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Medical Forum / Diseases and Disorders / Epilepsy / August 2005

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Double vision with medication

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Robpharm - 07 Aug 2005 13:39 GMT
Hello, my names Rob and two years ago I was diagnosed with a left temporal
lobe oligocytoma WHO class II (brain tumour).  It has given me fairly mild
seizures which cause me to lose my memory but which dont make me lose
consciousness etc.  I have been taking carbamazepine for a year which had
fairly good control and let me have one very mild seizure a month which i
could put up with, however unfortunately i then started to get bad double
vision.  We have now slowly swapped over to topamax.  I was hoping this
would resolve the issue but this has simply given me exactly the same
situation but now my skin tingling.  I am beginning to get worried i will
spend the rest of my life seeing two of everything or i will have to blank
one eye out.  I am a pharmacist and i have been reading far to much about
these drugs for my own good, they all seem to have double vision as side
effects, i was wondering if other people had experience of these issues to
give me some hope that there may be alternatives available.  Thanks, Rob.
G.Ross - 07 Aug 2005 14:21 GMT
> Hello, my names Rob and two years ago I was diagnosed with a left temporal
> lobe oligocytoma WHO class II (brain tumour).  It has given me fairly mild
[quoted text clipped - 10 lines]
> effects, i was wondering if other people had experience of these issues to
> give me some hope that there may be alternatives available.  Thanks, Rob.

  Do they make a time released version of that?   http://efa.org has a
medications glossary if you don't have other information routes.    It's too
bad they didn't try other routes when you were using Tegretol CR?
(Carbamazepine).  So far as I know once you leave it, you usually can't go
back to it. When I had what you described, we lowered the night dose by half
a tablet on alternate nights (100mg) for about 2-3 weeks, then back to the
original dose and the symptoms went away.
  I *think the blurred vision is either too high a blood level or a
*reaction to the pill- latter is why they moved you off of it.   You should
tell the Dr. anyway about it, as they should know what to do, although they
didn't? with Tegretol.  :-< .  (Months after I got above change stable, we
slowly replaced the night dose with a second pill and removed the Tegretol
then, but kept it with the AM dose. I don't know if your new pill can be
used in combination with other secondary pills, that's why your Doctor needs
to know.)
   You might as well look at the efa page to see if other
contra-indications are advised that you might not have received from
Pharmacy or Dr. wrt. Topamax.  I found a Tegretol and Grapefruit Conflict
(one of its acids)  on efa site or 'here',  before my Pharmacy updated their
printout with an advisory for Tegretol.  There could be other things you're
using that conflict with the Topomax?  And check  the correct spelling on
the pill bottle -- I thought it had 2 o's, but I've never used it.      G./
 
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