Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Epilepsy / August 2006

Tip: Looking for answers? Try searching our database.

My child with a bad attitude on tegratol?

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
Infected_applez@yahoo.com - 19 Jul 2006 23:54 GMT
Hi! My daughter got diagnose with epilepsy when she was 31/2. My child
does not have any other diseases. And would be considered a normal
child. Anyway... We put her on Tegratol for starters. With Tegratol we
had a maniac on our hands. She was running around with scissors and
stabbing her grandfather. Before that she was having melt downs at
school. And being so happy and -normal- one minute and the next crying
in tears of sadness, To just very angry, throwing her stuff screaming
at it and then God the same cycle again. After the stabbing incident we
immediately stopped her dose. And there we saw an immediate change in
attitude. She was actually a very normal girl. Then the seizures got
worse than they were before we put her on anything. So we needed to
medicate her again and we chose Tegratol EXT. As it had the same
reaction, we switched to Keppra. With Keppra we had almost the same
side affects but they weren't so bad. But she was unable to go to
school for fears of her having meltdowns, which we had seen at home. We
stopped the Keppra and triggered 3 seizures that night. We kept her off
meds. For 2 months. Let me add my daughters Seizures always occurred
between 6-7 am, with convolutions lasting 1 to 1 1/2 minutes, with all
hands and legs, then going unresponsive for 10 minutes and responsive
but unconscious for another 10 min. Then wakening and talking. Any way
before we put her on meds she had 2 seizures 10 mos. apart, then after
she had the 3 provoked seizure-(when we stopped her meds), she ended up
have 3 seizure within a month so we desired to try meds again. This
time we tried Limictal. Finally we have a success. She has been on
Limictal for 2 months now and we are doing just great. I just need to
tell my storey. If anyone would like to talk about anything please
e-mail me.
Salami Man - 20 Jul 2006 03:34 GMT
Dear Concerned Parent:
First of all, I'm not a doctor.  But let me express my condolences to you,
for I am epileptic and also have had to jump from one secondary medication
to another with many negative side effects.
I'm kind of curious... why didn't they start her on Dilantin...?  It's the
textbook antiepileptic medication (with generic available... LOL) that's
been around for years.  The problem with some of these new drugs is that
they have weirdo side effects.  They should be used as a last resort, not as
a first go, in my opinion.  I'm -still- on dilantin, even though
my -secondary- medication has been changed -many- times.  Dilantin is pretty
straightforward:  It makes you tired.  No funnybusiness there.
-Salami Man

> Hi! My daughter got diagnose with epilepsy when she was 31/2. My child
> ...
Infected_applez@yahoo.com - 20 Jul 2006 20:36 GMT
Salami Man Thank you for your reply. I read some of the side affects
from Dilantin and I guess I just didn't like some of them. It was an
option that I didn't approve. Also May I ask you What age were you when
diagnose? I also have been told that Dilantin was not good for
children? I may have been told wrong. Please respond. You may e-mail me
if you would like. Again thank you for your reply..
G. - 23 Jul 2006 23:44 GMT
> Salami Man Thank you for your reply. I read some of the side affects
> from Dilantin and I guess I just didn't like some of them. It was an
> option that I didn't approve. Also May I ask you What age were you when
> diagnose? I also have been told that Dilantin was not good for
> children? I may have been told wrong. Please respond. You may e-mail me
> if you would like. Again thank you for your reply.

Have a look at http://efa.org or another medications directory, and
speak to your **Pharmacist for a website about the type of Tegretol
she's using (liquid or pills?).
 I'm not a Dr., but a 3-year old should not be put on Tegretol and I
don't know why she was (since I don't know the history anyway), but
Tegretol has potential to damage calcium in bones and teeth in *some
people, it initially requires close monitoring, so your earlier post
should have been signal to the Dr. to change or **Slowly remove it and
try something else, and she's not as olde as many of us to start
with... (50+).
  Since she's still growing and bones/ teeth developing, *I don't
understand why that would be the med. of choice as an earlier poster
suggested, and because of my comments wrt. Calcium potential* problems.
.
  Dilantin is also much older (1930), better studied and *cheaper, so
if she were able to use it, you'd both benefit from it (in health and
$$).  It probably also has many less potential side effects for someone
so young (kids have faster metabolism than us 'olde people'-- flushing
blood levels of a medication faster, versus what I do).  That faster
metabolism alone could make keeping a stable level of eg. Tegretol
(CR?)  at a suitable level to give her the type of control that she
deserves, and as she got older, she'd probably need increases in pills
as she went....
  *I'd rather have to take increased doses of Dilantin than Tegretol
if it were up to me, because of a **withdrawal effect (that can cause
szrs.), that's more troublesome with *Tegretol than Dilantin, if you
were e.g. to miss some doses periodically (or if she did if she was
away on school trips, sleep-overs etc. ).   Tegretol likes a nice
*constant, consistent dose level that's appropriate for body weight,
metabolism, and the person taking it.   At *that level (and with above
concerns I listed wrt. children), it works well for my Complex Partial
(formerly called Temporal Lobe) types of szrs.      G./
howdydave - 24 Jul 2006 05:45 GMT
Infected_applez@yahoo.com wrote:
> Salami Man Thank you for your reply. I read some of the side affects
> from Dilantin and I guess I just didn't like some of them. It was an
> option that I didn't approve. Also May I ask you What age were you when
> diagnose? I also have been told that Dilantin was not good for
> children? I may have been told wrong. Please respond. You may e-mail me
> if you would like. Again thank you for your reply.

Howdy!

I would suggest getting a second opinion.
Epilepsy is a VERY close relative to bi-polar disorder.

These wide mood swings could be a side effect of some
medications. (I had swings with Topamax.)

Another possibility is that the medication has "chrystalized
the symptoms." If that is the case, it might be easier to
determine the root cause rather than having a shot in the
dark diagnosis of epilepsy.

I called it a "shot in the dark diagnosis" because EPILEPSY
is a catch all diagnosis that is VERY OFTEN stuck on a neurological
problem when it can not be diagnosed as anything else.

Dave
Salami Man - 25 Jul 2006 22:54 GMT
> Salami Man Thank you for your reply. I read some of the side affects
> from Dilantin and I guess I just didn't like some of them. It was an
> option that I didn't approve. Also May I ask you What age were you when
> diagnose? I also have been told that Dilantin was not good for
> children? I may have been told wrong. Please respond. You may e-mail me
> if you would like. Again thank you for your reply..

Dear Infected Applez:
I was diagnosed with epilepsy after I graduated from college, however, my
neurologist deduced that it was caused by hydrocephalus that developed since
early on in life, because in order for the hydrocephalus to develop to such
a level without me being in a coma (or worse), it would have had to progress
veeeery slowly.
Dilantin has just been around for so long that it is the "stock" first try
drug.  It's also inexpensive :)))  A comparison:  My dilantin off of
insurance costs $24/ mo.   My Topamax costs $3000 /mo.
Currently I am in my third month of VNS therapy, and my neurologist seems
pleased with the results.  We might try adjusting the medications next month
if things continue going this well.  The worst thing I have experienced so
far with the VNS therapy is an involuntary cough maybe five times this month
and a slight tingle in my throat that feels like a bit of food that hasn't
been swallowed.  Big... deal.
However, I want to remind people that apart from the epilepsy and
hydrocephalus, I am 100% healthy -- I don't smoke, drink, I have 129
cholesterol, etc.
I do find that that I am sleeping better and my dreams have become more
vivid.
Janie - 25 Aug 2006 20:02 GMT
My son was miserable on Tegretol. He is now 30 and was unable to tolerate
only Dilantin which gave him poor seizure control. His seizures started when
they removed a small benign brain tumor at age 14. They were unable to
really get any good control over the seizures. Nothing helped. He has
Temporal Lobe seizures. They had the only options of adding other pills to
the pills he was already on. But his seizures worsened and when it got to
where he was taking 16 to 17 pills a day and STILL having seizures, it
started affecting me emotionally. My husband was a pillar of strength,I know
for me. David is our only child. He caught his wife in an affair and then
lost his job because he was having so many seizures. He divorced her and
came back to live with us. His seizures got so bad,he would just take off
running and was almost hit my cars several times before I or someone else
chased him down. It would take him almost 5 minutes to really be David
again. When my now ex-daughter-in-law did what she did,my strung out nerves
finally snapped and I had a nervous breakdown. I was in the hospital for a
week,just crying so much,they had to sedate me. Then,God stepped in. David
has not had a seizure for 17 months,has a job,a car and a wonderful new
wife. (He waited 5 years to remarry. I was so glad)And you can see why he's
doing so well here'''
http://www.mayoclinic.org/checkup-2006/track-jan.html
Wary,Thankful Janie
> Hi! My daughter got diagnose with epilepsy when she was 31/2. My child
> does not have any other diseases. And would be considered a normal
[quoted text clipped - 23 lines]
> tell my storey. If anyone would like to talk about anything please
> e-mail me.

Rate this thread:






 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.