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Medical Forum / Diseases and Disorders / Epilepsy / December 2005

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Websites about Epilepsy

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G.Ross - 18 Dec 2005 04:40 GMT
 This is the Website post I said I'd post again.  The First Aid Site that
lists what each seizure type looks like is at ***s below.   Inside that link
is another one for First Aid in Water (swimming).
  If the page has a coloured background, there is a button or something
that says "Printable Version" and if you Click on that, it takes off the
colours so you can print it on White Paper to keep.  G./

I posted this list of websites about 3 weeks ago.
Here it is again. -->

The main Idaho Epilepsy News site is at http://www.epilepsyidaho.org  .
Within that are links that also go through an Education area called Learn
about Epilepsy -- at http://www.epilepsyidaho.org/learn.htm.

  Often some *symptoms people **exhibit give clues to *type of seizures
they're having and best described on a First Aid for Seizures Chart.  These
are my favorites -- also from Epilepsy Idaho. One is
http://www.epilepsyidaho.org/seizure2.htm    and that links to
http://www.epilepsyidaho.org/seizure.htm .   One of those is easier to
******************************************************
print, although both display well for information or reference.

  There is also a separate page for First Aid in Water I didn't include,
although those sites might link to it.  What to do when someone in swimming
is somewhat different that if they were to collapse 'on land'.

    Howdy Dave has a site he put together ~10? years ago and he regularly
updates.  He was also one of the oldest :-<  members of this group and
someone told me he was one of the Founders too.  Most people don't know
that, so he doesn't get a swelled head or anything.. :->   His site is at
http://www.howdydave.com  .
  The main U.S. Ep. Foundation website is at http://efa.org  .   THIS SITE
Has a Medication Glossary, although I found my own pharmacist a useful
source of information if I had Side Effects or
Questions about using a particular prescribed pill.
//  G./
G.Ross - 18 Dec 2005 05:12 GMT
  I don't see the link to "Printable Version" of the first aid chart posted
earlier.  Just click on File Print and see if it prints in Black on white
page.   Even if it's coloured, it doesn't use much coloured ink anyway, and
my printer the pages (ink) lasts for more than 6 months, anyway.  G./

>  This is the Website post I said I'd post again.  The First Aid Site that
> lists what each seizure type looks like is at ***s below.   Inside that
[quoted text clipped - 34 lines]
> Questions about using a particular prescribed pill.
> //  G./
ole kvaal - 18 Dec 2005 14:21 GMT
 . . . . .

Is there a reason that you don't add the www.epilepsy.com to your
reccomendations?

Signature

/\,

ole kvaal

G.Ross - 18 Dec 2005 17:11 GMT
>  . . . . .
> Is there a reason that you don't add the www.epilepsy.com to your
> reccomendations?

No there isn't.  Well other than I didn't know about it.   The original post
I did was one I typed out Longhand from the 4-5 sites I had seen here or
found over the last ~7 years.   Once I had posted it, when I remember, I
usually repeat it each 3-4 weeks by cutting and pasting it from the older
message (unchanged) and send it up the Flagpole again.
  Both Howdy Dave (who hasn't posted since about October?) and Julie's
Idaho site have other links at their sites, but if they hadn't posted for a
while and someone (like Friday or so) had been newly diagnosed, they first
want information, and are afraid.
 The sites I posted or assembled in message post were intended to save me
retyping those each time, and to provide them with a short description of
what the addresses do and to give them a head start on information searches.
  I also include a 1-3 sentence description of what the site has or does.
I've had several people send articles or posts like yours, but I had to
actually *go to the site to see exactly what epilepsy.com Was and what was
there. When I next post that list, I'll add it with a description of what it
contains. I used to get a Ton of stuff to my Inbox (not here), that just
said "Look at this" and a www site.  But those didn't say what they
contained either.  I have software now that fixes those.

   There was another site posted in the last week too, I have to go look
at.   I usually look (for me) at ones that can be moved within easily (like
Julie's Idaho site) and back and forward without needing a lot of geek
tricks to navigate them.  If that one is easy to use too, I'll add a comment
to that effect, plus what makes it destinctive, when I next do a posting.
Thanks for the new links.
  Everyone here can benefit from any that others find.    Gordon./
ole kvaal - 18 Dec 2005 17:29 GMT
Thanks for your reply. On second thoughts, just to make sure no-one will
get me wrong, I am much grateful both for your replies in this group,
and also for the links to the sites you have been using up till now.
They have been tremendously useful and helpful to me.

Signature

/\,

ole kvaal

G.Ross - 18 Dec 2005 17:53 GMT
> Thanks for your reply. On second thoughts, just to make sure no-one will
> get me wrong, I am much grateful both for your replies in this group, and
> also for the links to the sites you have been using up till now. They have
> been tremendously useful and helpful to me.

 I didn't take it that way.   When I first joined up there was a period of
about 2-3 weeks I read the group before Howdy Dave started to add his
website at end of all his posts.  Also Lulu used to post a bunch of useful
sites specific to Children with Seizures (Ashbergers syndrome /sp?) and
parent support sites she had found. (Those are on my Win.95 computer
somewhere.)
  Then we seemed to get a flood of 40-50 people over a year where I found I
often was typing the same message each 4-6 weeks that had links to answer
their questions.  That's the main reason I just typed the One post (note)
with the book report of the 5? sites I had found useful.
  It was intended to give new people (many people get new computers over
Christmas/ Year end) a headstart if they connect up and do some searches for
information that might be of immediate help to them if they are new to
seizures.  The efa links had information that would have helped me when I
started first on Dilantin then Tegretol and later Tegretol and Clobazam.
  It was *here (alt.support.epilepsy) that I found that Grapefruit juice
conflicts with Tegretol.  It wasn't on my Pharmacy Advisory at the time (it
is now). Some of my Random seizures, could have been prevented if I had
known that.  So if we can prevent 3-4 people from having seizures they could
avoid, that's good enough for me.   G./

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