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Medical Forum / Diseases and Disorders / Epilepsy / January 2006

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Val Perry - 23 Jan 2006 01:55 GMT
Hello there,
My 2 1/2 year old son was just dx by his neurologist as have  been
having seizures for basiclally since he was born- big surprise to me! I
am just looking for some answers to some questions- ( I am overwhelmed
with what is on the net, too much, too acarry!) do most children his age
grow out of these? He was put on Keppra, but it totally changed his
personality to being a very mean, unhappy, out of control child, He is
now taking Lamictal- so far so good. I am kind of looking for support
for myself and my husband, seizures don't run on either side of our
families, so any basic information would be appreciealted.
I know I am rambling- thanks to anyone who can help-
Val
G. - 23 Jan 2006 05:04 GMT
You'll get replies when people return after the weekend. Someone else
here (years ago) had some kind of med. 'sprinkles' prescribed for her
daughter, but it might have been for a different szr. type. Did they
give you a name e.g. juvenile myoclonic or  ??  for the szr type? If
you see a post I did about last Monday still up I list about 5
websites. Otherwise look for a post by Julie that lists her Idaho
website at end, and US general Ep. Foundat'n site is http://efa.org -
That has a med. glossary plus some general information wrt. epilepsy.
Someone might have a pediatric site they can post for us, that would be
more useful for you.  G./
Rocking4Epilepsy - 23 Jan 2006 15:07 GMT
Hi Val
Sorry you are dealing with this but am so glad you are looking to learn.
What testing did they do?
Do they have a focal point where sz are coming from?
It is tough when you first find out your child has ep but, learning what
you can is the first step.
I can't say if your child will outgrow but, yes this is a chance.
If I can ever help you in anyway just yell. I am always here to listen and
offer support,

Hugs  
guitarmom - 23 Jan 2006 19:53 GMT
Hi Val, it is so overwhelming and the information over load is tough
too.

MOST kids do outgrow seizures, about 70 % of them. Best chance for them
being outgrown is to see control with the first or second medication
tried. Some types and syndromes are also more likely to be outgrown.

www.efa.org has some great basic information on their ANSWERPLACE
section. They will also send you free information if you go to CONTACT
US, you can check off what you need.

www.epilepsy.com is also a great place with easy to understand
information. Go to the left side of the home page and you will see
Epilepsy treatment, information, and other great info.

I hope the lamictal works better for your son! I have a 14 yr old who
has probably had seizures most of his life, but we only recognized them
around age 7. He has tried a few medications. His sister had a shorter
time dealing with seizures, but now she is medication and seizure free.

Best wishes!!

G
Dave Keays - 25 Jan 2006 23:12 GMT
Val,

My understanding is that before about 9 there is a very good chance it will be
outgrown because the brain is changing as it grows. The brain is an amazing organ.

Ask your doctor if there is a focal point.

This is not an easy journey. At least you are willing to learn more about it so
you are less likely to be overwhelmed by the news.

I used to say a seizure was worse on family/friends and witnesses than on the
person itself. As scary as it looks, remember that the brain protects people
from it. If my seizures caused any pain I wasn't aware of it or didn't remember
it. The biggest physical risk was hitting my head too hard on the ground or
people applying the wrong kind of "first aid".

Lamictal was a very helpful medication since it has fewer side-effects than most
others. On the unlikely chance that the seizures continue; then if Lamictal
controls them your daughter is very lucky.

Like Douglas Adams said, "Don't panic".

Good luck.

[snip]

Signature

Dave Keays

G. - 26 Jan 2006 14:39 GMT
Hey!  You forgot the second half of Douglas Adam's quote she can use
too--> "Don't worry, be happy".   :->  G./
Dave Keays - 26 Jan 2006 15:41 GMT
> Hey!  You forgot the second half of Douglas Adam's quote she can use
> too--> "Don't worry, be happy".   :->  G./

No I think that was Bobby McFerrin in the late 80s.

Next time you look at the "Hitchhiker Guide to the Galaxy", look at the back
cover. It's got the words "DONT PANIC" in bold red. Once it came out in a movie,
I started seeing "dont panic" on T-shirts too. I sometimes wonder how many
people actually read the book.

Signature

Dave Keays

G. - 26 Jan 2006 17:31 GMT
Yawn.   The books being discussed earlier (Douglas Adams) were written
in the 1960s, long before the song from the 1980s (don't worry, etc.)
..  G./
Dave Keays - 27 Jan 2006 05:29 GMT
> Yawn.   The books being discussed earlier (Douglas Adams) were written
> in the 1960s, long before the song from the 1980s (don't worry, etc.)

Sorry, but I don't remember that phrase being used in HHGTTG. Bobby McFerrin was
a jazz singer who had a hit in 1988 "don't worry, be happy".

Signature

Dave Keays

G. - 27 Jan 2006 05:40 GMT
Douglas Adams wrote more than one book, in the 1960s. The phrase he
used might have been different but similar and was reflecting on the
current state of affairs, while the U.S. was in Viet Nam. It predated
any song and had a darker connotation than a feel-good song.   It was
ahead of Dr. Strangelove by about 3-5 years.   G/
Dave Keays - 27 Jan 2006 05:55 GMT
> Douglas Adams wrote more than one book, in the 1960s. The phrase he
> used might have been different but similar and was reflecting on the
> current state of affairs, while the U.S. was in Viet Nam. It predated
> any song and had a darker connotation than a feel-good song.   It was
> ahead of Dr. Strangelove by about 3-5 years.   G/

Yes, I have both the HHGTTG series and the Dirk Gently series. I've read them
all. The phrase has nothing to do with the words "DONT PANIC" on the outside cover.

Signature

Dave Keays


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