Medical Forum / Diseases and Disorders / Epilepsy / October 2006
I'm in trouble for having an "episode" in dance class.
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awight1 - 02 Oct 2006 01:17 GMT So, this is what happened Friday mid-morning. Friday, I only have 1 ballet class and that is it for the entire day. I was totally fine the first hour. Well, I shouldn't say totally cuz my hands did start to spaz here and there. But, after we pushed the barres away and started center floor, I had an "episode." I felt all my muscles contract and spasm and I remember staring at nothing, sort of gasping as it started, then breathing shallowly cuz all my muscles were contracting, and I remember trying desparately to make it stop but I couldn't. It didn't last more than probably 10 seconds, and after everything stopped all at once, my whole posture sort of just melted cuz I was really weak and I wanted to just lay down. But, I couldn't because I was in class. Even my mouth was hanging open. I don't really know what I was doing but it wasn't much of anything. I was totally zoned out and still staring, trying to make my body move but it wouldn't. My teacher noticed and told me to sit down. I did hear her. I sat down. I was sort of in my own world I guess sort of in a "drunken stupor" although I've never been drunk but that's the only way I can describe it. I had a headache and felt nauseous. That is what always happens. After about 10 min. I started to snap out of it. Shortly after class, my teacher came over and was mad at me for "waiting so long to see my neurologist" because I could not get in till this Thursday. I told her it's not like I wasn't trying, but that was the earliest I could get in. The dance faculty are all frustrated with me because they don't know what to do with me. The other ballet teacher in the other room told my teacher to call an ambulance, but she didn't. I'm glad. She told me to go to health services on campus but I told her I was just in last week and they asked me if I was on drugs, and that is how much they know there. She asked me what the ER would do. I told her last semester they gave me a blood test, CT scan and threw me out the door. She could see my frustration when I broke down and started crying. I am nervous because now I'm on thin ice with them. I'm afraid they will kick me out of my classes, and probably out of the program. They already told the Dean. This is sort of the same stuff that has been happening for the past semester.....So I think they have no tolerance for me because "I'm not taking care of myself and finding out what's wrong and fixing it." All I can do is wait until Thursday to see what my neurologist thinks....
howdydave - 02 Oct 2006 05:23 GMT Howdy!
Sounds like a great opportunity to educate the instructors and get them ready for the next student who has epilepsy.
Hey -- they've got to learn from SOMEBODY, right?
Dave
awight1 - 03 Oct 2006 02:51 GMT yes, well, I have not actually been diagnosed with anything. that is the problem I guess.... They want me to medically withdraw from my "strenuous physical classes until my health problem is resolved." They are worried physical activity is bringing these episodes on. But pretty much, they don't want me in class cuz it's walking on eggshells. I think extreme physical activity and lack of sleep may be partly to blame. But it takes a combination of the 2 and usually a headache. I love my classes and I won't drop them. Not like it happens every day in every class. Just once last monday and Friday last week. Last week was a bad week. Today I did 6 hours straight of dance classes and was totally fine. I got a lot of extra sleep and rest too though. It's always an uphill battle with me and them because of last semester.....
>Howdy! > [quoted text clipped - 5 lines] > >Dave howdydave - 03 Oct 2006 16:31 GMT Howdy awight1!
My response might be something to the effect:
"I'm fine with my epilepsy -- YOU are the ones having a problem with it."
I would stand firm. If they force you out -- that's the sort of thing that the ACLU loves to sink it's teeth into.
Dave
> yes, well, I have not actually been diagnosed with anything. that is the > problem I guess.... [quoted text clipped - 22 lines] > Message posted via MedKB.com > http://www.medkb.com/Uwe/Forums.aspx/epilepsy/200610/1 howdydave - 03 Oct 2006 16:46 GMT Howdy awight1!
My response might be something to the effect:
"I'm fine with my epilepsy -- YOU are the ones having a problem with it." (only not that rude!)
I would stand firm. If they force you out -- that's the sort of thing that the ACLU loves to sink it's teeth into.
Dave
> yes, well, I have not actually been diagnosed with anything. that is the > problem I guess.... [quoted text clipped - 22 lines] > Message posted via MedKB.com > http://www.medkb.com/Uwe/Forums.aspx/epilepsy/200610/1 G. - 03 Oct 2006 17:12 GMT It could also be that the extra exertion, during dance moves, is metabolising the pills you use faster through your blood. That's why the advice an earlier poster gave about telling the Dr. is good, as they might suggest a supplement or slightly increased dose just ahead of when you'd need it during dance classes (several you'd take 4-8 hours before when you'd be burning it off). The efa site, Julie's website (Idaho) and Howdy Dave's (if he still has it) all contain information on First Aid for seizures if you were to have a full seizure.
I agree with the others that unless *you have a problem with the occasional 'blip' during classes, that it's not something that should be a problem for the instructors. It's a chance for them to learn more about issues like this, as many *other conditions could produce side effects similar to Simple Partial seizures, and the *instructors should know what to do for those conditions, as well as SP seizures. They'll eventually encounter most of them, and banishing the person rather than learning what to do is just plain Dumb. As others have mentioned, it could also be a violation of Year 2000 Rights issues. But whatever you're comfortable with, is most important, in my opinion. If it's something you enjoy, and they're infrequent, then it's something you should continue. As well as their learning about issues, it gives you and your Doctor chance to find something that works *consistently for you for Other activities you might want to try, that involve increased heart rate and faster metabolism of any pills you take (skiing, swimming, biking, jogging, etc.). Keep us posted how you do, and what you decide, as lots of people read this Board and get *Value from our shared experiences and successes. Just because they're shy, they still learn from our successes or setbacks. Good luck with this. G./
> Howdy awight1! > [quoted text clipped - 33 lines] > > Message posted via MedKB.com > > http://www.medkb.com/Uwe/Forums.aspx/epilepsy/200610/1 awight1 - 05 Oct 2006 17:27 GMT So, I just went to my neurologist this morning. And I typed out everything that I feel happening during these episodes, and one of my good friends who sees it often also typed some info and it was helpful. My neurologist kept saying because of what your friend wrote, you need to be tested again. So, Monday I"m going to get an ambulatory EEG. I hope something shows up. I know I will look rediculous but I still have dance classes that day! Wish me luck.....
partials - 03 Oct 2006 03:57 GMT > I felt all my muscles contract and spasm and I remember staring > at nothing, sort of gasping as it started, then breathing shallowly cuz all > my muscles were contracting, Do you ever feel any sort of shortness of breath around those times?
Salami Man - 03 Oct 2006 04:25 GMT > So, this is what happened Friday mid-morning... If you can, tell your neurologist that your teachers are having trouble coping with your epilepsy, and that you want to pick up one of the brochures in their office that summarizes some of the information about your condition. It's probably in the front office, and the receptionist can give it to you. There are a lot of myths about epilepsy, and people can get scared when they see someone having a seizure. If they have the information, they will know more about what to do, and how to handle the situation. Tell your teachers that if you have a seizure again, that brochure should have some information about what they should do (or what -not- to do). Also give them a phone number in case you have a serious seizure. That should put people's minds at ease.
awight1 - 04 Oct 2006 02:14 GMT I intend to tell my neurologist everything. The only problem with my teachers and classes is that I have not been diagnosed with epilepsy. I don't exactly know what my problem is, but that's what I hope to find out very soon. My teachers are not comfortable with me in class because they don't know what is wrong with me. And I don't know what is wrong. And they are scared something is going to happen I guess. I'm sort of a liability or something. They haven't kicked me out yet though. It's like walking on eggshells. I have the worst headache right now.....I'd love for those to go away, too.
>> So, this is what happened Friday mid-morning... > [quoted text clipped - 9 lines] >what -not- to do). Also give them a phone number in case you have a serious >seizure. That should put people's minds at ease.
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