> > hallowed day of Fri 22 Jul 2005 02:29:38a:
> >>
[quoted text clipped - 50 lines]
> coping in various forms with this for a number of years, he may not be
> interested in that, and thus might not get anything out of it. /G.
Howdy!
Actually, more like 10 or 15 meds over 35 years without ever finding
anything that gives me TOTAL control.

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Dave ©¿©¬
http://www.howdydave.com
G.Ross - 30 Jul 2005 04:48 GMT
> "G.Ross" <> wrote in message
*******< >*************
>> I think it was 'Howdy Dave' when he was posting more, who said he
>> had
>> to try something like 6? or 7 Meds. over the course of many years before
>> he
>> found the ones that worked for him.
/G.
> Howdy!
> Actually, more like 10 or 15 meds over 35 years without ever finding
> anything that gives me TOTAL control.
So, That's what I need to do to get you to show up. I'll have to remember
that. There were some questions scattered over the last week or so that I
thought you'd have more experience or history with than some of us who were
trying to provide answers at the time.
I had even thought that when the percentage of posters who were women
exceeded 70% that That would be Bachelor bait, but no, it was Quiet here...
:-< /G.
Dave ©¿©¬ - 30 Jul 2005 06:05 GMT
> > "G.Ross" <> wrote in message
> *******< >*************
[quoted text clipped - 15 lines]
> exceeded 70% that That would be Bachelor bait, but no, it was Quiet here...
> :-< /G.
Howdy GR!
I've been gettin' pretty deep into my yoga lately.

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Dave ©¿©
"Ego sum quis ego sum quod ut est quicumque ego sum"
http://www.howdydave.com
G.Ross - 30 Jul 2005 15:54 GMT
> "G.Ross" <> wrote in message
>>
> Howdy GR!
> I've been gettin' pretty deep into my yoga lately.
What, like "Om ma gosh, I found yoga helps? " :-< G./
Dave ©¿©¬ - 30 Jul 2005 17:19 GMT
> > "G.Ross" <> wrote in message
> >>
> > Howdy GR!
> > I've been gettin' pretty deep into my yoga lately.
> What, like "Om ma gosh, I found yoga helps? " :-< G./
Howdy GR!
Actually, I don't do the OM routine...
I'm into Jnana yoga! Jnana is "yoga in your head."
For anybody else who might have given any thought to yoga, don't forget that
Hatha isn't the only option...
there is also: Raja, Bhakti and Jnana.

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Dave ©¿©
"Ego sum quis ego sum quod ut est quicumque ego sum"
http://www.howdydave.com
John Porter - 03 Aug 2005 10:08 GMT
"G.Ross" <gaross@rogers.com> wrote in news:ffydnQMrY8kvCHbfRVn-
1Q@rogers.com:
>> "G.Ross" <> wrote in message
>>>
>> Howdy GR!
>> I've been gettin' pretty deep into my yoga lately.
> What, like "Om ma gosh, I found yoga helps? " :-< G./
I have not tried yoga ( yet ) but I have tried basic meditation some
simple mind relaxing hypnosis things I found from a good sorce ( most
free )! But I am kind of shy about " watching " flashing lights " and
spinning wheals! I get ' nuph of that stuff at the movies! I will be 50
on Aug 6 but I look, feel and act more like 30+ ;-) the only hitch is my
epilepsy that I got just before my last year of High School! - I still
don't rember how I got though that one LOL!
John - in Honolulu!
-=Biscuit=- - 03 Aug 2005 22:11 GMT
25 Jul 2005 11:37:55p:
> Howdy!
>
> Actually, more like 10 or 15 meds over 35 years without ever
> finding anything that gives me TOTAL control.
wow...

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-=Mara=-
Come to the dark side....we have cookies.
I reject your reality, and substitute it with my own!
Mon 25 Jul 2005 01:48:44p:
>> hallowed day of Fri 22 Jul 2005 02:29:38a:
>>>
[quoted text clipped - 22 lines]
>> He's called his doctor...who's no help, in my opinion.
>> ANyway...thanks for listening.
Sorry for the delay in replying...life got a little "beyond
stressful" for a bit there.
> How difficult is it for him to change Doctors?
It's possible, but there's a couple of issues with that. One is
that to get this HMO (Kaiser) as a medigap insurance, he had to
sign-over his medicare benefits to them. He only "gets those back"
if he formally cancels his Kaiser coverage.
He has 3 very serious medical issues to deal with, only one of them
being the epilepsy, and he sees 3 different doctors at Kaiser. The
neurologist is actually the best in the lot, and my SO seems to
have a good rapore with him.
He also, until a couple of days ago, didn't *want* to look at other
options, and I can totally see his point. The beraucrisy and BS
that comes with trying to get treated through an HMO is mind-
boggling. His other 2 doctors are basically are refusing to treat
him for those conditions...and that can be and was very
overwhelming.
However...he is now willing to look at other options, and I'm more
than willing to help him to the research. I've suggested finding a
private physician and paying "retail" for a consultation until he
decides if dropping Kaiser is worth it to change doctors. *I* think
it is, as I never dreamed that a large medical organization would
make medical decisions based on $$$ and not on what will prolong
the patients life.
Yes, I know...I'm naive.
> If he's dropping the
> levels of his AED without the Dr. supervising it, he might get
> side effects that should be watched for. That's not his job
> (or your's), it's the Prescribing Doctor's. I expect that's
> why Malpractice Insurance is so costly.
Yes, I agree it wasn't the best way to do it. Kids...don't try this
at home!!! Have I forgot to mention his real name is "John Wayne"?
:)
> Have you ever talked to the Doctor, and would he (your
> fiance) want you to?
His first trip to see this doctor he asked me to be there (and I
was happy to go). Not having been through this sort of meds change,
I didn't know what to expect. Now I know the questions to ask! And
some of this is in my fiance's difficulty in even talking with
doctors about his illness, which he's told me is fairly common
among epileptics. He has trouble even saying the word outloud, even
to a doctor. So, in all fairness to his doctor, when he would call
the doctor and say "I'm not doing so well", the doctor doesn't
really have a clear view of HOW BAD he's doing.
Since the relationship with this doctor is new, the doctor doesn't
know that my fiance's head needs to be about splitting open before
he'll say a word of being in pain. He sees the neurologist again
tomorrow, and we're going in together. And if it's ok with my SO,
I'm going to tell the doctor how bad he got...because I don't think
the doctor quite got it.
> Perhaps the Doctor is not aware of the way he's reacting to
> the Medication,
Agreed, very much. Not because the doctor doesn't care (though I
can neither confirm or deny this, just trying to be objective), but
because "I'm not doing so good" isn't very descriptive.
> and often an outside witness is a more reliable
> source of how we're behaving than we might be ourselves.
THANK YOU!
God bless you for saying that, just to confirm my own reality :)
> Alternatively, if he's got an appointment with his Doctor
> soon, you
[quoted text clipped - 6 lines]
> a negative warning with some of the Anti-Ep. Drugs, and might
> signal a need to change (again! :-< ).
Yes, and again, thank you. He's been completely off the neurotin
for 5 days now, and even in that short amount of time...I've seen
the man I love come back into his body. The side effects of the
withdrawals have been horrible for him, and yet he's doing so much
better than I ever expected.
No grand mals, just a little shakes (which he's had on every med).
We both know it wasn't a good idea to ramp down so quickly and
without a doctor's supervision, and I certainly wouldn't want to
give anyone reading this the idea that doing that was the right
thing to do...but he did it.
> I think it was 'Howdy Dave' when he was posting more, who
> said he had
> to try something like 6? or 7 Meds. over the course of many
> years before he found the ones that worked for him.
Yeah, I've read that in many of the support forums, as well as my
fiance sharing his experiences, and the fact there's only a limited
selection of meds he CAN take, because of his other medical issues.
> Another thing -- are you near a large city that has an
> Epilepsy
> Association, and would he be willing to go to 2 or 3 'group'
> sessions that some of them have either afternoons or evenings
> to discuss (among people in like condition) what it's like and
> how they're feeling about having to live like this?
Oh heck yah!
I looked up a list of support groups (as did he a couple months
ago), and I was *thrilled* when he said he wanted to go last week
:) Unfortunately, the group we went to had been cancelled 2 months
prior, and the epilepsy foundation hadn't updated their list. But
there's another in a week closer to home (this one was an hour
away, but heck, the drive was nice!).
> The one
> near me has consultants who meet one-on-one with either newly
> diagnosed people or people and their family members. If he's
> been coping in various forms with this for a number of years,
> he may not be interested in that, and thus might not get
> anything out of it. /G.
Exactly...even though *I* would get something from it...I was
waiting until *he* wanted to go. I've been in a support group for
family and friends of alcoholics for 15 years, and I know it's
impossible and fruitless to help someone until they themselves want
the help.
Things are much, much better for us, for me, and for my fiance,
now. I can't be sure...but I think we're through the worst of it.
Once he got the neurotin (mostly) out of his system...he saw that
what I'd been saying about what I was seeing in him/his behavior
was true. I explained to him then and now, that I have nothing to
benefit by telling him anything other than the truth...but I
understand how much trust that takes, and that will take time.
S'Ok...I plan on being with him the rest of our lives...and I'm a
patient woman...I can wait ;-)
Thanks "G"...for everything. You're a good egg, ya know?
:)

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-=Mara=-
Come to the dark side....we have cookies.
I reject your reality, and substitute it with my own!