My 19 year old son was having 30 complex partial seizures a day.
Meds did not work, vegas nerve stimulator did not work, tried
everything to get them under control but all efforts failed. His team
of neurologist reccomended long term monitoring and then invasive
monitoring to see if he was a good candidate for epilepsy surgery.
They said he had an excellent chance of becoming seizure free because
his seizures came from a single area of the brain and they were able to
locate it many times during their testing.
Worse case scenario was that his seizures would remain the same. He no
longer has complex-partial seizures with an aura/warning. Now he has
severe life-threatening convulsions
requiring immediate medical attention. He just drops in midair, oxygen
levels go as low as 20%, he turns blue, these seizures come in clusters
until 3-4mg. of attivan is administered by IV at a local hospital.
Local EMT/ambulances now know him well. They've saved his life numerous
times. We've been told he developed a second seizure zone after the
sugery and the doctors want to perform invasive monitoring again with
hopes of a second surgery.
We went for 3 opinions each time surgery is mentioned and all teams
agree it is his best chance.
Has anyone out there gone through something like this? Did they locate
the origination zone of these tonic-clonic seizures and did you have a
second surgery?
newz york