>> "Fishbone" <da_fishbone@yahooNOSPAM.com> wrote
>> news:TtWdna8WbOguZzrfRVn-3w@comcast.com...
[quoted text clipped - 27 lines]
>>
>> > -Fishbone
I have these episodes at about the same intervals. I take nothing, I just
live with them.
Mary
If you do any searches, look for Deja Vu under either Complex Partial
Seizures (more current term) or Temporal Lobes Seizures (older term).
Usually the Deja Vu 'Aura' is a warning (Simple Partial Seizure), and can be
followed by a stronger seizure if that leads to loss of consciousness.
That's usually what happens if the full CP sets in. The Deja Vu indicates
the Seizure Focus (Start place) is in the *Right Temporal Lobe.
If the sensation was a Jamais Vu (never seen --where your home might
feel like a stranger's), that could indicate the Seizure Focus was starting
in the Left Temporal Lobe.
*If all you are having any Complex Partial seizures (your Doctor would
know), I had poor control with Dilantin (one of oldest meds), but got
better control with Tegretol CR (Time Release) -- it's called Tegretol
Retard in UK? and XR in another formulation. I've only used the first
version.
That gave control, with occasional 'breakthroughs' (seizures), about
each 3-6 months as we upped the dose of the AM or Night dose. After about 3
years, and still with some seizures, my Neuro slowly removed the *night dose
but added Frisium (Clobazam) that had just been approved for use in Canada
(this was about 1996). Later we added it to the Morning Dose *with the
Remaining Tegretol CR, left at dose it had been at since 1995.
Last 2 seizures I had were Dec. 1997, June 1998. That only is of
interest (to me anyway) as my Neuro said in 1993 that, based on EEG and
MRIs, I might hope for 1-2 seizure per Month.
There are others around here somewhere who also have Complex Partial
(Temporal Lobe) seizures who use other Medications, but I haven't seen them
post for a while.
If you're having 'Absences' as one poster below suggests, driving is an
issue the Doctor should have discussed with you. Until those are
controlled, you could put others at risk if you lost control of the vehicle
during that part of the Simple Partial.
The sensation is an Illusion because of electrical activity happening in
that part of the brain, and 'looking for something new' won't usually help
as it's occurring while you're inside the Illusion phase, and you're not
fully consciousness (thus my comment earlier about driving). hth. G./
>> "Fishbone" <da_fishbone@yahooNOSPAM.com> wrote
>> news:TtWdna8WbOguZzrfRVn-3w@comcast.com...
[quoted text clipped - 5 lines]
>> > in
>> > my office, driving, at the computer, I'm sure I had dreamed that exact
************************
>> > moment, in the exact way I was doing it. As the sensation peaks, I
>> > find
[quoted text clipped - 44 lines]
>> hi your doctor have he told you that your medications
> does that you go in a less waken steddy
E.B. - 16 Sep 2005 23:59 GMT
I had these same types of episodes starting at age 11 (now I'm 41)
They went untreated until I had the big grand mal (old school, I know)
at nearly 18 years of age. The deja vu episodes were not controlled by
Dilantin but Tegretol did work (back in 1982).
After taking Tegretol for 15 years it became useless. I nearly died
from some seizures.
The auras I have now are simple partial feelings that make me sick at
my stomach (I feel them in the chest) I grew out of the deja vu
feeling and into this. The deja vu episodes, if I have them (rarely)
are quick, and are followed by a big convulsive seizure. You can call
them a precursor or warning sign for me to strap in for the ride.
These auras I deal with now (even though taking keppra and lamictal)
happen when exhausted, not enough sleep, or just overworking my noggin
figuring something out. I take 2 mg of Lorazepam (Ativan) and they go
away. I have to sleep a while though.
Take it from 30 years of growing out of one type of seizure into
another, I can't keep up with all of the different types I've had. I
do know it is genetic, but my left frontal lobe is bruised also.
Ask me more if you want.
E.B.