I'm a 45 yo male, and I've been on 800mg Carbatrol/day for about 7 years...
Just heard about bone mineral density decline with long-term Carbatrol use.
Has anybody else heard about this? Experience with it? Solutions
(Fosamax?)
Thanks!
Jim59.R@gmail.com - 05 Apr 2006 14:27 GMT
> I'm a 45 yo male, and I've been on 800mg Carbatrol/day for about 7 years...
>
[quoted text clipped - 4 lines]
>
> Thanks!
I'm a 47 year old male who had been on a high dose of Dilantin and
Mysoline for over twenty years when I fell and broke my hip in 2002.
The surgeon who corrected the fracture with screws told me I was
riddled with osteoporosis. My internist blamed it on the seizure
medication and started me on Fosamax 70m.g. once a week. My 2004 bone
density showed marked improvement in my bone density. I am now on
Depakote ER, but both my neurologist and internist have told me that as
long as I am on any type of seizure medication that I will need to
continue Fosamax therapy. When I first broke my hip I was sent to a
physical rehabilatation hospital where I was started on Oscal 500 plus
vitamin D twice a day. I continue on that supplimentation thru today.
My heath insurance pays for a bone density test every two years so I'll
be hasving another this year with my annual physical. Fosamax has been
around a long time and I believe the patent expires in 2007 so the
medication will become even more affordable. Hope you find this
information useful. Good luck,
Jim
meander100 - 05 Apr 2006 19:23 GMT
Thanks all for the useful info... I guess I need to bring this up with my
neuro next visit...
>> I'm a 45 yo male, and I've been on 800mg Carbatrol/day for about 7
>> years...
[quoted text clipped - 24 lines]
> information useful. Good luck,
> Jim
Julie - 29 Apr 2006 09:10 GMT
Hi Jim
Just new here and this really intriges me!! From Sask here and in a
very small town so blood tests have to get sent to the city to read.
Never thought of why they would be done on the same day before.
Re the bone density test- yes by all means have it done. Especially if
you have been on some of the older meds and specially when getting to
the age where our ol' bones are starting to creak, we should have a
bone density test taken.
I just found out too that specially if you have any osteoporosis in the
family background we could be susceptable in this area too. That's all
we need. Bone fractures you name it. Osteo is so painful and have
witnessed in a family member close to me. Am sure glad I became aware
of it and immediately got on a specialized calcium citrate with
magnesium and vit D as the main ingredients.
Some of the AEDs and particularly the older ones induce liver enzymes
that interfere with the metabolism of vitamin D and calcium and these
are both essential for bone health.
Besides, a good calcium with the magnesium makes for a good relaxant, I
find it helps a bit with headaches, we also could be low in magnesium
because of the AEDs, plus no matter what age you can always do with
more calcium. + if you take the grand mal type of seizure and with all
the falling and banging around it only makes sense. Our ol' bones take
a heck of a beating.
Starting a little late in life but have at least started protecting
against osteo.
Take care
Julie
epilepsyhealth@sasktel.net
http://www.epilepsy-health.com - pay me a visit sometime :)) my story
is in there also.
G. - 05 Apr 2006 16:04 GMT
You might find information about Carbatrol under http://efa.org site
at Medications. It's part of the generic family similar to the
Tegretols and some other AEDs? -Carbamazepine. (Page I got with my 1st
Prescription from my Pharmacy said to tell all Drs. and Dentists I was
using it.)
I had regular blood tests at Startup of the Tegretol, and told my
Dentist I was using it. (He said Calcium problems wrt. bones etc. would
often show up first in our teeth. He also changed my checkup rate from
6 to 4 months in ~1995.) My understanding was that *some people might
be prone to Calcium robbing, but don't know the percent. I've had no
problems while using Tegretol these past 11 years. G./
Sofia - 05 Apr 2006 16:55 GMT
> I'm a 45 yo male, and I've been on 800mg Carbatrol/day for about 7 years...
>
> Just heard about bone mineral density decline with long-term Carbatrol use.
I'm a 40 year old female, and I've been taking 800mg Carbamazepine twice
daily with different mixtures of other meds for about 15 years now! I was
told last year that I had an extrmely low Sodium count in my blood, and
that it was the Carbamazepine that was absorbing it all.
I was actually happy on the Carbamazepine, so my neuro' suggested that I
just topped up my food with alot more salt instead, which was disgusting
and also gave me a long list of the saltiest foods I could buy from the
shops.
All the best
Sofie

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G. - 10 Apr 2006 06:06 GMT
I wondered, looking back at this, if druggists (chemists) might sell
Saline type pills, like vitamins, that would boost one's salt levels.
Your Doctor or Pharmacist could likely tell you if there is such a
thing, and if there are things to watch out for, if used with the
Tegretol (Carbamazepine). G./