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Medical Forum / Diseases and Disorders / Epilepsy / June 2005Audio Changes and Epilepsy
Hi guys, I was wondering if anybody here has run into audio/sound hallucinations with their epilepsy? Mine is quite frightening, i'd like to share it and hopefully someone else knows of this condition. Imagine talking, then you here your voice and it 10 times lounder in your head, like your screaming, even though the people around you hear you at the same normal voice level. Imagine hearing a LONG ringing sound for 30-50 seconds in your left or right ear for no reason. The same kind of ring you would get when you turn on the TV late at night when no program is on or those TV emergency broadcast systems. That long annoying beep. How about hearing voices, minor voices that really can't be made out. You know its not real, yet they persist. These are some of the attacks I get and its getting on my nerves. I've tried Dilantin, Topamax, Lamictal, Keppra. I've tried yoga, deep breathing practiced. I haven't drank any alcohol (though i'm dying for a beer) for over 2 years. But yet, I still get this from time to time. My doctor has advised surgeory, which I am totally against. That would be mean no car and no memory. I hope everyone else here is doing fine either as a parent, patient, or conquerer of the disease. Thanks for listening. Hi Franx, I don't exactly have that problem you mentioned but I do get very strange feelings (which have sometimes been followed by my absence thing) when certain music is on. It may be a song today, but a different one tomorrow. This feeling has only stayed constant with one song my cousin showed me. Snoop Dog "Drop it while its hot." I get all cold shivers and funny sensations in my head when it starts. I have heard long beeping noises, but apart from that, nothing else you have described. I hope you can get yourself sorted out too. Beck. > Hi guys, > [quoted text clipped - 27 lines] > I hope everyone else here is doing fine either as a parent, patient, or > conquerer of the disease. Thanks for listening. > Hi guys, > [quoted text clipped - 13 lines] > How about hearing voices, minor voices that really can't be made out. > You know its not real, yet they persist. My young cousin had symptoms that sound similar to yours and was diagnosed with schizophrenia. The antipsychotic medication hasn't worked for the last 5 years and now they think it might be epilepsy. I knew audio hallucinations were somewhat common with temporal lobe epilepsy but I didn't know "voices" could be heard. That is interesting. I have been diagnosed with Schizophrenia too. Did the medication they put your cousin on ever work? (You said it hasn't for 5 years now, I was wondering if it had worked before that?) I just wonder because I have been on numerous medications and nothing helped me (only for about a 2-3 year period) until I met my current doctor. He put me on a different anti-psychotic and it is as if he performed a miracle. Everyone around me agrees there was a massive change in my moods/behaviour too. Anyway, enough rambling, I was just thinking your cousin may have a similar situation to what I have been through. Beck. >> Hi guys, >> [quoted text clipped - 21 lines] > didn't > know "voices" could be heard. > That is interesting. I have been diagnosed with Schizophrenia too. Did the > medication they put your cousin on ever work? (You said it hasn't for 5 [quoted text clipped - 7 lines] > situation to what I have been through. > Beck. Do you have epilepsy as well as schizophrenia? What kinds of seizures do you have? My cousin was initially depressed for about 6 months before he had his first "falling" episode. He seemed to pass out and become pale. After that he started hearing noises and voices as well as seeing flashing lights and smelling bad odours as well as having an upset stomach. There was an episode of paranoia which I think is what earned him the psychosis diagnosis. His mother says that he often wanders around unresponsive like he's in another world. For some reason he's seeing a new psychiatrist who now says that these symptoms are not consistent with psychosis and it may be epilepsy so he's going to see a neurologist. His previous psychiatrist didn't do any tests to rule out epilepsy. The medication hasn't worked at all since he was 15 and I think his first psychiatrist was basically giving up. Sorry it took me so long to reply to this. I have been diagnosed with both. I haven't had anything major as far as seizures, but I have had what my doctor and mother (who is a nurse) say are like petit mal seizures. > Do you have epilepsy as well as schizophrenia? What kinds of seizures do > you have? I have had the bad smelling odours, noises, flashing lights and upset stomach. I definitely have the paranoia, very badly. I have these funny sensations which have lead to the petit mal's on a couple of occasions. The funny feelings I get are like the most intense fear possible and don't have a trigger. There is never anything that scares me to start them off, and the come on at completely random times. As for being unresponsive, I was like that nearly all the time before I was put on medication. I had no emotions at all. Our 12 year old dog passed away and I didn't shed a tear (very very unusual for me), I didn't smile, frown anything. I have had the tests to see if I am epileptic and they are all clear, but the way my doctor has diagnosed me is this: I had things similar to petit mal's and he tried medication which has stopped them almost completely, therefore I must have mild epilepsy. I know doctors are scared to diagnose anything these days, so if your goes on epilepsy medication and he stills has these issues, I strongly suggest a second opinion with a different psychiatrist. I had seen 4 psychiatrists before the one I am under now. I wish your cousin all the best, tell him not to give up. Beck. > My cousin was initially depressed for about 6 months before he had his > first [quoted text clipped - 11 lines] > giving > up. Hello Frankie, > I was wondering if anybody here has run into audio/sound hallucinations > with their epilepsy? Mine is quite frightening, i'd like to share it [quoted text clipped - 3 lines] > your head, like your screaming, even though the people around you hear > you at the same normal voice level. The following were experienced in the two or three years before my menigioma was diagnosed and removed. My voice often sounded louder and 'hollow' in my head, nobody else noticed any difference - I asked. Not screaming though, just louder. > Imagine hearing a LONG ringing sound for 30-50 seconds in your left or > right ear for no reason. The same kind of ring you would get when you > turn on the TV late at night when no program is on or those TV > emergency broadcast systems. That long annoying beep. Occasionally I had that. Annoying, yes. Unpleasant too. > How about hearing voices, minor voices that really can't be made out. > You know its not real, yet they persist. Those too. Very occasionally I'd hear my name being said, very clearly, over my shoulder. I 'd look round and there was no-one there. And bagpipe music, the tune of which couldn't be pinned down. Also an occasional noise as though a spring were being released in my head. > But yet, I still get this from time to time. My doctor has advised > surgeory, which I am totally against. That would be mean no car and no > memory. After my surgery some of my memory was affected and I couldn't drive for a year or so (the rules were changed during my grounding). But while awful at the time, in retrospect I know it had been very well worth it. The alternative would have been madness, paralysis and death as the tumour grew. Slight dysphasia and a temporary reliance on others for transport were a small price to pay for my life. > I hope everyone else here is doing fine either as a parent, patient, or > conquerer of the disease. Thanks for listening. I don't believe you can conquer epilepsy, just learn to cope with it. Mary I guess I will have to consider surgeory then. I have a deep fear knives and blood but it seems like my head is only getting worse, last night I had attacks at 12:00 am and 6:00 am in the morning. I got to work very late and feel like crap. Thanks again for your information, hopefully my doctor will have a good idea on what to do. Thanks, Frankie > Hello Frankie, > > [quoted text clipped - 46 lines] > > Mary >I guess I will have to consider surgeory then. Well, it depends on what the surgery is for. And how well qualified your doctor is. > When my tumour was detected by a scan it was a relatively simple matter to > remove it, my problems were because it was causing pressure on my brain > and deflecting it, I had many other symptoms. But your problems might well be because of something completely different, you need to be sure of what's going to happen and trust the surgeon and understand what's going on. I know that many people on this ng have said that their (different) surgeries have great results. Consider itbut think carefully. As my surgeon said, when I asked what the risks were, "Brain surgery is neverwithout risk." As I said, in my case there was no option, it would have got worse. You condition might bec ontrollable by medication. I don't know, nobocy here does. You need very specialist diagnosis and advice. > I have a deep fear > knives and blood Well, you won't see any knives or blood :-) > but it seems like my head is only getting worse, last > night I had attacks at 12:00 am and 6:00 am in the morning. I got to > work very late and feel like crap. You need a better quality of life than that, you need either to consider surgery (if that will help) or persist in the quest for a management system. > Thanks again for your information, hopefully my doctor will have a good > idea on what to do. I hope so too - and please let us know what happens. It might be that someone else has something similar and your experience could help. Mary Howdy Fran! The "long annoying beep" could just be tinnitis. (I have tinnitis myself, only the sound is in both ears and continuous.) It could also be a simple partial seizure. Simple partial seizures can effect ANY of the senses: Sight Sound Taste Touch Smell.  SignatureDave ©¿©¬ http://www.howdydave.com > Hi guys, > [quoted text clipped - 27 lines] > I hope everyone else here is doing fine either as a parent, patient, or > conquerer of the disease. Thanks for listening. |
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