Hi Jan, sorry to hear about your daughter's problems. I did a little
research about tinnitus and MRI. The interesting thing was that most of
the information discussed the problem coming with people with hearing
loss. My hearing seems just fine. Part of the testing they recommend for
tinnitus is an MRI - ha! I think I'll try to get by without further
testing. Actually it does seem to be getting a bit better. I'm hoping
that as Malcolm said it will go away in about 6 weeks. It will be
interesting to discuss this further with my epileptologist.
One thing I will also mention to him is one of things that I fear will
trigger a seizure for me is when I am not feeling quite right and I get
into an environment that is a crowd, it could be a restaurant or a coliseum
full of people. They are just talking, but to me it sounds 10 times louder
and I have to leave the environment. This doesn't happen all the time,
just some times.
Anyone else have this problem with your sense of hearing being extremely
heightened?
Take care,
Julie
> Hi Julie. My 18 year old daughter has had epilepsy for 5 years. It is
> uncontrolled. We have tried numerous drugs. She has the whole range of
[quoted text clipped - 10 lines]
> talk. As you said night times are the worst. Soft music playing
> sometimes masks it.
> One thing I will also mention to him is one of things that I fear will
> trigger a seizure for me is when I am not feeling quite right and I get
[quoted text clipped - 5 lines]
> Anyone else have this problem with your sense of hearing being extremely
> heightened?
Well, me for one. It's not that I fear (or feel like) it will be
triggering a seizure, it's just that it makes me feel extremely
uncomfortable, and then, perhaps, getting a bit anxious about loosing
control. It normally helps to keep a conversation going with anyone I
may be there with, just to focus on something that will keep the noise
out. Focusing is one of my main tools for keeping control anyway, just
concentrating on the breath going in and out will normally almost
immediately help relaxing and gaining recontrol. To me, it will also
work in the seizure-related anxiety attacks. Feel free to try it :-). My
main problem, I guess, is to *remember* to focus on something neutral in
situations like that.
Also, this doesn't apply only to noises in my case, so I think your
subject *senses* overwhelmed makes a lot of sense.
/\
ole k
Julie - 10 Jan 2006 20:21 GMT
Hi Ole, see my note below between ************* -- Julie
> > One thing I will also mention to him is one of things that I fear will
> > trigger a seizure for me is when I am not feeling quite right and I get
[quoted text clipped - 12 lines]
> may be there with, just to focus on something that will keep the noise
> out.
****************
Hi Ole, now that you mention it, I have used this technique when flying. I have
had bad flight experiences, so I knew I needed to keep my mind on something,
being able to talk to someone helped. I was flying alone. The plane was almost
full and a young man (college age) got on the plane with his parents. I motioned
to the seat next to me and the young man sat next to me. To my delight he was a
football player coming to our city to play for the university. I talked to him a
bit about his passion (football) and then about a subject I have a passion for
(the Bible) and we had a very nice discussion for the entire trip. I was so
happy to make it without any problems with noise, or epilepsy. After the flight
he introduced me to his parents and his mother told me that she was so surprised
to see him talking with me. She said he is usually so shy. So I agree focusing
is a very good tool. -- Julie
*********************
> Focusing is one of my main tools for keeping control anyway, just
> concentrating on the breath going in and out will normally almost
[quoted text clipped - 7 lines]
> /\
> ole k
I get tinnitus now and again when I'm having one of my depressive states
(as I also have bi-polar disorder) but it has never been triggered by MRIs
- I assume they're the same as what I call EMIscans.
Chris L.
> > Hi Julie. My 18 year old daughter has had epilepsy for 5 years. It is
> > uncontrolled. We have tried numerous drugs. She has the whole range of
[quoted text clipped - 10 lines]
> > talk. As you said night times are the worst. Soft music playing
> > sometimes masks it.