I've been diagnosed with epilepsy for close to 7 years. I still have
auras and simple-partial seizures. During this time I had to stop drop
drinking all alcohol due to taking my medication -dilantin etc.
These days i've been dying for a beer and/or a shot of whiskey.
Especially since all my friends still go out and have a beer after work
it's hard not to be able to sit in that circle. I don't want to get
crazy drunk but I wish I could sit down and have a bottle amongst
friends w/o worrying about passing out and having a seizure.
Has anybody here who craves alcohol (not alcoholic) figured out ways to
get your mind off of it? I've been dying for a beer for years :)
G.Ross - 08 Dec 2005 22:25 GMT
> I've been diagnosed with epilepsy for close to 7 years. I still have
> auras and simple-partial seizures. During this time I had to stop drop
> drinking all alcohol due to taking my medication -dilantin etc.
Hi. Someone posted here a year? ago that it tastes awful(beer), now that
we're taking pills for this. I had an occasional glass of white wine (1 in
4 months) when I was just on Tegretol (1995).
I heard that Dilantin and Tegretol are both prone to conflicts with
alcohol. Tegretol (for one) has a non-linear footprint? --> 1 drink is like
~1, 2 are like 3+, 3 like 5. A cheap drunk, but I don't need the risk. I
awoke in Emerg. enough times before I was controlled. I don't want to do
that again. I can do without the Chivas (Scotch), if it'll keep me out of
there. My opinion. G./
> These days i've been dying for a beer and/or a shot of whiskey.
> Especially since all my friends still go out and have a beer after work
[quoted text clipped - 4 lines]
> Has anybody here who craves alcohol (not alcoholic) figured out ways to
> get your mind off of it? I've been dying for a beer for years :)
Sofia - 09 Dec 2005 22:33 GMT
>> Has anybody here who craves alcohol (not alcoholic) figured out ways to
>> get your mind off of it? I've been dying for a beer for years :)
Although I'm on quite a lot of meds too (tegretol + keppra), I also allow
myself a least one glass of something each week with my hubby. I usually
have either a pint of Guinness, or a small glass of Bailey's cream, but
only usually about once a week at weekends.

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charlie - 09 Dec 2005 19:45 GMT
I have been taking dilantin for about 19 years. I have an AVM and if you
don't know what that is put avm into your browser and it will explain it.
anyway I do not drink. I use to like to get a beer buzz. Maybe two to three
times I have had a beer and one time two beers and I didn't like the feeling
of it. I am so happy I don't drink anymore
Chris Lesurf - 15 Dec 2005 04:00 GMT
There are few points I'd like to make about drinks including any alcohol:
a) I only drank a little even before I developed epilepsy and that's
advisable for everyone.
b) There are quite a few drinks with little or no alcohol (including a
lager which I occasionally buy in cans). If more and more customers ask
for such in pubs, bars, restaurants etc then more and more of them are
likely to provide them.
c) little enough of alcoholic drinks may be safe - my G.P. said so.
Cheers,
Chris L.
> I've been diagnosed with epilepsy for close to 7 years. I still have
> auras and simple-partial seizures. During this time I had to stop drop
> drinking all alcohol due to taking my medication -dilantin etc.
> These days i've been dying for a beer and/or a shot of whiskey.
> Especially since all my friends still go out and have a beer after work
> it's hard not to be able to sit in that circle. I don't want to get
> crazy drunk but I wish I could sit down and have a bottle amongst
> friends w/o worrying about passing out and having a seizure.
> Has anybody here who craves alcohol (not alcoholic) figured out ways to
> get your mind off of it? I've been dying for a beer for years :)
JimK - 03 Jan 2006 08:28 GMT
All throughout university i was on Dialatin and drank quite a bit without
too much adverse effects ... but i did have siezures occasionally. Now i am
on Depakote and Tegratol and drinks lightly and occasionally (maybe twiec
per month). Beer, vodka, wine ... when i do drink i do not drink in very
large quantities as i do feel ill after maybe two to three drinks. Give up
alcoholic drinks altogether .. i do not think so.
Satch - 16 Dec 2005 08:12 GMT
> I've been diagnosed with epilepsy for close to 7 years. I still have
> auras and simple-partial seizures. During this time I had to stop drop
[quoted text clipped - 8 lines]
> Has anybody here who craves alcohol (not alcoholic) figured out ways to
> get your mind off of it? I've been dying for a beer for years :)
Hello,
I have been a binge drinker since the age of 15. I did not drink every
weekend or on every occassion but when I stared drinking with some friends,
I did not stop drinking. I was diagnosed with epilepsy when I was born but
with some good medication, I was seizure free in a minute. When I was going
to high school I again suffered from epilepsy and again I had to take my
medication. I was seizure free without medication at the age of 15 (or
something; I cannot remember exactly).
Now I am 30 years old -almost 31, and since I stopped medication at the age
of 15, I started binge drinking with my friends in the weekends or on
Saturday nights. I have been doing that since and in 2004, I suffered from
my first tonic clonic seizure which was not nice to experience as we all can
imagine. I used to have absence epilepsy which was not such a big deal
though annoying. This time it was different.
Anyways, I am on medication again and I am seizure free which is good. I am
now adult enough to understand the seriousness of epilepsy and since that
event, I never started drinking again while I go out with the same friends.
They all know about my event and when we go out, someone always asks me if I
am sure that I do not want to drink and I always tell them the same answer
using the same patient and polite way of answering questions that have been
asked before: "Yes, I do not drink anymore. Actually, I will never drink
anymore". The answer then is: "Oh okay, but when you are off medication,
then you can drink, can't you? Then there is no risk anymore?" I then give
the same answer: "Sorry, but that would not make a difference".
With the medication I use (Depakote aka Depakine aks Depakene), you can take
one or two beverages. However, you will get the immediate side effects of
getting drunk after these two drinks. When my doctor suggests trying to get
me off the medication again, then these immediate side effects will go away
and I would have to take more beverages to get the same effect. However, I
actually am completely done with booze, drinking, etc. I messed up by
starting the binge drinking. I learned my lesson. I now refuse to take the
risk and I refuse to take one or two drinks. It is not hard for me; it is
not hard for my friends as they accept me for who I am. If your friends do
not accept you for not drinking or something, then find yourself some better
friends (I know this sentence may trigger some reactions...it is just my
personal opinion and I do not want to offend anyone nor your friends).
Good luck....I have been there, it must be quite hard and frustrating. Best
to all of you.
Cheers,
Marco
G.Ross - 16 Dec 2005 14:25 GMT
> <LAgamer@gmail.com> wrote in message
During this time I had to stop drop
>> drinking all alcohol due to taking my medication -dilantin etc.
>>
[quoted text clipped - 45 lines]
> not hard for me; it is not hard for my friends as they accept me for who I
> am.
If your friends do
****************
> not accept you for not drinking or something, then find yourself some
> better
************************************************************
> friends (I know this sentence may trigger some reactions...it is just my
**********
> personal opinion and I do not want to offend anyone nor your friends).
***G.** I was going to suggest having that put on a Tee Shirt, but I'd need
a Large XXXXL shirt for it all to fit there, or a scarf. Well said
though, anyway.
And *you've been away too long also ya know. Some days we were down to 3
people posting-- with shopping, and holidays and (U.S./Canada) Thanksgiving
Days, Remembrance day, and other things that people need attend to. Tennis
or Soccer gets difficult with only 3 players -- there's 2 goalies and a
Referree... Not much action in centre field. It's good to have you back in
play. G. /
> Good luck....I have been there, it must be quite hard and frustrating.
> Best to all of you.
>
> Cheers,
> Marco
Satch - 16 Dec 2005 16:47 GMT
> And *you've been away too long also ya know. Some days we were down to 3
> people posting-- with shopping, and holidays and (U.S./Canada)
> Thanksgiving Days, Remembrance day, and other things that people need
> attend to. Tennis or Soccer gets difficult with only 3 players -- there's
> 2 goalies and a Referree... Not much action in centre field. It's good
> to have you back in play. G. /
Thank you Gordon. I know it has been a long time. I will try to catch up a
little bit :-) Good to see that you are still doing OK.
BillX - 01 Jan 2006 23:15 GMT
I've been on Dilantin for 2.5 years without a drop of alcohol and
finally broke down over Xmas and New Years by having one beer on Xmas
and 3 on New Years. I savored every drop so put me down as missing
beer. Back on the wagon again until next Xmas.
Chris Lesurf - 03 Jan 2006 06:12 GMT
Why not try alcohol-free beer ? It doesn't taste much different to
alcoholic lager to me.
Cheers,
Chris L.
> I've been on Dilantin for 2.5 years without a drop of alcohol and
> finally broke down over Xmas and New Years by having one beer on Xmas
> and 3 on New Years. I savored every drop so put me down as missing
> beer. Back on the wagon again until next Xmas.
howdydave - 03 Jan 2006 07:49 GMT
Howdy!
I don't miss it due to the fact that I'm not on the wagon!
I had a doctor at one time who told me:
"Don't be afraid to experiment WITHIN MODERATION."
I've done so and discovered that an occasional drink has no adverse
effect either in combination with my drugs or by increasing seizure
activity.
An occasional Guinness Extra Stout (warm of course), vodka (neat, out
of the freezer), brandy or Yukon Jack haven't been at all detrimental
to my health.
Malcolm - 03 Jan 2006 23:11 GMT
>Howdy!
>
[quoted text clipped - 3 lines]
>
>"Don't be afraid to experiment WITHIN MODERATION."
Hi Dave!
No I still don't drink as I don't want to precipitate anything from the
past, but I do miss a pint of hand-pulled Theakston's Old Peculier.
OTOH, not drinking puts a mega-big clamp on my social life, as I don't
go to parties, pubs etc because I feel so out of place :-(
How's life? Our paths haven't crossed in ages.

Signature
Malcolm
sr369509@gmail.com - 08 Jan 2006 07:25 GMT
Dave
I yearn for a brewsky as well, but you can't do it. I haven't drank
for about 20 years, but I still would like to. When I'm with others I
drink soft drinks and get a "contact" high with others that have been
drinking.
Scott
howdydave - 09 Jan 2006 17:28 GMT
Howdy Scott!
Better watch those absolute statements (that's my yoga rearing up it's
dragonic head.)
Big difference between "I can't" and "YOU can't".
Experience has proven to me that a bit of alcohol mixed with MY meds
isn't fatal. (That doesn't necessarily mean that it won't kill somebody
else.)
Experience has proven to me that there is no perceptable change in my
seizure frequency or serverity if I have a drop.(That doesn't
necessarily mean that there wouldn't be severe changes in somebody
else.)
My seizures have never been fully controlled anyway so I don't have to
worry about losing a license if I have a seizure.
mike_zeb@hotmail.com - 16 Jan 2006 16:29 GMT
Hey Everyone
I got diagnosed with a low grade glioma about 2 1/2 years ago now and
take quite alot of Tegratol and Keppra to help with the small fits that
i still have. I always seem to have a fit a couple of days after
drinking so xmas saw my last beer, hasnt helped with the fits - ive had
5 in the last week. They're only small and last 30 secs or a minute
and i cant talk for a couple of mins afterwards, i can understand
everything around me, but cant get the words out. I seemed to have
much worse hangovers when i got drunk though - i certainly wont miss
them! Does anyone else have trouble talking afterwards?
Malcolm - 16 Jan 2006 16:58 GMT
>Hey Everyone
>
[quoted text clipped - 7 lines]
>much worse hangovers when i got drunk though - i certainly wont miss
>them! Does anyone else have trouble talking afterwards?
mmmm mmm mmm m mmmmm mmmm mm mmmm mmmmmmmm mmmmm mmmmm!

Signature
Malcolm
sr369509@gmail.com - 08 Jan 2006 09:14 GMT
Dave
I yearn for a brewsky as well, but you can't do it. I haven't drank
for about 20 years, but I still would like to. When I'm with others I
drink soft drinks and get a "contact" high with others that have been
drinking.
Scott
howdydave - 09 Jan 2006 17:16 GMT
Howdy Malcom!
Long time indeed!
Lately I've been spending most of my time being the wise old
cantankerous sage of several message boards and getting into my Jnana
Yoga.
My access to this board was screwed up so now I'm accessing it via
Google Groups. Doesn't seem quite as warm & cozy when ya' go through
Google for some reason... :)
Salami Man - 19 Jun 2006 16:52 GMT
> Has anybody here who craves alcohol (not alcoholic) figured out ways to
> get your mind off of it? I've been dying for a beer for years :)
I (supposedly) can't drink alchohol because of my meds, too. However, I try
the usual substitutes like the "virgin margarita" instead of the regular,
alchohol-containing margaritas, or the "virgin pina colada" instead of the
regular, alchohol-containing pina colada, etc. and I'm happy enough with
that. However, I was never really a big alchohol drinker.
When I did try an alchoholic beverage, I tried it with a meal, and I knew
that the alchohol would be absorbed more slowly into my body. I also only
consumed one beverage. I also figured that because I weigh 200 lbs, my BAC
would be negligible with just one drink, especially if I consumed it slowly.