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Medical Forum / Diseases and Disorders / Epilepsy / October 2006

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Migraine with aura or what??

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muggo - 12 Oct 2006 13:15 GMT
Hi, I’m trying to figure out what is going on with me. I have migraines with
auras and they have been changing over the years. Now I end up with this
horrible feeling that comes over me, a nasty taste in my mouth and I feels
like when you are being put under for surgery...that’s about the best way I
can describe it. Along with that I end with what I think would be best
described as fear? I do get smelling burnt toast, or burnt rubber?? Just odd
smells that other people do not smell at that time. I feel drained afterwards
and sometimes my muscles jerk my arm or legs or even to my stomach muscles
twitch.
My sister in law is a nurse and works in the emergency dept. at our hospital
and has been on when I went in with a sever migraine. She has said there was
seizure like activities while I was being treated for migraine and that I
should be careful with my migraines. If the doctors say it’s epilepsy, then
my license will be taken away until they have them under control. Not exactly
what I wanted to hear. Now I’m not sure what to tell my doc or if I’m just
having a panic attack.  Never had panic attacks before.
Just dazed and confused!! Does any of this make sense to you guys??
Not sure what to do,

Just me,
G. - 12 Oct 2006 18:45 GMT
I patched an older posting at bottom that lists about 5 news sites I
had found on older post.   Look at Simple Partial Seizures (what an
Aura is) under some of the sites, and under Julie's First Aid site
listed there for symptoms.   I've also added some comments in your note
below at **s. G. /

> Hi, I'm trying to figure out what is going on with me. I have migraines with
> auras and they have been changing over the years. Now I end up with this
> horrible feeling that comes over me, a nasty taste in my mouth and I feels
> like when you are being put under for surgery...that's about the best way I
> can describe it.
**** Nasty taste (eggy?) is symptom of seizure focus in the *left
Temporal Lobe of the brain. You could also look at sites I put below
under Temporal Lobe seizures or Newer term is Complex Partial Seizures.
 Note that those can end in loss of Consciousness if not controlled so
you'd be better having a Doctor see if something is happening that can
be controlled, by pills or other treatment (If it's an *active
infection, like the Encephalitis I had, *not treating it will only
allow it to continue or get worse.)  /

Along with that I end with what I think would be best
> described as fear? I do get smelling burnt toast, or burnt rubber?? Just odd
> smells that other people do not smell at that time.
*** Ditto left T.Lobe as above.  Right T.Lobe would be sour, lemony
aroma / taste. G./

I feel drained afterwards
> and sometimes my muscles jerk my arm or legs or even to my stomach muscles
> twitch.
[quoted text clipped - 4 lines]
> my license will be taken away until they have them under control. Not exactly
> what I wanted to hear.
*** Rules with respect to that vary by jurisdiction and whether you've
tried to *control the seizures.  If they find out you had those
(records at hospital now), Insurance is void in many jurisdictions, if
it's not being treated actively. /  :-<
  It's better to find out if your Migraine Medications might be
producing the symptoms, and maybe some other Migraine treatment might
solve the problem, no?   Also the Migraines you might have, might be
indication of some **internal trouble where the Simple Partial seizures
started from *later. ?  (I'm not a Doctor)    But if they ran e.g. an
EEG or MRI? they could tell if there's something there that can be
fixed relatively easily, rather than risk having in get potentially
worse.  G./

Now I'm not sure what to tell my doc or if I'm just
> having a panic attack.  Never had panic attacks before.
> Just dazed and confused!! Does any of this make sense to you guys??
> Not sure what to do,
> Just me,

  Most of us have been 'dazed and confused' ...  that's why we're here
!!  This is an Older post with some sites that several of the Regulars
here posted over last ~4 years.  I'll try shorten the text a little.
If you have trouble getting those, reply here and I'll see if I can
find a more current version (my ISP changed some things to add
"Improvements" and messed up a lot of my Bookmarks, improving things
!!! )

  Welcome anyway.  This group can vary from 1-2 posts a week to 8+ per
day, so if you don't see other comments right away check back over next
few days.  Some people only read the group every few days, and we have
members in about **14 timezones.
***Look at the link where I talk about Symptoms of Seizures (***s at
left below). G./

Paste of older post I did -->

---------- Forwarded message ----------
From: G.
Date: 31 Jan 2006 06:47:07 -0800
Subject: Websites of use to newer people

Websites about Epilepsy
 This is the Website post I said I'd post again.  The First Aid Site
that
lists what each seizure type looks like is at ***s below.   Inside that
link
is another one for First Aid in Water (swimming).
  If the page has a coloured background, there is a button or
something
that says "Printable Version" and if you Click on that, it takes off
the
colours so you can print it on White Paper to keep.  G./

I posted this list of websites about 4 weeks ago.
Here it is again. -->

 A new site (to me) someone suggested is at http://www.epilepsy.com .

The main Idaho Epilepsy News site is at http://www.epilepsyidaho.org  .

Within that are links that also go through an Education area called
Learn
about Epilepsy -- at http://www.epilepsyidaho.org/learn.htm.

***   Often some *symptoms people **exhibit give clues to *type of
seizures
they're having and best described on a First Aid for Seizures Chart.
These
are my favorites -- also from Epilepsy Idaho. One is
http://www.epilepsyidaho.org/seizure2.htm    and that links to
http://www.epilepsyidaho.org/seizure.htm .   One of those is easier to
******************************************************
print, although both display well for information or reference.

  There is also a separate page for First Aid in Water I didn't
include,
although those sites might link to it.  What to do when someone in
swimming
is somewhat different that if they were to collapse 'on land'.

    Howdy Dave has a site he put together ~10? years ago and he
regularly
updates.  He was also one of the oldest :-<  members of this group and
someone told me he was one of the Founders too.  Most people don't know
that, so he doesn't get a swelled head or anything.. :->   His site is
at
http://www.howdydave.com  .

  The main U.S. Ep. Foundation website is at http://efa.org  .   THIS
SITE
Has a Medication Glossary, although I found my own pharmacist a useful
source of information if I had Side Effects or Questions about a
particular prescribed pill.
//  G./
Radium - 22 Oct 2006 07:31 GMT
> Hi, I'm trying to figure out what is going on with me. I have migraines with
> auras and they have been changing over the years. Now I end up with this
[quoted text clipped - 16 lines]
>
> Just me,

I would like to experience a migraine aura as long as there is nothing
but the aura. I've read about the aura and find it both enjoyable and
scary. I like the visual symptoms, the dizziness, the numbness, etc.
Paul F - 23 Oct 2006 00:02 GMT
>I would like to experience a migraine aura as long as there is nothing
>but the aura. I've read about the aura and find it both enjoyable and
>scary. I like the visual symptoms, the dizziness, the numbness, etc.

Trust me the visual symptoms are not good!!! Especially when you get a
massive 'line' making it's way across your field of vision. I get about
6 a year nowadays, anyone know if they are related to epilepsy (I have
nocturnal epilepsy)? The worse ones are awful - I get the sickness,
sensitive to bright light, tired, headache etc etc... Have been given
Maxalt Melt but so far they have been about 50% successful.
Radium - 23 Oct 2006 00:10 GMT
> >I would like to experience a migraine aura as long as there is nothing
> >but the aura. I've read about the aura and find it both enjoyable and
[quoted text clipped - 6 lines]
> sensitive to bright light, tired, headache etc etc... Have been given
> Maxalt Melt but so far they have been about 50% successful.

Well, I certainly would *not* want to have the headache phase or the
post-headache* phase of the migraine. I just want the aura.

*After a migraine headache, many patients experience tension headaches.

NOTE: sensitivity to light/sound is *not* part of the aura. I only want
the aura and no other part of the migraine
Piper - 23 Oct 2006 08:21 GMT
Can having a finger twitch be part of a migraine?

piper
"> > can describe it. Along with that I end with what I think would be best
> > described as fear? I do get smelling burnt toast, or burnt rubber?? Just odd
> > smells that other people do not smell at that time. I feel drained afterwards
[quoted text clipped - 15 lines]
> but the aura. I've read about the aura and find it both enjoyable and
> scary. I like the visual symptoms, the dizziness, the numbness, etc.

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