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Medical Forum / Diseases and Disorders / Epilepsy / February 2006

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Beach Runner - 01 Feb 2006 10:34 GMT
As a 51 year old man, I had 2 seizures 2 weeks ago.  It turned my life
upside down.

First, I'm not allowed to drive for 6 months, ending my activities.

The doctor doesn't want me to ride a bike or swim without a lifeguard.
I would just assume go ahead but my wife freaks out and calls every hour
and says the first time I don't answer the phone she'll call 911.

I'm on dilantin.  I don't know much about it and it's long term effects.

They have not identified a cause.

What a royal pain in the a***.
G. - 01 Feb 2006 15:18 GMT
I did 2 or 3 posts in the last 3 days listing Websites I had found
useful over the years. On that thread you'll see 2-3 others who
contributed other sites they have found useful too.
  The First Aid for seizures charts from the Idaho site you could
print for your wife, so she can tell what to do, and when to call 911.
Most times, some of the steps there can prevent needing to call an
ambulance.
  If you have any Absence seizures, as part of those, where you're
temporarily 'away' then come out of it, you could consider using
appliances that have an Auto Off feature -- kettles, etc. so that if
you still had onset while doing something in the kitchen, it remains
safe.
 You could check those sites (para.1) for information on Dilantin
(Phenytoin).  My Dr. told me it is used first as it was developed
~1930s, and the research costs have been recovered so it's often
cheaper for those who can use it.  (I was only able to use it less than
12 months as it gave *me eratic szr. control.    But for those who can
use it, it's cheaper.
  The Ep. Foundation site http://efa.org  has a link to Medications
glossary, and you can either scroll to the name or type it in and click
'search' or 'find' at the top.  It will pull in a one page summary
similar to what your pharmacy *should have given you.   Look at any
foods or drinks that you should avoid, that might compromise its
operation. Try to take the dose rate the Dr. has set. Aside from being
a level they set for your metabolism and body weight, when they do
Bloodwork, they will assume you're dosing at that rate. If you had been
skipping doses, but blood levels are low, they could Raise the dose you
use, and produce over-medication for your situation.
   Being that old, any long term effects would likely be found and
documented so it's less concern than some newer ones might be for you.
/G.
G. - 01 Feb 2006 16:02 GMT
 While I think of it.  Were there any things 'unusual'  that happened
ahead of 2 weeks ago (below) ?  In other words does your Dr. think this
was a temporary thing with ?? explanation or was it something that had
a basis in family history or personal history?
  Usually seizures might start from an infection, injury or other
things, and (for my own case for me at least), I wanted to know why
they started, and why I didn't get them sooner as my initial damage (to
Rt. Temporal Lobe) occured more than 14 years before onset.
   If it was what he considered a temporary or one-of event, then you
could conceivably get your licence back, if the szrs. are controlled
and no further events were to occur.  As we each are different and have
various triggers etc., that might *not happen, but give it a go before
assuming the world is at an end...
   Do they plan any further tests, or are they just going on with the
Meds. to see if that does it?  Often an EEG or even MRI might be set up
if they are concerned about possible internal damage, which the
seizures might just be symptoms of.    Keep us posted.  Lots of people
read this group, and get valuable information for other's experiences
and inputs. G./

> As a 51 year old man, I had 2 seizures 2 weeks ago.  It turned my life
> upside down.
[quoted text clipped - 7 lines]
> They have not identified a cause.
> What a royal pain in the a***.
Beach Runner - 03 Feb 2006 01:44 GMT
>   While I think of it.  Were there any things 'unusual'  that happened
> ahead of 2 weeks ago (below) ?  In other words does your Dr. think this
[quoted text clipped - 15 lines]
> read this group, and get valuable information for other's experiences
> and inputs. G./
There are a few tests I'm still waiting for the results, (encephalitis
and West Nile, but all the other tests are negative.

>>As a 51 year old man, I had 2 seizures 2 weeks ago.  It turned my life
>>upside down.
[quoted text clipped - 7 lines]
>>They have not identified a cause.
>>What a royal pain in the a***.
G. - 03 Feb 2006 02:55 GMT
I had encephalitis in 1979.  That was where the damage came from that
affected my Rt. Temporal lobe, where szrs. started in 1993.  G./
Sofia - 02 Feb 2006 14:21 GMT
> The doctor doesn't want me to ride a bike or swim without a lifeguard.
> I would just assume go ahead but my wife freaks out and calls every hour
> and says the first time I don't answer the phone she'll call 911.

Hi beach runner, I just wanted to tell you that my husband does this too.
I know it must be harder for you and your wife, like a bad shock perhaps,
but as I've had epileptic seizures since I was nine years old, I guess I'm
pretty used to getting seizures by now. It's just that on several
occasions, I fall and hit hard objects ( doors, walls, pavements) and end
up with a big black eye, and half my face bruised up, so hubby ends up
going shopping, or to collect my meds perhaps by himself. He always takes
his mobile-phone along with him just to make sure I answer it, and haven't
had another fall whilst he was out. Hubby's my hero, and sometimes I
think that his life revolves around me, and he lives to take care of me, I
mean, if I have a seizure in the middle of the night, he usually wakes up
whilst asleep just to make sure I haven't fallen off the bed.

Like my hubby, I think your wife's a martyr! I'm sure the carer has it
much worse than we do - well, I know I wouldn't want to clean his pooh up
if he fell unconscious on the toilet anyway.

Good Luck in the future

Sofie

Signature

Please visit my deviantART page: http://sofen.deviantart.com/

G. - 02 Feb 2006 17:34 GMT
I didn't think it looked too deviant (the art link at end of your
post).   I thought it looked nice.  G./
 
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