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Medical Forum / Diseases and Disorders / Epilepsy / June 2006Sleep problems
I have been having a lot of problems with my sleep routine, First off a have a hard time falling a sleep at nights, most nights it's 1or 2 in the mornings before I dose off some nights it has been 4or 5 before I go too sleep. Now the second part I have trouble waking up, Most days I don't wake up until 10 or 11 if i'm lucky I will wake-up between 9 and 9:30. Most of my seisures are acurring at night now. Anyone else have this problem or can help me or tell me what to do, Mike H Howdy Mike! Welcome to the club! I have a VERY bizarre sleep schedule. I need 9 hours of sleep. Only thing is... I usually can't get to sleep until anywhere from 2 am to NOON. Good thing I'm on disability and don't have a family or other social obligations. I currently have better seizure control than I've ever had, so IMO as long as I can get my 9 hours, WHEN I get it is of secondary importance to my seizure control. Dave Hey Mike. Sleep problems are not just for people with seizure disorders though we do notice it more with medication side effects and what happens when don't get enough sleep. You gave way to little info to be of much help, I am a sleep tech and would be glad to help if I can and I also have a seizure disorder. BTW if you go to bed at 2am and wake at 10am, thats great, 8 hours of sleep. There is a ton of info I can give you but I really don't know anything of whats going on in your case. You can email me at psgt777@comcast.net directly. Mike K >I have been having a lot of problems with my sleep routine, First off a > have a hard time falling a sleep at nights, most nights it's 1or 2 in [quoted text clipped - 3 lines] > 9:30. Most of my seisures are acurring at night now. Anyone else have > this problem or can help me or tell me what to do, Mike H > Hey Mike. > Sleep problems are not just for people with seizure disorders though we do [quoted text clipped - 7 lines] > You can email me at psgt777@comcast.net directly. > Mike K Excuse me for intruding but I'm going to tap into your knowledge here Mike K. I noticed years ago that I am tired whether when I get 8 hours of sleep. My goal seems to be 6 or 9. I assume I have a 3 hour sleep cycle (?) and can live with anything that is divisible by 3. Three hours is not enough for me and 12 seems to be too much. I assume 9 is optimum but I can survive on 6. How close to reality are my assumptions and assessments here? >> I have been having a lot of problems with my sleep routine, First off a >> have a hard time falling a sleep at nights, most nights it's 1or 2 in [quoted text clipped - 3 lines] >> 9:30. Most of my seisures are acurring at night now. Anyone else have >> this problem or can help me or tell me what to do, Mike H  SignatureDave Keays Have you thought of sleep apnea? I have epilepsy and sleep apnea..not a fun combo.You should see about getting a sleep study. Piper "> > Excuse me for intruding but I'm going to tap into your knowledge here Mike K. > [quoted text clipped - 4 lines] > > How close to reality are my assumptions and assessments here? > Have you thought of sleep apnea? I have epilepsy and sleep apnea..not a fun > combo.You should see about getting a sleep study. > > Piper I will second this. Very low O2 blood saturation levels and MANY (unrealized) awakenings per hour do not make for good sleep regardless of the hours spent seemingly unconscious. Things to watch for -- tiredness during the day (sometimes extreme), peeing multiple times at night, snorring (and particularly snorting), lack of dreaming. Failure to treat sleep apnea can result in clots and strokes, high blood pressure, and eventual heart failure. A simple and cheap test (about 70% accurate) is the use of a recording blood oximeter (just a clip on the finger) overnight. Next up is the use of an "Auto-PAP" for a few nights (this, or its variations, can also be used for eventual treatment). Or, you can go in for a complete sleep study (sometimes split in two if SA is discovered early enough in the night and there is enough time and good sleep in the remains of the night to "titrate" the needed pressure for treatment, or a second night may be scheduled for titration). It would not surprise me to find out that low O2 sat. levels could trigger seizures... If AS is present, you can find more info on it at rec.support.sleep-disorder (hey, another group! ;-). -- David Ruether Howdy! Me too! I've had sleep apnea since I was a kid but I was only diagnosed about 2 years ago. Treatment for apnea did more for my seizure control than any meds or the VNS ever did! Dave > I will second this. Very low O2 blood saturation levels > and MANY (unrealized) awakenings per hour do not [quoted text clipped - 20 lines] > -- > David Ruether Which I am a member of! > Have you thought of sleep apnea? I have epilepsy and sleep apnea..not a fun > combo.You should see about getting a sleep study. I will concider putting it on my list it but I'm skeptical right now. I don't see any of the problems mentioned in this thread except for high blood pressure. I always credited it to my age and changes in lifestyle (getting off disability and handling the things that disability shielded me from). I'm having a doctor look over me for these things. Right now I'm trying to control my weight and blood pressure. Next step is having those "man issues" checked out now that I'm a 40+ male. > Piper > "> [quoted text clipped - 9 lines] >> >> How close to reality are my assumptions and assessments here? SignatureDave Keays I developed insomnia over the course of the past 12 years and was diagnosed last year with sleep apnea. I was told during testing that my breathing became interrupted numerous times per hour to the point where it interrupted my sleep. Sleep apnea is a large medical catch bucket because there can be many physical/neurological reasons to account for why breathing stops. Apnea most commonly occurs in significantly overweight individuals but can also aflict skinny folks like myself. Some options for treatment are CPAP (a high pressure breathing mask worn at night), bite plate (moves the lower jaw out to create more air passage), and/or changing sleep position (to avoid tongue from rolling back into the throat). I agree that quality of sleep impacts seizure activity. I run 5 to 10 simple partial seizures daily from a temporal lobe tumor despite the Dilantin and Keppra I'm on. On the rare occasion where I get 6 or more hours uninterrupted sleep the number of seizures usually drops to 2 or less. > I developed insomnia over the course of the past 12 years and was > diagnosed last year with sleep apnea. I was told during testing that [quoted text clipped - 13 lines] > hours uninterrupted sleep the number of seizures usually drops to 2 or > less. When I was on SSI/SSDI, I rarely got more than 3 hours of uninterupted sleep. If it affected my seizure activity I wasn't able to see it. Now that I am working (1 1/2 - 2 jobs) I get much more sleep. The 3 hour threshold has gone away. With the exception of 2003, I haven't had any seizures since 2000. SignatureDave Keays > I have been having a lot of problems with my sleep routine, First off a > have a hard time falling a sleep at nights, most nights it's 1or 2 in > the mornings before I dose off some nights it has been 4or 5 before I go > too sleep. My sleeping routine is very similar to yours, but when I told my neuro, he told me the reason I couldn't get to sleep, and stayed awake half the night, was because I was half asleep and doped up on my meds all day. The only solution he could give me, was to try the best I could to try not to doze off during the day in order to tire myself out a little more before I went to bed. Hope that helps Sofie SignaturePlease visit my deviantART page: http://sofen.deviantart.com/ >>I have been having a lot of problems with my sleep routine, First off a >>have a hard time falling a sleep at nights, most nights it's 1or 2 in [quoted text clipped - 12 lines] > > Sofie I have problems going to sleep if I drink caffeine in the evening. Now that I am not taking as much phenobarbital my sleeping is better and I can actually remember my dreams now. I am waking up earlier too, but it does help to have the sun coming through the bedroom window bright and early. Julie There are always the typical things you can talk to your physician about (like quitting smoking, no caffeine, losing weight), but your pills will have inevitable side effects (sleepiness). One thing that I had even before I started having seizures was gnashing my teeth at night so hard that it was audible to other people in the room. I now wear a mouth guard and I am wearing the device down because I am grinding my teeth so hard at night. 0_o >I have been having a lot of problems with my sleep routine, First off a > have a hard time falling a sleep at nights, most nights it's 1or 2 in [quoted text clipped - 3 lines] > 9:30. Most of my seisures are acurring at night now. Anyone else have > this problem or can help me or tell me what to do, Mike H > There are always the typical things you can talk to your physician about > (like quitting smoking, no caffeine, losing weight), but your pills will [quoted text clipped - 3 lines] > now wear a mouth guard and I am wearing the device down because I am > grinding my teeth so hard at night. 0_o Depending how often you see your Dr., if you are destroying the Occlusal Splint? during the night (above), you're still having Nocturnal seizures ? Mine stopped wearing out after I got my night dose at a level that controlled the seizures all day and also all night. G./ > >I have been having a lot of problems with my sleep routine, First off a > > have a hard time falling a sleep at nights, most nights it's 1or 2 in [quoted text clipped - 3 lines] > > 9:30. Most of my seisures are acurring at night now. Anyone else have > > this problem or can help me or tell me what to do, Mike H
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