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Medical Forum / Diseases and Disorders / Epilepsy / July 2005Absences
Just wondering if someone who has these can tell me their experience leading up to them. I mean the few seconds (up to a minute maybe) just before it happens. Thank you, Beck. > Just wondering if someone who has these can tell me their experience > leading up to them. I mean the few seconds (up to a minute maybe) just > before it happens. > Thank you, > Beck. A few that I had, someone once described here as 'brain-fog' leading up to mine. Sometimes when it was cloudy or ahead of rain (low air pressure) I'd get a foggy feeling like someone was talking to me through a filter or 'fog' so it wasn't clear like normal sound. It'd also get those at times when the low air pressure above didn't apply. That's what made it hard to try find a Consistent way, when those would happen. Many I had (when I was having them), no one else was around, but I'd find scribbling or writing that I didn't remember having written. Once I got the last of the Complex Partial szrs. I was having under control, most of those have stopped now (I think ! :-< ). It was disturbing though finding some notes that were 'gibberish' that I had written while 'away' when those were happening. I think the Absences are grouped under Simple Partial seizures? on websites, so as more control was being reached on the stronger szr. types (my Complex Partials, or Grand Mals), the S.P. ones might tend to be the 'remnants' of what's not controlled yet? if that makes sense. That's why I assume those have stopped, as I'm not finding any of those 'strange' notes now over past ~3? years, and no one I'm around has commented about my 'leaving' the conversation temporarily and returning. (Those were symptoms *I had when mine were happening.) hth G./ Thanks for that. I had those foggy feelings, I also find that on overcast "sad" days I get worse with these problems. I guess I have to brig it up with my doctor again. My last couple of days (Monday late night) I have been having these odd feelings I was getting before. I have been diagnosed with 2 things and these feelings I get are apparently not related to either. Just annoying me that I have to feel this way. Anyway. I haven't written any notes that I don't remember writing, but I have this book I write stuff in when I am feeling on a downer mood and if I go back a few months and read, its kinda weird, doesn't make much sense. But I do remember writing it. I just get my pen, open the book and let my hand go. I haven't really had any absences recently (that I know of) but these feelings I have gotten before every absence, have come back really strongly. Thanks again for that. Beck. >> Just wondering if someone who has these can tell me their experience >> leading up to them. I mean the few seconds (up to a minute maybe) just [quoted text clipped - 21 lines] > commented about my 'leaving' the conversation temporarily and returning. > (Those were symptoms *I had when mine were happening.) hth G./ Howdy Beck! I have absolutely no indications. One second I'm fine. The next second -- as far as any witnesses are concerned -- I'm "lost in space!" The same holds for every type of seizure that I experience. I don't have auras!  SignatureDave ©¿©¬ http://www.howdydave.com > Just wondering if someone who has these can tell me their experience leading > up to them. I mean the few seconds (up to a minute maybe) just before it > happens. > Thank you, > Beck. That must be a pain, not having any indication at all. I find that I get this really odd feeling just before. Problem is that I may get that feeling 100 times and only 5 time I end up "lost in space." I just get on alert when I feel that way. Thanks for the reply, Much appreciated. Beck. > Howdy Beck! > [quoted text clipped - 13 lines] >> Thank you, >> Beck. That's how it has been for me. The weird feeling seemed to come before every seizure (I was getting Complex Partials), but I would get it frequently without a seizure happening. I had right temporal lobe surgery four months ago, and haven't had one since (knock wood). > That must be a pain, not having any indication at all. I find that I get > this really odd feeling just before. Problem is that I may get that feeling [quoted text clipped - 25 lines] > >> Thank you, > >> Beck. I was going to ask my neurologist about this exact topic, but I have felt a lot better since an increase with another medication I am on, (Therefore I don't know if it is related to epilepsy or not now). Its annoying still, I know that. Do you still get that odd feeling (since the operation)? Beck. > That's how it has been for me. The weird feeling seemed to come before > every [quoted text clipped - 37 lines] >> >> Thank you, >> >> Beck. > Just wondering if someone who has these can tell me their experience > leading up to them. I mean the few seconds (up to a minute maybe) just > before it happens. > Thank you, > Beck. Do you ever get any kind of sour or eggy taste, strange dizzy feeling (what I called 'the twilight zone' on another post), or swirling type sensations 3-10 minutes before? Or like Dave, do you just go quickly into a seizure? (The other stuff I described -- taste, aroma etc. is what some sites call an aura -- some people don't get those -- I guess I was 'lucky' since I had time to find somewhere to try lie down, when I finally knew what it was.) Just wondered. (I think I told you? that sometimes 'absences' are listed under simple partial seizures on some sites if you're searching around too. I had absences as I got nearer full control of my Complex Partial type ones. ) G./ Yes I do get the dizzy kind of feeling, It is more like very very severe paranoia and fear mixed up. I once told a doctor it was like: A child gets frightened of the "thing" under the bed (monster or whatever they think it is) and you can have a massive light under there showing there is nothing there, but they still have that "what if..." I get like that. I have to check behind me every few seconds, and then I get the dizzy, then a foggy feeling then I am gone for a bit, then its all good again. But as I said to Dave, I get all those sensations up to the "gone for a bit" and 99% of the time I don't go, I just come out of that feeling and I am ok. This is why I questioned it, I just want to know if these feelings I get are related to my "epilepsy" diagnosis. Thanks for your info (and putting some words to my feelings too, I can use these to describe to my doctors and maybe get them to understand.) Thanks! Beck. > Do you ever get any kind of sour or eggy taste, strange dizzy feeling > (what I called 'the twilight zone' on another post), or swirling type [quoted text clipped - 7 lines] > absences as I got nearer full control of my Complex Partial type ones. ) > G./ Two years ago this Thanksgiving, I was at my sisters house and I was stressed to the limit. Lots of things going on and I was sitting at the bar and had feelings --not an aura exactly--but I knew something was going on with me. I sat there and my sister asked me several time to make myself a plate to take home. My response was okay. and I continued to respond okay to everything she said. My sister told me that I didn't black out or do anything to embarrass myself, but she knew something was happening to me when she asked me, "are you allright?" and I responded with "okay". I also had mini episodes of this at work. It's like you slowly fade and away and come back. Thankfully, I do not drive, and my epilepsy--31 years this month--is more or less controlled with medication--I try to avoid holidays or big gatherings as I don't want to be the "main focus" > Yes I do get the dizzy kind of feeling, It is more like very very severe > paranoia and fear mixed up. I once told a doctor it was like: A child gets [quoted text clipped - 23 lines] >> absences as I got nearer full control of my Complex Partial type ones. ) >> G./ I have only had a couple of absences that were witnessed, the other times I have been on a buss and waiting to get off at my stop when all of a sudden I am 3-4 stops passed mine and I know I wasn't "there" for those few stops. A few things like that have happened. But my paranoia type feelings are really bad at times. I was hospitalised because I wouldn't let my mother out of sight, literally. If I was in the bathroom or toilet, she had to keep talking so I knew she was there. It got really really bad for a while until my doctor found a medication that has almost completely cleared this paranoia up. Before the medication I wouldn't have looked behind me, I'd get my mother to do it when standing near me. I am not 100% sure if that is related to the epilepsy diagnosis or not though. > Two years ago this Thanksgiving, I was at my sisters house and I was > stressed to the limit. Lots of things going on and I was sitting at the [quoted text clipped - 36 lines] >>> I had absences as I got nearer full control of my Complex Partial type >>> ones. ) G./
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