Websites about Epilepsy
This is the Website post I said I'd post again. The First Aid Site
that
lists what each seizure type looks like is at ***s below. Inside that
link
is another one for First Aid in Water (swimming).
If the page has a coloured background, there is a button or
something
that says "Printable Version" and if you Click on that, it takes off
the
colours so you can print it on White Paper to keep. G./
I posted this list of websites about 4 weeks ago.
Here it is again. -->
A new site (to me) someone suggested is at http://www.epilepsy.com .
The main Idaho Epilepsy News site is at http://www.epilepsyidaho.org .
Within that are links that also go through an Education area called
Learn
about Epilepsy -- at http://www.epilepsyidaho.org/learn.htm.
Often some *symptoms people **exhibit give clues to *type of
seizures
they're having and best described on a First Aid for Seizures Chart.
These
are my favorites -- also from Epilepsy Idaho. One is
http://www.epilepsyidaho.org/seizure2.htm and that links to
http://www.epilepsyidaho.org/seizure.htm . One of those is easier to
******************************************************
print, although both display well for information or reference.
There is also a separate page for First Aid in Water I didn't
include,
although those sites might link to it. What to do when someone in
swimming
is somewhat different that if they were to collapse 'on land'.
Howdy Dave has a site he put together ~10? years ago and he
regularly
updates. He was also one of the oldest :-< members of this group and
someone told me he was one of the Founders too. Most people don't know
that, so he doesn't get a swelled head or anything.. :-> His site is
at
http://www.howdydave.com .
The main U.S. Ep. Foundation website is at http://efa.org . THIS
SITE
Has a Medication Glossary, although I found my own pharmacist a useful
source of information if I had Side Effects or Questions about a
particular prescribed pill.
// G./
howdydave - 01 Feb 2006 01:52 GMT
Howdy!
Another good site is the BrainTalk Forums.
Brain Talk has forums related to just about every neurological disease
and disorder under the sun.
The Epilepsy forum is:
http://brain.hastypastry.net/forums/forumdisplay.php?f=133
At the present time they are having server problems so the response is
VERY slow...
but
There's a LOT of good information there.
guitarmom - 01 Feb 2006 13:00 GMT
Great sites! Thanks G for adding them. I find so much information on
Emedicine to help understand seizures as well as the syndromes, EEG,
and variants. it is based on articles that neurologists have written
and peers have edited and reviewed. There is a place for definitions as
well
http://www.emedicine.com/neuro/topic415.htm here is one. YOu can do a
search there for all things epilepsy or neurology as well.
http://www.neuropat.dote.hu/epilepsy.htm Internet handbook for
neurology has a great number quality sites as well. this is compiled
by a neuro in Hungary.
Ginny
howdydave - 02 Feb 2006 04:41 GMT
Let's not forget:
Strathearn Neurological Access Point
aka: SNAP
http://www.sol.co.uk/k/keir/snap1.htm
Set up by Dave Ferguson (the REAL founder of this group) in Scotland.
Rocking4Epilepsy - 08 Feb 2006 17:01 GMT
You also may find all your first aid and satey precautions on our site
below
http://dannyjr.proboards44.com/index.cgi
polaris - 02 Feb 2006 19:54 GMT
BrainTalk looks very good.
Thanks for the suggestion.
> Howdy!
>
[quoted text clipped - 12 lines]
>
> There's a LOT of good information there.
guitarmom - 09 Feb 2006 13:37 GMT
Another great site that I have found is
http://www.epilepsy.ca/eng/mainSet.html
if you go to the opening page where it has English or french it does
have a flickering candle. This page does not have it.
There is a great deal of information here, well done and easy to
manuever.
Basic facts, myth busters, info for children, teens and adults,
research, safety, coping!
Hope this helps someone.
Gin