Salami Man Thank you for your reply. I read some of the side affects
from Dilantin and I guess I just didn't like some of them. It was an
option that I didn't approve. Also May I ask you What age were you when
diagnose? I also have been told that Dilantin was not good for
children? I may have been told wrong. Please respond. You may e-mail me
if you would like. Again thank you for your reply..
> Salami Man Thank you for your reply. I read some of the side affects
> from Dilantin and I guess I just didn't like some of them. It was an
> option that I didn't approve. Also May I ask you What age were you when
> diagnose? I also have been told that Dilantin was not good for
> children? I may have been told wrong. Please respond. You may e-mail me
> if you would like. Again thank you for your reply.
Have a look at http://efa.org or another medications directory, and
speak to your **Pharmacist for a website about the type of Tegretol
she's using (liquid or pills?).
I'm not a Dr., but a 3-year old should not be put on Tegretol and I
don't know why she was (since I don't know the history anyway), but
Tegretol has potential to damage calcium in bones and teeth in *some
people, it initially requires close monitoring, so your earlier post
should have been signal to the Dr. to change or **Slowly remove it and
try something else, and she's not as olde as many of us to start
with... (50+).
Since she's still growing and bones/ teeth developing, *I don't
understand why that would be the med. of choice as an earlier poster
suggested, and because of my comments wrt. Calcium potential* problems.
.
Dilantin is also much older (1930), better studied and *cheaper, so
if she were able to use it, you'd both benefit from it (in health and
$$). It probably also has many less potential side effects for someone
so young (kids have faster metabolism than us 'olde people'-- flushing
blood levels of a medication faster, versus what I do). That faster
metabolism alone could make keeping a stable level of eg. Tegretol
(CR?) at a suitable level to give her the type of control that she
deserves, and as she got older, she'd probably need increases in pills
as she went....
*I'd rather have to take increased doses of Dilantin than Tegretol
if it were up to me, because of a **withdrawal effect (that can cause
szrs.), that's more troublesome with *Tegretol than Dilantin, if you
were e.g. to miss some doses periodically (or if she did if she was
away on school trips, sleep-overs etc. ). Tegretol likes a nice
*constant, consistent dose level that's appropriate for body weight,
metabolism, and the person taking it. At *that level (and with above
concerns I listed wrt. children), it works well for my Complex Partial
(formerly called Temporal Lobe) types of szrs. G./
howdydave - 24 Jul 2006 05:45 GMT
Infected_applez@yahoo.com wrote:
> Salami Man Thank you for your reply. I read some of the side affects
> from Dilantin and I guess I just didn't like some of them. It was an
> option that I didn't approve. Also May I ask you What age were you when
> diagnose? I also have been told that Dilantin was not good for
> children? I may have been told wrong. Please respond. You may e-mail me
> if you would like. Again thank you for your reply.
Howdy!
I would suggest getting a second opinion.
Epilepsy is a VERY close relative to bi-polar disorder.
These wide mood swings could be a side effect of some
medications. (I had swings with Topamax.)
Another possibility is that the medication has "chrystalized
the symptoms." If that is the case, it might be easier to
determine the root cause rather than having a shot in the
dark diagnosis of epilepsy.
I called it a "shot in the dark diagnosis" because EPILEPSY
is a catch all diagnosis that is VERY OFTEN stuck on a neurological
problem when it can not be diagnosed as anything else.
Dave
> Salami Man Thank you for your reply. I read some of the side affects
> from Dilantin and I guess I just didn't like some of them. It was an
> option that I didn't approve. Also May I ask you What age were you when
> diagnose? I also have been told that Dilantin was not good for
> children? I may have been told wrong. Please respond. You may e-mail me
> if you would like. Again thank you for your reply..
Dear Infected Applez:
I was diagnosed with epilepsy after I graduated from college, however, my
neurologist deduced that it was caused by hydrocephalus that developed since
early on in life, because in order for the hydrocephalus to develop to such
a level without me being in a coma (or worse), it would have had to progress
veeeery slowly.
Dilantin has just been around for so long that it is the "stock" first try
drug. It's also inexpensive :))) A comparison: My dilantin off of
insurance costs $24/ mo. My Topamax costs $3000 /mo.
Currently I am in my third month of VNS therapy, and my neurologist seems
pleased with the results. We might try adjusting the medications next month
if things continue going this well. The worst thing I have experienced so
far with the VNS therapy is an involuntary cough maybe five times this month
and a slight tingle in my throat that feels like a bit of food that hasn't
been swallowed. Big... deal.
However, I want to remind people that apart from the epilepsy and
hydrocephalus, I am 100% healthy -- I don't smoke, drink, I have 129
cholesterol, etc.
I do find that that I am sleeping better and my dreams have become more
vivid.