Hi does anyone know of other helpful online support chat groups for
parents of children with disabilities or specifically other epilepsy
support groups...I am new to this group I found out about this group
through the Epilepsy Durham chapter. My son is now 3 years old and has
been having seizures since he was five months old. Boy did we have a
hard time getting ppl to listen up and believe he was having seizures
as his aren't all that typical he is not always tired after sometimes
he may be hyper or go back to normal for about half and hour or so
before he shows signs of tiredness....fun fun fun...well I'm looking
for lots of support...My son also has Tuberous Sclerosis Complex which
alot of doctors this past weekend seemed to turn their heads too as its
acommon seizure disorder that is hard to control. My son is 3 and on 3
anti seizure medications two are twice a day one is three times a
day...and still seizures..we are about to try the ketogenic diet...oh
wel that will probably begin next week..I'm sure it will be tough for
both of us...he doesn't get to eat all the reg food he likes to
eat...he's a picky eater...and he has to eat whats given to him for the
most part for it to work...fun fun fun...it can be frustrating...as he
doesn't really understand how important it will be and he can show how
he feels about it but not talk about it so it stinks...for us all as it
can be hard sometimes to communicate to each other...but he's pretty
smart...well take care just glad were out of the hospital...

Sharon (mom to Joseph 3 )