lidocaine
mix herself. A lot of Doctors either "don't know" or they don't care
enough to "find out" and they justify it by implying that we (the
patients) are imaging or (worse) faking our symptoms. I for one do not
appreciate it when that happens.
Thanks to everyone for giving me more information to arm myself with
when I go in to the hospital.
Thanks for the words of encouragement...same to you. I wish you the
best and pray for your recovery from your meds side effects so you can
enjoy your life and keep dancing!
:-)Jules
> Hi. I am 24. I have had a million problems for the past 10 months. I was
> just diagnosed with epilepsy in october of this year. i never had seizures
[quoted text clipped - 98 lines]
> Message posted via MedKB.com
> http://www.medkb.com/Uwe/Forums.aspx/epilepsy/200611/1
awight1 - 26 Nov 2006 05:00 GMT
yes, I thought your story sounded vaguely familiar!! It's such a weird thing,
how random stuff like this happens for no reason whatsoever. but if you give
up, you will never know. I'm naturally a fighter, but there comes a time
when it's all too much. a lot like right now. going through way too much
and taking on too much to handle. but, part of it is that I was so ready to
take on the world at the beginning of the schoolyear. and part of it is that
the added stress of trying to keep dancing when no one else wants me to. I
think I'd be having a lot less seizures right now. You'd think I'd be doing
better because I'm on meds...but yet, I'm not. You're lucky if yours dont
generalize. It's a pain. When I had seizures as I was judging a tumbling
and tramp competition a couple weeks ago, my sister said she thought I was in
a lot of pain because my hands were curling up so tight that my knuckels and
fingers turned white. she said it looked like they were going to explode. I
of course, had no idea. Even though I'm aware of my surroundings. I can
hear every word everyone is saying even through a generalized seizure. I
just can't respond and I"m sort of out of it. I think I"m a little more
comforted with the fact that I know I have seizures now and I'm not quite as
embarrased as before, even though I still am. And I guess I won't be
flipping on trampolines, or working out on trapeze, or anything fun like that
for awhile. I guess I won't be joining Cirque anytime soon! I also know I
can't handle high intensity stage lights. specifically, 100% intensity of
violet. for some strange reason. haha. but at least I know that. I'm going
to see a lawyer in Chicago tomorrow morning to see if I have a case against
my school or not. I hope I find out something I Need to hear for once.
I hope your test comes out ok. I don't know if you want to hear it's nothing
or actually seizures. I know before my test, I actually wanted to hear
actual seizures were found. good luck to you. Post how it comes out, if you
like. I'd be interested to know. and if you need a pick me up, watch GI
Jane. I just did! ha. it keeps me wanting to fight for what I know is right.
....
>Awight, thanks for your story...you gave me a lot of information and
>hope. You are absolutely right about waiting for your side effects to
[quoted text clipped - 19 lines]
>> Message posted via MedKB.com
>> http://www.medkb.com/Uwe/Forums.aspx/epilepsy/200611/1
connie - 27 Nov 2006 09:38 GMT
> yes, I thought your story sounded vaguely familiar!! It's such a weird thing,
> how random stuff like this happens for no reason whatsoever. but if you give
[quoted text clipped - 55 lines]
> Message posted via MedKB.com
> http://www.medkb.com/Uwe/Forums.aspx/epilepsy/200611/1
So many who have posted here these past months have described some
terrible examples of patient neglect.
I asked a friend who is a retired professor of opthalmology to give
just one word that would describe the apathy, indifference, lack of
curiosity/inquisitiveness and unwillingness to fully investigate a
patients concerns and he cited "fatigue". I suggested he was being
too kind and maybe conceit and arrogance were closer to the mark. He
replied that conceit and/or arrogance was often employed as a cover or
bluff for "fatigue'' .
I would like to thank the regular contributors to this group, Julie, G,
Howdy, Partials to name just a few - your wise counsel to so many has
been inspirational.