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Medical Forum / Diseases and Disorders / Epilepsy / December 2005

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Help!  Episodes and the computer

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Elsea - 14 Dec 2005 03:34 GMT
I have rose filter glasses, adjusted my computer refresh rate and also
brightness, but after only three hours on the computer at work I'm
still getting little episodes - I'm talking like 1-5 seconds (simple
partial epilepsy).  Any other adjustments I can make?  I'm new to the
epilepsy problem - less than a year - got dx'd a few weeks ago.  Thanks
for any help!
Elsea
G.Ross - 14 Dec 2005 05:19 GMT
>I have rose filter glasses, adjusted my computer refresh rate and also
> brightness, but after only three hours on the computer at work I'm
[quoted text clipped - 3 lines]
> for any help!
> Elsea

 Do you have daylight or roomlight where your screen is?  It helps
sometimes to not work in too dark a room (lighter room makes the screen
appear less bright).   Most of the newer computers have a high enough
refresh rate they shouldn't be a problem?
  The one I use now has a Liquid Crystal screen (LCD), so I have no flicker
or refresh rate, but my older screens I didn't have a problem with Complex
Partials, but I was light sensitive to Neon overhead lights in some stores,
when I was first diagnosed.  G./
G.Ross - 14 Dec 2005 05:30 GMT
>I have rose filter glasses, adjusted my computer refresh rate and also
> brightness, but after only three hours on the computer at work I'm
[quoted text clipped - 3 lines]
> for any help!
> Elsea

 While I think of it, I've also seen 'Screen Glare Filters' advertised at
some computer stores, that fit over a CRT screen and supposedly cut down on
screen glare.  They're around $30. Canadian.
 I'd be interested if others have used those and if they were any good for
People with Epilepsy who are photosensitive, and if they really  reduce CRT
screen glare or flicker.  G./
William.H.Dunn@navy.mil - 19 Dec 2005 18:43 GMT
> I have rose filter glasses, adjusted my computer refresh rate and also
> brightness, but after only three hours on the computer at work I'm
[quoted text clipped - 3 lines]
> for any help!
> Elsea

My daughter has photosensitive epilepsy.  She experienced two full
blown tonic-clonic seizures, both while working on the computer.   Off
medication, simple sunlight can trigger partials.

Here is a good site for info on photosenstive epilepsy:
http://www.epilepsy.org.uk/info/photo.html
G.Ross - 20 Dec 2005 04:00 GMT
>> I have rose filter glasses, adjusted my computer refresh rate and also
>> brightness, but after only three hours on the computer at work I'm
[quoted text clipped - 10 lines]
> Here is a good site for info on photosenstive epilepsy:
> http://www.epilepsy.org.uk/info/photo.html

 If the screen is a standard CRT there sometimes is a way in the software
to increase the refresh rate, which will make screen flicker less
bothersome.
  I had also seen advertisements here (Canada) at some computer stores for
a Glare Guard, that clips onto the screen and is supposed to cut the glare
effects? I don't know if the polarizing glass in those will mask the refresh
rate, or just reduce the glare, if that was where her problems were coming
from.  I think I've only seen one or two people post about those over the
last 7 years, so don't know how effective they are.  They're under $30.
Canadian though and might be worth a try to see if they help.   Even if they
don't work you could then donate them to a school or other place where they
might be of use.
  My newer computer uses a Liquid Crystal screen which has no flicker rate.
Is there any chance her employer would buy her a L.C. screen, or let her get
her own?  (They're also around $100. for a 14 inch (35cm) diagonal one like
I have.)   But many places, the employer will provide (or be legally
required to make available) a screen that will help her function more
conveniently without compromising her health in the workplace.
  Alternatively, in some jurisdictions, if she had to buy her own Office
Supplies and wasn't reimbursed by her employer, the cost might be tax
deductible as an Employment Expense.  That depends on a particular Country's
tax laws, but I think that applies (e.g.) in Canada.  A local tax office
could tell you.    G./
Julie - 20 Dec 2005 04:49 GMT
G.R, what kind of computer screen did you buy?  Who is the manufacturer? Just
curious.
Julie

> >> I have rose filter glasses, adjusted my computer refresh rate and also
> >> brightness, but after only three hours on the computer at work I'm
[quoted text clipped - 34 lines]
> tax laws, but I think that applies (e.g.) in Canada.  A local tax office
> could tell you.    G./
G.Ross - 20 Dec 2005 16:49 GMT
  I sent you one of my verbose replies about this direct.  I'll do an short
book report extract from that note below for others who haven't seen Liquid
Crystal Screens (LCD) as Monitors.   Gordon.

> G.R, what kind of computer screen did you buy?  Who is the manufacturer?
> Just
[quoted text clipped - 21 lines]
>> required to make available) a screen that will help her function more
>> conveniently without compromising her health in the workplace.   G./

G. ***  What I sent Julie Direct. -->
Hi.   It's a Dell Screen that came with the Dell Computer I bought.  (Dell
here advertise in the newspapers and TV, then you have to phone an 800
number and tell them which computer in the advert. you want to get.   I
prefer to see the Real McCoy in a store and talk to a saleperson about e.g.
my sensitivity to Screen Flicker, what I want to use the computer for, and
can I hook up printers, scanners and future inventions for the next 2-4
years...
*** Dell in Canada can sell computers more economically, as they don't have
any Stores, but advertise in Newspapers or at their websites?   And by
running a toll-free Order Desk, they cut the costs of Rental and Real Estate
out of the computer's costs.  G/ continued -->

  So far as I know ALL the DELL Screens are LCD so a flat screen 15 inch
diagonal.  (The advertised package had a 12 inch or less diag. and the girl
on the phone (**correctly) said that 12 inches was too small to be of use
without a magnifying glass to read the text.)   I think they also have 17
inch and possibly larger, and if I do this again I'll likely get the *17
inch size.
  While the 15 is OK and I'm only about 18 inches from where the
screen is on the desk, the larger one would be easier still to read, and
font sizes could then be increased too as I age :-<  and want larger text
than the size I'm using that was standard...   The total screen height is 14
inch, width 13.5, and *depth is *5 inches including the oval base that is
very stable.   I think this one can also be tilted 'back' up to about 20
degrees. (I'm not sure how that would help unless the position was below
where your eyes are, as behind the keyboard.
 On my computer desk, I have a Raised pedestal at the back half of the
desk, so my Printer, Screen (on left) and photo of Jacob and I all fit on
the upper tier.
  The screen plugs into the back of the computer (usb link?) and through
one of those AC to DC converter boxes? to the Power Bar that's behind the
desk. (I think that's what the 2 wires are below the screen that disappear
behind the desk.

  Some places here also sell Wireless links for printers, possibly
screens and scanners so that wires across a room aren't needed, if those
would help. This Printer (so far as I know), has to be Manually turned *on
to print, while Computer-1 had a little Canon Printer that would Auto-On if
I sent a print job to it, and would auto-off after about 4 minutes if it
wasn't used.   I miss that, even though the printer is close here.
My HP printer didn't turn itself on either, but I got it for Win.95. HP
Inks (Black and Colour) were $40. Canada each.   The Dell ones are $29 and
$36 each and seem to last longer--shipping here is 'free' plus taxes.

   Back to the Subject !! :-<   If you can't find screens like these at a
computer store near you, but have Dell Advertisements in your newspapers,
you could order just the *Screen when the Boxing Day sales start up (in
newpapers Dec.26 or perhaps even now), and your husband or son could
probably replace the CRT with the LCD using the USB cable.  The Software to
control the screen came pre-loaded on my computer, but I also got a pack of
CDs,
including the one that controls the screen (below).   I don't know if you
would plug in the screen first and load this (to tell it how the screen
works.. :-< ) or if you load the Software first, then change screens to my
good one.
  On the CD I got (among 6+) one here says Dell E153FP Color Monitor User
Documentation -- Contents HTML User documentation, Drivers (INF, ICM, and
CAT files)...    So your Geek Men there should be able to connect you up by
the time Tea is ready !! :->

   The Colour is Spectacular !! on these.    I also read a UK Astronomy
group, and their Photos of Galaxies, Saturn and Jupiter etc. are Amazing on
this screen.  Easily as good as with my box-sized CRT screen I had on the
Clone I once had.  It still weighs about 20+ pounds but that has to be
mostly circuitry as it's only 2 inches deep (I measured it).  The Base is
deeper than the screen, and 2/3 the width, so it's very neat and tiny to fit
wherever you want it placed for use.
   A website I found that might show Pictures if there isn't a Dell dot US
or ?? address nearby, is at www.dell.ca   I haven't been there, but I *think
that shows Pictures and Prices (Canada Dollars), so you can see how neat
this screen type is.  The site is for all their products, so you'd probably
have to search out
Monitors or Attachments or something to get to the LCD screens. So far as I
know the LCD
ones are the only? type that Dell sell.
 The US Dell address is probably like that above, but with whatever dot xx
would be
used, to give you local Dell Dollars.  (Prices shown usually Include
Shipping by
Purolator or Fed Ex, or especially at Christmas when competition is Highest.
Most of the stuff came next business day or 2 days later than order.)
  If  you get local Adverts. in your Papers Saturdays or Mondays, any Dell
Ad.
there would have the Dell dot xx you could use there, to compare
prices.   I *think they're assembled in India, but many times you can get
these things Cheaper in US dollars (even with conversions)  than we can up
here because we have a 15% Province and Federal Tax on the Screen, and 8%
Federal on the Shipping charges if there are any.  (Most Dell ads. here
emphasize their Free Shipping.)
   They advertise a 24 hour Help Desk and Highest quality service and
support, but I haven't had need to test that in the ~2 years I've had this.
Since everything on the computer worked properly from startup, I didn't need
that.   I guess that's a good sign too.    Gordon.
G.Ross - 20 Dec 2005 17:38 GMT
  On the earlier note where I was giving dimensions of my LCD screen etc. I
said -->

>   So far as I know ALL the DELL Screens are LCD so a flat screen 15 inch
> diagonal.  (The advertised package had a 12 inch or less diag. and the
[quoted text clipped - 8 lines]
> than the size I'm using that was standard...   The total screen height is
> 14

> inch, width 13.5, and *depth is *5 inches including the oval base that is
*********************************
> very stable.   I think this one can also be tilted 'back' up to about 20
> degrees. (I'm not sure how that would help unless the position was below
> where your eyes are, as behind the keyboard.

**  While above (at **s) might look like I had mis-measured this Screen
size, and puzzle any closet Pythagoreans, what I meant by total screen
height is 14 inches, was the screen *with the Base is 14 inches high.
**The actual Real size of the LCD/viewable Part is 9 inches high x 12 inches
wide (22.5x 30cm for metrico-files).   That's why I would have liked even a
Larger LCD screen size than this. G./
Julie - 20 Dec 2005 22:07 GMT
Thanks Gordon.  I have a Dell, but it is only 2 1/2 years old.  Well actually it
is older than that because I bought a refurbished computer.  My monitor is very
old.  It came with one of our first computers.  So I'm thinking of buying a new
computer, but I'm torn, because even though my husband works on computers for a
living, he tells me bad things about all of them. ;-)
Julie

>    I sent you one of my verbose replies about this direct.  I'll do an short
> book report extract from that note below for others who haven't seen Liquid
[quoted text clipped - 120 lines]
> Since everything on the computer worked properly from startup, I didn't need
> that.   I guess that's a good sign too.    Gordon.
G.Ross - 20 Dec 2005 23:38 GMT
> Thanks Gordon.  I have a Dell, but it is only 2 1/2 years old.  Well
> actually it
[quoted text clipped - 6 lines]
> living, he tells me bad things about all of them. ;-)
> Julie

  Why not just ask him to get you a new LCD Monitor (large one) like I
listed on earlier note?  Tell him we took a vote and decided you should have
one... :->
   Then when Pentium next come out, you can get a newer computer, if
they're faster by then.  You'll already have the screen and peripherals, so
by then you'll just need the computer part, plus any new ports or ?? that
will be invented in 2006 or so.   Gordon.
Julie - 21 Dec 2005 05:20 GMT
Good idea.  I figured out our tax situation and since I will be having medical
bills this next year to manage, it appears that we won't be buying a computer
soon.  Maybe I can upgrade my memory also. (Hey, I just realized that could be
taken literally, maybe I can upgrade my computer and my own memory.  That will
make me happy!)  It just bugs me to be trying to multitask and the computer is
dragging along.

Take care,
Julie

> > Thanks Gordon.  I have a Dell, but it is only 2 1/2 years old.  Well
> > actually it
[quoted text clipped - 14 lines]
> by then you'll just need the computer part, plus any new ports or ?? that
> will be invented in 2006 or so.   Gordon.
G.Ross - 21 Dec 2005 05:30 GMT
> Good idea.  I figured out our tax situation and since I will be having
> medical
[quoted text clipped - 10 lines]
> Take care,
> Julie

Do you (via Idaho Ep.) or your husband use your computer as part of any
Employment?  In Canada if this were part of a business I ran (it isn't to
me),  I could deduct any Equipment I needed to do my job from my Gross
*Business Income, as a business expense.  (In other words I can't deduct it
from my personal income, but if I needed this as a condition of employment
or e.g. to run the Idaho Website for them, any expenses <usually in a 12
month year ending before Dec.31> could be deducted when I file my Federal
Taxes in April, unless my Business had a different Fiscal Year.)  G./
Julie - 21 Dec 2005 23:36 GMT
Yes I do have a website design business, but after deducting my expenses and
home office expenses, it wouldn't make any difference to buy a computer this
year.  Next year I will probably even make less money, so we'll shoot for
2007.  Think of all the new hardware they will come up with by then. ;-)
Take care,
Julie

> > Good idea.  I figured out our tax situation and since I will be having
> > medical
[quoted text clipped - 19 lines]
> month year ending before Dec.31> could be deducted when I file my Federal
> Taxes in April, unless my Business had a different Fiscal Year.)  G./
Elsea - 23 Dec 2005 21:13 GMT
Thank-you.  That was a very helpful site.  The only thing that doesn't
make sense is that the computer refresher rate is set really high, and
yet I still start to have problems after a couple hours on the
computer.  Very interesting learn what exactly goes on when a screen is
being refreshed.  Thanks so much for posting that for me.  Also, to
everyone who has responded, a big THANK-YOU.
Elsea
> > I have rose filter glasses, adjusted my computer refresh rate and also
> > brightness, but after only three hours on the computer at work I'm
[quoted text clipped - 10 lines]
> Here is a good site for info on photosenstive epilepsy:
> http://www.epilepsy.org.uk/info/photo.html
Patsy and Darryl - 20 Dec 2005 11:51 GMT
Hi Elsea,
Apart from the adjustments you've already made I can't think of any
others.
But as Gordon mentioned, Flourescent lights can cause problems for
some people.
I normally suffer from complex partials, but when under fluorescent
lights I also get simple partials. Makes it feel as though I'm about
to have a C.P.
Not a comfortable feeling and makes me want to get out of banks, shops
etc, as fast as I can. If you do work under fluorescent lights, this
may be a contributing factor.
Just a thought.
Darryl.

>I have rose filter glasses, adjusted my computer refresh rate and
>also
[quoted text clipped - 6 lines]
> for any help!
> Elsea
G.Ross - 20 Dec 2005 17:01 GMT
> Hi Elsea,
> Apart from the adjustments you've already made I can't think of any
[quoted text clipped - 17 lines]
>> for any help!
>> Elsea

Most of my Auras, when I was more sensitive, seemed to come from Fluorescent
Lights that were close to wearing out, so their Flicker rates were different
from our 120 volt/ 60 cycle Electric.  I don't know if that Electric
frequency differs a lot in countries that use 220Volt etc.
   I had seen posts (years ago) here where people had used Screen Guards (I
think I mentioned) or Polarizing Eyeglasses, to cut out effects.   Maybe
Bono can get us a deal on Anti-Flicker eye glasses.. :->     I just posted a
longish note I sent direct to Julie about my experiences and delight with
LCD (Liquid Crystal Display)  screens, on the computer type I bought in
Canada from Dell Computers.   There *are other companies here who also carry
LCD products now.   Note only one comment I made there about the Diagonal
Screen size she commented on at the order desk and my Agreement that the
*Larger the screen size, the better for reading it.
   They ARE excellent I found in both Brightness and Ease of Reading, even
though I didn't notice auras by the time I had replaced the old Big Box CRT,
but I expect after Long use,  I was more tired than I would have been if I
had already had this LCD one.    Gordon./

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