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Medical Forum / Diseases and Disorders / Epilepsy / January 2006

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Misdiagnosed-54 yrs in Mental Asylum

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Dave ©¿©¬ - 19 Oct 2005 17:24 GMT
Link to article:
http://news.yahoo.com/s/nm/20051017/od_uk_nm/oukoe_uk_life_india_insanity

Indian sent home after five decades in mental asylum

By Biswajyoti Das
Mon Oct 17,11:34 AM ET

SILCHANG, India (Reuters) - More than half-a-century ago, Machal Lalung was
thought to be insane and sent to a mental asylum in India's remote
northeast.

A few months ago, he was set free after the National Human Rights Commission
found that healthcare authorities had made a mistake and Lalung suffered
only from epilepsy.

Lalung's confinement for 54 years has shocked rights activists and mental
health experts in a country where it is not uncommon for people to be
branded insane and locked up in homes or asylums for months, if not a few
years.

"Machal Lalung's case was not in our knowledge but once it was brought to
our notice, we immediately completed all legal formalities to secure his
release," Assam's Home Minister Rokybul Hussain told Reuters.

"I am really sorry for him," he said.

That comes as small consolation for the 77-year-old frail tribal man, who
was 23 when he was sent to the state-run mental hospital in the Assamese
city of Tezpur.

Fifty-four years with psychiatric patients has dulled his senses, made him
forget his family, his tribal dialect and even the taste of the food he
liked.

His life before entering the asylum is nothing but a blip in his memory. So
is the story of how and who brought him to the mental home. Doctors who
treated Lalung have retired and records about him are missing.

Today Lalung said he awaits peace in death.

"I feel sad at what happened to my life but there is no use grumbling now. I
am just waiting for death," he told Reuters at his nephew's home in Silchang
village, about 90 kms (55 miles) east of Assam's main city of Guwahati.

"Initially, I used to miss my family and always begged my wardens to send me
home. But they never listened to me," he said with tears in his eyes.

Lalung's only family members -- his father and elder sister -- are dead. He
lives with his sister's son who grew up listening to stories about his
uncle's disappearance.

It was in fact the nephew who managed to trace Lalung after a man from their
village had gone to the same mental hospital for treatment and saw Lalung.

"It was very difficult to stay with insane people in the same room but
gradually I got used to it," Lalung said.

Today, despite his poor health, Lalung likes to work in a small vegetable
garden outside the house, carrying a spade and a pouch containing a tobacco
and betel nut snack to chew.

Although there were many women in the hospital, Lalung never tried to make
friends with them or consider marriage.

"Who would want to marry an insane woman?" he asks.

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Dave ©¿©
"Ego sum quis Ego sum quod ut est quicumque Ego sum"

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Link to article:
http://news.yahoo.com/s/nm/20051017/od_uk_nm/oukoe_uk_life_india_insanity

pipercub49 - 20 Oct 2005 10:00 GMT
Hi,
I don't usually post here but I also read this article. I tried posting
it at a couple of other Groupos I am in but couls not. I found this
story in the Odd news. What a horrible thing for ant person to hacve to
suffer. no matter what Country. It really broke my heart. %4 years of a
life locked up. Because he had Epilepsy and they thought he was
Mentally Ill. But if you go back 50 years Mentally Ill is the nice way
of saying he was just Crazy because he had Seizures and no one
understood them. How very sad. Oh how I hope this can not happen in
2005. Pipercub49
> Link to article:
> http://news.yahoo.com/s/nm/20051017/od_uk_nm/oukoe_uk_life_india_insanity
[quoted text clipped - 73 lines]
> Link to article:
> http://news.yahoo.com/s/nm/20051017/od_uk_nm/oukoe_uk_life_india_insanity
Darwin - 21 Oct 2005 01:06 GMT
Apparently, it's not uncommon for complex-partial or simple-partial seizures
to be confused with symptoms of schizophrenia. My young cousin was diagnosed
with schizophrenia about 5 years ago and has failed all the medication.
Only last month did they start looking into the possibility that he may
actually be having partial seizures. The psychiatrists never thought to rule
out epilepsy first.  Now his new psychiatrist is familiar with epilepsy and
thinks his symptoms may be more consistent with seizures.

Hi,
I don't usually post here but I also read this article. I tried posting
it at a couple of other Groupos I am in but couls not. I found this
story in the Odd news. What a horrible thing for ant person to hacve to
suffer. no matter what Country. It really broke my heart. %4 years of a
life locked up. Because he had Epilepsy and they thought he was
Mentally Ill. But if you go back 50 years Mentally Ill is the nice way
of saying he was just Crazy because he had Seizures and no one
understood them. How very sad. Oh how I hope this can not happen in
2005. Pipercub49
Dave ©¿©¬ wrote:
> Link to article:
> http://news.yahoo.com/s/nm/20051017/od_uk_nm/oukoe_uk_life_india_insanity
[quoted text clipped - 82 lines]
> Link to article:
> http://news.yahoo.com/s/nm/20051017/od_uk_nm/oukoe_uk_life_india_insanity
Mindy  Van Wert - 24 Jan 2006 14:19 GMT
That is a terrible thing. When I was a teenager, I started having weird
behavior, then the seizures started. Well, before I was diagnosed with
epilepsy, my parents, not knowing anything about seizure disorders, took me
to a psychiatrist. The psychiatrist immediately diagnosed me as manic
depressive. A year later, after an EEG and a visit to a neurologist, I was
told that I did NOT, in fact, have bipolar disorder but epilepsy. Although I
was never institutionalized, I guess this sort of thing could still happen.

Signature

Mindy

If you can read this, you're not the president.

> Link to article:
> http://news.yahoo.com/s/nm/20051017/od_uk_nm/oukoe_uk_life_india_insanity
[quoted text clipped - 71 lines]
>
> "Who would want to marry an insane woman?" he asks.
Sofia - 24 Jan 2006 17:27 GMT
> That is a terrible thing. When I was a teenager, I started having weird
> behavior, then the seizures started. Well, before I was diagnosed with
> epilepsy, my parents, not knowing anything about seizure disorders, took me
> to a psychiatrist.

Epilepsy was a very hush hush subject when we were kids (I turned 40 this
month), and although I'm not as old as you, I used to get a similar sort
of treatment in my teens too. I doubt if too many people think that way
today though, as the world wasn't that educated in epilepsy then, and
doctors research was very limited too - but I wouldn't say that *all*
people don't think this way, as you always get the odd one here and there.

What you had in your teens though, sounds like "Complex partial" seizures,
where you wonder around the place, doing strange things whilst in a sort
of daze/trance - I've heard them been compared to sleep-walking a few
times, and I've been getting them for decades mixed with other types of
seizures.

Take care

Sofie    

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Mindy - 24 Jan 2006 19:51 GMT
I'm only 26. This happened just recently, I'd say 10 or 12 years ago. :-)

Signature

Mindy

If you can read this, you're not the president.

>> That is a terrible thing. When I was a teenager, I started having weird
>> behavior, then the seizures started. Well, before I was diagnosed with
[quoted text clipped - 18 lines]
>
> Sofie
Dave Keays - 25 Jan 2006 22:44 GMT
>>That is a terrible thing. When I was a teenager, I started having weird
>>behavior, then the seizures started. Well, before I was diagnosed with
[quoted text clipped - 7 lines]
> doctors research was very limited too - but I wouldn't say that *all*
> people don't think this way, as you always get the odd one here and there.

I am convinced that the hushness will continue until we get the nerve to quit
hiding it. Until then people will react out of ignorance and fear fed by that
ignorance. It is not their fault.

No, you didn't put blame on anybody but the EFA did in my time. Looking at their
web-site they seem to have mellowed a bit. Now allowing for the individual to
decide when disclosure is necessary.

Epilepsy is no longer a major factor in my life. A tumor was found and they
removed my right temporal-lobe in 2000, the same year I turned 40.

> What you had in your teens though, sounds like "Complex partial" seizures,
> where you wonder around the place, doing strange things whilst in a sort
> of daze/trance - I've heard them been compared to sleep-walking a few
> times, and I've been getting them for decades mixed with other types of
> seizures.

The biggest problem I use to have with complex-partial seizures was that I
looked healthy to others so they refused to accept that I was "disabled". A
local heath program wont take me because I had a "long term disability" but SSI
balked because I wasn't "disabled". It took several years to convince them
otherwise.

People want to label a disabled person with either a "physical" or "mental" tag.
Most are not aware of a Neurological problem that messes with your head to the
point that you sometimes appear to have mental problems.

> Take care
>
> Sofie    

Dave Keays

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