Medical Forum / Diseases and Disorders / Epilepsy / June 2005
Nervous at restaurants?
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FranX - 18 Jun 2005 00:50 GMT I've been diagnosed w/ epilepsy for the last 6 years. My seizure are somewhat controlled, as I don't get any complex partials but still get a host of smaller ones, espesically areas in sound.
Anyways whenever I am in big groups or in restaurants with co-workers i'll always feel anxious, get a major headache, a biz dizzy - but overall I don't feel right. Would this be considered a panic-attack? I think deep down I'm scared to have a major attack in public places and/or in front of co-workers and I think this anxiety has become a pretty powerful force in my life. These days I tend to avoid big group outtings, but when I have to, I always get these same symptoms.. it is very uncomfortable and makes me paranoid.
I dont know if this is related to my epilepsy or is an entirely different issue. I mentioned this to my doctor but he brushed it off. So i'm asking people here..am I having panick attacks because i'm an epileptic? is there a pills even though i'm taking enough..i'd like to know since I'd like to be more involved in big group outtings and actually have something to say rather then breaking into major sweats and getting short on breath.
Thanks for listening!
Julie - 18 Jun 2005 06:39 GMT I used to have what appeared to be panic attacks and my neurologist said this was actually a type of seizure. I was experiencing tonic clonic seizures and this was another type of seizure. It was a scared strange feeling that would come over me. Now when I go out to dinner if the atmosphere is too loud or I don't feel comfortable, I prefer to move to a different location, or leave. My husband and I both enjoy quiet little places.
Take care, Julie
> I've been diagnosed w/ epilepsy for the last 6 years. My seizure are > somewhat controlled, as I don't get any complex partials but still get [quoted text clipped - 18 lines] > > Thanks for listening! CyberCafe - 18 Jun 2005 08:50 GMT > I've been diagnosed w/ epilepsy for the last 6 years. My seizure are > somewhat controlled, as I don't get any complex partials but still get [quoted text clipped - 3 lines] > i'll always feel anxious, get a major headache, a biz dizzy - but > overall I don't feel right. Would this be considered a panic-attack? I
> think deep down I'm scared to have a major attack in public places > and/or in front of co-workers and I think this anxiety has become a > pretty powerful force in my life. These days I tend to avoid big group > outtings, but when I have to, I always get these same symptoms.. it is > very uncomfortable and makes me paranoid.
> I dont know if this is related to my epilepsy or is an entirely > different issue. Everything you said can be part of the whole complex partial seizure package. For some people, and I include myself, there are things going on before and in-between seizures. A lot of people don't notice a person having simple partials or complex partials unless you have some unusual automations or wander off into the middle of traffic and stuff like that. I've seen people with some automations that really just looked like normal stuff.
I mentioned this to my doctor but he brushed it off.
You might have to find another doctor who is a little more aggressive in your treatment. Are you using an epilepsy center? I think there is a world of difference as far as staff attitude goes in our epilepsy center.
> So i'm asking people here..am I having panick attacks because i'm an > epileptic? is there a pills even though i'm taking enough..i'd like to > know since I'd like to be more involved in big group outtings and > actually have something to say rather then breaking into major sweats > and getting short on breath. You know, I couldn't tell from your first description at the top whether you were having panic attacks or not. To me, a panic attack comes on very, very fast and I sort of have the urge to get out of that environment right now. There isn't a lot of stuff happening before the panic attack either; it just hits you out of the blue. You sort of get an adrenalin push too with a panic attack. It doesn't really matter if it is a panic attack or not because it sounds like some breakthrough seizure symptoms are happening to you.
There are a whole bunch of things to consider or look at because you are noticing repeated episodes of the same symptoms in similar circumstances. Are you getting enough sleep before the event. Are you staying up too late. What about the appearance (lighting, patterns, colors, etc.) and sounds in that environment. What about the ride to the event. There could be a million things from the environment that are irritating your brain at those times, in that environment, but it doesn't really matter because we shouldn't have to live in such a tightly regimented environment.
Barb .
> Thanks for listening! Mary Fisher - 18 Jun 2005 09:51 GMT > There are a whole bunch of things to consider or look at because you are > noticing repeated episodes of the same symptoms in similar circumstances. [quoted text clipped - 5 lines] > because we shouldn't have to live in such a tightly regimented > environment.
> Barb Barb, I'm not challenging what you say but I'm interested to know what you mean by "we shouldn't have to live in such a tightly regimented environment."
This is a very interesting statement and could be worth developing.
Mary
> . >> >> Thanks for listening! CyberCafe - 18 Jun 2005 17:58 GMT >>There are a whole bunch of things to consider or look at because you are >>noticing repeated episodes of the same symptoms in similar circumstances. [quoted text clipped - 13 lines] > > This is a very interesting statement and could be worth developing. Glad you asked the question, Mary. You know, I wasn't feeling real great when I wrote that, but I guess it's my true feelings coming out. I mean, some of us have to avoid so much stuff, normal stuff, to prevent those triggers from provoking a seizure. If I am in my own home, I can control the things that bug my brain, but I can't control anything outside my house. I think a person will start avoiding the things/places they suspect make them feel worse.
My home environment is very restricted as far as appearance goes. Neutral colors, very few patterns because I know at times too much visual stimulation doesn't help my brain at all. I can avoid things outside my home by choosing not to go to those places, but that puts limitations on my activities. Sometimes you just don't know what the environment is like until you get there and then what do you do.
It would just be nice to not have to even think about the environment, to plan in advance, to figure out how to back out gracefully if you do get into a bad environment, and all that stuff.
Barb
> Mary > >>. >> >>>Thanks for listening! Mary Fisher - 18 Jun 2005 21:42 GMT >>>There are a whole bunch of things to consider or look at because you are >>>noticing repeated episodes of the same symptoms in similar circumstances. [quoted text clipped - 21 lines] > house. I think a person will start avoiding the things/places they suspect > make them feel worse. Oh, I see. Sadly, we can't expect the world to change to fit our preferences
:-( > [quoted text clipped - 4 lines] > my activities. Sometimes you just don't know what the environment is like > until you get there and then what do you do. Leave ... my brain is not, as far as I know, affected by bright colours or shapes or loud noise but I do find them irritating at best and unbearable at worst - from an aesthetic viewpoint. I never go in a shop which is playing loud music- or any music come to that. I only visit a place once which has garish or what I call ziggy zaggy patterns. It does mean that we don't go out much except to historical events.
Mediaeval people loved colour and music but somehow they're harmonious and relaxing rather than stimulating. We live in the wrong age!
> It would just be nice to not have to even think about the environment, to > plan in advance, to figure out how to back out gracefully if you do get > into a bad environment, and all that stuff. Oh, forget the graceful bit, just back out! You'll gain a reputation as a crank - but it's the cranks which make the wheels go round :-)
And you'll enjoy life more!
Mary
> Barb > [quoted text clipped - 3 lines] >>> >>>>Thanks for listening! CyberCafe - 19 Jun 2005 02:23 GMT >>>>There are a whole bunch of things to consider or look at because you are >>>>noticing repeated episodes of the same symptoms in similar circumstances. [quoted text clipped - 48 lines] > Oh, forget the graceful bit, just back out! You'll gain a reputation as a > crank - but it's the cranks which make the wheels go round :-) I'm pretty sure I already have a reputation as a cranky person : )
Barb
> And you'll enjoy life more! > [quoted text clipped - 7 lines] >>>> >>>>>Thanks for listening! Mary Fisher - 19 Jun 2005 08:58 GMT > I'm pretty sure I already have a reputation as a cranky person : ) I suspect there are more of us than is known ... <G>
Mary
Dave ©¿©¬ - 19 Jun 2005 17:25 GMT > > I'm pretty sure I already have a reputation as a cranky person : ) > > I suspect there are more of us than is known ... <G> > > Mary Speak for yer'self there girley girl! Grrrrrr... :-(
 Signature Dave ©¿©¬
http://www.howdydave.com
Mary Fisher - 19 Jun 2005 17:35 GMT >> > I'm pretty sure I already have a reputation as a cranky person : ) >> [quoted text clipped - 4 lines] > Speak for yer'self there girley girl! > Grrrrrr... :-( Hey! No names, no pack drill.
Dave, you're as normal as the next man.
<chortle>
Mary
owlvee - 19 Jun 2005 17:36 GMT >>>I'm pretty sure I already have a reputation as a cranky person : ) >> [quoted text clipped - 4 lines] > Speak for yer'self there girley girl! > Grrrrrr... :-( Yea, speak for yourself young lady!!! I don't want to be "suspect" in this case!!! I'm almost sure the rest of us are most definitely calm and collected as can be:) Just ask anyone!!!! ~..~ owlvee
Mary Fisher - 19 Jun 2005 19:49 GMT >>>>I'm pretty sure I already have a reputation as a cranky person : ) >>> [quoted text clipped - 9 lines] > us are most definitely calm and collected as can be:) > Just ask anyone!!!! OK OK OK!
None of you is weird.
You're all as boring - sorry - normal as everyone else.
Except me and Cybercafe.
We're weird.
We're cranky.
No-one else in the whole wide world is.
We're not normal.
We're not suspect.
I have spoken.
So there.
Mary
Challenge me if you dare!
> ~..~ > owlvee turbinado - 19 Jun 2005 23:01 GMT I take pride in being weird and cranky. So there!
> >>>>I'm pretty sure I already have a reputation as a cranky person : ) > >>> [quoted text clipped - 38 lines] > > ~..~ > > owlvee Mary Fisher - 20 Jun 2005 16:27 GMT >I take pride in being weird and cranky. So there! You listening, Dave?
Mary
Tinker - 20 Jun 2005 00:47 GMT I'm so weird that I've bent all the way around to being accepted as normal again. :) Naaaaaahhh I really weird and cranky.
Tinker
: OK OK OK! : [quoted text clipped - 21 lines] : : Challenge me if you dare! Mary Fisher - 20 Jun 2005 16:49 GMT > I'm so weird that I've bent all the way around to being accepted as normal > again. :) > Naaaaaahhh I really weird and cranky. Another one for Dave ...
Mary
> Tinker -=Biscuit=- - 22 Jun 2005 20:13 GMT Sun 19 Jun 2005 04:47:56p:
> I'm so weird that I've bent all the way around to being > accepted as normal again. :) > Naaaaaahhh I really weird and cranky. I can vouch for that ;-)
 Signature -=Mara=-
Come to the dark side....we have cookies.
I reject your reality, and substitute it with my own!
CyberCafe - 20 Jun 2005 18:58 GMT >>>>>I'm pretty sure I already have a reputation as a cranky person : ) >>>> [quoted text clipped - 31 lines] > > So there. The above description fits me to a T. So there! Barb
> Mary > > Challenge me if you dare! > >>~..~ >>owlvee Mary Fisher - 20 Jun 2005 19:59 GMT >>>>>>I'm pretty sure I already have a reputation as a cranky person : ) >>>>> [quoted text clipped - 33 lines] > > The above description fits me to a T. So there! Right.
When do we have our Convention?
Mary
> Barb >> >> Mary CyberCafe - 21 Jun 2005 00:27 GMT >>>>>>>I'm pretty sure I already have a reputation as a cranky person : ) >>>>>> [quoted text clipped - 37 lines] > > When do we have our Convention? Yeah, wouldn't that be fun. Now I have another thing to add to my lottery list; that is, what to do with the money if we ever win. Fly everybody in from this group and have a big party. Only problem is we never play the lottery.
Barb
> Mary > >>Barb >> >>>Mary Mary Fisher - 21 Jun 2005 09:16 GMT >> When do we have our Convention? > > Yeah, wouldn't that be fun. Wonderful! Especially with all of us spinning and twitching atthe same time
:-)
> Now I have another thing to add to my lottery list; that is, what to do > with the money if we ever win. Fly everybody in from this group and have > a big party. Only problem is we never play the lottery. Hmm. Since the UK lottery was started we're over a thousand pounds better off*
So I could afford to pay my own fare :-)
Mary
* by not buying a ticket each a week
Tinker - 21 Jun 2005 18:22 GMT : >> When do we have our Convention? : > : > Yeah, wouldn't that be fun. : : Wonderful! Especially with all of us spinning and twitching atthe same time : :-) Let's play Twister !
Tinker
Patsy and Darryl - 19 Jun 2005 23:57 GMT >> I've been diagnosed w/ epilepsy for the last 6 years. My seizure are >> somewhat controlled, as I don't get any complex partials but still get [quoted text clipped - 21 lines] > I've seen people with some automations that really just looked like normal > stuff. Nice to see that there are actually people in this group who accept that you don't necessarily drop unconscious when having a complex partial. With mine I always rub my head and if it's a mild seizure people often don't realise or just think I have a headache or something. Often though, I spin round in circles screaming and laughing hysterically and the head rubbing is frantic and hands are shaking then become clenched fists and I want to hit someone or something - have bruised the knuckles on a few things around the house, but so far managed not to hit anyone. (Oh, but I did beat up three guys once, straight after a seizure whilst still feeling violent, thinking they had been laughing at me when they actually hadn't. :( That was the most embarrassing thing I've ever done).
I used to get panic attacks every time I went out in public. I guess it was largely because of the frequency of my seizures (several times a day) meaning there was a good chance I would have one in public. The panic attacks consisted of shortness of breath, feeling of "I gotta get outta here", and strong adrenalin rush which is also part of the feeling I get before a complex partial so made it even worse. I got to the point where I couldn't even go out to my mail box without turning and running back for the safety of the house. Eventually I saw how it was affecting my life so much and forced myself out in public, small steps at a time and over a period of time was able to resume a semi-normal life again. I figure if I have a seizure in public, so what? If people are freaked out by it that's their problem. I've also managed to educate a number of people about epilepsy by having a seizure in front of them then getting in conversation with them about what just happened :) My wife and I visit our best friends who joke with me about my seizures and are always saying they've been ripped off if I have a small seizure in front of them as they want to see me have a "spinny screamy one".
Darryl.
> I mentioned this to my doctor but he brushed it off. > [quoted text clipped - 31 lines] >> >> Thanks for listening! Tinker - 20 Jun 2005 00:44 GMT <snipped>
My wife and I visit our best friends who joke with me about my seizures and are always saying they've been ripped off if I have a small seizure in front of them as they want to see me have a "spinny screamy one".
Now THAT'S funny. :)
Tinker
Patsy and Darryl - 20 Jun 2005 04:48 GMT > <snipped> > [quoted text clipped - 7 lines] > > Tinker Lol. Laughing at yourself is always better than crying at your misfortune. Makes life much more fun.
Darryl.
Tinker - 20 Jun 2005 17:13 GMT : > <snipped> : > [quoted text clipped - 12 lines] : : Darryl. Now I want to have spinny screamy ones. People act like I do any way, so I might as well give them a good show ! :)
Tinker
Mary Fisher - 20 Jun 2005 18:27 GMT > : > <snipped> > : > [quoted text clipped - 17 lines] > Now I want to have spinny screamy ones. People act like I do any way, so I > might as well give them a good show ! :) You could make them up. No-one would know they weren't real and you'd have the fun of seeing people's reactions during it :-)
Now that WOULD be weird :-)
Mary
Mary
> Tinker Tinker - 20 Jun 2005 19:46 GMT : > : > <snipped> : > : > [quoted text clipped - 26 lines] : : Mary Sounds like some old Monty Python Skit were the guy hears a certain word and has to pull a bag over his head and hear people sing a certain song until he recovers.
I was on Amtrak a couple of months ago and there was a guy going around telling EVERYONE that he had epilepsy and could have a seizure 'any second' . I want to pummeled him for continuing the stigma and fear people have about E. I swore if I ever met him again I was going to glue a strobe light to his forehead just to make sure he had all the seizures he wanted.
On a better note, I suppose a made up seizure could get you out of paying an expensive restaurant bill. just tip backwards in your chair and scream and thrash till they haul out out. :)
Tinker
Mary Fisher - 20 Jun 2005 20:01 GMT > : > Now I want to have spinny screamy ones. People act like I do any way, > so [quoted text clipped - 14 lines] > he > recovers. I don't know that. I saw a few MPs but we only had a television for a short time.
> I was on Amtrak a couple of months ago and there was a guy going around > telling EVERYONE that he had epilepsy and could have a seizure 'any > second' > . I want to pummeled him for continuing the stigma and fear people have > about E. You could have made a great double act ...
> I swore if I ever met him again I was going to glue a strobe light > to his forehead just to make sure he had all the seizures he wanted. And you didn't?
> On a better note, I suppose a made up seizure could get you out of paying > an > expensive restaurant bill. just tip backwards in your chair and scream and > thrash till they haul out out. :) LOL!
Hmm, I was tempted, but I don't think eating in a restaurant is worth it - I love cooking and eating at home :-)
Mary
-=Biscuit=- - 22 Jun 2005 20:14 GMT Mon 20 Jun 2005 09:13:30a:
> Now I want to have spinny screamy ones. People act like I do > any way, so I might as well give them a good show ! :) Only during making love :)
 Signature -=Mara=-
Come to the dark side....we have cookies.
I reject your reality, and substitute it with my own!
G.Ross - 22 Jun 2005 21:01 GMT You might have run this through an anonymizer which *most of us don't here, to make this look like it's from mara at no-address dot com, but you have the same isp as tinker? why's that? There aren't that many people here using 'supernews' (in headers below at top of message posted).
And I'd bet removing source identifier mail violates the TOS of both supernews (headers end is source of below) and giganews.
Perhaps you can find another group to play on. / Headers of earlier poster (why'd Tinker show up *twice in the headers, as earlier poster, and 2nd one? Two addresses off same computer? ) -->
Path: border1.nntp.dca.giganews.com!nntp.giganews.com!in.100proofnews.com!in.100proofnews.com!mtu.ru!sn-xit-04!sn-xit-08!sn-post-01!supernews.com!news.supernews.com!not-for-mail From: "-=Biscuit=-" <mara@no-address.com> Newsgroups: alt.support.epilepsy Subject: Re: Nervous at restaurants? Date: Wed, 22 Jun 2005 12:14:48 -0700 Organization: Do I really need one? Message-ID: <Xns967D7C948AA27no.one@foo_blah_bar.com> ************************ Anonymizer ? *************
References: <1119052237.950216.140240@g14g2000cwa.googlegroups.com> <42b3d1a7_2@newspeer2.tds.net> <%Kmte.8579$U4.1175764@news.xtra.co.nz> <11bc0qrki2hrie4@news.supernews.com> <40rte.8620$U4.1178920@news.xtra.co.nz> <11bdqp7cofcnh50@news.supernews.com> *****************************************
User-Agent: Xnews/4.06.22 X-Face: 1~gL/xBm:y1J>b%b\Rt5S-pF[r@HA"k$2GqG31z)_n!`eZf9WmF7oXuvU,n]CmU!HElQ?^t]iB&pTr3mU@Ox}!N$r5\ydLZ=$_6cE;]e^H8H{^+O6-YGx>/vj#(=Q6Nw[&hub?I-]MG,`4}2Hs9DHYghv/t/%T1^9A2])W^j39RuQM<:koRmb$>^*L?!6wUM6PE362"iDm}lQlJ%rLRx&sjm\fO@~Ti][ruvkDh"FN*0WrbbvNkA.`]$"Ncg%3xyWVE_D=BKGWe}O:S*{d5f:]HW"e2|jIg&*8a2sC&;&2GcESf-:lYvRF*-Y7 X-Headers: Headers? I don't need no stinkin headers! ********************************************
X-Tinker: Today, tomorrow, and forever ***************************************** How'd this get here among 'sender' info.?
X-All-My-Love: is belonged to Tinker :) X-Have-pineapple: will travel X-Cowboys: only ride for 8 seconds, Indians can ride ALL day (paraphrased, dear) X-All-It-Took: was a phone call, and a rainbow X-The-Better-Man: Won. X-Plato-Knew: What he was talking about AFTER all. Who knew? X-hibitionist-One-Rule: ALAWBF before the police show up *g* X-Rated: All the WAY, babeeeeeeeeeee! X-How-Bad: can you be? Are you READY for the answer to that question? lol X-Doc: Number One vBro of all time, but he makes one PISS POOR lapdog! X-Sweet-Little-White-Girl: That be me! X-White-Picket-Fence: Lrf...vs jr ohvyq vg gbtrgure X-Holy-Crap: It's a talking biscuit!!! X-Antivirus: avast! (VPS 0525-2, 06/22/2005), Outbound message X-Antivirus-Status: Clean X-Complaints-To: abuse@supernews.com **************************************** Lines: 17 Xref: number1.nntp.dca.giganews.com alt.support.epilepsy:68962
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> Mon 20 Jun 2005 09:13:30a: > >> Now I want to have spinny screamy ones. People act like I do >> any way, so I might as well give them a good show ! :) > > Only during making love :) Tinker - 23 Jun 2005 01:49 GMT Biscuit is my fiancée's and we have a home network and hardware firewall. That's why we have the same isp. She uses Xnews a free newsreader, which lets you change headers. Actually this group has been great at helping her understand E and all it's various flavors. Occasionally she just *has* to flirt with me online. :)
Tinker
: You might have run this through an anonymizer which *most of us don't here, : to make this look like it's from mara at no-address dot com, but you have : the same isp as tinker? why's that? There aren't that many people here : using 'supernews' (in headers below at top of message posted). -=Biscuit=- - 23 Jun 2005 09:19 GMT Wed 22 Jun 2005 05:49:06p:
> Biscuit is my fiancée's and we have a home network and hardware > firewall. That's why we have the same isp. Thank God! I was *hoping* there was an easy explaination!
> She uses Xnews a > free newsreader, which lets you change headers. > Actually this group has been great at helping her understand E > and all it's various flavors. Occasionally she just *has* to > flirt with me online. :) "Occasionally"????
 Signature -=Mara=-
Come to the dark side....we have cookies.
I reject your reality, and substitute it with my own!
-=Biscuit=- - 23 Jun 2005 09:16 GMT Wed 22 Jun 2005 01:01:51p:
> You might have run this through an anonymizer which *most of us > don't here, to make this look like it's from mara at no-address [quoted text clipped - 10 lines] > poster (why'd Tinker show up *twice in the headers, as earlier > poster, and 2nd one? Two addresses off same computer? ) --> Jesus...maybe you should try decaffienated coffee?
1. "mara at no-address dot com" happens to be a valid email...not that Supernews requires it. AFAIK, only the formerly free German server requires/required posters to use a valid email address.
2. I'll "play" in any unmoderated ALT group I wish. Oddly enough...I was invited here.
3. Damn, caught me. I use Supernews...so does Tinker. So do like half a million OTHER usenet posters. ANd OMG, Tinker's in my headers! How'd THAT happen? WTF? And holy crap, lookie there! I'm in HIS!!! Whatever could THAT mean?
4. Learn to read headers correctly.
Ya wanna be all paranoid as sh.t, your choice. You just MIGHT try something next time it strikes you. Do a Google search. You might find out quite a lot, and possibly stop yourself from looking like a paranoid ninnie.
I do, however, find it very sweet that you're in some quirky way "defending" Tinker. And also nice to see that if some anonymous tart showed up and flirted with him....you'd be all over her sh.t.
Only I'm not just any anonymous tart. I happen to live with him, and after Oct 1st...you may call me his wife *grin*
 Signature -=Mara=-
Come to the dark side....we have cookies.
I reject your reality, and substitute it with my own!
-=Biscuit=- - 23 Jun 2005 09:17 GMT Wed 22 Jun 2005 01:01:51p:
> X-Tinker: Today, tomorrow, and forever > ***************************************** How'd this get here > among 'sender' info.? Oh, and one more thing... it's called "custom headers." It's possible with a real newsreader
:)
 Signature -=Mara=-
Come to the dark side....we have cookies.
I reject your reality, and substitute it with my own!
Mary Fisher - 20 Jun 2005 16:51 GMT > Nice to see that there are actually people in this group who accept that > you don't necessarily drop unconscious when having a complex partial. With [quoted text clipped - 7 lines] > violent, thinking they had been laughing at me when they actually hadn't. > :( That was the most embarrassing thing I've ever done). I'm not laughing, honestly ...
<smirk>
...
> Eventually I saw how it was affecting my life so much and forced myself > out in public, small steps at a time and over a period of time was able to > resume a semi-normal life again. I figure if I have a seizure in public, > so what? If people are freaked out by it that's their problem. That's my attitude about everything.
> I've also managed to educate a number of people about epilepsy by having a > seizure in front of them then getting in conversation with them about what > just happened :) Well done!
> My wife and I visit our best friends who joke with me about my seizures > and are always saying they've been ripped off if I have a small seizure in > front of them as they want to see me have a "spinny screamy one". LOL!
Nice post, thanks,
Mary
Tinker - 18 Jun 2005 18:37 GMT I can have petite mals when over stimulated by all the noise, multiple conversations going on at once and my attention being pulled in a hundred directions. I try to concentrate On one person the entire meal so I don't overload.
Tinker still having night seizures just added another notch to my tongue
: I've been diagnosed w/ epilepsy for the last 6 years. My seizure are : somewhat controlled, as I don't get any complex partials but still get [quoted text clipped - 18 lines] : : Thanks for listening! G.Ross - 18 Jun 2005 19:23 GMT > Tinker > still having night seizures > just added another notch to my tongue If you're due for a Dental Checkup, you could ask your Dentist for a quote for fitting of an 'Occlusal Splint'. That's a soft plastic semi-circle that fits snuggly over top teeth at night time. It keeps teeth from grinding during night or damaging tongue if you're having minor seizures as you sleep. Canadian Dollars, fitting (tooth impressions) and Lab cost is *about $240, that includes first 'splint'. Replacement splints can be made from the first impression 2-3x over next ~2+ years for about $40. (I needed a new one each ~8 months at first, now they last 20-30 months each -- presumably the night-time grinding or seizures have almost stopped.) My Dentist said for Kids (whose jaws grow so quickly) or a Text version, you could go to a Hockey or Soccer (Sports) Store and get the kind they sell for Goalies. These are clear 'plastic' that fit over both Top and Bottom teeth in one unit. Cut it in half horizontally, at joint, since you need only cover the Top teeth to prevent damage above. Now you have 2. These cost about $30.? in Canadian Dollars, considerably less. It can take 2-3? nights, or less, to get used to, then you won't notice it's there. When I wasn't controlled I'm sure that prevented tooth damage during nocturnal szrs. before I was controlled. Because it 'blunts' the cutting surface between top and bottom teeth, it also protects tongue from damage during a nocturnal szr. G./
Tinker - 18 Jun 2005 20:27 GMT I have one, but I spit it out at night. For some reason I get this feeling that 'something is in my mouth' and have to take it out. This happens when I'm not fully awake, so it usually ends up stuck in my hair or on the bed some where. Maybe if I duct tape it in it will stay. :) Thank you for the suggestion.
Tinker
: > Tinker : > still having night seizures : > just added another notch to my tongue : > : If you're due for a Dental Checkup, you could ask your Dentist for a quote G.Ross - 18 Jun 2005 21:40 GMT Is that an 'off the shelf' (cheap) type, like I suggested below, or the Dental fitted one? The Dental one is factory-made to match your teeth, and lock snuggly in place. The hollow 'inside' is the same shape as the teeth it's going over. I've never had one come loose (of 3-4 since 1993), when they're 'slipped' into place. I just mentioned the 2-3 nights to get used to, since that's what happened with the First one I had made. I had trouble sleeping the first 2-3 nights with the extra 'thing' in place, but it didn't come loose. G./
>I have one, but I spit it out at night. For some reason I get this feeling > that 'something is in my mouth' and have to take it out. This happens when [quoted text clipped - 9 lines] > : If you're due for a Dental Checkup, you could ask your Dentist for a > quote Tinker - 18 Jun 2005 22:20 GMT : Is that an 'off the shelf' (cheap) type, like I suggested below, or the : Dental fitted one? I have a cheap one, a dental fitted one, and one that is like a thin cap over my teeth that's custom fitted. I spit them all out. Annoying, considering the money I put into them :(
Tinker
G.Ross - 18 Jun 2005 23:25 GMT > : Is that an 'off the shelf' (cheap) type, like I suggested below, or > the [quoted text clipped - 5 lines] > > Tinker Well the last szrs. I was having were nocturnal, and the last of those now was mid-1998 (7 years).
I haven't changed pill dosage since ~1996, and was told in 1993 that 1-2 szrs. per month might be a hoped-for target, based on MRIs and CAT scans done then. (I have a Dental Insurance Plan, so was only able to estimate the cost, and when the last Splint was fitted, as a percent of total costs are paid by the insurer. ) The soft plastic prevented the tooth grinding, and potential damage that would have been a higher risk for my (C.P.) type of szrs. while we were getting them under control from onset (1993) to 1997+. /G.
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