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Medical Forum / Diseases and Disorders / Epilepsy / September 2006#1 @ 25yo
My 1st post here. I'm _surprised_ to be posting here. Married in May 2005 after meeting six months earlier. In May 2006, my wife had a siezure. I had returned home from work, showered, ate, we both got in bed, she talked for 20 minutes. I finally said 'I want to sleep for 20 minutes and then we can go for a walk.' Less than a minute of quiet passed, something seemed wrong so I touched her. She was rigid, having a seizure. A few minutes passed where her eyes rolled back, bubbles came from the mouth, seemed like only a slow final exhale of bubbles. The bubbles stopped for about 15 seconds. I thought she might be dead. Then another very ragged breath began and I dialed 911. By the time she arrived at the hospital she was alert. We walked out of the hospital at about 8pm. She told me about the "noise" she had in her head as the seizure began; sort of a big rushing wind. EEG was done a few days later. Later, visited a neurologist who reviewed EEG and saw no problems. After reading Internet web pages, I thought 'she's rail thin, maybe some supermodel seizure syndrome.' We try to eat more and now she's ~10 pounds (4-5 Kgs) heavier. In Aug 2006, one day, about 1pm, she said she could control or stop the "noise" in her head. A few hours later, in the car, she had her second seizure. Eyes roll back. Body semi-rigid. No bubbles this time. Breathing rough, but not appearing to stop. When she started to talk a little (right after what appeared to be dream-acting) I returned to the drivers seat and started for home. A few minutes later she said 'where are we?' I explained. She said she had a Terrible headache. 30 minutes later, we returned home; by this time we both felt no need for the hospital emergency room. she: 25, 104 lbs (47 Kgs), 5'7" (172 cm). request: Dr. or clinic recommendations (we live near Alexandria, VA). Best Dr. or clinic descriptions. Headache treatment recommendations. Book (publication) recommendations. Child bearing information, women's day is overdue. Other recommendations a.e.s posters think could be useful. thx Hi C. Zure - my first seizure was at age 40, shortly after the death of my younger brother, Other concurrent events were the death of my grandmother and the end of my marriage. Since then, with or w/o meds the seizures have been pretty consistent at about one every three weeks, All the fancy tests come up normal, as in your wife's case. I take my dilantin not because it controls the seizures but because I am a burden on society and I can say I am following the doctor's orders. I believe that epilepsy is not a disease but a fairly rare human condition that can have the benefit of causing some of us to look at old things in new ways - what I call "new eyes." However, there are dangers, and I recommend that when your wife gets one of those warnings (what they call the "aura"), that she get low to the ground so as not to bang something badly. Good luck with your journey. Tim > My 1st post here. I'm _surprised_ to be posting here. Married in May > 2005 after meeting six months earlier. [quoted text clipped - 37 lines] > > thx The clinic locations given in the "epilepsy and ataxia" post will be the ones that I'm sure you'll want to look at also. Perhaps the most important part for starters will be an accurate diagnosis, as there is no assurance that she actually has epilepsy. Many of us with epilepsy show nothing on the type of EEG you described and it's surprising that an MRI or CT-Scan wasn't run to check for a tumor or other physical abnormality. A patient history of head trauma, meningitis, high-fever, or other events could assist in dianosis. The circumstances around the first seizure there could sound as though you both weren't getting much sleep and lack of sleep is a known trigger for seizures. Thanks to you all for the replies. I felt guilty for a couple days after my original post because of the name I used (C. Zure). I was trying to set up the newsreader program quickly. I found some very active news boards at www.epilepsy.org and I spend time looking through the posts. Lots of information to filter through. Cause and effect. I'll probably look in this group occasionally. Good luck to all here. Later. >> My 1st post here. I'm _surprised_ to be posting here. Married in May >> 2005 after meeting six months earlier. [quoted text clipped - 47 lines] >circumstances around the first seizure there could sound as though you both >weren't getting much sleep and lack of sleep is a known trigger for seizures. > My 1st post here. I'm _surprised_ to be posting here. Married in May > 2005 after meeting six months earlier. [quoted text clipped - 37 lines] > > thx Howdy C! Take a look at: http://www.naecepilepsy.org/centers/centers.html This site does not list every epilepsy center, just the ones associated with the National Ass'n of Epilepsy Centers. Dave
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