I'm not a Doctor (many of us aren't)  but I wondered if they had looked at
whether it might be some form of Sleep  Apnea?    I don't know what the
symptoms are of that, but I thought that was related to erratic breathing
while asleep.   His Dr. should know how to check for that, or what might
cause it. (A google might turn something up, if I spelled that correctly, or
if others here have experience.)
  *Many of our seizure types can occur during the night as our guards tend
to lower while we're in the sleep phases, while if we were awake we might
exchibit no seizures and any auras that might occur we might put off to an
aroma at a food court, or a sensation that we've had many times so don't
think anything of it.
   Another choice, if the Dr. thought it would help isolate it, is there's
a Sleep Deprived test where he's admitted for 2-4 days, and Wired to a
portable EEG device.  During that period they will try to keep him awake
beyond his normal time he'd go to sleep.   That I think works similar to
lowering our guards by introducing the extreme tiredness and at that point,
under controlled conditions with Medical people around they can watch for
any rarely occuring seizure spikes that might present.
  It's not uncommon for some of us, during a seizure, to tense up our
muscles without waking us up, and those would produce the pains and joint
stiffness when we awake.
  The disorientation you mention *could be a form of Absence or Simple
Partial type seizure, but it could be a symptom of other things.
  Do you know the name of any of the medications he's been prescribed.  It
might not help to post it here, as we're not doctors, but most of the Anti
Ep Drugs (AEDs) that are currently in use *someone here will have used and
might have comments on.   Most of them depend on a consistent dose taken
regularly.   Tegretol and some of the others don't like being used e.g. for
3 days then skipped for 4 and restarted again.   Sometimes they'll produce
withdrawal or side effects that are worse than the 'bother'  of taking them
at the rate the Dr. has prescribed.  Also if the Dr. is doing bloodwork, and
assuming he's taking it consistently,  the results will produce a False Low
level and the Dr. might want him to increase the dose when his low level is
because of erratic use, not faster metabolizing the pills.
   I'll repost an older post I have, shortly, that lists about 5 websites
I've found useful for general searches etc.  The http://efa.org  site (for
one) has a medications glossary where you can search the particular pills
(if they're AEDs) and produce a one page printable summary for use.  (Note
the efa is a US site and uses pill names common in North America.  If you're
in a different country, the generic med. name is on the pill bottle and it
should find a listing for that, if it can't find the main name.  E.G.
Tegretol Controlled Release types might include Tegretol Retard if it was in
UK or Europe, but they're all Carbamazepine in various forms.
  His Pharmacy should have given him one with new pills, listing some of
this, and if he had questions on their use or side effects, I found the
Pharmacist a good source of information on any pills as they get the scripts
and potential side effects from the manufacturers.
   The erratic seizures (or apnea, if it's that) can be hard to trap,
mainly because they are so erratic.  *Some people here got that type of
symptom too, from one of the foods they used erratically, and never related
the seizures or reactions to something they had eaten the day before.
   Keep reading and keep us posted how they're making out.  I'll post the
older Website List on a separate message thread (as other new people might
not have seen the sites also).  G./

Haven't they done a normal EEG test on him to see if he is having seziure
activity either while awake or while asleep?