I am looking for some information for my mother who has a form of
epilepsy.
She is on Tegretol 5 pills a day, Not sure of the dosage of each pill.
She has only ever had 2 seizures years apart!
The only common factor was that she was flying at the time of both
seizures.
I was wondering if anyone could point me in a direction or tell me,
information that altitude can have to cause seizures.
Also the second seizure she had she was on Tegretol, and also took atavin
to calm her nerves before the flight, so I am wondering if that has
anything to do with her second seizure.
Thanks in advance for all the help you can provide me with!
Jennifer
G. - 25 Jan 2006 23:38 GMT
She probably knows but it's important to keep a consistent schedule of
using Tegretol. Skipping doses or stopping abruptly risks causing more
seizures.
She's likely prescribed a time released version (CR or XR) for
Complex Partial (formerly Temporal Lobe) seizures.
In case she didn't already know, Grapefruit Juice and alcohol can
interfere with functioning of the Tegretol.
The Ativan was *probably a sublingual type (if she hadn't used it
before), and is intended to be put under the tongue to be rapidly
picked up into the bloodstream. It's a relaxant and if anything tended
to make me tired and want to sleep within about an hour of using it.
It did provide rapid control the few times were I got an Aura that I
sometimes got ahead of full onset of a CP Seizure. (I haven't needed
that since about 2002, but it was extremely effective for me from
1995-9 when my szrs. were not controlled. )
I was affected for a while by low pressure zones (rain or snow
approaching) for a period, and was worried about effects of flying
since the cabin is pressurized ahead of take-off. Stress can make us
more prone to a szr. so if she was worried about flying? that could
have contributed to a CP seizure or even Simple Partials (Auras). Lack
of sleep or timezone changes could also affect stress levels.
(In my case after I posted here to ask for any ideas, I was able to
fly from 2000 feet to sea level (Vancouver and Hawaii) without
noticeable effects. People who might still be sensitive though could
be affected, or even the enclosed Cabin during the flight could be
irritating to someone sensitive to szrs. ) G./
G. - 26 Jan 2006 00:33 GMT
Another thing I thought of, if she was flying across many timezones,
e.g. 6 like I did a year ago, it takes some adjustment or clockwatching
to make sure the spacing of the doses stays consistant, as they were at
home.
In other words, if she was supposted to take those each 12 hours,
the pharmacy or Dr. could havd told her whether she could vary that by
3-4 hours, then take the doses as close to the 'at home time' while
she's away, or slowly move the time to the new zone.
At the time here (years ago), someone suggested buying a $10 cheap
watch, and leave it on the home time to be used to time dose taking.
Then give it to a child when she got back home. G./
Jim Garland - 30 Jan 2006 20:34 GMT
sounds to me like she really should go back and see a neurologist as 5 pills
a day seems like a lot for someone that doesn't appear to have a severe
seizure problem..
That being said ...any seizure is a problem so the best advice I can give
is tell her to go see her doctor....and ...
when taking any other drug no matter what it is please...please get advice
from a pharmacist that understands the drug that she is taking....
cheers
>I am looking for some information for my mother who has a form of
> epilepsy.
[quoted text clipped - 9 lines]
> Thanks in advance for all the help you can provide me with!
> Jennifer
G. - 30 Jan 2006 23:19 GMT
re-- above '5 pills a day seems like a lot for someone who doesn't
appear to have a szr. problem ' He said his mother had some type of
seizure problem, that she was using Tegretol, which is prescribed for
seizures, plus also some heart and stroke conditions.
It would probably depend on whether her '5 pills a day' were 10mg, or
200mg like mine, whether it would be a lot. Some pills are prescribed
to be taken e.g 3x a day at low dose, unless it was time released like
mine (that's what I asked them earlier and didn't get any reply to).
The count of how many pills someone takes doesn't tell us a lot about
her case. Most of us reply from personal experience but don't expect
or plan to replace a Dr. with a particular case.
But a lot of people come here for basic answers that might be useful
to them. Sending them all (necessarily) back to the Dr. unless they're
having side effects won't do much. He could call her Dr. if he's still
concerned.
Tegretol is also prescribed to some older people for Heart
Conditions or who have had strokes, as it has effects too on blood flow
and other things that just controlling seizures. They never replied to
2 posts I did that night (the 25th) so I assumed they had received the
reply and had no further questions, or had gone to look elsewhere.
(Some people will sometimes 'newsgroup shop' until they find an
answer they like, from ~20 people who might try to help them. I
couldn't tell which this was, so assumed the questions we were replying
to.) G./
Jim Garland - 31 Jan 2006 11:51 GMT
I agree G...
Seemed strange when I read it...
Just didn't look like the regular szr problems that we often see here.
Cheers.
> re-- above '5 pills a day seems like a lot for someone who doesn't
> appear to have a szr. problem ' He said his mother had some type of
[quoted text clipped - 21 lines]
> couldn't tell which this was, so assumed the questions we were replying
> to.) G./