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Medical Forum / Diseases and Disorders / Epilepsy / September 2005

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re - Deja Vu's - help please

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Repete - 08 Aug 2005 16:04 GMT
"Fishbone" <da_fishbone@yahooNOSPAM.com> wrote
news:TtWdna8WbOguZzrfRVn-3w@comcast.com...
> Hi,
> I get struck with a vivid Deja Vu about every 4 weeks.  They are so weird.
> I can be anywhere doing anything when all of the sudden a feeling that
> somehow I recognize this, I've dreamed about this.  Whether I'm sitting in
> my office, driving, at the computer, I'm sure I had dreamed that exact
> moment, in the exact way I was doing it.  As the sensation peaks, I find
> myself looking around, desperately trying to find something NEW, something
> that I have never seen before, something that I can focus on to pull
> myself
> out of this state.  Then the Deja Vu slowly fades away. It's sometimes
> accompanied by very slight nausea.  The whole episode lasts about a minute
> or so.
>
> My doctor is trying to suppress these sensations with Dilantin, with
> Zonegran, and now with Trileptal without success.  Has anybody been able
> to
> control these Déjà vu's successfully with medication?  What is the drug
> that
> has worked for you?
>
> Thank you in advance,

> -Fishbone

Hi.
Remember been having these for the last 5-10 years, but perhaps as long as
twenty
years back (I´m 40), but by then in a very light, non-frequent mode.

My d-v now also ends up with a feeling, that I've dreamed this before.
After two of my d-v´s in the last 5 years had been folllowed by black
out´s - one fatal -
I started on medicine, Trileptal.
It cannot remove the d-v, they do still arrive about once a month, but were
definitely more
frequent (perhaps 3 times a month) and longer lasting (15 secs.) before.
But first and foremost, hopefully they can stop me from blacking-out.

A MR-scan showed nothing unusual in my brain - not in that matter ;-)
- but an EEG (Electro-Encephalo-Graphy) indicated epilepsy in both the left
and right sides of it.

But the medcine seems to have increased my perspiration a little too much
during my sleep.
Have any of you experienced it too ?

Regards
Pete

Have got these in the last
twiggyfr3ak - 11 Aug 2005 00:06 GMT
> "Fishbone" <da_fishbone@yahooNOSPAM.com> wrote
> news:TtWdna8WbOguZzrfRVn-3w@comcast.com...
[quoted text clipped - 48 lines]
>
> Have got these in the last

-------------------------------------------
Hi..
I have d-v all the time since i was quite young (now 22) I thought that
everyone got them.. like they were just normal everyday things that people
get. Is this not then the case?
Melx
G.Ross - 11 Aug 2005 05:09 GMT
>> "Fishbone" <da_fishbone@yahooNOSPAM.com> wrote
>> news:TtWdna8WbOguZzrfRVn-3w@comcast.com...
[quoted text clipped - 33 lines]
>> After two of my d-v´s in the last 5 years had been folllowed by black
>> out´s - one fatal -
*** G. **  I don't know what above means.  If a seizure generalizes
(spreads)  it can lead to loss of consciousness.   It would rarely be Fatal
?? or you wouldn't be able to report that? / G.

>> I started on medicine, Trileptal.
>> It cannot remove the d-v, they do still arrive about once a month, but
[quoted text clipped - 21 lines]
> get. Is this not then the case?
> Melx

G.-  The Deja Vu described above is a very strong feeling that this has
happened before, we said this already, or we could tell what would happen
next. It's a strong illusion produced by seizures that are starting in the
Right Temporal Lobe. The feeling they're describing (if that's what you get
too) are part of the aura of that type of seizure.  Symptoms might be listed
either under Temporal Lobe Seizures (an older term that's still used on some
sites), or Complex Partial Seizures (a term used on many sites to describe a
group of seizure types, one of which can be either Left Temporal Lobe based,
or (our) Right Temporal Lobe type).   Aura of the Left side T.Lobe seizure
is a Jamais Vu feeling where your own place might feel temporarily like
you're at a stranger's house. The Right side T.Lobe ones produce a Deja Vu
sensation, if the electrical firing starts there.

   The Right T.Lobe auras can also include a taste or aroma that's Sour or
like Lemon, while the Left T.Lobe ones, the taste or aroma (if there is one)
is an Eggy or Sulphur type aroma or taste?  I've only had the first aura
type, so latter type is from U.S. Ep. Foundation site or other locations
around the internet.    (General US Site is at http://efa.org  if you
haven't seen that one before.  )    G./
twiggyfr3ak - 11 Aug 2005 22:54 GMT
> >> "Fishbone" <da_fishbone@yahooNOSPAM.com> wrote
> >> news:TtWdna8WbOguZzrfRVn-3w@comcast.com...
[quoted text clipped - 82 lines]
> around the internet.    (General US Site is at http://efa.org  if you
> haven't seen that one before.  )    G./

Thanks for that info.. didn't know that. I have left temporal lobe S.
Complex  Partials. I will look it up some more.  Thanks

Melx
Henrik strömberg - 01 Sep 2005 02:56 GMT
> "Fishbone" <da_fishbone@yahooNOSPAM.com> wrote
> news:TtWdna8WbOguZzrfRVn-3w@comcast.com...
[quoted text clipped - 48 lines]
>
> hi your doctor have he told you that your medications
does that you go in  a less waken steddy
Mary Fisher - 01 Sep 2005 20:49 GMT
>> "Fishbone" <da_fishbone@yahooNOSPAM.com> wrote
>> news:TtWdna8WbOguZzrfRVn-3w@comcast.com...
[quoted text clipped - 27 lines]
>>
>> > -Fishbone

I have these episodes at about the same intervals. I take nothing, I just
live with them.

Mary
G.Ross - 02 Sep 2005 02:02 GMT
If you do any searches, look for Deja Vu under either Complex Partial
Seizures (more current term) or Temporal Lobes Seizures (older term).
Usually the Deja Vu 'Aura' is a warning (Simple Partial Seizure), and can be
followed by a stronger seizure if that leads to loss of consciousness.
That's usually what happens if the full CP sets in.   The Deja Vu indicates
the Seizure Focus (Start place) is in the *Right Temporal Lobe.
   If the sensation was a Jamais Vu (never seen --where your home might
feel like a stranger's), that could indicate the Seizure Focus was starting
in the Left Temporal Lobe.

  *If all you are having any Complex Partial seizures (your Doctor would
know),  I had poor control with Dilantin (one of oldest meds),  but got
better control with Tegretol CR (Time Release) -- it's called Tegretol
Retard in UK? and XR in another formulation.  I've only used the first
version.
    That gave control, with occasional 'breakthroughs'  (seizures), about
each 3-6 months as we upped the dose of the AM or Night dose.  After about 3
years, and still with some seizures, my Neuro slowly removed the *night dose
but added Frisium (Clobazam) that had just been approved for use in Canada
(this was about 1996).  Later we added it to the Morning Dose *with the
Remaining Tegretol CR, left at dose it had been at since 1995.
   Last 2 seizures I had were Dec. 1997,  June 1998.  That only is of
interest (to me anyway) as my Neuro said in 1993 that, based on EEG and
MRIs, I might hope for 1-2 seizure per Month.
   There are others around here somewhere who also have Complex Partial
(Temporal Lobe) seizures who use other Medications, but I haven't seen them
post for a while.
   If you're having 'Absences' as one poster below suggests, driving is an
issue the Doctor should have discussed with you.    Until those are
controlled, you could put others at risk if you lost control of the vehicle
during that part of the Simple Partial.
   The sensation is an Illusion because of electrical activity happening in
that part of the brain, and 'looking for something new'  won't usually help
as it's occurring while you're inside the Illusion phase, and you're not
fully consciousness (thus my comment earlier about driving).   hth.     G./

>> "Fishbone" <da_fishbone@yahooNOSPAM.com> wrote
>> news:TtWdna8WbOguZzrfRVn-3w@comcast.com...
[quoted text clipped - 5 lines]
>> > in
>> > my office, driving, at the computer, I'm sure I had dreamed that exact
************************
>> > moment, in the exact way I was doing it.  As the sensation peaks, I
>> > find
[quoted text clipped - 44 lines]
>> hi your doctor have he told you that your medications
> does that you go in  a less waken steddy
E.B. - 16 Sep 2005 23:59 GMT
I had these same types of episodes starting at age 11 (now I'm 41)
They went untreated until I had the big grand mal (old school, I know)
at nearly 18 years of age.  The deja vu episodes were not controlled by
Dilantin but Tegretol did work (back in 1982).

After taking Tegretol for 15 years it became useless.  I nearly died
from some seizures.

The auras I have now are simple partial feelings that make me sick at
my stomach (I feel them in the chest)  I grew out of the deja vu
feeling and into this.  The deja vu episodes, if I have them (rarely)
are quick, and are followed by a big convulsive seizure.  You can call
them a precursor or warning sign for me to strap in for the ride.

These auras I deal with now (even though taking keppra and lamictal)
happen when exhausted, not enough sleep, or just overworking my noggin
figuring something out.  I take 2 mg of Lorazepam (Ativan) and they go
away.  I have to sleep a while though.

Take it from 30 years of growing out of one type of seizure into
another, I can't keep up with all of the different types I've had.  I
do know it is genetic, but my left frontal lobe is bruised also.

Ask me more if you want.

E.B.

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