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Medical Forum / Diseases and Disorders / Epilepsy / September 2006

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Invitation to Participate

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healthresearcher - 27 Sep 2006 22:07 GMT
Hi All,

If you're on the main yahoo groups for epilepsy you may have seen this
already.

RCG Research is looking to speak with people who have epilepsy to
participate in a national telephone interview study.  It's 45 min. and
pays $75.  It's coming up Oct. 12 and 13th. (Thurs. and Fri.)

If you're interested in participating, please respond privately to
rudeutsch@gmail.com with the following information:

Name
Age
Occupation
Rx currently take for epilepsy
Do you have any insurance to at least partially pay for epilepsy Rx?
Phone(s) and best time(s) to call

This is for adults only and only U.S. residents

I look forward to speaking with you soon.

Ruth
partials - 27 Sep 2006 22:38 GMT
This smells like some type of scam. No information is given about RCG Research,
who they are, their location, credentials, background or mission. I suspect that
the people who fill in the form and email it will have served the purpose and
will never see any money at all.

> Hi All,
>
[quoted text clipped - 16 lines]
>
> Ruth
G. - 27 Sep 2006 23:37 GMT
> This smells like some type of scam. No information is given about RCG Research,
> who they are, their location, credentials, background or mission. I suspect that
> the people who fill in the form and email it will have served the purpose and
> will never see any money at all.

Ya think?  I'm not in US so guess I can't get big bucks anyway. They've
only used that Email address twice in last 1? year -->  (and date they
posted 'from' is set wrong on the source computer-- April and May?,
unless their ISP is *really slow.. )  The second of 2 posts that
address was used on is what showed up on our group, and should be
flagged as Sept.27  ?? )
.  The headers option on my server takes out part of Source Email
address (below), I didn't put ...s in line 1 and later. I put the **s
in line one under 'recent posts'.
  It could be a valid marketing firm doing research for various
charities or support links (2 ),  but when our Provincial Ep. Chapter
wants feedback on e.g. what things can be done to help with living with
Epilepsy, they do it via survey included in my quarterly Ep.
Association newsmagazine (I just got today), by **regular mail, for
free.   G./

rudeut...@gmail.com
This person has not created a profile.
Name:
Nickname:
Location:
Title:
Industry:
Email address:  rudeut...@gmail.com
Website or Blog:
Quote:

Recent Posts:

***-->   Posts in  All 2 Groups -- 2 messages//  alt.support.epilepsy
-- 1 message alt.support.arthritis -- 1 message

Invitation to Participate     alt.support.epilepsy  59 minutes ago
*****************************************************************************
Arthritis Telephone Study You May Want to Participate In
alt.support.arthritis  Jul 12
***************************************************************************************************
***** Note DATE (month) of the 2 messages below vs. above-- that was
why I wondered if computer date (their's) was set wrong by whoever
wanted the survey advertised. ***

 Post Activity
   Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2006                    1       1

> > Hi All,
> > If you're on the main yahoo groups for epilepsy you may have seen this
[quoted text clipped - 14 lines]
> > I look forward to speaking with you soon.
> > Ruth
partials - 28 Sep 2006 02:06 GMT
They've been playing the same game with some other medical conditions also and I
think that's why you saw the April & May because they were doing that back then.
For whatever reason, they're using throwaway addresses and this latest was
posted from St Louis, Missouri via Charter Communications. I suppose charter
could be contacted to investigate.

Respectible companies don't operate this way. For all we know, It could be some
bored 16 year old just messing around. You're dealing with a big unknown. I
certainly would not email them any information. It's none of their business and
don't hold your breath while waiting for the money to arrive.

>> This smells like some type of scam. No information is given about RCG Research,
>> who they are, their location, credentials, background or mission. I suspect that
[quoted text clipped - 63 lines]
>>> I look forward to speaking with you soon.
>>> Ruth
healthresearcher - 28 Sep 2006 09:15 GMT
I can appreciate that any of you who have never participated in market
research studies might wonder about who is RCG Research and why are we
posting here?  Let me explain.  When a pharmaceutical co. wants to
conduct a market research study of its customers, it first contacts one
of the large market research firms that have national offices.  (These
are the ones with impressive websites.) These companies in turn
contract out the work to field supervisors.  I work for such a person
who calls her company RCG Research.  We do lots of health-related
studies, and this is the second one I've done with epilepsy patients.
We are told to go find the people that match particular criteria in
order to find the right people to participate.  Most of the support
group leaders I spoke with told me that their patients were not very
functional; for this study you need to not be disabled. It just makes
sense to find on-line groups that relate to epilepsy.  We do both
in-person focus groups as well as telephone interviews.  We never
solicit anyone or ask for anything other than information pertinent to
what the client needs to know.  Many times we will call participants 6
months later or even a year later if another study comes our way for
which they would be qualified.  It is in our best interest to create a
good relationship with our participants.  At the same time, we have to
be weary of those who lie about themselves in order to be part of the
study because they simply want the money.  Some people go to great
lengths to fabricate stories.  That's why I ask you to tell me what Rx
you are taking rather than for me to tell you which ones you need to
take to qualify.  Each study is different in terms of what criteria
we're looking for, how many people are needed, and various other
distinctions.

This is my first experience with Google groups.  I frankly didn't see
anything about a profile when I joined earlier today.  I also didn't
know that my email contact info would be hidden; now I understand it's
a privacy issue (yahoo doesn't hide that information in the body of a
posting).  In the yahoo groujps I normally introduce myself to the
moderator and explain all this--asking permission to post, and once
he/she understands that this kind of study is a win-win for both the
patients and the companies making the products they are using, they are
happy to have me post.

We still need a few more people for this study. So I decided to see if
some epilepsy patients in this group might want to participate.

I guess I'm confused how it's supposed to let people contact me who are
interested if it partially blocks out my email address.  Hmmmm.  I
wonder if it's ok to post a toll-free phone number people can call if
they're interested?  Let's test the water.  If you're interested,
please call me between noon and midnight at (888) 846-7950. (I'm on the
west coast.)

I hope this answers your questions and allays your concerns.

Ruth Deutsch
Market Research Coordinator
partials - 28 Sep 2006 19:11 GMT
Your behavior is that of what we normally call a spammer and you either didn't
check to see if Advertising your study here was permissible or you know it isn't
and don't care. Google Groups only provides yet another means of access to the
newsgroups that form what is called Usenet and UseNet has traditionally been
extremely hostile to any form of Advertising except in select reserved
newsgroups. See
http://tgos.org/newbie/rules.html for an education on Usenet and pay particular
attention to item 8.
"8.Advertising is unacceptable behavior and even illegal in certain
countries/states <etc>".  Your ISP and Google might well cancel your service if
they receive complaints about this behavior.

This newsgroup, alt.support.epilepsy, exists for those of us with epilepsy and
our supporters to share with one another, not for the conduct of someone's business.

The response below was considerably shy of giving any actual details on RCG
Research. The means for the supposed monetary payment wasn't even mentioned, but
contrary to the contrived impression that was given in the original post that
everyone who responded would be interviewed and paid, it has now become clear
that only those who are "qualified" will be "interviewed". So the rest can
forget payment for responding and I wouldn't trust that anyone else will be paid
either. Perhaps they won't be "qualified" for payment.

My strong advice is to avoid this company completely.

> I can appreciate that any of you who have never participated in market
> research studies might wonder about who is RCG Research and why are we
[quoted text clipped - 48 lines]
> Ruth Deutsch
> Market Research Coordinator
howdydave - 29 Sep 2006 02:37 GMT
Howdy Partials!

Just because you read this board on Google
does not necessarily mean that it was posted
via Google.

Any server that access the ALT boards can be used.

Dave

> Your behavior is that of what we normally call a spammer and you either didn't
> check to see if Advertising your study here was permissible or you know it isn't
[quoted text clipped - 73 lines]
> > Ruth Deutsch
> > Market Research Coordinator
partials - 29 Sep 2006 03:28 GMT
> Howdy Partials!
>
> Just because you read this board on Google

I don't and didn't. My newsreader client does a far better job.

> does not necessarily mean that it was posted
> via Google.

That was not the basis for concluding that she is posting via Google. She
indicated that she was in her last post. If that wasn't enough, one only needs
to read her headers in order to know. Here's a relevant portion from her headers
showing that she is posting from Google.
Newsgroups: alt.support.epilepsy
Subject: Invitation to Participate
Date: 27 Sep 2006 14:07:18 -0700
Organization: http://groups.google.com
Lines: 25
Message-ID: <1159391238.351136.324640@m73g2000cwd.googlegroups.com>
NNTP-Posting-Host: 24.205.6.169
Mime-Version: 1.0
Content-Type: text/plain; charset="iso-8859-1"
X-Trace: posting.google.com 1159391244 25037 127.0.0.1 (27 Sep 2006 21:07:24 GMT)
X-Complaints-To: groups-abuse@google.com

So right there it is! Notice that "groups-abuse@google.com"? They get very
unhappy about this sort of crap.

> Any server that access the ALT boards can be used.

Yes! You are right about that. :-)

And I forgot to mention before that, not only was the original post Advertising,
but it was false and misleading Advertising as well.

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