> I'm new to this group but I was diagnosed with epilepsy back in '83 and
> I've been taking Dilantin since then. 300mg daily seems to be the
[quoted text clipped - 5 lines]
> the Dilantin or can I make an abrupt change?
> Thanks
In general your neurologist should tell you what is best in your case? I
assume an abrupt change should not be the best course of action, but hey I
am not a neurologist.
Sofia - 26 Nov 2005 20:09 GMT
> In general your neurologist should tell you what is best in your case? I
> assume an abrupt change should not be the best course of action, but hey I
> am not a neurologist.
I've never, ever known a neurologist to tell me that an abrupt change is
the best one. I've seen many specialists over the years, and they all gave
me a chart telling me the correct way to wean myself off my meds, all
written out for me, complete with what I was taking now, and how I should
slowly wean myself onto my new meds over several weeks.
I'm not a neurologist either, but I've weaned myself on and off all sorts
of different mixtures of meds over the years, but if I ever met a neuro
who told me anything else, I'd tell him/her to go back to school again!
All the best
Sofie

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I too have been on Dilantin since the mid 1980s; 3-100mgs/da. About a year
ago, the doc had me switch to Phenytek (phenytoin) at one 300 mg cap/da. I
just stopped taking the Dilantin one night and began the Phenytek instead.
Everything seemed fine - or better than fine - until I had the level
checked. Come to find out it had dropped from 12-14 to 4! He immediately
had me switch back to the Dilantin. I went to see him yesterday and now I'm
going to try Trileptal. I guess we'll see how that goes!
> I'm new to this group but I was diagnosed with epilepsy back in '83 and
> I've been taking Dilantin since then. 300mg daily seems to be the
[quoted text clipped - 5 lines]
> the Dilantin or can I make an abrupt change?
> Thanks
Robert A. Fink, M. D. - 31 Dec 2005 21:34 GMT
>I too have been on Dilantin since the mid 1980s; 3-100mgs/da. About a year
>ago, the doc had me switch to Phenytek (phenytoin) at one 300 mg cap/da. I
[quoted text clipped - 3 lines]
>had me switch back to the Dilantin. I went to see him yesterday and now I'm
>going to try Trileptal. I guess we'll see how that goes!
"Phenytek" appears to be a generic version of Dilantin. In the case
of this drug, the generics may not have as reliable a potency as does
the trade-named Dilantin.
Why does your doctor want to take you off Dilantin (Phenytoin)?
Unless you are having some problem with the drug, why change?
Trileptal is a long-acting (and more expensive) version of Tegretol
(Carmabazepine) and has its own set of side-effects.
Talk it over with your doctor. If he is not a specialist (neurologist
or neurosurgeon), ask for a specialist's opinion.
Best,
Bob
Robert A. Fink, M. D.
Neurological Surgery
2500 Milvia Street Suite 222
Berkeley, CA 94704-2636 USA
510-849-2555
**********************************
NOTE: The material above is not "medical
advice". Medical advice can only be
given after an in-person contact between
doctor and patient.
**********************************
Charlie - 03 Jan 2006 11:23 GMT
The doctor is a neurologist and the idea of switching is mine and not his.
I asked him about an alternative to Dilantin that could possibly reduce the
brain fog and loss of emotional feelings. In response he suggested
Trileptal as an alternative.
I have not for sure made the decision to switch. I remember the hell I went
through getting use to Dilantin and I don't want to have that happen again!
Thanks for your input.
Charlie
>>I too have been on Dilantin since the mid 1980s; 3-100mgs/da. About a
>>year
[quoted text clipped - 35 lines]
> doctor and patient.
> **********************************
windup72@sbcglobal.net - 12 Feb 2006 06:34 GMT
I'm new to this group I use to be on Dilantin when I was younger but then i
found out about A medication called DEPAKOTE ER my doctor put me on this
about 8 years ago and i have been doing fine ever scence . David
>I too have been on Dilantin since the mid 1980s; 3-100mgs/da. About a year
>ago, the doc had me switch to Phenytek (phenytoin) at one 300 mg cap/da. I
[quoted text clipped - 13 lines]
>> the Dilantin or can I make an abrupt change?
>> Thanks