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Medical Forum / Diseases and Disorders / Epilepsy / January 2006

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Do certain foods make it worse?

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Elsea - 14 Dec 2005 03:29 GMT
I have simple partial epilepsy and I had several little attacks today.
What kinds of foods make it worse?  I had 3 oz of chocolate yesterday
and probably the same today.  Would sure appreciate input.  Thanks!
Elsea
G.Ross - 14 Dec 2005 05:23 GMT
>I have simple partial epilepsy and I had several little attacks today.
> What kinds of foods make it worse?  I had 3 oz of chocolate yesterday
> and probably the same today.  Would sure appreciate input.  Thanks!
> Elsea

 I never had problem with Chocolate... but some people might be allergic to
milk products?

 What medications do you use?   I found several years ago that Grapefruit
Juice interferes with Tegretol (Carbamazepine) functioning.   One of the
acids in G.F. that's not in other citrus juices interferes with that
particular medication.
  If you post what you pills you use (if any), others might have comments.
G./
Elsea - 15 Dec 2005 01:48 GMT
Tegretol 400 mg/day for the epilepsy.  That was a good suggestion for
me to post what meds.  Do you think if a person takes Calcium with
their pills that it might interrupt absorption?  I take Calcium as
well.
Elsea
G.Ross - 15 Dec 2005 04:54 GMT
> Tegretol 400 mg/day for the epilepsy.  That was a good suggestion for
> me to post what meds.  Do you think if a person takes Calcium with
> their pills that it might interrupt absorption?  I take Calcium as
> well.
> Elsea

 Not so far as I know.  There was 1 or 2 people posting here a year or so
ago who used either multi-vitamins or Calcium tablets as well as their
medications. (I don't know if they took them at the same time though, or at
a different time during the day.)
  I don't have the message thread up here at the moment from 2-3 days ago?
But someone posted about using Tums (upset stomach remedy) that was high in
Calcium? or another ingredient. I might be mis-remembering why they were
taking that without looking back at my Medications posts folder. I would
tend to lean toward Calcium tablets (vitamins) as a supplement, rather than
another 'medicine' that wasn't designed or recommended by my Doctor for
mixing with Tegretol.
  (I also assume you might have seen a post I did a few days ago to avoid
Grapefruit?  Apparently one of the acids in its juice interferes with
Tegretol, that's not in other citrus juices or drinks.)
  I found my Pharmacist an excellent source for information like above too.
They have the scripts that come from the Med. Manufacturers so can check for
potential conflicts for you.  Mine added the advisory to their printouts,
about Grapefruit, when I took her a copy of a posting I printed from here or
from the uk group that I used to read also at the time.
  You're probably also using one of the Controlled Release Tegretols?
(Tegretol CR or XR, Retard in the UK)   Since they rarely prescribe straight
Tegretol now for seizures, I often use that word by itself, assuming that
we're talking about one of those. (They might prescribe Tegretol olde still
for people with heart conditions or who've had problems with strokes -- but
I'm not a Doctor.)   G./
G.Ross - 18 Dec 2005 21:40 GMT
> Tegretol 400 mg/day for the epilepsy.  That was a good suggestion for
> me to post what meds.  Do you think if a person takes Calcium with
> their pills that it might interrupt absorption?  I take Calcium as
> well.
> Elsea

 Another thing that might be further down this message thread, but my
Tegretol prescription said to tell all Doctors and Dentists I was using it.
My Dentist changed my recall rate from each 6 months to each 4.  He said
that with some people Tegretol can rob Calcium from their bones, and it
would first become evident in their Tooth Health.
  I haven't had more than previous Dental problems, but since I drink
almost No Milk, I'll try to remember to ask my Neurologist when I next see
him.  (He wants to see me after about 6 years, before he'll renew my
Tegretol prescription that will run out about Dec. 26th.  I expect there is
some period of time, within which he has to see me to renew prescriptions,
to keep him 'active' as my Neurologist, and he may not be able to bill for
time it takes him to Return calls to the Pharmacy to confirm the Renewal
he's had to do each 100 days since 1995.   There have been some changes in
the last year with respect to our socialized medicines, so I might find out
if I see him by then, what the reason for a recall was. I figured if it
wasn't broken, it shouldn't be fixed.  Since I haven't had a seizure since
Mid-1998, and haven't needed a dose change over that period, as I frequently
did from 1993 to 97, I thought that I should stay on the dose amount I
currently use.)  Time will tell.  G,/
Chris Lesurf - 16 Dec 2005 04:16 GMT
My model for fit triggering is mental energy overflowing when brain
stimulation is faster than transformation of potential energy into action.
I also reckon that blood-sugar level (bsl) affects likelihood of fits. For
years the chance seemed to be higher if the bsl was so low that energy
transmission was slow enough for build up to cause overflow. More recently
sudden increases of bsl (by eating sweet things like chocolate) seem to
have similar effects. The speed of sugar digestion might be greater if it
is a long while since food has been eaten.

I hope that gives you some food for thought !

Cheers,

Chris L.

> I have simple partial epilepsy and I had several little attacks today.
> What kinds of foods make it worse?  I had 3 oz of chocolate yesterday
> and probably the same today.  Would sure appreciate input.  Thanks!
> Elsea
G.Ross - 16 Dec 2005 14:07 GMT
> My model for fit triggering is mental energy overflowing when brain
> stimulation is faster than transformation of potential energy into action.
> I also reckon that blood-sugar level (bsl) affects likelihood of fits. For
> years the chance seemed to be higher if the bsl was so low that energy
> transmission was slow enough for build up to cause overflow. More recently
> sudden increases of bsl (by eating sweet things like chocolate) seem to
*************************************************
> have similar effects. The speed of sugar digestion might be greater if it
> is a long while since food has been eaten.
>
> I hope that gives you some food for thought !
> Cheers,
> Chris L.

**** Can I have your's then?    :->    G.
(I get the opposite effect, I think it should be promoted to one of the main
food groups... )

  I don't know what the criteria are or how they do it, but wondered if
it's all sweet things you react to, if a Dr. should do a screen for
Diabetes?    Howdy might know if he's around and still 'in town', but I
thought reaction like above could be one of its markers?   /

>> I have simple partial epilepsy and I had several little attacks today.
>> What kinds of foods make it worse?  I had 3 oz of chocolate yesterday
>> and probably the same today.  Would sure appreciate input.  Thanks!
>> Elsea
Chris Lesurf - 20 Dec 2005 19:01 GMT
> > I also reckon that blood-sugar level (bsl) affects likelihood of fits. For
> > years the chance seemed to be higher if the bsl was so low that energy
[quoted text clipped - 11 lines]
> (I get the opposite effect, I think it should be promoted to one of the main
> food groups... )

>    I don't know what the criteria are or how they do it, but wondered if
> it's all sweet things you react to, if a Dr. should do a screen for
> Diabetes?    Howdy might know if he's around and still 'in town', but I
> thought reaction like above could be one of its markers?   /

> > No I don't pass out if I have too much sugar I just seem slightly more likely to have a fit whereas the relationship between bsl and fits used to be the other way round (ie I was morelikely to have a fit if I hadn't eaten much for more than a couple of hours).

Chris L.
Mindy  Van Wert - 24 Jan 2006 14:40 GMT
Actually, my neurologist told me to stay away from artificial sweeteners as
there is an ingredient in them that can induce seizures. Phenylalanine is
one, I'm not sure what the other is.

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Mindy

If you can read this, you're not the president.

> My model for fit triggering is mental energy overflowing when brain
> stimulation is faster than transformation of potential energy into action.
[quoted text clipped - 15 lines]
>> and probably the same today.  Would sure appreciate input.  Thanks!
>> Elsea
Sofia - 24 Jan 2006 17:06 GMT
> Actually, my neurologist told me to stay away from artificial sweeteners as
> there is an ingredient in them that can induce seizures. Phenylalanine is
> one, I'm not sure what the other is.

Strange, I've  never known any food or drink to "induce seizures" other
than caffeine in tea and coffee, alcoholic drinks, and Gordon tells us how
grapefruit juice can have some bad effects.

I personally take most of my beverages without any sugar or sweetener
though, but I do know that honey is double as sweet, and half the calories
of sugar if you'd like to try that as a substitute - I learn't that after
substituting it for sugar in my porridge.

Sorry I can't be of any further help, but somebody else on the
newsgroup may know.

Take care

Sofie

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Dave Keays - 25 Jan 2006 22:48 GMT
Mindy Van Wert wrote:
> Actually, my neurologist told me to stay away from artificial sweeteners as
> there is an ingredient in them that can induce seizures. Phenylalanine is
> one, I'm not sure what the other is.

I was told the worst was Aspartame in "neutrasweet". But "slendora" seems to be
acceptable.

But ask your Doctor.

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Dave Keays

 
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