I had surgery in 1997 to remove a large benign meningioma from the
frontal part of my brain. Since then, my doctor has prescribed me to
take 400mg of Dilantin a day as a precaution for siezures due to the
trauma on my brain from the surgery.
I have NEVER had a seizure, not before the surgery, and not since. I
have asked my doctor if I should have an EEG (I think that's what it's
called) to see if I need the Dilantin. He said he knows it will be
abnormal. He's seen a lot of brain scans (MRI), and he feels I need to
stay on the Dilantin from the looks of it. His rationale is I am
leading a normal life (which I am) so why change anything?
Since the surgery, I do feel a little different. I sometimes feel very
brief "things" happen in my head, almost like a jolt of electricity.
Does this sound like a symptom of seizure activity? There's really
nothing other than that very noticeable. I guess the other thing is I
can day dream fairly easily, or just space out I guess.
While I am not currently suffering any major side effects (thankfully),
I am worried about the symptoms described above and any effect on my
liver down the line from the Dilantin.
Does it seem strange that my doctor has kept me on Dilantin for almost
10 years and I have never had a seizure? Should I push harder to get
off the medicine?
Thanks in advance for any advice.
Tim
Tim - 24 Jun 2006 22:50 GMT
I applaud your instinct and feel Md.s are overprescribers.
How about a drug abstinance until you actually have a seizure?
I am finally taking regular and recorded doses of Dilantin with mixed
results. I have had a long history of seizures.
G. - 25 Jun 2006 00:00 GMT
> I had surgery in 1997 ***to remove a large benign meningioma**** from the
> frontal part of my brain. Since then, my doctor has prescribed me to
[quoted text clipped - 24 lines]
> Thanks in advance for any advice.
> Tim
If you do any searches look at Aura or Simple Partial seizures --
what you describe 4 paragraphs above might be included there.
If you want to stop a medication the Dr. has prescribed, that should
be reviewed with the Dr. and not by Survey on a usenet group. Someone
telling you "Go ahead and quit" without your medical history is not a
useful way to seek medical advice. The opinions here are worth exactly
what you paid for them (including this one).
Several of the Anti Ep. Medications that might appear here,
including Dilantin and Tegretol (mine), are also used to treat heart
conditions and strokes people might have had. Unless you know why
your Doctor is prescribing it for you (ask them), other advice here
could be useless.
(Several AEDs mentioned above, for example, are used to prevent or
treat strokes and heart conditions also. The fact you've 'never had a
seizure' has no bearing on the original operation you listed-- removal
of a tumour? from the frontal part of your brain. Is the Dr. using
Dilantin (an old fairly benign medication compared to some the rest of
us use), to reduce the risk of a complication that could follow from
the type of surgery you had? I can't answer that, but the Dr. could.
If it's to treat or prevent a stroke, following that type of surgery,
it's not being used to treat Epilepsy, so only the Dr. could explain
what it's being used for.)
G./
howdydave - 25 Jun 2006 01:28 GMT
Howdy!
Brain trauma is one of the preliminary
causes of epilepsy.
If you feel that medication is unnecessary,
by all means, go for it.
But remember -- if you have a seizure when
you stop the meds, you will no longer be
able to drive.
Dave
> > I had surgery in 1997 ***to remove a large benign meningioma**** from the
> > frontal part of my brain. Since then, my doctor has prescribed me to
[quoted text clipped - 48 lines]
> what it's being used for.)
> G./
Julie - 25 Jun 2006 02:36 GMT
> I had surgery in 1997 to remove a large benign meningioma from the
> frontal part of my brain. Since then, my doctor has prescribed me to
[quoted text clipped - 25 lines]
>
> Tim
Tim, you need to be very careful when going off medication, that is why
it is so important that you consult with your doctor. If a person
doesn't taper off slowly that could be what causes the seizure, and for
some it can trigger different types of seizures.
Julie
Tim - 06 Jul 2006 21:30 GMT
> Tim, you need to be very careful when going off medication, that is why
> it is so important that you consult with your doctor. If a person
> doesn't taper off slowly that could be what causes the seizure, and for
> some it can trigger different types of seizures.
>
> Julie
Thanks Julie - the whole field is so mysterious, I ache when anyone
takes too definite a position. Given the mystery, it seems
understandable
that the human specialists on the conditiont will act all the more
confident in their prescriptions. The "see your MD" advice I see so
frequently written here is indeed a gentle expression of concern. I
advocate additional inquiry into states of heart and mind. Tim