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Medical Forum / Diseases and Disorders / Epilepsy / July 2006epilepsia , cytomegalia or what?
I am 26 years old. In the 6.5 age of the year, I lost consciousness on law 10 of hours. I lay down saying about the divan bed that for me head boli. And I lost consciousness. The head was tilted in the trick and eyes toppled over. Drgawek it wasn't. Before an emergency ambulance service came for 40 minutes from the beginning of this event, a heart stopped working. A disappearance was for the left or right hemisphere of the brain. Treated I started being from convolex, through amizepin. I was a 5 years old in the sequence 1 or 2 losses of consciousness. I started in the end undergoing treatment tegretol now trileptal. was exchanged from plaintiffs of headaches. 2 attempts finished always sooner or later, to stop taking a medicine were probably a loss of consciousness. It was so for the last time niecałe 10 years ago. I probably had theses then convulsions, I am sure about it at least no from the story, because I am bearing nothing in mind from no event. It happened this way when I lay down to sleep. I started before this event uttering the strange sound as if I suffocated. Record around 96 of year - "basic function 9c/s alpha about the amplitude to 70 symmetrical, synchronous, diversified well spatially with the presence of numerous waves about the deblured drawing of central heatings near $NP$, mv (?) and posterior from the right hemisphere. in the hv time sa there also isolated acute waves. r.z. expressed. f.s. they didn't make. - the record isn't fitting into the around ancient norm" record around 2002 r. - irregular function is evident in the record alpha of 9-11 Hz about the amplitude 30-60 uV. low-voltage function of the baby's sleeping bag is registering with front parts of the brain. in the record around majority in temporal regions visible sa scattered waves theta with 5-7 Hz about the amplitude of basic function. Rz - present. Hw. and Fs - is increasing the amount of waves a little bit theta in the record. - the record is demonstrating little generalized shifts scattered with the majority in temporal regions. record around 2003 r - the record was made in being on the alert in the time of treating carbamazepina. basic function alpha c 8c/s about the amplitude to 60uV, symmetrical, synchronous, diversified well spatially. In the hv time in sposob uogolniony is watching each other about 2-3 second paroxysmal changes compound firebrands from acute waves and small syndromes of acute wave slowly. rz expressed. present mark-up low-voltage czynnności fast. - modified record taking drug, an around ancient norm isn't contained. changes generalized about paroxysmal character are being observed. record around 2004 r - basic function alpha 8-9 c/s about the amplitude to 50uv symmetrical, synchronous, diversified well spatially, with the mark-up of low-voltage fast function. zarówno in the hv time as well as without segments generalized with the c 1-2 p. are being observed for less regular, higher function from background. apart from that paroxysmal changes generalized with 3-4 p. are stepping out during hv compound of acute waves, high voltage of day offs and waves alpha. similar shift-s are stepping out in the hv time good leading. rz expressed. - modified record taking drugs isn't within the limits of what's normal. changes generalized about paroxysmal character are being observed. the record is last around 2005 r. - basic function 9c/s alpha about the amplitude to 40uv symmetrical, synchronous, diversified well spatially, with the mark-up of low-voltage fast function. fs isn't influencing the record - good leading. in the hv time in odprowadzeniach of all left and temporal and occipital right is watching each other napadowo stepping out 1-2 acute waves. rz expressed. - modified record taking drugs isn't within the limits of what's normal. changes are being observed about generalized character, stepping out napadowo. I will add, around they didn't know to c 18 years (probably, or doctors didn't tell) what is for me. the neurologist stated only more late around it epilepsia. He is planning now stopping taking a medicine for me completely. is telling around it no epilepsia some viral infection could only be. cytomegalia told. whether it is epilepsia whether no? whether you would also suggest (suggested in order to) stopping taking a medicine any day now, in spite of 2 unsuccessful attempts, last c 10 years ago which closed with the loss of consciousness? From peeping at illness by 1.5 of the year of mums leśniowskiego-crohna can this record be caused with this illness rather than losses of consciousness? Thank You very much for help. It is for me very important. > I am 26 years old. Cześć Angels :-) Welcome to the epilepsy support newsgroup. I hope some people here will respond to your post. Mówię nie po polsku. (I don't speak Polish) but I will try to read your post and try to help explain so that other people can understand and respond. To everyone out there, Angels is writing from Poland and is making a strong effort to translate into English with an occasional Polish word thrown in. I'm certain that it is much easier for Angels to *read* our English than to *compose* a post in English, so any replies will certainly be understood. > In the 6.5 age of the year, I lost consciousness on > law 10 of hours. I lay down saying about the divan bed that for me head > boli. head boli is a headache. Do you mean that you were 6 1/2 years old? a child then? > And I lost consciousness. The head was tilted in the trick and > eyes toppled over. Drgawek it wasn't. Before an emergency ambulance > service came for 40 minutes from the beginning of this event, a heart > stopped working. See this website for Drgawek <http://%20www.ling.pl/content.php4?name=find.php&word=fit&PHPSESSID=44de1217232fb054cf875a36e4141ea4> > A disappearance was for the left or right hemisphere of > the brain. Treated I started being from convolex, > through amizepin. Treatment was started using Depakene and then Tegretol (carbamazepine). > I was a 5 years old in the sequence 1 or 2 losses of consciousness. > I started in the end undergoing treatment tegretol now trileptal. > was exchanged from plaintiffs of headaches. Switched to trileptal because of headaches. > 2 attempts finished always > sooner or later, to stop taking a medicine were probably a loss of [quoted text clipped - 3 lines] > happened this way when I lay down to sleep. I started before this event > uttering the strange sound as if I suffocated. 2 attempts to stop medication led to unconsciousness and convulsions sooner or later. The last attempt was 10 years ago. Stopping medication suddenly can cause seizures just by itself. Stopping must always be done gradually, a smaller amount for some time, then an even smaller amount, and continue that until it is stopped. Was it done that way in those attempts? Do you only have seizures when you attempt to stop the medication? > Record around 96 of year - "basic ... record isn't fitting into the > around ancient norm" . . . 1996, 2002, 2003, 2004, 2005 EEG tests were abnormal. > I will add, around they didn't know to c 18 years (probably, or > doctors didn't tell) what is for me. the neurologist stated only more > late around it epilepsia. Nobody told you that you have epilepsy until you were about 18 years old. > He is planning now stopping taking a medicine > for me completely. is telling around it no epilepsia some viral > infection could only be. cytomegalia told. The doctor is planning to stop your medication and says that the problem is Cytomegalic disease and not Epilepsy. http://www.webcare.md/Index2207.aspx <http://www.wrongdiagnosis.com/c/cytomegalic_inclusion_body_disease/intro.htm> > whether it is epilepsia > whether no? whether you would also suggest (suggested in order to) > stopping taking a medicine any day now, in spite of 2 unsuccessful > attempts, last c 10 years ago which closed with the loss of consciousness? Epilepsy can have many causes. It doesn't matter what has caused the epilepsy! It still needs to be controlled. The EEG's certainly do not look good. > From peeping at illness by 1.5 of the year of mums leśniowskiego-crohna > can this record be caused with this illness rather than losses of > consciousness? Do you mean when you were a small child of 1 1/2 years of age? "mums"? "mum" is a British word for mother. Do you mean that your mother had this leśniowskiego-crohna illness? http://digestive.niddk.nih.gov/ddiseases/pubs/crohns/ That should not cause your epilepsy > Thank You very much for help. It is for me very important. I hope that I have understood you well enough and have not made too many errors. I also hope that this is enough help so that others will share with you now. > Welcome to the epilepsy support newsgroup. I hope some people here will > respond to your post. Mówię nie po polsku. (I don't speak Polish) but I [quoted text clipped - 4 lines] > for Angels to *read* our English than to *compose* a post in English, so > any replies will certainly be understood. Thank You very much, for a help. You know many words in polish. Yes, I'm a Polish. at least I am learning English a lot of years, it is a translation from Polish to English and it is causing me a bit of a problem peculiarly in medical times. If something what I would write would always be incomprehensible I will explain what I meant. >> In the 6.5 age of the year, I lost consciousness on law 10 of hours. I >> lay down saying about the divan bed that for me head boli. > head boli is a headache. Do you mean that you were 6 1/2 years old? a > child then? This way, for the first time when I lost consciousness I was child and 6.5 dust of the year. I was unconscious 10 hours. > > A disappearance was for the left or right hemisphere of > > the brain. Treated I started being from convolex, > > through amizepin. > > Treatment was started using Depakene and then Tegretol (carbamazepine). I started taking Trileptal from plaintiffs of pains heads which the neurologist described as incidental effects of treating tegretolem. >> I was a 5 years old in the sequence 1 or 2 losses of consciousness. I >> started in the end undergoing treatment tegretol now trileptal. was [quoted text clipped - 8 lines] >> I started before this event uttering the strange sound as if I >> suffocated. After every attempt to stop taking a medicine, loss of consciousness (assault?) one blow came after probably a few days, and time after about 3 weeks. Every putting away leks took place at the hospital, however it was possible to say day by day and controlled by examinations eeg. The doctor told that it was possible to try to stop taking a medicine because I haven't had the assault, the loss of consciousness through the longer tense each time. Alas or the fact that I didn't have the loss of consciousness during treating, it are expelling epilepsia? What bases, unconditional requirements are, to determining whether they are ill on epilesia? Whether these records eeg it is possible with the dust to state which on their base whether they have epilepsia or no? Whether having epilepsia are there always organic changes in the brain? > 2 attempts to stop medication led to unconsciousness and convulsions > sooner or later. The last attempt was 10 years ago. [quoted text clipped - 15 lines] > > Nobody told you that you have epilepsy until you were about 18 years old. So, to ok nobody told 18 years that I had epilepsia. There were suspicions of haematoma of the brain, brain tumour. They could not judge 10 hours the loss of consciousness was through the fact probably. Is it true? >> He is planning now stopping taking a medicine for me completely. is >> telling around it no epilepsia some viral infection could only be. [quoted text clipped - 3 lines] > http://www.webcare.md/Index2207.aspx > <http://www.wrongdiagnosis.com/c/cytomegalic_inclusion_body_disease/intro.htm> So, the neurologist wants to stop taking a medicine, gdyz told me suddenly it wasn't epilepsia only probably this loss of consciousness when I was a child was through cytomegalia. Whether cytomegalia can cause epilepsia and what's more isn't denying epilepsy then? >> whether it is epilepsia whether no? whether you would also suggest >> (suggested in order to) stopping taking a medicine any day now, in [quoted text clipped - 4 lines] > epilepsy! It still needs to be controlled. The EEG's certainly do not > look good. Do You mean, taht this could be epilepsy? >> From peeping at illness by 1.5 of the year of mums >> leśniowskiego-crohna can this record be caused with this illness >> rather than losses of consciousness? > Do you mean when you were a small child of 1 1/2 years of age? "mums"? > "mum" is a British word for mother. Do you mean that your mother had > this leśniowskiego-crohna illness? > http://digestive.niddk.nih.gov/ddiseases/pubs/crohns/ > That should not cause your epilepsy I mean, that I have probably a lesnioskiego-crohna. Doctor told me this and started medicate 1.5 years ago. Did this results eeg could be by crohn, or not? Did lesniowskiego-crohna could change eeg and results eeg looks like epilepsy? > I hope that I have understood you well enough and have not made too many > errors. I also hope that this is enough help so that others will share > with you now. You helped me very much as well as I didn't notice błedów in your poscie, I think that we also well understood each other. I am thanking for help one more time. > Yes, I'm a Polish. at least I am learning > English a lot of years, it is a translation from Polish to English and > it is causing me a bit of a problem peculiarly in medical times. If > something what I would write would always be incomprehensible I will > explain what I meant. You are doing very well. There are only a few things that I do not understand. I am not a doctor, but I have epilepsy myself and have tried to learn as much as possible about epilepsy. > This way, for the first time when I lost consciousness I was child and > 6.5 dust of the year. I was unconscious 10 hours. Epilepsy is not the only possible cause for something like that. Something like that can have many causes and might be caused by fever, for one example. If your neurologist thinks that was cytomegalia, I wonder why the doctor who was treating you back then didn't say that same thing. >> > A disappearance was for the left or right hemisphere of >> > the brain. Please explain more about that and use a different word for "disappearance" so that I can understand what you mean better. > I started taking Trileptal from plaintiffs of pains heads which the > neurologist described as incidental effects of treating tegretolem. We would say that the headaches were a "side effect" of the Tegretol. I hope the Trileptal cured that problem for you. > After every attempt to stop taking a medicine, loss of consciousness > (assault?) one blow came after probably a few days, and time after about > 3 weeks. We call these "seizures". If you go to the website at http://www.epilepsyidaho.org/seizure.htm you will see a description of the different types of epileptic seizures. Could you please tell us which type of seizures you have by looking at that website? > Every putting away leks took place at the hospital, however it was > possible to say day by day and controlled by examinations eeg. The [quoted text clipped - 4 lines] > What bases, unconditional requirements are, to determining whether they > are ill on epilesia? It is not an exact science and there is much that is not understood about epilepsy. In fact, sciene understands very little about it. If the person has seizures and they don't have some other explainable cause, then the person would be diagnosed with epilepsy. The diagnosis often comes from the physical symptoms alone because the tests, EEG & others, show nothing. > Whether these records eeg it is possible with the dust to state which on > their base whether they have epilepsia or no? For many people with epilepsy, the EEG is normal and does not show an abnormal problem. There are other tests also such as MRI, CAT or CT-Scan that you haven't mentioned. Those tests give the doctor a picture of the brain, much like an X-Ray of the chest would do, that enable him to see any tumors, brain damage, burst blood vessels, that could cause epilepsy. > Whether having epilepsia are there always organic changes in the brain? That's probably a safe statement to make. The difficulty is that science is not advanced enough to detect all of the possibilities. Science knows very little about this. > So, to ok nobody told 18 years that I had epilepsia. There were > suspicions of haematoma of the brain, brain tumour. They could not judge > 10 hours the loss of consciousness was through the fact probably. Is it > true? A haematoma or tumor could cause serious problems, but the MRI and CT-Scan tests are the tools used to detect thoses. Haven't you had those tests? and only EEG? > So, the neurologist wants to stop taking a medicine, gdyz told me > suddenly it wasn't epilepsia only probably this loss of consciousness > when I was a child was through cytomegalia. > Whether cytomegalia can cause epilepsia and what's more isn't denying > epilepsy then? Anything that can damage the brain tissue can cause epilepsy. Do I understand you correctly that you do not have seizures if you take medicine and you do have seizures when you do not take medicine? Why would the doctor stop the medicine then? >> Epilepsy can have many causes. It doesn't matter what has caused the >> epilepsy! It still needs to be controlled. The EEG's certainly do not >> look good. > Do You mean, taht this could be epilepsy? I am not a doctor, but those EEG's did not sound good to me. But maybe I did not understand. If your neurologist doesn't think that they positively show epilepsy, then it's best to listen to that opinion. Just remember that a bad EEG can be used to prove epilepsy, but a good EEG does not disprove it. I have epilepsy and a good EEG. That is true for many other people. I also have a good MRI and a good CT-Scan, but I have epilepsy and seizures. > I mean, that I have probably a lesnioskiego-crohna. Doctor told me this > and started medicate 1.5 years ago. Did this results eeg could be by > crohn, or not? Did lesniowskiego-crohna could change eeg and results eeg > looks like epilepsy? Crohn's effects the digestive tract and I don't believe that there is any possible connection to epilepsy and the EEG. >> Yes, I'm a Polish. at least I am learning English a lot of years, it is a >> translation from Polish to English and it is causing me a bit of a [quoted text clipped - 19 lines] > Please explain more about that and use a different word for > "disappearance" so that I can understand what you mean better. **** I wondered if she might mean 'absence' -- staying awake but not know where she is while it happens? Simple Partial Epilepsy Seizures can sometimes be found if she has 'absences'? (Thank you for translating for us also. G./ More **s below. ) >> I started taking Trileptal from plaintiffs of pains heads which the >> neurologist described as incidental effects of treating tegretolem. **** Tegretol can give some people headaches -- but also some types of inside effects can do that too. But it sounds like the Doctor changed her to Trileptal (too quickly?) when she had headaches taking Tegretol, to try help the problem.. (like you say here below) / > We would say that the headaches were a "side effect" of the Tegretol. I > hope the Trileptal cured that problem for you. [quoted text clipped - 10 lines] >> Every putting away leks took place at the hospital, however it was >> possible to say day by day and controlled by examinations eeg. The *************************************************** >> doctor told that it was possible to try to stop taking a medicine because >> I haven't had the assault, the loss of consciousness through the ***************************** >> longer tense each time. Alas or the fact that I didn't have the loss of ********************* >> consciousness during treating, it are expelling epilepsia? >> What bases, unconditional requirements are, to determining whether they [quoted text clipped - 6 lines] > comes from the physical symptoms alone because the tests, EEG & others, > show nothing. *** It sounds above that since she only had minor or a few seizures, not showing on the EEG, that the Doctor tried to remove her pills since he decided it might not be Epilepsy ?? The EEG has to see Electric Epilepsy Waves when they happen -- some of us have Epilepsy but don't always show up on the EEG test. / >> Whether these records eeg it is possible with the dust to state which on >> their base whether they have epilepsia or no? [quoted text clipped - 10 lines] > is not advanced enough to detect all of the possibilities. Science knows > very little about this. ** Some people can get it from an accident or striking head. *I got it from Encephalitis (disease) I got from a Mosquito bite. Other illnesses can cause epilepsy too. Lots of things ! :-< >> So, to ok nobody told 18 years that I had epilepsia. There were >> suspicions of haematoma of the brain, brain tumour. They could not judge [quoted text clipped - 28 lines] > many other people. I also have a good MRI and a good CT-Scan, but I have > epilepsy and seizures. *** I agree with you too-- others here have good EEG but still get seizures. G./ >> I mean, that I have probably a lesnioskiego-crohna. Doctor told me this >> and started medicate 1.5 years ago. Did this results eeg could be by [quoted text clipped - 3 lines] > Crohn's effects the digestive tract and I don't believe that there is > any possible connection to epilepsy and the EEG. >>> Yes, I'm a Polish. at least I am learning English a lot of years, it is a >>> translation from Polish to English and it is causing me a bit of a [quoted text clipped - 22 lines] > sometimes be found if she has 'absences'? (Thank you for translating for us > also. G./ More **s below. ) Good point. That could be how the word is being used, but the mention of the left & right didn't seem to fit in that context. Perhaps we will get some clarification of that. It may be taking some time to reply as I can see that this translating is rather difficult for Angels and especially with the medical terms. That part is difficult enough when it's all in English. You might be interested in knowing that the handle being used, Angels, ties in with the Polish word for English. (also English as in Anglican or Anglo-, for example). >>> I started taking Trileptal from plaintiffs of pains heads which the >>> neurologist described as incidental effects of treating tegretolem. [quoted text clipped - 46 lines] > Waves when they happen -- some of us have Epilepsy but don't always show up > on the EEG test. / Several EEG results starting in 1996 were given in the very first post and you might want to go back to that post and take a look at them. I didn't copy them in my reply. They are near the beginning about 1/2 page down and the line starts with "Record around 96 of year - ". They didn't sound good to me, but I have to factor in that I am no expert in reading EEG reports and especially ones that have been translated from the original Polish. I have to believe that no neurologist would want to stop medication if the EEG reports were showing abnormalities that indicated an epileptic condition. Therefore my puzzlement. >>> Whether these records eeg it is possible with the dust to state which on >>> their base whether they have epilepsia or no? [quoted text clipped - 12 lines] > Encephalitis (disease) I got from a Mosquito bite. Other illnesses can > cause epilepsy too. Lots of things ! :-< That's for sure. I don't know if mine was caused by cracking a windshield with my head as a kid or the meningitis or if I was simply born with it. >>> So, to ok nobody told 18 years that I had epilepsia. There were >>> suspicions of haematoma of the brain, brain tumour. They could not judge [quoted text clipped - 30 lines] > *** I agree with you too-- others here have good EEG but still get seizures. > G./ I'm surprised by the lack of mention of an MRI or CT-Scan. Perhaps we take those too much for granted over here. >>> I mean, that I have probably a lesnioskiego-crohna. Doctor told me this >>> and started medicate 1.5 years ago. Did this results eeg could be by >>> crohn, or not? Did lesniowskiego-crohna could change eeg and results eeg >>> looks like epilepsy? >> Crohn's effects the digestive tract and I don't believe that there is >> any possible connection to epilepsy and the EEG. >>>> This way, for the first time when I lost consciousness I was child >>>> and 6.5 dust of the year. I was unconscious 10 hours. [quoted text clipped - 28 lines] > Angels, ties in with the Polish word for English. (also English as in > Anglican or Anglo-, for example). Thank You, for Your help, and that You want to understand me. I mean that I have zanik left or right polkuli brain. Yes, is difficult especially to used medical terms in english. >>>> I started taking Trileptal from plaintiffs of pains heads which the >>>> neurologist described as incidental effects of treating tegretolem. [quoted text clipped - 81 lines] > indicated an epileptic condition. Therefore my puzzlement. > > Yes, I have a abnormalities that indicated an epileptic condition, so I was puzzlemented when doctor told me, that he want stoped me took medicine. >>>> Whether these records eeg it is possible with the dust to state >>>> which on their base whether they have epilepsia or no? [quoted text clipped - 78 lines] >>> Crohn's effects the digestive tract and I don't believe that there is >>> any possible connection to epilepsy and the EEG. How long have You epilepsy? Have You a seizures? Thank You for help. You know about this very much. >>>This way, for the first time when I lost consciousness I was child and >>>6.5 dust of the year. I was unconscious 10 hours. [quoted text clipped - 4 lines] >>wonder why the doctor who was treating you back then didn't say that >>same thing. he can told this way in order to to console me? I am knowing myself well with this doctor very much because he is treating me disease from about 13 years. After my eeg which I had into Thursday told me however it was epi I must take leks at the moment and we will try again eeg behind half a year. Because so that it is safely the point is. Can you help me explain the extract? "Basic activity 9c/s alpha about the amplitude to 50uV, symmetrical, synchronous, diversified well spatially with the mark-up of the low-voltage fast activity (polekowej). In the HV time and without is watching each other about 1 sek segments of the less regular activity higher than the background around pojedyńczymi with sharp waves. Generalized in the HV time apart from that 1-3 sek changes about paroxysmal character compound of around a few sharp waves, pojedyńczych of teams of sharp wave with free and of waves alpha and theta higher than the background. RZ expressed. Proposal - modified record polekowo, isn't within the limits of what's normal. Changes generalized about paroxysmal character are being observed." So I have questions. 1. what do sharp waves mean? 2. there are teams of sharp wave every it with free? 3. what waves mean alpha and theta higher than the background? I mean that my brain stopped working. I don't only know whether it is a former right or left side. Confidently from deficiency in oxygen maybe from damage? >>>> > A disappearance was for the left or right hemisphere of >>>> > the brain. >>Please explain more about that and use a different word for >>"disappearance" so that I can understand what you mean better. I mean that my brain stopped working. I don't only know whether it is a former right or left side. Confidently from deficiency in oxygen maybe from damage? > **** I wondered if she might mean 'absence' -- staying awake but not know > where she is while it happens? Simple Partial Epilepsy Seizures can > sometimes be found if she has 'absences'? (Thank you for translating for us > also. G./ More **s below. ) You said, that if I staying awake but not know where I am while it happend, is seizures? I have that >>>I started taking Trileptal from plaintiffs of pains heads which the >>>neurologist described as incidental effects of treating tegretolem. [quoted text clipped - 6 lines] >>We would say that the headaches were a "side effect" of the Tegretol. I >>hope the Trileptal cured that problem for you. Yes, it did. Now, I have less headaches, but still have. I don't know why. Doctor said that she take me medicine. But I don't know more. >>>After every attempt to stop taking a medicine, loss of consciousness >>>(assault?) one blow came after probably a few days, and time after about [quoted text clipped - 4 lines] >>the different types of epileptic seizures. Could you please tell us >>which type of seizures you have by looking at that website? I mean Generalized Tonic Clonic, but I don't have followed by muscle jerks. I was this only by first time when I was 6 years, and probably last time (about 10 years ago). I don't know how long I was without consciousness >>>doctor told that it was possible to try to stop taking a medicine because >>>I haven't had the assault, the loss of consciousness through the > *** It sounds above that since she only had minor or a few seizures, not > showing on the EEG, that the Doctor tried to remove her pills since he > decided it might not be Epilepsy ?? The EEG has to see Electric Epilepsy > Waves when they happen -- some of us have Epilepsy but don't always show up > on the EEG test. / >>For many people with epilepsy, the EEG is normal and does not show an >>abnormal problem. There are other tests also such as MRI, CAT or CT-Scan [quoted text clipped - 4 lines] > Encephalitis (disease) I got from a Mosquito bite. Other illnesses can > cause epilepsy too. Lots of things ! :-< It means, taht If I was Cytomegalia, I could have a epilepsia by Cytomegalia? Did any medicate could started epilepsia, for example if take too big dose of something? >>>So, to ok nobody told 18 years that I had epilepsia. There were >>>suspicions of haematoma of the brain, brain tumour. They could not judge [quoted text clipped - 4 lines] >>CT-Scan tests are the tools used to detect thoses. Haven't you had those >>tests? and only EEG? I only had CT-Scan whan I was first seizures. But there wasn't something. I was supposed to have MRI when doctor try to take me back medicine, but I didn't. >>>So, the neurologist wants to stop taking a medicine, gdyz told me >>>suddenly it wasn't epilepsia only probably this loss of consciousness [quoted text clipped - 6 lines] >>medicine and you do have seizures when you do not take medicine? Why >>would the doctor stop the medicine then? Yes, I have right. When I take medicine, I don't have seizures. But when I don't take, I have. Always lose consciousness. I mean, that I have Generalized Tonic Clonic. He want stop medicine because I don't have seizures, but when I was eeg few days ago (on the top post, I wrote eeg results), he said that I have epilepsia, I must take medicine probably long time, and for a half year I will be next eeg. >>>>Epilepsy can have many causes. It doesn't matter what has caused the >>>>epilepsy! It still needs to be controlled. The EEG's certainly do not [quoted text clipped - 20 lines] >>Crohn's effects the digestive tract and I don't believe that there is >>any possible connection to epilepsy and the EEG. >> If your neurologist thinks that was cytomegalia, I >> wonder why the doctor who was treating you back then didn't say that >> same thing. > he can told this way in order to to console me? I don't think your current doctor would do that and the doctor when you were 6.5 would have told your parents. > I am knowing myself well > with this doctor very much because he is treating me disease from about > 13 years. After my eeg which I had into Thursday told me however it was > epi Then he has changed his opinion again? > I must take leks at the moment and we will try again eeg behind half > a year. Because so that it is safely the point is. Can you help me > explain the extract? I will try if you promise to remember that I am not a doctor and I am not educated to read EEG's. > "Basic activity 9c/s alpha about the amplitude to 50uV, symmetrical, > synchronous, diversified well spatially with the mark-up of the [quoted text clipped - 9 lines] > So I have questions. > 1. what do sharp waves mean? Bad news. 2. there are teams of sharp wave every it > with free? Sharp waves are also called "spikes" and are a sign of epilepsy. 3. what waves mean alpha and theta higher than the background? I don't know. The report does say that your EEG is not normal and we need to believe the doctor who wrote that report after he analyzed your EEG information. > I mean that my brain stopped working. I don't only know whether it is a > former right or left side. Confidently from deficiency in oxygen maybe > from damage? When you say left & right, I think you must be talking about what are called the left & right "temporal lobes" of the brain. They are where the epilepsy is for many of us. Those can cause us simple & complex partial seizures. >> **** I wondered if she might mean 'absence' -- staying awake but not >> know where she is while it happens? Simple Partial Epilepsy >> Seizures can sometimes be found if she has 'absences'? (Thank you >> for translating for us also. G./ More **s below. ) > You said, that if I staying awake but not know where I am while it > happend, is seizures? I have that That might have been what is called a "complex partial seizure". In those, the person is not "unconscious", but is a 'different person" and the real person doesn't know (remember) what that different person did while it was in control. >>>> After every attempt to stop taking a medicine, loss of consciousness >>>> (assault?) one blow came after probably a few days, and time after [quoted text clipped - 7 lines] > last time (about 10 years ago). I don't know how long I was without > consciousness Yes. Those 2 that you describe could have been "Tonic Clonic", but the others where you didn't have the convulsions or muscle jerks are not because "tonic clonic" means the muscle activity. Maybe you are having Complex Partials where that "different person" has control of you for a time. I have those myself as do many others here. > It means, taht If I was Cytomegalia, I could have a epilepsia by > Cytomegalia? There is no real evidence that you had cytomegalia from what I have heard. That diagnosis would require medical tests or a record from the past. Otherwise it is speculation. It looks as though you had a seizure when you were 6.5 years, but that could have many different causes. > Did any medicate could started epilepsia, for example if take too big > dose of something? Very unlikely from medications. >>>> So, to ok nobody told 18 years that I had epilepsia. There were >>>> suspicions of haematoma of the brain, brain tumour. They could not >>>> judge 10 hours the loss of consciousness was through the fact >>>> probably. Is it true? Now that you have told about the CT-Scan, I can say that you do not have a haematoma or brain tumour. Your doctor should have told you that after seeing the test results unless he also wanted to see an MRI first before making that conclusion. > I only had CT-Scan whan I was first seizures. But there wasn't > something. I was supposed to have MRI when doctor try to take me back > medicine, but I didn't. You should have that MRI. It would give an extra level of assurance. >>> Anything that can damage the brain tissue can cause epilepsy. Do I >>> understand you correctly that you do not have seizures if you take >>> medicine and you do have seizures when you do not take medicine? Why >>> would the doctor stop the medicine then? > Yes, I have right. When I take medicine, I don't have seizures. But when > I don't take, I have. Always lose consciousness. I mean, that I have > Generalized Tonic Clonic. We need to talk about that some more. When you say "lose consciousness", I wonder if you mean that you become that "different person" but still look awake to other people? > He want stop medicine because I don't have seizures, but when I was eeg > few days ago (on the top post, I wrote eeg results), he said that I have > epilepsia, I must take medicine probably long time, and for a half year > I will be next eeg. Yes. The medicine will be for a long time. I must take mine for the rest of my life and that is true for many people. There are problems in taking medicine as they make many people feel poorly in many ways. Could you tell us about how your medicine makes you feel? >>> If your neurologist thinks that was cytomegalia, I >>> wonder why the doctor who was treating you back then didn't say that [quoted text clipped - 4 lines] > I don't think your current doctor would do that and the doctor when you > were 6.5 would have told your parents. When I was 6.5 another doctor told that it could be epi, >> I am knowing myself well with this doctor very much because he is >> treating me disease from about 13 years. After my eeg which I had into >> Thursday told me however it was epi > > Then he has changed his opinion again? Yes, he did. >> I must take leks at the moment and we will try again eeg behind half a >> year. Because so that it is safely the point is. Can you help me >> explain the extract? > > I will try if you promise to remember that I am not a doctor and I am > not educated to read EEG's. I know. at least I see, taht You have a big knowledge about epi. a brain tumour or the aneurysm. >> "Basic activity 9c/s alpha about the amplitude to 50uV, symmetrical, >> synchronous, diversified well spatially with the mark-up of the [quoted text clipped - 23 lines] > need to believe the doctor who wrote that report after he analyzed your > EEG information. EEG analyzed my doctor who is treating me. >> I mean that my brain stopped working. I don't only know whether it is >> a former right or left side. Confidently from deficiency in oxygen [quoted text clipped - 37 lines] > Complex Partials where that "different person" has control of you for a > time. I have those myself as do many others here. Understand. Did in epi. could be that for many yeras, I didn't have a Tonic clonic? Did in Complex Partials may I have lose conciousness for 15-20 miutes or more? >> It means, taht If I was Cytomegalia, I could have a epilepsia by >> Cytomegalia? [quoted text clipped - 18 lines] > seeing the test results unless he also wanted to see an MRI first before > making that conclusion. It's a good news. >> I only had CT-Scan whan I was first seizures. But there wasn't >> something. I was supposed to have MRI when doctor try to take me back >> medicine, but I didn't. > > You should have that MRI. It would give an extra level of assurance. Whether now for it is worthwhile doing you MRI? >>>> Anything that can damage the brain tissue can cause epilepsy. Do I >>>> understand you correctly that you do not have seizures if you take [quoted text clipped - 8 lines] > I wonder if you mean that you become that "different person" but still > look awake to other people? I mean, that I'm sleeping. I don't know what is happend, what others do. I remember that when comming ambulance, when I woke up, doctor was nera me. I didn't know where am I, what has happend. Slowly I recognized my home, but I didn't remember what has happend when I "sleep" until now. Probably I couldn't breathing. Last time probably I have a followed by muscle jerks. I was laying on the bed and fall a sleep. When it was starting I uttered the strange sound. >> He want stop medicine because I don't have seizures, but when I was >> eeg few days ago (on the top post, I wrote eeg results), he said that [quoted text clipped - 5 lines] > taking medicine as they make many people feel poorly in many ways. Could > you tell us about how your medicine makes you feel? I take trileptal 750-0-750 (I have 65 kg). I took this drags for about 12 years (10 years tegretol, but I but I had headaches. It paining me in (szpikach), I feeling pressure on my head, often to very tip of the head. I took even memotropil. From about 1.5 years I taking trileptal). I am a bit sleepy, so slowed down. Everything what I am doing then one is allowed this way, I am not caring about many things when I am doing something because how I don't do it hard. It is swimming confidently to science, well to bear different things in mind every now and then harder for me and to study. I cannot often at night fall asleep. However I am much calmer although I am able still to explode with the anger or also with nerves for no particular reason without the reason, and is going for me in a minute. I often feel so like I didn't control this anger, these emotions, often then that I didn't want to do it, to be preserved. I have sometimes wanted with the one to break anger but I could not do nothing. However still 10-7 years ago that's all was much stronger. Head however still for me boli. What still interests you? I will tell readily. And what you are taking leks and are influencing you, your behaviour, the health as they? are helping? I am having high hopes, that so. >> Yes. Those 2 that you describe could have been "Tonic Clonic", but the >> others where you didn't have the convulsions or muscle jerks are not [quoted text clipped - 5 lines] > Tonic clonic? Did in Complex Partials may I have lose conciousness > for 15-20 miutes or more? These terms can all be very confusing even when everybody speaks English. :-) If you mean unconscious="lose consciousness"= "appears to be sleeping", then it would not be Complex Partial. In Complex Partial, you would appear to be awake and would move and walk and hands would move and pick at clothing. That sort of thing. >> Now that you have told about the CT-Scan, I can say that you do not >> have a haematoma or brain tumour. Your doctor should have told you [quoted text clipped - 9 lines] >> > Whether now for it is worthwhile doing you MRI? Yes it is worthwhile. You should have that MRI. It is always possible that the CT-Scan missed something and you will be more certain after an MRI. >> We need to talk about that some more. When you say "lose >> consciousness", I wonder if you mean that you become that "different >> person" but still look awake to other people? >> > I mean, that I'm sleeping. Then it sounds more like the Generalized seizure than a Complex Partial. > I don't know what is happend, what others do. > I remember that when comming ambulance, when I woke up, doctor was near [quoted text clipped - 3 lines] > muscle jerks. I was laying on the bed and fall a sleep. When it was > starting I uttered the strange sound. Other people who post here have reported having a similar experience. It would be the Generalized Tonic-Clonic type I believe. >> Could you tell us about how your medicine makes you feel? >> > I take trileptal 750-0-750 (I have 65 kg). I took this drags for about > 12 years (10 years tegretol, but I but I had headaches. It paining me in > (szpikach), I feeling pressure on my head, often to very tip of the > head. I took even memotropil. From about 1.5 years I taking trileptal). If you had those headaches and headache medicine did not help, I wonder why your were not changed to something else like trileptal much sooner. So you weigh ~143 lbs and take a total of 1500mg/day of Trileptal(oxcarbazepine). I see after looking at http://rxlist.com/cgi/generic3/oxcarbazepine_ids.htm that you are on a moderate dosage. This is all very confusing though. It is obvious that you have an epileptic condition. It appears that the Trileptal is controlling that condition so that you no longer have seizures. Is that correct? Then why would the doctor want to stop your medicine and have your seizures come back again? > I am a bit sleepy, so slowed down. Everything what I am doing then one > is allowed this way, I am not caring about many things when I am doing [quoted text clipped - 8 lines] > nothing. However still 10-7 years ago that's all was much stronger. Head > however still for me boli. What still interests you? I will tell readily. That all sounds similar to what I've heard other people say here. I'm hoping that GR and others will respond and make some comments. > And what you are taking leks and are influencing you, your behaviour, > the health as they? are helping? I am having high hopes, that so. For myself, I take Dilantin and Neurontin and feel slowed down like you do. The drugs have controlled the major daytime seizure symptoms, but I really don't feel well most of the time. I drink a lot of coffee to stay awake. :-) Just in case anyone might find them helpful, here are some links for translation of Polish-English words. These sites don't have an especially large vocabulary, but they are handy except for medical terms which require a lot more effort. In cases where there is no translation for a word, working it backwards or modifying it can sometimes work. For example, the words "leks" does not get translated, but you see it used in context that looks similar to "meds" or "medicine". A English->Polish lookup on "medicine" yields Translation: MEDICINE N F MEDYCYNA;N LEKARSTWO;M MEDYKAMENT; M LEK; F MIKSTURA ^^ and there is "lek"". Of course, if you drop the 's' from 'leks' and translate 'lek' to English, you get Translation: LEK N MEDICAMENT; DRUG; MEDICATION; MEDICINE Free Polish-English-Polish Translator and online Polish Dictionary http://www.poltran.com/odp.php4?q=2&direction=2&word=leks Polish phrasebook - Wikitravel - plus good links at the end http://wikitravel.org/en/Polish_phrasebook#Months Learn Polish on the Internet - intermediate - advanced leve http://www.langsites.com/Polish.htm#DictProject Free Languages Download - installable software http://www.byki.com/download_FLS.pl?cod=gbzz1 Polish Dictionary Words and Phrases http://www.polish-translator.net/polish_phrases.html partials napisał(a): > Just in case anyone might find them helpful, here are some links for > translation of Polish-English words. These sites don't have an [quoted text clipped - 28 lines] > Polish Dictionary Words and Phrases > http://www.polish-translator.net/polish_phrases.html Thank You for usuful link >>> Yes. Those 2 that you describe could have been "Tonic Clonic", but the >>> others where you didn't have the convulsions or muscle jerks are not [quoted text clipped - 9 lines] > :-) If you mean unconscious="lose consciousness"= "appears to be > sleeping", then it would not be Complex Partial. In Complex Partial, **************************************** > you would appear to be awake and would move and walk and hands would move > and pick at clothing. That sort of thing. G.-- I had Complex Partials that Secondarily Generalized (spread to other parts of the brain). When that happens you lose consciousness. I did 6-8 times before we got medicine to control the full CP seizure. Also when the Complex Partial has set in (before it generalized) I didn't know where I was or what I did from that point onward. I was completely unaware what I was doing or if I was about to move into danger -- walking into traffic, in front of cars, etc. When I got the right pills, that stopped. G./ >>> Now that you have told about the CT-Scan, I can say that you do not have >>> a haematoma or brain tumour. Your doctor should have told you that after [quoted text clipped - 20 lines] > > Then it sounds more like the Generalized seizure than a Complex Partial. *** I thought it was only *Simple Partial seizures where you know what you're doing or remain conscious? The other ones (Complex Partial, Grand Mals) you don't know what's happening to you? Without medicine to control those 2 kinds, I thought both ended in loss of Consciousness (falling down). /G. >> I don't know what is happend, what others do. I remember that when >> comming ambulance, when I woke up, doctor was near me. I didn't know [quoted text clipped - 6 lines] > Other people who post here have reported having a similar experience. It > would be the Generalized Tonic-Clonic type I believe. ** I thought Tonic Clonic was an older term for what is called Grand Mal now? Mine were diagnosed first as Tonic, and later as Complex Partial after tests. G./ >>> Could you tell us about how your medicine makes you feel? >>> [quoted text clipped - 5 lines] > If you had those headaches and headache medicine did not help, I wonder > why your were not changed to something else like trileptal much sooner. *** Tegretol is used to treat people who have had Strokes as well as Complex Partial seizures. If they thought the headaches (I had also for 2 months), were from Stroke or Seizure, they might have used it first to try stop more damage to Brain area. Some people who might get Heart effects of Tegretol might be stopped using it. That might be why they stopped using the Tegretol for her. / > So you weigh ~143 lbs and take a total of 1500mg/day of > Trileptal(oxcarbazepine). I see after looking at [quoted text clipped - 16 lines] >> me in a minute. I often feel so like I didn't control this anger, these >> emotions, often then that I didn't want to do it, to be preserved. *** The places in the brain where the seizure happens (Temporal Lobe) that Tegretol might be used, can produce feelings of Anger or Loss of Control what we do or say. It's not always from the Tegretol, but from the Emotions (Temporal Lobe brain parts). /G. >> I have sometimes wanted with the one to break anger but I could not do >> nothing. However still 10-7 years ago that's all was much stronger. Head [quoted text clipped - 10 lines] > really don't feel well most of the time. I drink a lot of coffee to stay > awake. :-) *** Dilantin might be used first. I moved to Tegretol, but never used Neurontin -- I thought it was used for different seizure types? than Temporal Lobes. I use Tegretol Controlled Release and Clobazam (Frisium) for Temporal Lobe type, and those control my seizures now since 1998. G./ >>>> Yes. Those 2 that you describe could have been "Tonic Clonic", but the >>>> others where you didn't have the convulsions or muscle jerks are not [quoted text clipped - 11 lines] >> you would appear to be awake and would move and walk and hands would move >> and pick at clothing. That sort of thing. > G.-- I had Complex Partials that Secondarily Generalized (spread to other > parts of the brain). When that happens you lose consciousness. I did 6-8 [quoted text clipped - 4 lines] > into traffic, in front of cars, etc. When I got the right pills, that > stopped. G./ >>>> We need to talk about that some more. When you say "lose consciousness", >>>> I wonder if you mean that you become that "different person" but still >>>> look awake to other people? >>>> >>> I mean, that I'm sleeping. >> Then it sounds more like the Generalized seizure than a Complex Partial. > *** I thought it was only *Simple Partial seizures where you know what > you're doing or remain conscious? The other ones (Complex Partial, Grand > Mals) you don't know what's happening to you? Without medicine to control > those 2 kinds, I thought both ended in loss of Consciousness (falling down). > /G. That's where the terminology trips us up as I alluded to above. The words "conscious" and "unconscious" mean different things to different people and it's sometimes almost impossible to convey subtle concepts unless one defines what they mean by "conscious" and "unconscious". I agree with your last sentence above about the meaning of "unconscious", i.e. the person is down as in sleeping or like a boxer who is down for the count. Even in a Simple Partial, the person is going to be pretty preoccupied while it is happening, but will be conscious and remember, yes. The word "Complex" is added to indicate a state of 'altered' consciousness. To the outside observer, we still look to be conscious when having a Complex Partial, just like you wandering into traffic or myself asking my wife where my cigarettes were or watering the plants at one of the local nurseries. We are awake, but remember nothing of that period of time. That's a Complex Partial and I was wide awake when I came out of them and was never unconscious. I just simply didn't remember. >>> I don't know what is happend, what others do. I remember that when >>> comming ambulance, when I woke up, doctor was near me. I didn't know [quoted text clipped - 5 lines] >> Other people who post here have reported having a similar experience. It >> would be the Generalized Tonic-Clonic type I believe. > ** I thought Tonic Clonic was an older term for what is called Grand Mal > now? Mine were diagnosed first as Tonic, and later as Complex Partial after > tests. G./ I could be wrong, but I'm pretty sure that it's the other way around and that Grand Mal is the older term. And yes, I see from what you said that instead of yours being General Seizures, they were Complex Partial Seizures that became Secondarily Generalized (they spread from just part of the brain to all of it rather than starting out that way). A case of a Partial turning into a General. I wonder if this might apply to Angels. >>>> Could you tell us about how your medicine makes you feel? >>>> [quoted text clipped - 4 lines] >> If you had those headaches and headache medicine did not help, I wonder >> why your were not changed to something else like trileptal much sooner. > *** Tegretol is used to treat people who have had Strokes as well as Complex > Partial seizures. If they thought the headaches (I had also for 2 months), > were from Stroke or Seizure, they might have used it first to try stop more > damage to Brain area. > Some people who might get Heart effects of Tegretol might be stopped > using it. That might be why they stopped using the Tegretol for her. / She's pretty young for that though. Maybe it's just a case that the doctors over there are just as difficult to convince that something needs to change as they are over here? :-) >> So you weigh ~143 lbs and take a total of 1500mg/day of >> Trileptal(oxcarbazepine). I see after looking at [quoted text clipped - 16 lines] >>> me in a minute. I often feel so like I didn't control this anger, these >>> emotions, often then that I didn't want to do it, to be preserved. > *** The places in the brain where the seizure happens (Temporal Lobe) that > Tegretol might be used, can produce feelings of Anger or Loss of Control > what we do or say. It's not always from the Tegretol, but from the Emotions > (Temporal Lobe brain parts). /G. I've noticed that both in myself and in posters here in the newsgroup. I think that we are sometimes seeing the effect of either the drugs or the disorder or both. >>> I have sometimes wanted with the one to break anger but I could not do >>> nothing. However still 10-7 years ago that's all was much stronger. Head >>> however still for me boli. What still interests you? I will tell readily. >> That all sounds similar to what I've heard other people say here. I'm >> hoping that GR and others will respond and make some comments. So, Angels, you can see that others have these same feelings of anger and you are not alone in feeling them. GR who is writing here is in Canada and I am in the USA, so with you in Poland we have a very international group here. :-) >>> And what you are taking leks and are influencing you, your behaviour, the >>> health as they? are helping? I am having high hopes, that so. [quoted text clipped - 7 lines] > Temporal Lobes. I use Tegretol Controlled Release and Clobazam (Frisium) > for Temporal Lobe type, and those control my seizures now since 1998. G./ Neurontin has had just about no side effects for me, but didn't stop the seizures either, so I was tried on Tegretol, Keppra, Lamictal, and finally Phenobarbital did some good. Other things started to happen and I suspected the Phenobarbital, so I switched to Dilantin and have been on it for a year now. Still have problems, but it's better than before. >>>>> Yes. Those 2 that you describe could have been "Tonic Clonic", but >>>>> the others where you didn't have the convulsions or muscle jerks [quoted text clipped - 57 lines] > time. That's a Complex Partial and I was wide awake when I came out of > them and was never unconscious. I just simply didn't remember. When so that it is possible to name, when you are conscious whatever he is happening, you are doing some function, you are stopping suddenly to do, you are fixing your eyes on what is before you as if you fell into a pensive mood, has sometimes dawned on to you kind of no what is happening (at least not always) and you are going back to normal jobs after a few seconds. Whether is it also some episode? >>>> I don't know what is happend, what others do. I remember that when >>>> comming ambulance, when I woke up, doctor was near me. I didn't know [quoted text clipped - 17 lines] > of the brain to all of it rather than starting out that way). A case of > a Partial turning into a General. I wonder if this might apply to Angels. What do You mean told "Secondary generalized"? Do You think, that I could have more than one seizure type? >>>>> Could you tell us about how your medicine makes you feel? >>>>> [quoted text clipped - 84 lines] > I suspected the Phenobarbital, so I switched to Dilantin and have been > on it for a year now. Still have problems, but it's better than before. I noticed that every lek had incidental effects. Do you know some leks which you didn't have exactly incidental effects after and at the same time they helped capture assaults? >>>>>> Yes. Those 2 that you describe could have been "Tonic Clonic", but >>>>>> the others where you didn't have the convulsions or muscle jerks are [quoted text clipped - 30 lines] > When so that it is possible to name, when you are conscious whatever he is > happening, you are doing some function, you are stopping suddenly to ******************************************************* > do, you are fixing your eyes on what is before you as if you fell into a ******************************************************* > pensive mood, has sometimes dawned on to you kind of no what is ******************** > happening (at least not always) and you are going back to normal jobs > after a few seconds. Whether is it also some episode? **G. **** Those above are sometimes called an Absence Seizure or sometimes an Aura or Simple Partial. (An Aura is a strange feeling, taste or smell that's not there, but you sense that it is.) If you remain awake, and the seizure ends after a short time, without getting worse, those are usually those 2 types -- not usually Grand Mal or Complex Partial seizures. >>>>> I don't know what is happend, what others do. I remember that when >>>>> comming ambulance, when I woke up, doctor was near me. I didn't know [quoted text clipped - 17 lines] >> of the brain to all of it rather than starting out that way). A case of a >> Partial turning into a General. I wonder if this might apply to Angels. /////////////////// > I noticed that every lek had incidental effects. Do you know some leks > which you didn't have exactly incidental effects after and at the same > time they helped capture assaults? G. -- I don't understand what sentence above means. Anyone know what she might be trying to find? /G. >>>>>>>Yes. Those 2 that you describe could have been "Tonic Clonic", but >>>>>>>the others where you didn't have the convulsions or muscle jerks are [quoted text clipped - 51 lines] > seizure ends after a short time, without getting worse, those are usually > those 2 types -- not usually Grand Mal or Complex Partial seizures. I feel smile or hear a voice, which don't exist. After that I feel strange. But fastly it ended. >>>>>>I don't know what is happend, what others do. I remember that when >>>>>>comming ambulance, when I woke up, doctor was near me. I didn't know [quoted text clipped - 26 lines] > G. -- I don't understand what sentence above means. Anyone know what she > might be trying to find? /G. Sorry. I mean, I see that every medicine in epilepsia have a side effect. Do You know some medicine (drugs), which didn't have a side effect? >>>>>>>>Yes. Those 2 that you describe could have been "Tonic Clonic", but >>>>>>>>the others where you didn't have the convulsions or muscle jerks are [quoted text clipped - 11 lines] > Sorry. I mean, I see that every medicine in epilepsia have a side effect. > Do You know some medicine (drugs), which didn't have a side effect? Each of us can have a different side effect to some drugs. For some kinds of seizures, there are usually 4-8? kinds of medicine that might work. Some pills give some people allergies, or make them feel sick, but the same pill can work perfectly for another person with the same seizure type. Usually each kind of seizure has many different pills that might work. It's usually the Doctor working with tests and EEGs etc. who decide what might work. They will try that pill and then either give more or less to try get it to control a seizure. If it doesn't work, then they can add a second pill with the first, or take away the first, and just use the second. I used Dilantin for 12-18 months, and when it wasn't working, we added Tegretol, but then took away the Dilantin. Over about 3 years the Tegretol was increased, then we added a newer pill but slowly took away part of the Tegretol. I finally got 2 pills and amounts that worked, but it took from 1993 to 1997 before we got there (4 years). I haven't needed more pills or any other pills since then. I had about 3 seizures from 1997 to now. I once had 2-3 seizures each month. **If your seizures are mostly Simple Partial type (Auras and feelings like we talked about), you might not need as strong pills as I have to use. That could be better, as many people here have not been able to use the pills I use (Tegretol and Frisium), but they can use Dilantin or other pills that are milder. Milder pills also make them less tired, or don't make them feel sick when they use them. I don't get sick from using Tegretol, but other people here said they weren't able to use that pill as it gave them upset stomachs or they still had seizures. Maybe someone here can tell us if there is a pill they use for the same type of seizures that you have. I think mine would be too strong for your type, so there might be something better for you. Your pills should work best for Simple Partial seizures, I think. If those work, the stronger seizures you had might stop too. G./ G.Ross napisał(a): >>>>>>>>>Yes. Those 2 that you describe could have been "Tonic Clonic", but >>>>>>>>>the others where you didn't have the convulsions or muscle jerks are [quoted text clipped - 44 lines] > best for Simple Partial seizures, I think. If those work, the stronger > seizures you had might stop too. G./ Did Trileptal may do that I'm more nervous? Often I'm anxious about everything. Is it bad side Trileptal, epi or damage brain? People often told me, why I was so nervous. >> I noticed that every lek had incidental effects. Do you know some leks >> which you didn't have exactly incidental effects after and at the same >> time they helped capture assaults? > > G. -- I don't understand what sentence above means. Anyone know what she > might be trying to find? /G. Yes. "lek" is the same word as our "med" & "leks"="meds". She's asking if there are any meds that do not have side effects (incidental effects) and stop seizures (capture assaults). >> Even in a Simple Partial, the person is going to be pretty preoccupied >> while it is happening, but will be conscious and remember, yes. The [quoted text clipped - 13 lines] > happening (at least not always) and you are going back to normal jobs > after a few seconds. Whether is it also some episode? Two types have symptoms similar to that. 1) Absence seizures (also known as Petit Mal) and 2) Complex Partial Seizures. #1 are usually outgrown and gone by a much earlier age than you are now. It could still be possible, but there are other reasons for believing that you may be having Complex Partial Seizures. Your doctor has said that there was damage to your Temporal Lobe and, as GR has said, the brain does not heal like a cut finger would. That would imply Temporal Lobe seizures which is the part of the brain where Partial Seizures can arise and your report of tastes and odors is consistent with that type of seizure. It sounds to me as though you are having both Simple & Complex Partial Seizures. Your report of the arm jerking up as you were drowsing off would be a Simple Partial. I have that myself while drowsing off except that the muscles & tendons tighten up in my hands at that time, instead of the whole arm jerking, and I have no voluntary control over that happening. The pensive mood you described above and also the sound you make in bed before a seizure could both be Complex Partial Seizures. I have had both types with similar symptoms myself. Continued below. > What do You mean told "Secondary generalized"? Do You think, that I > could have more than one seizure type? Many Grand Mal = Tonic-Clonic Seizures are the first (Primary) thing to happen when a seizure occurs. So they are General seizures and not Partial. Your Partial Seizures above were the Primary, or beginning seizure, but if they suddenly spread from being only *Partial* (just Part of the brain) to being *General* (the whole brain), then the Second(arily) effect is Generalized into a Tonic-Clonic. It might be that all your seizures begin as Partials. > I noticed that every lek had incidental effects. Do you know some leks > which you didn't have exactly incidental effects after and at the same > time they helped capture assaults? Some people have reported problems with Neurontin (gabapentin) here, but I have just about no side-effects from it. It did some good, but not nearly enough, so I;ve needed an additional drug. It's worst side-effect is that it is terribly expensive. Yesterday I paid US$225 for a one month supply. :( I agree with all your earlier post, except below (***s), as I got nearer control of my Complex Partials, I had many absences, that I was only aware of because people I was talking to or on the telephone with noticed times where I 'went away' while still talking to them, then came back and continued without realizing I had been 'away'--> absence? Gordon. >>> Even in a Simple Partial, the person is going to be pretty preoccupied >>> while it is happening, but will be conscious and remember, yes. The word [quoted text clipped - 9 lines] > as Petit Mal) and 2) Complex Partial Seizures. #1 are usually outgrown and > gone by a much earlier age than you are now. ************************* Mine weren't, but were side effect as I increased my pill dose. hey are gone now, but only after I got full control (so far). G./ It could still be > possible, but there are other reasons for believing that you may be having > Complex Partial Seizures. [quoted text clipped - 19 lines] > Generalized into a Tonic-Clonic. It might be that all your seizures begin > as Partials. <snipped part> > Some people have reported problems with Neurontin (gabapentin) here, but I > have just about no side-effects from it. It did some good, but not nearly > enough, so I;ve needed an additional drug. It's worst side-effect is that > it is terribly expensive. Yesterday I paid US$225 for a one month supply. > :( > I agree with all your earlier post, except below (***s), as I got nearer > control of my Complex Partials, I had many absences, that I was only aware > of because people I was talking to or on the telephone with noticed times > where I 'went away' while still talking to them, then came back and > continued without realizing I had been 'away'--> absence? Gordon. Hi. Yes, I see what you mean and it's all caused by the confusing terminology that's used for an already confusing topic. "Absence" is a meaningful term that can be used to describe what happens in both types of seizures. However, use of the word has already been taken to go along with the "Petit Mal" = "Absence Seizure". See http://www.epilepsy.com/epilepsy/seizure_absence.html for a description of Absence Seizures and comparison with Complex Partials. My own CP's can vary from staring into space or "daydreaming" as reported by my gradeschool teacher on my report card or watering the plants at a nursery and not remembering that I did it. "Absence" would be a nice term to use to describe those, but it's already been taken. :-) Mine were Complex Partial Seizures, not Absence Seizures, and it's that "absence", if you will, that puts the Complex into a Partial Seizure. >>>> Even in a Simple Partial, the person is going to be pretty preoccupied >>>> while it is happening, but will be conscious and remember, yes. The word [quoted text clipped - 43 lines] >> it is terribly expensive. Yesterday I paid US$225 for a one month supply. >> :( >> I agree with all your earlier post, except below (***s), as I got >> nearer control of my Complex Partials, I had many absences, that I was [quoted text clipped - 7 lines] > meaningful term that can be used to describe what happens in both types of > seizures. However, use of the word has already been taken to go along ***************************************************** > with the "Petit Mal" = "Absence Seizure". **G* It's not so much whether a term can be 'used up' by another seizure type that I replied to them. Whether an Absence is a Petit Mal, a Donut sprinkle, or a type of beer, the term is used here (Canada), some places on this group, and other places to describe a period if one is 'away' but awake without realizing it's happening. (That is important for them and the Dr. as they could burn themselves at a stove, cause a car accident if they are driving or riding a motor bike, or have other accidents since they don't know they're about to have an onset.) As I got nearer full control of my Complex Partials, where I First had lost consciousness and would awake in hospital after 2-3 days, as I got nearer to control, those periods got milder, and then the unconscious (lying on the floor) part stopped, but was replaced for 12+ months by Auras and Absences, without generalizing (spreading across from my Right. Temporal Lobe) to other brain parts that originally caused the loss of consciousness ("Hello Floor, we've done this before?" ). With any of my seizures (Complex Partial, Simple Partial, Absence? ) up to where I *Finally just was getting auras which I was aware enough to recognize (lemon taste, deja vu feeling) and stop by drinking cold water or moving to cool air, I was unaware of where I was or what I did. If the lights are on and there's no one home, I referred to that as an Absence (for me). I don't really care if it's a class A or class B simple partial, a class C or D2 Complex Partial. I was trying to use terms that we generally use here to describe what our events are. So long as we can explain to our peers what we experience or mean, I don't think it is necessary to run a 40 post thread about picking at whether that's Really a Petit Mal or whether it's some other obscure name that might not be generally well understood among our International community. While it's useful to try use terms that might be compatible with what the Neurologists use to describe our conditions, they might not have a term for that "spongy, lemon flavoured prickly feeling that appears at top of my tongue until I either scrape it against my upper teeth or get a cold drink of water or Sprite (7Up) to flush the sensation away" experience. I just call those 3 lines above an Aura, or Simple Partial seizure as those are terms people can search for if they are new to seizures. If what they find doesn't describe what they experience they can come back here or click on Next Google hit. The last time I did a search on Simple Partial ? I think that was one that Google pulled in 2000 hits on, and about number 30 they started to be posts that had appeared here. G./ See > http://www.epilepsy.com/epilepsy/seizure_absence.html for a description of > Absence Seizures and comparison with Complex Partials. ***G* My post was to suggest that some seizure types, including an Absence can be a precursor to a stronger seizure-- Complex Partial (like mine), possibly Grand Mal (I don't have experience with). They do not need to be Exclusive of each other--> "Now you have an Absence but you Don't have a Complex Partial following it". I did. G./ My own CP's > can vary from staring into space or "daydreaming" as reported by my > gradeschool teacher on my report card or watering the plants at a nursery > and not remembering that I did it. "Absence" would be a nice term to use > to describe those, but it's already been taken. :-) Mine were Complex > Partial Seizures, not Absence Seizures, and it's that ****************************************** > "absence", if you will, that puts the Complex into a Partial Seizure. **************************************************** G. My understanding (without looking it up again) is that Complex Partial refers to the electrical waves crossing brain boundaries among several parts, or flushing across to other areas than where the seizure started --> much like waves washing off some sharp rocks at a Seaside. So while my Aura might begin in my Right Temporal Lobe, if it Generalizes, it spreads across other parts of my brain. If the electrical firing gets too scrambled or erratic, the Circuit Breaker Trips and my brain stops sending the signals Left and Right and Left and Right and I lose consciousness. My Absence as used (and on some sites) means I might temporarily be 'away' without realizing it but I stand upright and remain fully vertical (conscious), even though I'm not aware that I'm having one unless I notice *missing time* when I come back, or others notice it happening. The term conscious (standing upright) versus being conscious (I know I'm standing in store X at Centrepoint Shopping Centre) are 2 different meanings for a word and probably not best used as identical to each other. I didn't intend those to be interchangeable. I'll save that website in my site folders and look through it more later. It's useful to have as many sites as we can find to refer people to and look things up if our condition or treatment is changed and we don't understand why it has been. /G. >>>>> Even in a Simple Partial, the person is going to be pretty preoccupied >>>>> while it is happening, but will be conscious and remember, yes. The [quoted text clipped - 44 lines] >>> is that it is terribly expensive. Yesterday I paid US$225 for a one >>> month supply. :( > I agree with all your earlier post, except below (***s), as I got nearer > control of my Complex Partials, I had many absences, that I was only aware > of because people I was talking to or on the telephone with noticed times > where I 'went away' while still talking to them, then came back and > continued without realizing I had been 'away'--> absence? Gordon. So You know what people talk to You then? I don't know what they talking to me. Later they talk that told me this, but I don't remember. Like todey, when mother took me cup of coffee. I asked was it sugar? She told Yes. I probably told "good", but I didn't remember this. And later I asked did I was sugar. >>>>Even in a Simple Partial, the person is going to be pretty preoccupied >>>>while it is happening, but will be conscious and remember, yes. The word [quoted text clipped - 47 lines] >>it is terribly expensive. Yesterday I paid US$225 for a one month supply. >>:( >>> Even in a Simple Partial, the person is going to be pretty >>> preoccupied while it is happening, but will be conscious and [quoted text clipped - 34 lines] > make in bed before a seizure could both be Complex Partial Seizures. I > have had both types with similar symptoms myself. Yes, I have exactlly like You wrote and like You. Did Valproine Acid help this? > Continued below. I told doctor that I have a epizod when for a few seconds I see in my front. Like absense. I don't know what everybody told to me and has happend. Later I continue my work. Also told that my right hand or sometimes right leg. Particularly when I lie, fall asleep? He told me that it could be for every people when they fall asleep. But when I told that I have like this when I was EEG, he told me that it could be seizures. But don't said which. I know only that I have generalized originally, (Tonic-Clonic Seizures, grand mal?) (last about 10 years ago). And he told me, that probably I will have more drugs. Trileptal form 1500 mg/day to 1650 (or 1800) mg/day. I didn't more. If it didn't help I will slowlly change Trileptal to Depakine. But I afraid this. >> What do You mean told "Secondary generalized"? Do You think, that I >> could have more than one seizure type? [quoted text clipped - 17 lines] > is that it is terribly expensive. Yesterday I paid US$225 for a one > month supply. :( It's terribly. So many cost. You must pay full cost or is it after drop full cost? In Poland Tegretol cost 51 US$ but I must to pay about 3 US$ for 50 pills by 600 mg (I have this per 20 days). Your med is so expensive because it's best generation drugs? G.Ross napisał(a): >>>>Yes. Those 2 that you describe could have been "Tonic Clonic", but the >>>>others where you didn't have the convulsions or muscle jerks are not [quoted text clipped - 11 lines] > > **************************************** Was is it, when I am lying, I am falling asleep almost or no, and one hand is jumping up for me suddenly (most often laws). A mountain lasts for it 2-3 seconds and the end. I have consciousness all the time and I feel that my hand is jumping up for me but I cannot break it or stop. >>you would appear to be awake and would move and walk and hands would move >>and pick at clothing. That sort of thing. [quoted text clipped - 7 lines] > into traffic, in front of cars, etc. When I got the right pills, that > stopped. G./ Understand. And how do You feel now? I hope that is good. Am I? >>>>Now that you have told about the CT-Scan, I can say that you do not have >>>>a haematoma or brain tumour. Your doctor should have told you that after [quoted text clipped - 42 lines] > now? Mine were diagnosed first as Tonic, and later as Complex Partial after > tests. G./ So "tonic clonic" is not this same what "grand mal"? I also thought that is it the same. >>>>Could you tell us about how your medicine makes you feel? >>> [quoted text clipped - 38 lines] > what we do or say. It's not always from the Tegretol, but from the Emotions > (Temporal Lobe brain parts). /G. The neurologist told me that I had had exactly changes in the temporal lobe at one time. That is injuring the brain there, this way? Apparently now juz I don't have. is it possible? Whether from this reason własnie I can have these feeling of anger, angers itd? Which jesczze can behaviours involve it? >>>I have sometimes wanted with the one to break anger but I could not do >>>nothing. However still 10-7 years ago that's all was much stronger. Head [quoted text clipped - 15 lines] > Temporal Lobes. I use Tegretol Controlled Release and Clobazam (Frisium) > for Temporal Lobe type, and those control my seizures now since 1998. G./ So You didn't have a seizures since 1998? If I good understand You, it's a good news. > G.Ross napisa³(a): >> [quoted text clipped - 18 lines] > 2-3 seconds and the end. I have consciousness all the time and I feel that > my hand is jumping up for me but I cannot break it or stop. **** On some of the seizure information sites, those feelings might be Simple Partial or Aura feelings. Usually the other epilepsy kinds you'd lose consciousness and fall down if it was strong seizure. G./ >>>you would appear to be awake and would move and walk and hands would move *********************************************** >>>and pick at clothing. That sort of thing. >> [quoted text clipped - 26 lines] >>>that the CT-Scan missed something and you will be more certain after an >>>MRI. ***G.* The CT scan looks for Heat from parts of the brain that would show if there are blood clots or places where it doesn't flow well. The MRI is a Magnetic Picture that can show marks or damage (if there is any) down to 1-2 millimetres big, so very tiny marks can be seen by the doctor without surgery to look at. /G. >>>>>We need to talk about that some more. When you say "lose >>>>>consciousness", I wonder if you mean that you become that "different [quoted text clipped - 75 lines] > can have these feeling of anger, angers itd? Which jesczze can behaviours > involve it? *** So they thought your seizures might be from temporal lobe (2) but now they don't find any injury there? Did they say why that has changed? That part of the brain can not get better, like a finger cut or a bruise. If it had an Injury before, it would still be there. Either they were *wrong the first time, so it's not from one of the temporal lobes, or it's coming from someplace else. When these happen do you ever Taste Lemon or Vinegar that's not there, or Eggs that are cooked or Sulphur. Or do you get Smells of Lemon or Eggs that are not in the building where you are? (Those are called Auras --feelings that are not there-- and the Sour one means it's a problem in the Right Temporal Lobe, Eggs or Sulphur means it's in the Left Temporal Lobe.) If you don't get those, the seizure might be some other type, than from the Temporal Lobes. G./ >>>>I have sometimes wanted with the one to break anger but I could not do >>>>nothing. However still 10-7 years ago that's all was much stronger. Head [quoted text clipped - 19 lines] > So You didn't have a seizures since 1998? If I good understand You, it's a > good news. G. Yes it is good news. Now my Doctor might want to change the pills that work for me... :-< I have to go see him in January to see if he will let me stay fixed on pills I use since 1995, or if he might want to try have me take *less pills. **IF he wants me to take less, that might work, but since I have a Mark on my Right Temporal Lobe, it might mean I'll have seizures again before he will let me stay on the pills I use now. The mark I have there (inside brain) will not get better, so I think I could still get seizures from it if I stop taking my pills. G./ G.Ross napisał(a): >>G.Ross napisał(a): >> [quoted text clipped - 159 lines] > Lobe.) If you don't get those, the seizure might be some other type, than > from the Temporal Lobes. G./ No, he didn't told me why it had changed. And that's puzzling me. It is confidently so how you are writing, that if there is damage he will already be. Is it possible in the EEG record to recognize that there is damage there? If so it after what? There are bonfires there whether as? That is can I have damage in the entire brain or a few parts, this way? Will a MRI pose give itself somehow or to recognize CT, to judge? I have a feeling so often (at least not always) that to smell eggs at home, why cooked, fried or broken even, old. That is can I have damaging in the left temporal lobe, this way? Very well you explained to me and you gave these examples. I didn't know that it was also possible after so simple things to judge it. It has always seemed for me with these smells that although these smells could not be from me from the house I sought it of some rational explanation. >>>>>I have sometimes wanted with the one to break anger but I could not do >>>>>nothing. However still 10-7 years ago that's all was much stronger. Head [quoted text clipped - 29 lines] > there (inside brain) will not get better, so I think I could still get > seizures from it if I stop taking my pills. G./ Certainly it will be well. I have always felt anxious alone when a doctor wanted for me to make smaller or to take drugs. That is aren't everybodying knows whether he wants to make smaller for you or to put pills away completely this way? You had already at one time attempts to stop taking a medicine? And what the EEG regulation you have which is saying last? Do you have the standardization of the record? When did you have the last seizures (Am I good remember that in 1998?)? Certainly your doctor is meaning well for you and if he made drugs smaller he knew when he will be that it was safe. Hope for the best. Certainly indifferently what will be too decision, you will be safe. I am keeping my fingers crossed and I wish you good health much. > G.Ross napisa³(a): >>>G.Ross napisa³(a): [quoted text clipped - 3 lines] >>>>>be sleeping", then it would not be Complex Partial. In Complex Partial, >>>>**************************************** After I read the rest of these messages, I'll post a separate post and call it Websites about Epilepsy or similar. I found about 5 web addresses that help describe pills or seizure types. When I post that, click on the First Aid for Seizures one, and look at the different seizure types. It tells someone what to do if we have a seizure. But it also shows some of the kind of things we might do while we are having the seizure. You will see that some of the seizure types can make us feel a smell, or a taste or a sound that's not there, and also shows what some of the English Doctors call the different seizure types. I think some of what you feel sounds like Simple Partial seizures, or Absences (if that is there), and not as often as Strong as Complex Partial or Grand Mal where we usually fall down when the seizure is strong. But the First Aid page is very good to tell people around you what they can do to help you if you have one of those. **If you like to Swim, you should also print the First Aid in Water page too, as some things to do if we are swimming is different that if we are on land (they should hold you up so you don't sink in the water -- if you fall down on the ground you are O.K., if you fall Down under the water that is more dangerous)... Also if you swim, you should probably always do that with someone else with you, so they can make sure you stay safe. / >>>Was is it, when I am lying, I am falling asleep almost or no, and one >>>hand is jumping up for me suddenly (most often laws). A mountain lasts [quoted text clipped - 15 lines] >>> >>>Understand. And how do You feel now? I hope that is good. Am I? My seizures are controlled with pills. The last seizures I had were in 1998. My Doctor might want to change my pills now, but I have to see him |
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