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Medical Forum / Diseases and Disorders / Epilepsy / March 2006Video EEG
Well, we just got home from 4 day stay at the epilepsy center for video EEG monitoring. I am so frustrated. Cody had 2 seizures Friday before he could be hooked up, and then one more Friday night. Then nothing else. So, we don't have enough info to know if he's a surgical candidate. We are proceeding with the rest of the testing, and I guess we will try again in about a month. Has anyone here gone through this testing? Any hints on how to make a seizure happen when he's off meds and sitting there? They did try the strobe light , but it didn't do anything. Any other time, he'd be unstoppable. It's like a watched pot, I guess. Thanks for listening, anyway. Holly -- Holly F. Sox, RN, RAC-C Clinical Services Manager Robin Technologies holly@careplans.com www.careplans.com HI Holly, SO frustrating!! We have been through 4 VEEG and never had luck with provoking one while hooked up.....Things we have tried that MIGHT help you....... Fast for a few meals if that has triggered him in the past.... Sleep deprive..... Phase reversal of sleep, stay up all night then go to sleep in the morning Video games......in a dark room Thinking work, stressful especially (really challenging Math, long writing essays, reading ) Exersize bike Other stressors that trigger him at home? (I know, at home you can do everything right, take meds, get sleep, eat right and still see seizures, get wired up and do it all wrong and they do not come.....SO frustrating) I hope they can do some of the other testing. I know that Ictal Spect is part of the testing and the need a seizure for that, inject an isotope and run the scan. Try messing with his sleep cycle a few days prior to going back in? Did they stop his meds? Sometimes that helps for some as well. BEST wishes, Hang in there. Rest up now......I know how tough those VEEG can be! Gin Several people told me drinking some alcohol often helps. (I don't know Cody's age so excuse me if he's too young to try that) Good luck! Jan Hi Jan, Cody's only 14, so probably not a good idea. ;-) He'd probably enjoy it, but I'd likely get turned in to the authorities. Thank you, though. Holly -- Holly F. Sox, RN, RAC-C Clinical Services Manager Robin Technologies holly@careplans.com www.careplans.com > Several people told me drinking some alcohol often helps. (I don't know > Cody's age so excuse me if he's too young to try that) > > Good luck! > > Jan Yes, having dad take turns can be a big help!! We did that last time (mom cannot sleep in hospitals so by day 6 or so I am a mess!!). You are not the only one this happens to at all. A neuro's joke is "what is the cure for Epilepsy? VEEG"...............seems that if we left our son wired up, he would stay seizure free. At 14-15 he does not like that idea! Best wishes, Hang in there. I would not try the alcohol route. Avoiding caffeine sometimes helps. Gin Thank you, Gin. I was so frustrated, and wondering if he was the only one to do that. I told my husband he's going to stay with him the next time. ;-) H -- Holly F. Sox, RN, RAC-C Clinical Services Manager Robin Technologies holly@careplans.com www.careplans.com > HI Holly, SO frustrating!! We have been through 4 VEEG and never had > luck with provoking one while hooked up.....Things we have tried that [quoted text clipped - 30 lines] > > Gin
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