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Medical Forum / Diseases and Disorders / Epilepsy / October 2006Drugs in the epilepsy resistant to the treatment
Hi everyone :-) I would like to ask You, which drugs is used to in the epilepsy resistant to the treatment. I know that Keppra. What else? We used then two or more drugs. Am I right? thenks for a help G'day Angels If you are asking what anti epilepsy drugs are available there is a list of them at a new web site at http://www.yourepilepsy.org.uk/ just click on the button for treatments and click on the link for anti epileptic drugs and it gives you a fair list of medications available. For more in depth information you can it at http://www.rxlist.com/ Good Luck Pablo > Hi everyone :-) > I would like to ask You, which drugs is used to in the > epilepsy resistant to the treatment. I know that Keppra. What else? We > used then two or more drugs. Am I right? > > thenks for a help >G'day Angels >If you are asking what anti epilepsy drugs are available there is a list of [quoted text clipped - 10 lines] >> >> thenks for a help Hi Pablo. This links help me a bit. Always is this a few information more. :) Thanks :) > Hi everyone :-) > I would like to ask You, which drugs is used to in the > epilepsy resistant to the treatment. I know that Keppra. What else? We > used then two or more drugs. Am I right? When just one drug alone does not control the seizures, is another drug such as Keppra (levetiracetam) added and both drugs taken together? Yes, that is right. I'm sure that the people out there who are taking 2 or more drugs can tell you what they take. Two more I can think of would be Lamictal (lamatrogine) and Neurontin (gabapentin). Howdy Angels! There are several drugs for treatment of epilepsy. Which ones are feasable for your use depends on what kind of seizures you have. I would strongly suggest that you get acquainted with your pharmacist. My pharmacist is my primary professional resource when it comes to medication. The pharmacist knows more about drugs than an MD does and is up to date on current drugs. Dave > > Hi everyone :-) > > I would like to ask You, which drugs is used to in the [quoted text clipped - 6 lines] > what they take. Two more I can think of would be Lamictal (lamatrogine) and > Neurontin (gabapentin). Hi Dave, I have epilepsy Generalised Seizures, tonic clonic (generalized originally) and always when I had seizures I had status epilepticus, so it's normal for my seizures. I took Trileptal, later Trileptal and Orfiril, now I started add Lamitrin (slowly add from 12,5-12,5, to for a 2,5 mounts 150-150), orfiril (600-600) and slowly stop Trileptal from 600-600 to stop takking Trilaptal. As I understand, You have also this same type of seizures like me. Am I right? Which drugs do You take? Do You have a seizures? How does it look like in case of You? Thanks for a information >Howdy Angels! > [quoted text clipped - 22 lines] >> what they take. Two more I can think of would be Lamictal (lamatrogine) and >> Neurontin (gabapentin). >> Hi everyone :-) >> I would like to ask You, which drugs is used to in the [quoted text clipped - 6 lines] >what they take. Two more I can think of would be Lamictal (lamatrogine) and >Neurontin (gabapentin). Hi Partials :-) I just come back from my doctor. I've changing treatment. A few mounths ago doctor give me second drugs. So I was taking Trileptal (600-0-750) and Orfiril (600-0-600). Now Trileptal is stopping slowly and for a give me Lamitrin. He wrote me how I must adding Lamitrin, and to withdraw Trileptal. So after 2.5 mounth I will be taking Lamitrin (150-0-150) and Orfiril (600-0-600). Alghout he told that it will be good, if I could be taking only Lamitrin. But I don't know how my organism will be accept new drugs. Probably I will be also MRI and/or CT. A few years ago I had change in occiput. So I have got a questions for You. 1) if I was change, so I will be now, yet? 2) Does Lamitrin is giving in epilepsy resistant to the treatment? 3) Do You know which dose Lamitrin is in epilepsy resistant to the treatment? I was seeking but didn't found information about it? 4) Does in epilepsy resistant to the treatment is getting monotherapic (one drugs) or only politherapic (more than one drugs)? Thanks a lot >>> Hi everyone :-) >>> I would like to ask You, which drugs is used to in the [quoted text clipped - 10 lines] > mounths ago doctor give me second drugs. So I was taking Trileptal > (600-0-750) and Orfiril (600-0-600). I remember that. You had previously been taking only the Trileptal. > Now Trileptal is stopping slowly > and for a give me Lamitrin. He wrote me how I must adding Lamitrin, > and to withdraw Trileptal. So after 2.5 mounth I will be taking > Lamitrin (150-0-150) and Orfiril (600-0-600). Alghout he told that it > will be good, if I could be taking only Lamitrin. But I don't know how > my organism will be accept new drugs. Watch carefully for any red rash on your skin when you start taking the Lamitrin. If you don't get one in the first weeks then it should be alright. Some people are allergic to Lamitrin and the rash is dangerous to life. I had to stop immediately when I got the rash after starting Lamictal (the same) and Pablo in the newsgroup here just recently had it also. It's a very good effective drug and only some people get the rash, so I hope it works well for you. > Probably I will be also MRI > and/or CT. A few years ago I had change in occiput. > So I have got a questions for You. > 1) if I was change, so I will be now, yet? Sorry :-) I don't think I understand you. Please say that again with more words and/or different words. Are you wondering if you will be the same after you take the new drugs as you are now? We hope you will be better, but it's possible to be the same or even worse. Nobody knows. > 2) Does Lamitrin is giving in epilepsy resistant to the treatment? Yes, it helps in some cases where other drugs aren't effective. It is chemically different from the others so it is not just more of the same thing. > 3) Do You know which dose Lamitrin is in epilepsy resistant to the > treatment? I was seeking but didn't found information about it? A main information page is at: http://rxlist.com/cgi/generic/lamotrigine.htm and the dosages are at: http://rxlist.com/cgi/generic/lamotrigine_ids.htm in the Table 11 down the page. Note that Orfiril is a valproate and that is the reason for choosing this table. ------------------------------ Table 11. LAMICTAL Added to an Antiepileptic Drug Regimen Containing Valproate in Patients Over 12 Years of Age Weeks 1 and 2 25 mg every other day Weeks 3 and 4 25 mg every day Usual maintenance dose: 100 to 400 mg/day (1 or 2 divided doses). To achieve maintenance, doses may be increased by 25 to 50 mg/day every 1 to 2 weeks. The usual maintenance dose in patients adding LAMICTAL to valproate alone ranges from 100 to 200 mg/day. ----------------------------------- > 4) Does in epilepsy resistant to the treatment is getting monotherapic > (one drugs) or only politherapic (more than one drugs)? From what I have observed, it seems that using more than one drug is necessary for the control of some conditions and they cannot be controlled with just one drug alone. My own condition requires two. > Thanks a lot You're welcome. :-) >>>> Hi everyone :-) >>>> I would like to ask You, which drugs is used to in the [quoted text clipped - 12 lines] > >I remember that. You had previously been taking only the Trileptal. Yes, that's right. >> Now Trileptal is stopping slowly >> and for a give me Lamitrin. He wrote me how I must adding Lamitrin, [quoted text clipped - 8 lines] >stop immediately when I got the rash after starting Lamictal (the same) and >Pablo in the newsgroup here just recently had it also. Understand. Thanks. When You had a red rash, You stopped taking drugs immindiatly, irrespective which doze of drugs we taking that's right? When You get this sympthoms? Which doze You get Lamitrin then and at the start? >It's a very good effective drug and only some people get the rash, so I hope it >works well for you. Do You know did this drugs is good for epi? Stopped seizures better than Carbamazepin? >> Probably I will be also MRI >> and/or CT. A few years ago I had change in occiput. [quoted text clipped - 3 lines] >Sorry :-) I don't think I understand you. Please say that again with more words >and/or different words. I am sorry :-) My doctor (which is treating me from about 12 years) will be treating me still, but I must go to other doctor (for adults) who probably give me referral to MRI (magnetic resonance) and, or CT (computer scanner). I had last about 6-8 years ago and I had to change. So when I get change, so I must change also now. More or this same like then. Am I right? Or change which I had then, might to vanish? >Are you wondering if you will be the same after you take the new drugs as you >are now? We hope you will be better, but it's possible to be the same or even >worse. Nobody knows. Understand. We don't know does this drug help or will be bad. Isn't it? >> 2) Does Lamitrin is giving in epilepsy resistant to the treatment? > >Yes, it helps in some cases where other drugs aren't effective. It is chemically >different from the others so it is not just more of the same thing. But could be more bad and be seizures more offen and grand mal, isn't it? >> 3) Do You know which dose Lamitrin is in epilepsy resistant to the >> treatment? I was seeking but didn't found information about it? [quoted text clipped - 4 lines] >and the dosages are at: >http://rxlist.com/cgi/generic/lamotrigine_ids.htm Thanks :-) >in the Table 11 down the page. Note that Orfiril is a valproate and that is the >reason for choosing this table. [quoted text clipped - 5 lines] >Weeks 1 and 2 >25 mg every other day So I get this doze. >Weeks 3 and 4 >25 mg every day But in this weeks I will be 2 times per 25 mg so results 50 mg >Usual maintenance dose: 100 to 400 mg/day (1 or 2 divided doses). To achieve >maintenance, doses may be increased by 25 to 50 mg/day every 1 to 2 weeks. The >usual maintenance dose in patients adding LAMICTAL to valproate alone ranges >from 100 to 200 mg/day. I will be taking at the finish (without carbamazepine, but with Orfiril 600-0-600) Lamitril 150-0-150 so 300 mg per day >----------------------------------- > [quoted text clipped - 4 lines] >for the control of some conditions and they cannot be controlled with just one >drug alone. My own condition requires two. It's good that help this drugs for You. Did since our talk about Your seizures drugs help, and You didn't get any seizures? I've got questions. Do You have also problems with remember? I see that my remember is very much worest than one year ago. Also in small things. For example I must writting take drugs, because can't remember doze or did I get in this day. Or that I should to do something, or don't remember, did I do. Do You have this symthomps too? You remember how we talk about jumpping ones side of arms, legs etc when I starting fall a sleep and this isn't avery day? My doctor told that this is mioclonic (and this is for people typical), not type of seizures. You things this too? >> Thanks a lot > >You're welcome. :-) > Understand. Thanks. When You had a red rash, You stopped taking drugs > immindiatly, irrespective which doze of drugs we taking that's right? When > You get this sympthoms? Which doze You get Lamitrin then and at the start? I just now looked at my personal records and see that it was exactly 4 years ago. I started by taking 2 X 25 mg/daily on one Sunday. It was a week later and still on that same dosage, on the following Sunday morning, that we noticed a red rash on my back. The Lamictal was discontinued immediately, but my other medicines were continued, of course. The doctor was called on Monday and he prescribed some prednisone (corticosteroid) to counteract the effect of the rash reaction. There was a lot of seizure activity during the following days & weeks. That may perhaps have been caused by withdrawal symptoms and/or by the prednisone that I was taking, in addition to my usual level of seizure activity. The following month, I started taking phenobarbital instead. >> It's a very good effective drug and only some people get the rash, so I >> hope it works well for you. >> > Do You know did this drugs is good for epi? Stopped seizures better than > Carbamazepin? It's impossible to give a general answer to that question. In some cases, one drug works better than the other and in some cases the situation is reversed. The only way to really know for sure is to try them. If the one that you're taking isn't working, then the choice is easier since Lamitrin has worked very well for so many other people. >>> Probably I will be also MRI and/or CT. A few years ago I had change in >>> occiput. So I have got a questions for You. 1) if I was change, so I will [quoted text clipped - 8 lines] > must change also now. More or this same like then. Am I right? Or change > which I had then, might to vanish? Sorry again :-) but I think we are still having a translation problem. I think we are having a problem with the English word "change". Are you sure that is the English word you want to use? If they detected something in the occipital region with that previous MRI/CT, I can't think of anything that would vanish. They must want to see if it has changed at all. (Is that what you meant - changed? (= is different)) >>> 2) Does Lamitrin is giving in epilepsy resistant to the treatment? >> Yes, it helps in some cases where other drugs aren't effective. It is >> chemically different from the others so it is not just more of the same >> thing. >> > But could be more bad and be seizures more offen and grand mal, isn't it? That is always a possibility, but not likely. It will probably help you just as it has helped many others. > But in this weeks I will be 2 times per 25 mg so results 50 mg >> Usual maintenance dose: 100 to 400 mg/day (1 or 2 divided doses). To [quoted text clipped - 4 lines] > I will be taking at the finish (without carbamazepine, but with Orfiril > 600-0-600) Lamitril 150-0-150 so 300 mg per day That's probably reasonable although I wonder how that number was calculated. I wonder about the speed of getting there since it says:"To achieve maintenance, doses may be increased by 25 to 50 mg/day every 1 to 2 weeks.". The larger the dose and the faster it goes up, the greater the chance of getting the rash. Gradual increase is recommended per guidelines to avoid that possibility > I've got questions. Do You have also problems with remember? Absolutely terrible problems! > I see that my remember is very much worest than one year ago. Also in small > things. For example I must writting take drugs, because can't remember doze > or did I get in this day. Or that I should to do something, or don't > remember, did I do. Do You have this symthomps too? I have all of those same problems. I can do things like go to a webpage to get a number to write here, see it on the webpage and tell myself to remember, then come here and I have already forgotten it and have to go back to the webpage to look again. I write on a desk calendar to keep track of my drugs. The calendar and my drug bottles sit on the table where I eat and have coffee in the morning so that I will see them and not forget. But I still sometimes do. :-( > You remember how we talk about jumpping ones side of arms, legs etc when I > starting fall a sleep and this isn't avery day? My doctor told that this is > mioclonic (and this is for people typical), not type of seizures. You things > this too? Maybe he is like my doctor then and simply doesn't know. It sounds the same. Everything is "typical" and "normal", even though it didn't happen to me years ago and only started when this epilepsy got worse. Part of the problem is that doctors already have enough trouble trying to understand and treat the brain of waking hours. They understand the sleeping brain even less. My doctor is only interested in whether or not I have seizures during waking hours. He has no interest in reports of what happens during my sleep and would prefer that I not bring it up. It's obvious that is the case. >> Understand. Thanks. When You had a red rash, You stopped taking drugs >> immindiatly, irrespective which doze of drugs we taking that's right? When [quoted text clipped - 10 lines] >prednisone that I was taking, in addition to my usual level of seizure activity. >The following month, I started taking phenobarbital instead. I am condoling. So if I good remember, snce You started take phenoberbital Your seizures are stopped or much limited. Isn't it? So You had red rash after 7 day since You started take Lamitrin? You told about "red rash" do You mean "red dots", "red smudges" or what exactly? This red rash You had only at Your back? When You took prednisone, you had more seizures (partials)? You have seizures yet? >>> It's a very good effective drug and only some people get the rash, so I >>> hope it works well for you. [quoted text clipped - 7 lines] >taking isn't working, then the choice is easier since Lamitrin has worked very >well for so many other people. Carbamazipana was better than other which I had ever took. But as You know I must change carbamazipana. I'm affraid only do I am allergic at Lamitrin. In thursday doctor will check it. >>>> Probably I will be also MRI and/or CT. A few years ago I had change in >>>> occiput. So I have got a questions for You. 1) if I was change, so I will [quoted text clipped - 16 lines] >can't think of anything that would vanish. They must want to see if it has >changed at all. (Is that what you meant - changed? (= is different)) Yes :-) I was thinking about it. Sorry for me problems with any translations and thanks for Your help which as we see is big :-) So if I was damage (but I don't know which) so I must it still. Am I right? >>>> 2) Does Lamitrin is giving in epilepsy resistant to the treatment? >>> Yes, it helps in some cases where other drugs aren't effective. It is [quoted text clipped - 5 lines] >That is always a possibility, but not likely. It will probably help you just as >it has helped many others. I hope. I told You like it will be in the future. >> But in this weeks I will be 2 times per 25 mg so results 50 mg >>> Usual maintenance dose: 100 to 400 mg/day (1 or 2 divided doses). To [quoted text clipped - 10 lines] >dose and the faster it goes up, the greater the chance of getting the rash. >Gradual increase is recommended per guidelines to avoid that possibility I know that dose is depense by weight. Doctor told me always how much I weight. He something calculate that if I weight 75 kg so 300 mg Lamitrin at the end. But like it is referring to other epi drugs and decresing one and incresing other I don't know. >> I've got questions. Do You have also problems with remember? > >Absolutely terrible problems! And You see that Your problems with remember has association with drugs (this or other, depense by drugs) or essence of epi and time illness? >> I see that my remember is very much worest than one year ago. Also in small >> things. For example I must writting take drugs, because can't remember doze [quoted text clipped - 7 lines] >and my drug bottles sit on the table where I eat and have coffee in the morning >so that I will see them and not forget. But I still sometimes do. :-( Yes, it's terrible. I'm not sure but 2 times in past doctor gave me Memotropil. If I good know this help a bit at the aour member, but since it started working You must taking this 6 weeks. I took it before egzams at the university. Without this (not every year I took this) my egzams was very hardly. >> You remember how we talk about jumpping ones side of arms, legs etc when I >> starting fall a sleep and this isn't avery day? My doctor told that this is [quoted text clipped - 4 lines] >Everything is "typical" and "normal", even though it didn't happen to me years >ago and only started when this epilepsy got worse. It's bad knews. So Your seizures is more and epilepsy is worse that past? I see that since I take Orfiril this sympthoms are less. I wish You health. >Part of the problem is that doctors already have enough trouble trying to >understand and treat the brain of waking hours. They understand the sleeping >brain even less. My doctor is only interested in whether or not I have seizures >during waking hours. He has no interest in reports of what happens during my >sleep and would prefer that I not bring it up. It's obvious that is the case. So he isn't interesting do You have a seizures during night, when You sleep? My doctor told me once that is bad news, other that is "typical" for every (mioclonic), other times that we don't know do I have seizures in sleep. And how to know what is exactlly. >>> Understand. Thanks. When You had a red rash, You stopped taking drugs >>> immindiatly, irrespective which doze of drugs we taking that's right? When [quoted text clipped - 12 lines] > I am condoling. So if I good remember, snce You started take > phenoberbital Your seizures are stopped or much limited. Isn't it? So Thank you, but please don't be concerned for me as my condition is fairly well under control. I later switched to Dilantin and that has worked the best of all. > You had red rash after 7 day since You started take Lamitrin? You told > about "red rash" do You mean "red dots", "red smudges" or what > exactly? This red rash You had only at Your back? It was 4 years ago, so the memory of those details may be partially faulty, but I asked my wife some questions about what she remembered. It was "red dots" and they were each about 1-2 millimeters in diameter and they were separated by gaps of about 1-2 mm. The background skin tone *might* have been slightly reddish itself. At the time we discovered it, the rash was across my back at the level of the armpits and shoulder blades. Please note that this is a description of *my* rash and I don't know if it is the same for other people. Theirs might first appear on other parts of the body. I really don't know about that. > When You took > prednisone, you had more seizures (partials)? You have seizures yet? Because the Lamictal was stopped then, there was therefore no drug to control the seizures until I started phenobarbital. I therefore continued to have seizures just like before I took the Lamictal. The prednisone was given only as a cure for the rash itself and not for seizures and it may have contributed to the overall imbalance of the body chemistry. >>>> It's a very good effective drug and only some people get the rash, so I >>>> hope it works well for you. [quoted text clipped - 10 lines] > know I must change carbamazipana. I'm affraid only do I am allergic at > Lamitrin. In thursday doctor will check it. You will probably be just fine. I think that most people are. It's only important that people know about the possibility of a rash, just in case. >>>>> Probably I will be also MRI and/or CT. A few years ago I had change in >>>>> occiput. So I have got a questions for You. 1) if I was change, so I will [quoted text clipped - 18 lines] > Yes :-) I was thinking about it. Sorry for me problems with any > translations Please don't worry about that. Your English is much much better than my Polish. :-) I only wanted to make certain that I understood you correctly. > and thanks for Your help which as we see is big :-) > So if I was damage (but I don't know which) so I must it still. Am I > right? The doctors must be looking for any change, but any basic damage they saw before would still be there. >>>>> 2) Does Lamitrin is giving in epilepsy resistant to the treatment? >>>> Yes, it helps in some cases where other drugs aren't effective. It is [quoted text clipped - 6 lines] > > I hope. I told You like it will be in the future. You certainly have my best wishes that it will help you. >>> But in this weeks I will be 2 times per 25 mg so results 50 mg >>>> Usual maintenance dose: 100 to 400 mg/day (1 or 2 divided doses). To [quoted text clipped - 13 lines] > Lamitrin at the end. But like it is referring to other epi drugs and > decresing one and incresing other I don't know. Yes, of course, that's right. I should have thought of that. >>> I've got questions. Do You have also problems with remember? >> Absolutely terrible problems! > > And You see that Your problems with remember has association with > drugs (this or other, depense by drugs) or essence of epi and time > illness? I really don't know. It could be either or both together. It all happened at the same time, so it's impossible to be certain about the cause. >>> I see that my remember is very much worest than one year ago. Also in small >>> things. For example I must writting take drugs, because can't remember doze [quoted text clipped - 12 lines] > before egzams at the university. Without this (not every year I took > this) my egzams was very hardly. That's very interesting! I didn't know about this Memotropil. Apparently you can't take it all the time? It seems to also have the name piracetam and may be chemically related to the gabapentin that I also take. >>> You remember how we talk about jumpping ones side of arms, legs etc when I >>> starting fall a sleep and this isn't avery day? My doctor told that this is [quoted text clipped - 7 lines] > past? I see that since I take Orfiril this sympthoms are less. I wish > You health. I'm sorry. I was being *sarcastic* about the doctor and caused a misunderstanding. I am fine in the daytime, but strange things happen in my sleep. If I was having full scale convulsions in my sleep, then I am certain that the doctor would do something about them. But he has no good answers for what is happening. >> Part of the problem is that doctors already have enough trouble trying to >> understand and treat the brain of waking hours. They understand the sleeping [quoted text clipped - 4 lines] > So he isn't interesting do You have a seizures during night, when You > sleep? No matter what I tell him, he says it is *not seizures*, it is "typical" and "normal" and *not seizures*. Those have stopped recently, so I will stop worrying about them. > My doctor told me once that is bad news, other that is > "typical" for every (mioclonic), other times that we don't know do I > have seizures in sleep. And how to know what is exactlly. One way they find out is by a "sleep study". You sleep overnight in a hospital bed and there are cameras to record everything that happens. There are also EEG and other instruments connected to you such as ones that monitor the oxygen level in your bloodstream. Different sleep disorders such as sleep apnea can then be diagnosed. . >>>> Understand. Thanks. When You had a red rash, You stopped taking drugs >>>> immindiatly, irrespective which doze of drugs we taking that's right? When [quoted text clipped - 28 lines] >of *my* rash and I don't know if it is the same for other people. Theirs might >first appear on other parts of the body. I really don't know about that. I saw on my back strange red dots, but it isn't allergic. Doctor told my that that I shouldn't worry about it, also dermatholog should see it. >> When You took >> prednisone, you had more seizures (partials)? You have seizures yet? [quoted text clipped - 22 lines] >You will probably be just fine. I think that most people are. It's only >important that people know about the possibility of a rash, just in case. Thanks for Your help. My doctor when give my Lamitrin told that I must see if I will not have a allergic but didn't told what exactly he think. >>>>>> Probably I will be also MRI and/or CT. A few years ago I had change in >>>>>> occiput. So I have got a questions for You. 1) if I was change, so I will [quoted text clipped - 21 lines] >Please don't worry about that. Your English is much much better than my Polish. >:-) I only wanted to make certain that I understood you correctly. Your Polish is good. And what I see You understand what I wanted to write. >> and thanks for Your help which as we see is big :-) >> So if I was damage (but I don't know which) so I must it still. Am I >> right? > >The doctors must be looking for any change, but any basic damage they saw before >would still be there. I was in other doctor as You know. He told that I probably also have something "sensual" and that it is connected with epi. So, he thought sensual seizures? If yes, so I have not only tonic-clonic generalized but also partial seizures? He said that when I told that I hear voice (somebody's calling me, that my phone is ringing) but it isn't. I have been doing MRI, at thursday he give me referral. And then he told me also why I have headache. He also told that he had hope, that my damage in brain isn't more. >>>>>> 2) Does Lamitrin is giving in epilepsy resistant to the treatment? >>>>> Yes, it helps in some cases where other drugs aren't effective. It is [quoted text clipped - 8 lines] > >You certainly have my best wishes that it will help you. Thank You :-) >>>> But in this weeks I will be 2 times per 25 mg so results 50 mg >>>>> Usual maintenance dose: 100 to 400 mg/day (1 or 2 divided doses). To [quoted text clipped - 25 lines] >I really don't know. It could be either or both together. It all happened at the >same time, so it's impossible to be certain about the cause. I told You, that in my example it had happend slowly, and my remember was slowly worse and worse. Doctor told that Lamictal don't do that will be worse with remember, but also will not be better. >>>> I see that my remember is very much worest than one year ago. Also in small >>>> things. For example I must writting take drugs, because can't remember doze [quoted text clipped - 16 lines] >can't take it all the time? It seems to also have the name piracetam and may be >chemically related to the gabapentin that I also take. I asked doctor about it (can I take it still). But he don't give me it since about 1-2 years about. I see this drugs (couse I have a little) and Memotropil is Piracetamum as You wrote. So it's also drugs used in epi.? >>>> You remember how we talk about jumpping ones side of arms, legs etc when I >>>> starting fall a sleep and this isn't avery day? My doctor told that this is [quoted text clipped - 13 lines] >that the doctor would do something about them. But he has no good answers for >what is happening. I'm sorry Partials. I don't exactlly understand You. Could You explain me what You had mean? I told about it with my second doctor, and he told that it could be mioclonic and typical for people without epi. People with epi could have it more. He spoke something about brain waves. But I don't know did he told it because it's true, or he don't know exaclly and it's not easy to estimations does it typical or is seizures. Am I right? >>> Part of the problem is that doctors already have enough trouble trying to >>> understand and treat the brain of waking hours. They understand the sleeping [quoted text clipped - 8 lines] >"normal" and *not seizures*. Those have stopped recently, so I will stop >worrying about them. It's good news to hear this that You don't seizures and don't worry it. >> My doctor told me once that is bad news, other that is >> "typical" for every (mioclonic), other times that we don't know do I [quoted text clipped - 7 lines] > >. > I was in other doctor as You know. He told that I probably also have > something "sensual" and that it is connected with epi. So, he thought > sensual seizures? If yes, so I have not only tonic-clonic generalized > but also partial seizures? He said that when I told that I hear voice > (somebody's calling me, that my phone is ringing) but it isn't. I remember from when we were talking earlier this year. At that time, I thought you had tonic-clonic seizures, but I later realized that was wrong and that it was ~11 years since you had one of those. Yes, your seizures since then have been Simple Partial seizures from your description and that would include the jerking of your limbs. Perhaps that word "sensual" is of the "senses" such as hearing and sight? > I asked doctor about it (can I take it still). But he don't give me it > since about 1-2 years about. I see this drugs (couse I have a little) > and Memotropil is Piracetamum as You wrote. So it's also drugs used in > epi.? It doesn't help with epi. and the doctors don't prescribe it for anything in this country. It is used mostly in Europe according to what I just read. It might have value for some conditions, such as your use for memory, but none of that has been proven. One warning is that abrupt discontinuation after use for some time can cause seizures - the same warning as for epi. drugs. Perhaps that is the reason your doctor doesn't give you more. You should throw your old ones away because drugs are like food and spoil with age. > I'm sorry Partials. I don't exactlly understand You. Could You explain > me what You had mean? [quoted text clipped - 3 lines] > did he told it because it's true, or he don't know exaclly and it's > not easy to estimations does it typical or is seizures. Am I right? Yes. That's right. What he says can happen to people without epi. and to people with epi. Those are the only answers that they know. If you describe something that is happening and it obviously is not mioclonic, then they are very puzzled. . >> I was in other doctor as You know. He told that I probably also have >> something "sensual" and that it is connected with epi. So, he thought [quoted text clipped - 9 lines] > >Perhaps that word "sensual" is of the "senses" such as hearing and sight? Yes, the better word which I should to used is "senses" and it means that I have a simple partial, seizures senses. Isn't it? Also I had last seizures tonic-clonic about 11 years ego, doctor think that I still have primary general , tonic-clonic. This second doctor tols that I have also probably simple partial. And it is also why I ask You about it. You know many about it and told me more than doctor :-) Today I was also took a reference of MRI. And told me that result show do I have a clonic-tonic at night. If MRI will not show, I probably will video-eeg. >> I asked doctor about it (can I take it still). But he don't give me it >> since about 1-2 years about. I see this drugs (couse I have a little) [quoted text clipped - 8 lines] >is the reason your doctor doesn't give you more. You should throw your old ones >away because drugs are like food and spoil with age. Yes, You must have right. >> I'm sorry Partials. I don't exactlly understand You. Could You explain >> me what You had mean? [quoted text clipped - 7 lines] >with epi. Those are the only answers that they know. If you describe something >that is happening and it obviously is not mioclonic, then they are very puzzled. Thanks for You help also in translate :-) How Mioclonic is look like for You. If I good remember You have it too. What doctor told You, that is or isn't mioclonic? Do You know something, how we could see diference between mioclonic and epi seizures? >> I remember from when we were talking earlier this year. At that time, I thought >> you had tonic-clonic seizures, but I later realized that was wrong and that it [quoted text clipped - 6 lines] > Yes, the better word which I should to used is "senses" and it means > that I have a simple partial, seizures senses. Isn't it? When having a "simple partial", people will often have strange tastes (sense of taste), or smell strange odors (sense of smell). Hearing voices (sense of hearing) is another involving a sense because that is the part of the brain that is effected. The words "simple" & "partial", however, have a different meaning there than "senses" though. "Simple" means that the person is awake and fully conscious during the seizure. That is different than the "complex" where the consciosness is altered and the person has no memory of the seizure. "Partial" just means that only a part of the brain is effected, unlike the "general" (grand mal, tonic-clonic) where all of the brain is effected. > Also I had last seizures tonic-clonic about 11 years ego, doctor think > that I still have primary general , tonic-clonic. Then those have been controlled by the drugs you have been taking since you haven't had one in 11 years while you have been taking drugs. > This second doctor > tols that I have also probably simple partial. That's certainly what they sound like from the way you described them. Let's hope that the Lamitrin works for those. > Today I was also took a reference of MRI. And told me that result > show do I have a clonic-tonic at night. If MRI will not show, I > probably will video-eeg. It would have to be a video-eeg to show that. The MRI can only show a static picture and although it could show formations that might incline someone towards having a particular type of seizure, but it won't show if they are having them. > How Mioclonic is look like for You. If I good remember You have it > too. What doctor told You, that is or isn't mioclonic? > Do You know something, how we could see diference between mioclonic > and epi seizures? Well, they are sudden jerking movements - an arm or a leg usually? or most noticeably, although other muscle groups can be included. It looks as though it is called epilepsy when it is a major problem and is called *normal* when it happens infrequently even to people who otherwise do have an epileptic condition. Here's an article on the topic that doesn't really answer the question, but is probably as close as we will ever get: http://www.epilepsy.com/epilepsy/seizure_myoclonic.html >>> I remember from when we were talking earlier this year. At that time, I thought >>> you had tonic-clonic seizures, but I later realized that was wrong and that it [quoted text clipped - 11 lines] >hearing) is another involving a sense because that is the part of the brain that >is effected. Do You thinks, that people without epilepsy also could have this sypthoms sometimes? I heard opinion ones doctor, that yes. What do You think? If yes, how we could recognize one from another. If it's possible. >The words "simple" & "partial", however, have a different meaning there than >"senses" though. "Simple" means that the person is awake and fully conscious [quoted text clipped - 8 lines] >Then those have been controlled by the drugs you have been taking since you >haven't had one in 11 years while you have been taking drugs. understand >> This second doctor >> tols that I have also probably simple partial. > >That's certainly what they sound like from the way you described them. Let's >hope that the Lamitrin works for those. Yes, I hope too. We see how it will be later. Now I feel giddy much less, than I didn't take Lamitrin. >> Today I was also took a reference of MRI. And told me that result >> show do I have a clonic-tonic at night. If MRI will not show, I [quoted text clipped - 16 lines] >question, but is probably as close as we will ever get: >http://www.epilepsy.com/epilepsy/seizure_myoclonic.html Thanks. I think about this article and if I will be questions, could I ask You? My doctor is very good and I belive him, but I feel like he wontn't upset me and don't tell me everything. But I'm so interesting :-) >>> Yes, the better word which I should to used is "senses" and it means >>> that I have a simple partial, seizures senses. Isn't it? [quoted text clipped - 7 lines] > think? If yes, how we could recognize one from another. If it's > possible. That is something that I have never given much thought to. I suppose it is possible from errors in the way the brain processes the signal. We sometimes hear words incorrectly, so why no odors or sounds. In fact, I have a theory about sounds. I often think I hear a chorus (singing) in the background even though I do not have the radio on. There is machinery making a steady sound and I suppose that my hearing centers are interpreting that as the type of music I somethimes have on the radio. The right background noises could be interpreted as voices also! >> Well, they are sudden jerking movements - an arm or a leg usually? or most >> noticeably, although other muscle groups can be included. It looks as though it [quoted text clipped - 5 lines] > Thanks. I think about this article and if I will be questions, could I > ask You? Feel free to ask! :) > My doctor is very good and I belive him, but I feel like he > wontn't upset me and don't tell me everything. But I'm so interesting When you are interested like you are, keep asking him more questions and make him answer! :-) He does sound like a good doctor. - G'day Angels, It is useless comparing what medication you are taking and the dosages you are on to anyone else because as Dave always reminds us, quite rightly, we are all different and what works for any one of us may not be suitable for you. Throughout the course of my life I've used several different medications to varying degrees of success. Sometimes other medications I've been prescribed, not for epilepsy, have had an adverse effect on the effectiveness of the particular anti-epileptic drug I have been taking at the time. I've had good results, until just recently, using a combination of Tegretol and Lamictal, and prior to that Tegretol and Topomax, unfortunately my body couldn't accept either Lamictal or Topomax where others on this group seem to have achieved good results with both of these drugs without adverse side effects. You may find that it is just a process of trial and error till you find the correct drug or combination of drugs that will suit you personally. Just make sure you have a Doctor you can trust and try talking to your pharmacist. I've found that most pharmacists are happy to answer your questions as long as you approach them when they are not too busy and generally they will have a more thorough knowledge of medications than the Doctor. Good Luck, Pablo >>> Hi everyone :-) >>> I would like to ask You, which drugs is used to in the [quoted text clipped - 30 lines] > > Thanks a lot Hallo Pablo, Understand You. Could You tell me which drugs do You took and what sort of seizures do You have? What do You takking now, and does it help You? Do You have a problems with remember? I do. Does drugs do that You are doing things slowlly than few years ago or than other people? If I good understand You, Carbamazepin and Lamotrigine didn't accept Your organism and You had seizures? Did You took Topamax and had also bad sympthoms? So You had a red rish skin when You took Lamirin and Tegretol? I wish You good luck and good health >G'day Angels, >It is useless comparing what medication you are taking and the dosages you [quoted text clipped - 53 lines] >> >> Thanks a lot G'day Angels, I have suffered three types of seizures throughout the period which I have had epilepsy. My epilepsy seems to stem from scarring of my temporal lobe which the neurologist believes was caused by high fevers I suffered during my early childhood. I have had simple partial seizures which may last only a few seconds and take the form of a tingling feeling not unlike what is described as "someone walking over your grave" but generally a little more intense. During these episodes I am fully aware of what's going on around me and can respond to people around me. I also have had complex partial seizures where by I lose awareness of my surroundings and time but may still be responsive to vocal stimuli, and I will often lose bladder control. And I have also had Grand Mal, or Tonic Clonic, seizures though that hasn't occurred since though this hasn't occurred for twenty years now. Currently I take 1600 mg of Tegretol CR (carbamazepine, controlled release) in two 800 mg doses, and 1000 mg of Keppra (leviteractem) in two 500 mg doses. each dose is taken approximately 12 hours apart. I have only been taking this combination for approximately 9 weeks now but have found that I have not had any epileptic activity at all. Prior to this I was taking Tegretol CR 1600 mg and 400 mg of Lamictal (lamotrigine) for nearly 5 years, a combination which was largely effective with only a few simple partial seizures or auras, and one complex partial seizure couple of years ago. I found that Tegretol when I first started to take it caused me to experience feelings of light headedness, euphoria & memory loss when I first started to take it but these side effects faded pretty much over a 3 month period. Tegretol has caused me to be a much heavier sleeper. I started to take Lamictal after having severe problems with the side-effects caused by Topomax (topiramate). Topomax caused me drastic memory loss, depression and stress and while it gave total control epilepsy wise it nearly made me into a basket case. Over the years I have also used Dilantin (phenytoin sodium), Epilim (sodium valproate) and Sabril (vigabatrin) to varying degrees of success. My doctor was happy to see me off Sabril as it allegedly can cause tunnel vision. As yet I have not fully recovered from my skin rash and am awaiting the results from further blood tests and a biopsy but the rash occurred after I had been taking both Tegretol ad Lamictal for several years which makes it a little strange but removing Lamictal has helped. It would safe to say that drugs have had an effect on me throughout the years but not to the extent that I haven't been able to complete a trade as an electrician and to further progress to a supervisory and management role at the company where I work. As I said before it is just a matter of trial and error to find the drug or combination of drugs which will best suit you and your needs. Don't be afraid to question your doctor and make sure he/she knows everything there is to know about you and what you want and expect, lets face you are the customer. I always found it a good idea to keep a bit of a diary on my epilepsy which certainly helps particularly if you have to see a new doctor or specialist. Pablo > Hallo Pablo, > Understand You. Could You tell me which drugs do You took and what [quoted text clipped - 6 lines] > Lamirin and Tegretol? > I wish You good luck and good health Hello Pablo, I see that You took many diffrent drugs p.epi. Can You told that Your seizures are control? If I good understand, Your grand mal was over 20 years ago. Isn't it? Did You lose consciousness and had a palpitation full body too? Does Keppra can You controll other seizures epi too? Do You have other seizures now or not? When You have last? So when You started illness epi in childhood (how many years do You had)? How looked and look now Your EEG? Have You seizures then? Have You ever had MRI or CT? What was it? It's good that You don't have a Grand mal, Tonic Clonic now. I hope that You will be controll full seizures epi and You haven't it. I don't know how many do You know about me. I told you in short and if You want to ask me do it. Meabe I will help You too. When I had 6.5 years I lose consciousness for over 10 hours. After about 40 minutes since it started my heart stopped working. I was in status epilepticus so by this 10 years. It started in the evening. I put at the bed. Lose conciousness and my head was turn at the left side (once year ago, I heard from my doctor, that if is that one side head is turn in other side that other body or head is turn left or right when full body not trun, then is epi. Even this is first time), in my mouth was foam. I know it only from other people who told me about it. I started took Dipromal. Next Amizepin and dipromal. next convulex. I had trying took over drugs and I get seizures (grand mal, tonic clonic). I took Amizepin. After few years was trying took over drugs and I get again seizures grand mal (tonic clonic). Every my seizures is connected with status epilepticus and is in night. I took long time Tegretol. After that Trileptal. Becouse I had headache, dizziness Trileptal was incressing to 1800 per day in 2 dozes. It doesn't help. I was Trileptal with Orfiril. It help but for a 2-3 month. Now as You know I will be changing Trileptal to Lamitrin. I also have that I hear voice which isn't it (esspecially in the evening) and of trembling of hands or legs. When I was sleept sometimes my one side body is jumping up so I weake up. I have also that my hands is getting to my head for a one-two seconds and back. I don't know what is it. Doctor told me that I have only grand mal and when I was taking MRI/CT i was damage in occiput brain. So probably I will be MRI/CT once again. My epi is temporal. In EEG I had and still have a seizures, severe waves. >G'day Angels, >I have suffered three types of seizures throughout the period which I have [quoted text clipped - 57 lines] >> Lamirin and Tegretol? >> I wish You good luck and good health G'day Angels, For the period from June 2002 till I started taking Keppra about ten weeks ago I suffered no significant seizure activity except for a few auras. It would have to be around four years since I suffered a complex partial seizure. Since combining Keppra with my Tegretol I have had no seizure activity at all, so I'm keeping my fingers crossed. I have found that the combination of two drugs is certainly a better therapy for me. When I had my last Grand mal seizure 20 years ago I did lose consciousness for a prolonged period, as well as bladder incontinence and I chewed my tongue pretty badly. I felt like I had been run over by a truck when I awoke and my muscles ached a bit. I was 4 years old (I'm nearly 43 now) when I had my first seizure and it was diagnosed as infantile convulsions. I suffered infrequent seizures till I was about eleven years old then had a remission period of about five years before they started again. I've had four EEG's which showed no seizure activity ( which only proves I suffered no seizure activity at the specific time the EEG's were done). I have had three MRI's done, all of which confirmed I had some scarring to my right temporal lobe, I think the technical term was "Mesial Temporal Sclerosis". Compared to many people who use this site I consider myself pretty lucky and regard my epilepsy more of an inconvenience than anything. Pablo > Hello Pablo, > I see that You took many diffrent drugs p.epi. Can You told [quoted text clipped - 115 lines] >>> Lamirin and Tegretol? >>> I wish You good luck and good health Hi Pablo, It's a good news to know that so many years You didn't have grand mal. I hope that still it will be. What I see at me, two drugs is also better than one. It's good that Your doctor and You found good drugs and they help. It's good that You have a good EEG. Do You have in the future stopped taking drugs? Do you had in the past trying stopped drugs? Does You paid for Keppra? In Poland Keppra is unavilable. I know that people could take care himself, but in 100% paid, and it's about 300 (meabe more) USA $ per month. For other drugs I paid some part of cost, it depense from drugs and doze. For my drugs it's about 10-15 USA $ per month. So You don't have auras now? I wish You good luck and many good health. >G'day Angels, >For the period from June 2002 till I started taking Keppra about ten weeks [quoted text clipped - 140 lines] >>>> Lamirin and Tegretol? >>>> I wish You good luck and good health G'day Angels, For a period from when I was eleven years old through to when I was eighteen I stopped taking medication and was relatively seizure free, I used to carry Serapax (Oxazepam, part of the valium family of drugs I believe) which I would take if I had an aura and a seizure seemed imminent, but since then I have found that if I want any semblance of control then I will have to continue to take medication and I am accepting of that fact. I wouldn't consider stopping medication in the near future if at all without some other reputable form of therapy. I have considered and discounted surgery as I don't think my condition is severe enough to outweigh the possible risks which may accompany surgery. Also I like who I am and don't want to risk anything changing who I am. Currently it costs $30 Australian for one months prescription of Keppra under the Pharmaceutical benefits scheme (PBS) which exists in Australia. Fortunately I have reached the safety net threshold on the PBS which means it now costs me $4.50 per prescription for all my drugs till the end of the year. And yes, since I started taking Keppra in combination with Tegretol I have had no epileptic activity, not even an aura which I have always had as a warning sign to a possibly more serious seizure looming. Pablo > Hi Pablo, > It's a good news to know that so many years You didn't have grand mal. [quoted text clipped - 37 lines] >> >>Pablo Hello Pablo, I's nice to hear that everything is ok and You don't have to seizures and aura. I understand with You that surgery is last decision is treatment. Does 30 Australian $per mounth is much or isn't much? How long people must work to have 30 $ ? I see that for me Tegretol also was the best drugs epi. And I hope that stop taking Tegretol and taking Lamitrin will be also as same good as Tegretol. How does it look like aura for You? You hear something, see something or what? How do You know that it is aura? So alweys after aura is seizures? At thursday I will be reference at MRI but I must waiting at my turn. My second doctor told me that I probably have also something sensual. But I don't know what. Probably seizures I think. So partials seizures and generalized tonic-clonic. And he told that he don't know does I will be only Lamitrin or (probably this) Lamitrin and Orfiril. With best wishes Angels >G'day Angels, >For a period from when I was eleven years old through to when I was eighteen [quoted text clipped - 59 lines] >>> >>>Pablo
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