Does anyone know about the surgeries that are supposed to control
seizures? Has anyone had a successful/positive experience with surgery?
My 8 year old son recently began experiencing severe epilepsy and his
neurologist has seriously been considering surgery as a viable option
for him. I just read an article that talks about neurological surgery
in a really positive light. Yet, something about it makes me uneasy.
Sending my 8 year old under the knife scares me.
-George
Here's the article. it's at heatlh.dailyenwscentral.com
epilepsy surgery seizures
At 30 years, 14 of the 48 study participants were free of seizures and
taking no epilepsy drugs; 10 people were free of seizures while taking
epilepsy medication.
People who had epilepsy surgery continued to do well long after having
their procedures -- even up to 30 years later -- according to anew
study published in the June 14 issue of Neurology, the scientific
journal of the American Academy of Neurology.
"Few studies have looked at the long-term prognosis for epilepsy
surgery," said neurologist and study author William H. Theodore, MD, of
the National Institute of Neurological Disorders and Stroke in
Bethesda, Md.
"We found that 50 percent of the patients were free of seizures 30
years after the surgery," he added.
Temporal Lobectomy
In epilepsy, surgery generally is considered for those whose seizures
do not respond to medication. The study involved people who had a
temporal lobectomy, which is the surgical removal of the portion of the
brain where seizures most often occur.
The study examined 48 people who had a temporal lobectomy at the
National Institutes of Health in Bethesda an average of nearly 30 years
previously. The patients or their families were questioned about
whether they had experienced seizures at one year after the surgery,
and at five, 10, and 30 years after the surgery.
Good Prognosis
At 30 years, 14 people were free of seizures and taking no epilepsy
drugs; 10 people were free of seizures while taking epilepsy
medication. Those who had seizures within the first year after surgery
were least likely to be free of seizures in the future.
"These results suggest a good prognosis for long-term seizure control
after temporal lobectomy," Theodore said.
The American Academy of Neurology, an association of more than 18,000
neurologists and neuroscience professionals, is dedicated to improving
patient care through education and research.
A neurologist is a doctor with specialized training in diagnosing,
treating and managing disorders of the brain and nervous system, such
as Alzheimer's disease, epilepsy, Parkinson's disease, multiple
sclerosis and stroke.
here's the link to the actual article
http://health.dailynewscentral.com/content/view/0001051/31//epilepsy_surgery.html
Dave ©¿©¬ - 15 Jun 2005 05:05 GMT
Howdy!
IMO: A study consisting of only 48 people (all in Bethesda) is not a broad
enough study to provide statistically sound conclusions.

Signature
Dave ©¿©¬
http://www.howdydave.com
> Does anyone know about the surgeries that are supposed to control
> seizures? Has anyone had a successful/positive experience with surgery?
[quoted text clipped - 57 lines]
>
> here's the link to the actual article
http://health.dailynewscentral.com/content/view/0001051/31//epilepsy_surgery.html
Patsy and Darryl - 15 Jun 2005 05:34 GMT
Hi George,
I had a partial right temporal lobectomy (they took a piece of my right
temporal lobe about the size of a golf ball) in 1999.
My recovery only took a couple of months although they predicted it would
take about six months. During recovery I had almost constant headaches,
which wasn't very comfortable, but it was worth it.
Immediately after the surgery my complex partial seizures went from 10 - 15
a day down to 1 every week or two.
For me this was a huge resounding success.
But my neurologist in all his wisdom then decided to try me on some new drug
I hadn't had before (can't remember what it was) to try to get rid of the
few remaining seizures.
Once I started on those my seizures went back to the way they had been prior
to the surgery, 10 to 15 a day.
It wasn't until a year or two later that I got onto Neurontin which has
slowed them down to about 3 - 5 a day which is the best I've been in 31
years (apart from the few months after surgery where I was having fewer).
As far as the risk of going under the knife is concerned, I was told that
there's a 2% chance of death on the operating table, so it's more risky
driving to the hospital than having the operation.
Cheers
Darryl.
> Does anyone know about the surgeries that are supposed to control
> seizures? Has anyone had a successful/positive experience with surgery?
[quoted text clipped - 58 lines]
> here's the link to the actual article
> http://health.dailynewscentral.com/content/view/0001051/31//epilepsy_surgery.html
Liz & Allan MacDonald - 15 Jun 2005 11:59 GMT
George, I've had surgery and I remain seizure-free almost six years
later. Your son would need a lot of testing to determine whether his
seizures originate at a single focus which can be removed without damage
to other functions. Having that testing done DOES NOT compel you to go
through with the surgery, even if he is a candidate.
Are you near an epilepsy surgery center? This isn't a job for any old
neurosurgeon. Mine was done at Mass. General.
Liz
> Does anyone know about the surgeries that are supposed to control
> seizures? Has anyone had a successful/positive experience with surgery?
[quoted text clipped - 4 lines]
> Sending my 8 year old under the knife scares me.
> -George
Richard Stickman - 16 Jun 2005 05:40 GMT
Hello George,
I would urge you to endeavour to look at the Cornell Univerity/Presbyterian
Hospital on the internet in New York City
It heartens me to see that your son is under the care of a neurologist.
I have had epilepsy surgery 4(four) times; and am due for more soon. Search
with Google for 'Vagal Nerve Stimulator', I have one implanted in my chest
as my surgery was not successful:( but hey, I am a difficult customer. :).
But I am hard to please.
all the best to you and your son,
Rich. (Australia.)
> Does anyone know about the surgeries that are supposed to control
> seizures? Has anyone had a successful/positive experience with surgery?
[quoted text clipped - 58 lines]
> here's the link to the actual article
> http://health.dailynewscentral.com/content/view/0001051/31//epilepsy_surgery.html
Dave ©¿©¬ - 16 Jun 2005 08:13 GMT
> Does anyone know about the surgeries that are supposed to control
> seizures? Has anyone had a successful/positive experience with surgery?
[quoted text clipped - 57 lines]
>
> here's the link to the actual article
http://health.dailynewscentral.com/content/view/0001051/31//epilepsy_surgery.html
Howdy George!
I was on the track for epilepsy surgery at one time. During my pre-surgery
testing it was discovered that I have focii and triggers in BOTH temporal
lobes and I was disqualified as a candidate.
Can't amputate BOTH sides of your brain don'cha know... :D

Signature
Dave ©¿©¬
http://www.howdydave.com
turbinado - 17 Jun 2005 02:00 GMT
See my post in the previous thread - I had surgery 3 months ago, and now am
feeling fine. I was having a CP seizure every week or so, and haven't had
one since the surgery. It was a hard decision, but the risk seemed worth it
compared to the prospect of a lifetime on ever-increasing doses of
anticonvulsants.
> Does anyone know about the surgeries that are supposed to control
> seizures? Has anyone had a successful/positive experience with surgery?
[quoted text clipped - 57 lines]
>
> here's the link to the actual article
http://health.dailynewscentral.com/content/view/0001051/31//epilepsy_surgery
.html
mick_476@comcast.net - 20 Jun 2005 03:23 GMT
George,
Go to my site. It has all the info about my surgery. I had a left
temporal lobectomy almost 11 years ago and have been seizure free
since. I would say to go for it if your son is eligible. You will see
the link on the page to email me if you have any additional questions.
http://www.highego.com/aboutme/epilepsy.htm
>Does anyone know about the surgeries that are supposed to control
>seizures? Has anyone had a successful/positive experience with surgery?
[quoted text clipped - 58 lines]
>here's the link to the actual article
>http://health.dailynewscentral.com/content/view/0001051/31//epilepsy_surgery.html
Rewired - 21 Jun 2005 22:21 GMT
George,
I was diagnosed with epil at 8 months old, am now 42. Before my surgery
I was having over a 1000 seizures a year. now after having the right
hippocampus removed, they are down to 1-2 a year.
I had my presurgery testing down at UC San Fran and the surgery at
kaiser redwood City.
Even if you are disqualified at a canidate, you will learn more about
your sons epil.
Chris