This is a Public Usenet Group that's read by 3-500 people who don't post
here. When I reply to some messages, I will consciously try to Generalize
them for others who may not want to Post to a Public Forum, but only *read
the group and may not be aware (eg. of the Grapefruit / Tegretol thing, I've
had 4-6 messages off-group about, over last *8 months) resulting from an
innocuous comment (mine), on that, like the one you're commenting on below.
If you knew about the symptoms when Tegretol was above therapeutic levels
(drunken feeling) or below therapeutic dose levels (auras or breakthrough
seizures), you didn't **appear to?, with your listing of the "This might be
what I think is happening to me: 1, 2, 3 "--> *2 of which were assuming
side effects or conditions that *don't happen with Tegretol use.
I posted below (uncut by either of us until *now) to try to help whoever
had the *original questions and thread wrt. anxiety (emotions) and CP
seizures, and included the Ep. Foundation site in case they needed Tegretol
Info. link/how to **Spell it correctly, so searches don't come up blank.
Your post or the Original one (expired now) had Misspelled it, within Body
of the message.
I've added a few other comments and cut some of the *9KB post below, and
marked mine (for me) with **s. Since I can't tell (at 5th generation now)
if *you started this thread with above subject line or not, I've assumed
since you answered 'for the group' about 'how to post' that you did.
** In future, please save giving me instructions how to use a Public Forum
(see **s below). If you don't want to read my replies, Please-- click
Next, and let the message expire. If I had intended the Reply to be for you
Only, I'd have emailed it to you. / G./
> Thanks GRoss
> I wasn't looking for an explanation or an interpretation of my symptoms or
> nor was I looking for your input on grapefruit and the negative conter
***************************
> effect that it has on a lot of anti siezure meds..
> I was simply trying to help a person that wrote on this website and was
> searching" obviously:" for someone that may understand what he /she is
*******************
> feeling like....
>
> FYI>..
> I am on CR and understand very well the counter effects or stress and lack
> of sleep etc..etc..on lowering one's threshold of haivng a siezure...
> Please in the future if you respond to me or anyone else can you simply
***************************************************************
G- I assumed since you, or the thread starter, didn't know how to **Spell
"Tegretol" ? (see below) that you'd only used it Briefly before **going to
another Med. or hadn't used it at all. Or if that was someone's Olde post
(that I mentioned at start of my reply it Could be), I included the correct
spelling so they could search Usenet and get some hits, they wouldn't get
looking for 'tegritol'. /
> add a footnote that this is your suggested information and opinion...
> ok ; )
**** G. *** Anyone who is Using Usenet would know that wouldn't they? Or
did you not?
> Most of us aren't looking for someone to diagnose us or make assumptions
> of what can effect these ***terribly harsh drugs*** that we all have to
> take....
**G* My "Terribly harsh drugs" control my seizures 100% since 1997 (8
years). You missed the post where at first diagnosis in 1993, I was told to
'hope for 2-3 CP Seizures per *month'.
Your use of phrases like that <*Terribly harsh drugs> above*, suggested a
misunderstanding how a med. should be used correctly or a Bias that might
only be appropriate for a **small percent who are unable to **use that Med.
Mine was a dissenting vote to show 'others', who might be newly
diagnosed, that there is variation in how successful a Med. might be **for
them**. Each of us will react differently to a med. /
We
> are simply" or at least in my case"....trying to touch base with someone
> that has a similar problem that we have and maybe ,,....just maybe can
> relate to how we feel and what we go through on a daily basis...
> Cheers and as always..
> Chin up.
**G* Many people newly diagnosed have not yet seen symptoms of the various
types of seizures, and feelings they might produce. The Deja Vu sensation
is an Illusion produced by Right T.Lobe seizure focus. I don't read minds.
If they describe sensations (auras) that they may not realize come from a
Seizure Type [as opposed to the "terribly harsh drugs" you call them], I
might give them some www addresses they hadn't seen already.
Maybe, just Maybe I can relate to how they feel. I've been in Court, the
cage of a Police Car, a Bus I didn't need, struck by a car, and Emerg about
6 times, from 1993 to 1998.
While assuming you know how some of the *others here might want their
information delivered, you seemed to assume that *I wanted to spend almost
an hour editing and inserting these 'explanations' **for you. Lucky it's
hot and muggy out, cuz that's an hour plus *I'll never get back.
Perhaps it's time this Thread expired. At least I won't be reading it
again. Older stuff below I had already added **s between 1130 and now (1+
PM). I marked my inserts with **s so *I can edit them easier. Some people
don't like that. Some people don't like Chocolate and Strawberries. /G
** G ** PERSON BELOW has had their Email or ID cut out by whoever edited
this They are the ones who spelled Tegretol incorrectly, had used it for 15
years and had experienced the Brain Fog that some dose levels can bring on.
/
>>>> Hi
>>>> I have been taking tegritol for over 15years and I too often have what
[quoted text clipped - 29 lines]
>>>> I often have trouble focusing and jump quickly from one thing to the
>>>> other and forget like crazy...plus slurred speech and tired as hell.>
>> **G* Slurred speech used to mean the Blood Level is temporarily too High.
>> That's why the CR or XR is often used to try balance the levels.
[quoted text clipped - 18 lines]
>>> all. (Or if you wish, 3: Tegretol made these changes in me, and they
>>> will never go away again.)
>> *** Not being a Dr., just someone using Tegretol CR for Complex Partial
***G. ** I WROTE line ABOVE, and QUALIFIES IT AS MY OPINION. I would have
thought that was clear. G./
>> seizures, I'd vote for *2 in your list. *Neither of your meds. (in my
>> opinion) is Causing the symptoms, but may be reducing the number of
[quoted text clipped - 9 lines]
>> I hope that might be of use. (*Note spelling of Tegretol if you want
>> to search that name.) G./
>>> cheers,
>>> ole k
G./ CAUTION Ici my suggested opinion. It's why I used my OWN EMAIL
Addr.+ wrote my OWN MESSAGE myself, so that it wouldn't be confused with
Mr. Bean or Albert Einstein's Posts here. (This will be the only time you
see this para. on this group, as it's silly.) / :-<