Medical Forum / Diseases and Disorders / Epilepsy / February 2006
Modern Day Famous Epileptics
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Aliens from Outer Space - 10 Feb 2006 05:13 GMT I have managed to find multitudes of websites with lists of famous people with epilepsy, but so far the only "modern-day" people on those lists are Danny Glover and Neil Young. Who are some more modern actors, musicians, whatever, with epilepsy? Thanx, Riff.
-- Life would be so much easier if we just had the source code.
guitarmom - 10 Feb 2006 12:48 GMT Elton John is reported to have epilepsy. Amy Lee, singer for group Evanessence, does not have epilepsy herself but her sister does. She has started a large awareness campaign.
Alan Faneca, Player on the Steelers has had epilepsy over half his life.
There is a hockey goalie on the US Olympic Hockey team as well (sorry forget her name,but will go find a link to her story.)
Former Congressman Tony Coelho, Co writer of the ADA.
Congressman Abercrombie.
Here are a few!
Gin
Dave Keays - 10 Feb 2006 16:20 GMT > Elton John is reported to have epilepsy. I seem to remember Elton John suing the EFA (epilepsy, not AIDS) for saying he had epilepsy.
> Amy Lee, singer for group > Evanessence, does not have epilepsy herself but her sister does. She [quoted text clipped - 7 lines] > > Former Congressman Tony Coelho, Co writer of the ADA. Please, many of us don't like vicious associations/stereotypes.
> Congressman Abercrombie. > > Here are a few! > > Gin
 Signature Dave Keays
G. - 10 Feb 2006 17:26 GMT You'll have to explain the last comment (vicious associations and stereotypes about someone in the Americans with Disabilities Associaton). Only about 40? % of posters here live in the U.S. Was that supposed to be a political reflection of your own views vs. their's, or do you have information that contradicts their suggestions? Why not expand on it, if that's the case? I don't know sometimes what's worse-- a post if it has information that might prove to be inaccurate, so it gets *corrected along the way, or these One Sentence comments with no clarification about what it means. Does that one line, you threw in, mean you Disagree with their offering? or you don't like the person they listed? Why not clarify what you mean instead of injecting an oblique shot in the centre without explaining if you disagree with the first post? Look at all the extra bandwidth wasted just seeking a clarification that one more sentence could have answered? Others might have just clicked Next, at that point, and so the post was wasted. ************* As an aside, we did this about a year ago. I don't know how long the olde messages stay in history file, but the first poster could probably do a Google search on Famous and Epilepsy and pull down a list of 30 or more sites to start with, than start over here? If any suggestions need 2 witnesses and to be notarized first, you aren't going to get a long thread from this. G./
polaris - 10 Feb 2006 21:53 GMT Stop whining, G. Your second message alone is at least 4 times the length of the OP's.
You sound extremely over-sensitive. Maybe you should see your neurologist. Oh - that's right. I momentarily forgot where you live.
:)
> You'll have to explain the last comment (vicious associations and > stereotypes about someone in the Americans with Disabilities [quoted text clipped - 21 lines] > If any suggestions need 2 witnesses and to be notarized first, you > aren't going to get a long thread from this. G./ G. - 10 Feb 2006 22:55 GMT Poster said **<most of us don't like vicious associations/ stereotypes>** in reply to someone listing 2-3 people they thought were on list of people who had epilepsy at some point. What does < > part mean wrt. the earlier post? G./
G. - 10 Feb 2006 23:07 GMT There was a longer thread about 3x Re: efa vs. other sites that listed various people who had or were thought to have had seizures. (Since the oldest ones depend on interpretation of historic writings, those couldn't be confirmed.) The original poster this thread wanted recent ones, so the efa site would likely be as up to date as any. If some people listed (*I never included E.John) , asked to have names removed as incorrect, they should be off the list by now, No? Or does that take a lot of time to edit?
You saw an older post about Doctors vs. Neuros and should remember that the last CP Seizure I had was in June 1998. The Family Dr. who took over my Prescriptions saw me 3 hours after I phoned him. I thought you'd remember that. G./
guitarmom - 11 Feb 2006 01:41 GMT http://www.epilepsy.com/epilepsy/famous_contemporary.html
Agatha Christie, Richard Burton, Truman Capote....
I have not ever heard that Sir Elton sued EFA, I have not seen him ever mention on the EFA site except in posts. It was actually another reputable site that has him in the list.
Not sure what your comment was about TOny Coelho. He is not labeling people, he is all about enabling.
Seems that your agenda is not as much about listing some famous with epilepsy as to point out faults in others. Sad, very sad.
Gin
Dave Keays - 11 Feb 2006 06:02 GMT > http://www.epilepsy.com/epilepsy/famous_contemporary.html > [quoted text clipped - 3 lines] > mention on the EFA site except in posts. It was actually another > reputable site that has him in the list. Ok, so I was wrong. That wasn't the first time and I doubt if it will be the last.
I knew the reference to Elton John was questionable. I couldn't find any reference to it but I still remember reading about it. That is why I worded the comment "I seem to remember ...". I was trying to show a lack of absolute confidence in the statement. Sorry I wasn't clearer.
> Not sure what your comment was about TOny Coelho. He is not labeling > people, he is all about enabling. The comment was about the ADA, not Mr Coelho. I should have used a smiley because there was some sarcasm involved. I don't know enough about Mr Coelho to attack him with any fairness. But I know my experiences enough to dislike the ADA how it affected me when I was struggling with partial-complex seizures.
> Seems that your agenda is not as much about listing some famous with > epilepsy as to point out faults in others. Sad, very sad. I was not pointing out peoples faults. I did however point out a situation as I remembered it and my dislike for a legislative action. However, the quoted paragraph could possibly be seen as "pointing out faults in others". I agree, very sad.
While I know my opinion would be found provacative by some, I didn't intend to create such a furor. I'm sorry about that.
I'm now going to explain my conclusion about the ADA. If you are easily offended by opinions that that don't take the government the panacea to all our problems, you may want to skip the next three paragraphs. Er, excuse me while I climb onto the podium.
While me and the businesses I did work for were working around the realities of my situation, along comes big bro who forced it's nose into our relations and its ideas down our throats. Suddenly I was more expensive and more of a threat to a small business. Me and the businesses could no longer work things out ourselves. ADA ruined my attempt to comprimise with others.
It gave me more opportunities to sue a business or to demand they comply with expensive rules/regulations. I now had the ability to shut down a small business. What might be an inconvenience to a fortune 500 corporation was a mortal threat to my bread and butter (very small businesses).
I decided it was a bad decision for them to hire me. I was too much of a threat and they shouldn't be taking chances like that. The ADA was one of the reasons I gave up trying to live with my situation.
But like I said, these are just my experiences and the situation may have been beneficial to others.
If you want me to shutup because my ideas are different or to quit trying to lighten the situation, good luck.
Actually, I don't even need to be talking about this since a tumor was found and my temoral lobe and hippocampus was removed. With my focal point gone, my seizures went away and my experiences/memories of the previous 40 years became irrelevant to my life. Now I need to focus on getting back into society, not past thoughts.
To G; I think we are in similar situations but have come to different conclusions. We should be learning from each other, not attacking the other.
To Gin; Considering how upset you got it sounds as if you put this list of people on a pillar of some kind. That kind of obsession usually indicates a lack of self-esteem. Focus on your own abilities, not someone elses disabilities.
To Polaris; Thank you for standing-up for me.
To 'Aliens From Outerspace'; We can overcome that feeling of loneliness by getting into society to whatever degree possible. There will always be the idiots who don't want us epileptics/retards/lunatics around. But the majority of people try to understand. If they don't, use a friendly chat to educate them. It will do wonders.
Whew, thank god thats done. Are you guys as tired as I am?
 Signature Dave Keays
polaris - 11 Feb 2006 12:31 GMT I'm picking on you, G, because you have made claims here that are clearly false.
>> You saw an older post about Doctors vs. Neuros and should remember >> that the last CP Seizure I had was in June 1998. >> The Family Dr. who took over my Prescriptions saw me 3 hours after I >> phoned him. I thought you'd remember that. It seems curious to me that your doctor has seen you shortly after a seizure, but apparently doesn't think it's important enough to see you otherwise.
It seems *very* curious to me that your doctor would change your prescription without you in their office, and simply accepts your word by phone. Maybe this is standard medical practice in Canada, but not elsewhere. It simply isn't wise medical practice anywhere.
> There was a longer thread about 3x Re: efa vs. other sites that > listed various people who had or were thought to have had seizures. [quoted text clipped - 9 lines] > The Family Dr. who took over my Prescriptions saw me 3 hours after I > phoned him. I thought you'd remember that. G./ G. - 11 Feb 2006 16:06 GMT I didn't have a seizure from 1998 ( June) to Present (7.5 years), so had no reason to see the Neurologist. My levels had been stable more than 3 years, and all the Levels and *Bloodwork etc. were done *Monthly to *Quarterly from **1993 (onset) through **1996.
It was my Neurologist who saw me after my last seizures-- ***NOT*** the Family Doctor. The Neuro-lo-gist... (December 1997, my little sister died, I had a seizure when they told me, June 1998 I stopped to help a young girl whose bike had been struck by a Car. When the ambulance took her away I had a CP seizure about an hour after that. That's the *only reason I remember the years. My sister was *50, so 1997, and the Following June.....)
As I had no further seizures from 1998 to 2005, so no Dose Changes or Health Changes, the Neuro (who also might be close to retiring), wanted to move my FILE and Prescription records etc.back to my Family Dr. who is my **Primary provider. Primary Dr. signed admission record at hospital on each of szrs I was having from 1993 to 5, I had the 1997 szr. at home, and I wasn't admitted in 1998 as I had come out of the szr. and my family signed me out. (Medic Alert bracelet links to next of kin, remember? )
Last month, I took my Pill Bottles and the scripts to the *Family Doctor, (your " *Curious" comment, above). He did not *Change my prescriptions, he wrote me *Identical Scripts* that I have used successfully since 1995 (before the last 2 szrs in 1997, 98). I took the New prescriptions (written by the Family Dr., on *his Prescription pad, **not the Neuro now) to the *same Pharmacy where my Neuro's prescriptions were on file. NOW my pills are renewed by my main Physician. **NOTE ** *No change was made in any *doses or *pills (I haven't needed any Dose change since 1996). I had him also write 'no substitutions' on it, as my Neuro had done, to avoid generics, that my insurer had previously wanted me to use. They were on my MD's Prescription pad so he is now handling my health file, as he had as my **regular MD** since 19**77**, *before I had any seizures or the encephalitis that later caused them. I'm giving up on this thread as you don't seem to understand there are *no changes to what I've been using, or their Doses, since before my last seizure (June 1998) And you're not my Doctor, thank God. Or I'd be dead. /G.
Dave Keays - 11 Feb 2006 19:48 GMT > I didn't have a seizure from 1998 ( June) to Present (7.5 years), so > had no reason to see the Neurologist. My levels had been stable more > than 3 years, and all the Levels and *Bloodwork etc. were done *Monthly > to *Quarterly from **1993 (onset) through **1996. I always thought just being on medication was reason enough. Maybe my Neurologist is just trying to milk anything they can get from the mother cow (AKA disability or SDI).
I still have follow-ups with my Neurologist and Neuro-surgeon to verify nothing new is happening. Since I did have a small setback in 2003 when my father died, I was put on a small dosage of Lamictal. Life was so much easier with a nil dosage of nada medication.
So now I see the Neurologist for a Neuro-exam and blood work about twice a year. I see the Neuro-surgeon about once every three years to get an MRI and see if my tumor is growing back.
 Signature Dave Keays
polaris - 11 Feb 2006 22:00 GMT It isn't funny when anyone wants to see a doctor but can't. Despite your attempts to deny this, G, that is currently the case in Canada for millions of patients.
And you're not my Doctor, thank God. Or
> I'd be dead. /G. You said it, not me :)
guitarmom - 11 Feb 2006 01:58 GMT http://www.charge.org.uk/htmlsite/useful_links.shtml
http://web.sa.sc.edu/epilepsy/famous.htm
http://www.epilepsiemuseum.de/english/prominente.html
http://www.epilepsy.org.uk/press/releases/2004/epilepsyaction_pr_nationaldoodled ay.doc this states that Sir Elton John participated in fund raising for the UK based Neurofibromatosis and Epilepsy Action. (I am not saying this confirms that he does have it, just that he seems not to be against helping an Epilepsy organization)
http://www.medicalnewstoday.com/medicalnews.php?newsid=10028 another UK link says he has an Arhythmia ( many sites show him as getting a pacemaker in 99)......which can lead to anoxic seizures (this is not epilepsy, but is seizures due to the arhythmia)
http://epilepsy.biography.ms/ (CAUTION, this has a moving add, can be stopped quickly, though)
G. - 10 Feb 2006 16:54 GMT May not still be 'modern' to you, but Richard Burton I thought was on 1 list. You should be able to locate Martha Curtis under efa.org links? She plays Cello for Boston? Philharmonic and tours schools and Ep.Groups about growing up with Epilepsy. (She was at Toronto Canada Annual meeting about 1995 here.) G./
purple-cow - 10 Feb 2006 17:14 GMT Here's some websites that list people who havd or had epilepsy.
http://en.wikipedia.org/wiki/List_of_people_believed_to_have_epilepsy
Scroll a good ways down the page on this website. http://www.reference.com/browse/wiki/Epilepsy
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