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Medical Forum / Diseases and Disorders / Epilepsy / September 2006

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Christopher Range - 17 Sep 2006 09:35 GMT
My name is Christopher.  I am new to this newsgroup but, not to
epilepsy.  I was born in Germany May 16, 1967.  I got epilepsy when, I
was operated on for Hydrocephalu and, a brain aneurysm, at 8mths. of age.

I was intending to get my Maryland Drivers License about 10yrs. ago.  I
changed my mind when I realized that, there are maniacal drivers on the
road that, mother puts to shame.  Because of this, I changed my mind.

At around the same time, I had a tonic-clonic seizure.  I was married an
my (ex, as of 2000)wife just stared at me, despite having given her
several years to prepare for the possibility.  In 1998, a year after she
left me, she told me that, she had wished my disabilities would 'just go
away'.  Well, In 2004(17yrs. after we met and, 4yrs. after we divorced),
she finally admitted to what I suspected from the day we met(and she had
denied for 17yrs.).  She admitted to being disabled.

While it may not be considered funny, I think of tonic-clonic seizures
being similar to, the way Mick Jagger performs on stage.  When I have
given the pharmacist several days notice that, I needed my
anti-convulsant refilled and, the have said it is not ready, I promptly
tell them, that, I might as well do my Mick Jagger imitation courtesy of
a tonic-clonic seizure.

Christopher
G. - 17 Sep 2006 14:14 GMT
> My name is Christopher.  I am new to this newsgroup but, not to
> epilepsy.  I was born in Germany May 16, 1967.  I got epilepsy when, I
> was operated on for Hydrocephalu and, a brain aneurysm, at 8mths. of age.

*** Hi, welcome to our newsgroup.  It's quiet at the moment, other
times there might be 8-10 people active depending how often they look
at their groups.  They are also in multiple timezones around the world
so might not read the posts until during the week where they are.
  I had Encephalitis as an adult which produced similar effects likely
to what you have.  I already had a driver's licence but haven't driven
(or owned a car) for years, but hope to again one day.   I just haven't
needed one where I live so far, although that could change later this
year. /

> I was intending to get my Maryland Drivers License about 10yrs. ago.  I
> changed my mind when I realized that, there are maniacal drivers on the
> road that, mother puts to shame.  Because of this, I changed my mind.
***
G.  Do your type of seizures react to stress? or has any Doctor
suggested that *if you wanted to* (get a licence) that your type of
seizures might produce a problem?   Many of us are Controlled, with
medications or other treatments, and the rules about how long since
your *last seizure you can legally apply for a Driver's Licence will
vary by State in the U.S.,  Province in Canada and similar things in
other countries.  If no one you consult knows what the length of time
is, a Local Chapter of an Epilepsy Association can tell you.    If you
are in the U.S., the Ep. Foundation likely has a summary on their link
within http://efa.org  site.
   I think there is also a link under Julie's Idaho Website if you see
one of her posts in the earlier message threads, the www address is
near the end usually. /

> At around the same time, I had a tonic-clonic seizure.  I was married an
> my (ex, as of 2000)wife just stared at me, despite having given her
[quoted text clipped - 3 lines]
> she finally admitted to what I suspected from the day we met(and she had
> denied for 17yrs.).  She admitted to being disabled.
*** Lots of people are at first uncomfortable near someone with various
types of disabilities.  Most times it's something Internal to **them
and not to you or whoever they're reacting to. They're reacting to
their *Own Pre-Ideas and Misconceptions of what a particular condition
might be.  And may fear they might 'catch it' (sometimes) also.  Now
she can see what it feels like from the other side, or she was then
too. /

> While it may not be considered funny, I think of tonic-clonic seizures
> being similar to, the way Mick Jagger performs on stage.  When I have
[quoted text clipped - 3 lines]
> a tonic-clonic seizure.>
> Christopher

   Do you take any pills to control the types of seizures you have? or
are you seeing a Doctor who treats those and knows you had them before?
 Some people are able to adjust and 'grow out' of the types of
seizures they might be having.  Others might need pills or other
treatments to keep their seizures controlled. If you list any pills
you've used for seizures or might be using, some of the lurkers might
have experiences with a particular pill, or what they found made their
seizure types worse.   Many pills that are used now are common across
many countries, and the pill type might even suggest which seizure
types they might be trying to treat.  That will also save searching
other seizure types that might not be like the ones you had.

 I haven't had a seizure since 1998, but still take medications each
Morning and Night to control the Complex Partial types that I had.
The dose I use is stable and hasn't needed adjusting since before that
date.   Others here might need to see their Doctors more often and have
more frequent dose changes as they adapt to some pills or if they are
e.g. teenagers and still growing.
  You should see some other posts over next few days after the weekend
if over.  (Some people don't read the group on weekends. )  If you have
other questions or there's any information you never got originally or
wondered about, you can ask those here too, as someone will often have
a website or link they had found, and that would save you a bunch of
searching for stuff that's already available easily here.
   Welcome to our neighbourhood.      Gordon. /
howdydave - 17 Sep 2006 17:12 GMT
> > My name is Christopher.  I am new to this newsgroup but, not to
> > epilepsy.  I was born in Germany May 16, 1967.  I got epilepsy when, I
[quoted text clipped - 76 lines]
> searching for stuff that's already available easily here.
>     Welcome to our neighbourhood.      Gordon. /

Howdy Christopher!

Welcome to the legion that fights the good
fight against ignorance!

Dave
musictherapy - 18 Sep 2006 02:43 GMT
> My name is Christopher.  I am new to this newsgroup but, not to
> epilepsy.  I was born in Germany May 16, 1967.  I got epilepsy when, I
[quoted text clipped - 20 lines]
>
> Christopher

I'm a newbie to this one epilepsy group too but have had Epilepsy since
age 5 when my VP shunt blocked after my prior hydrocephalus
surgery....(orig at 2 months of age).....so see christopher you aren't
alone. Mine was in 1980 though. And I have a occipital+temporal
resection /craniotomy done in 2001 at NYU which has helped me a great
deal. I am now on keppra and zonegran and have been seizure free now
for over 2 and a half years.
Efstathia

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