I think 'bigpond' etc. in the headers is a UK website/ provider.  There
might be a similar support network on the uk sites, if they can find the UK
Ep. main site, that's similar to http://efa.org  that does the US sites.
Otherwise they might have to call a UK office or see if the
uk.people.support.epilepsy site is active at all.   It was all but dead in
1999 after Marland's Master-Trawling Robot was actively Culling **all the
UK.people.support.**     Health sites,   for Tricks to resell.

   Unless he's off the air, I'd have no reason to subscribe there to see if
it's any cleaner than it was 6 years ago.   It wasn't worth the time setting
filters and discarding the Trash he supported then, so I have not interest
even setting that group on a link to see if it managed to clean itself.

   They might still be able to search the UK local site on the Internet *or
in the Phone book as you suggested below, to see if they have offices near
to where they are who might be able to help..   G./

I have Grand Mal Seizures and I have no idea when I am going to have
one. 911 has been called so many times and most of the time it was not
needed. It was because who I was with was affraid. There was of course
a few times that it was needed. Now my Neurologist has put me on
Diastat to stop the seizures so I dont't have to go to the ER. If that
does not work then who ever I am with calls 911. But after having to
have the Diastat I do have go the next day and get my blood levels
checked. Mary F.

I've had assistance twice from paramedics.  Both times I was at a college
basketball game.  One was in my local community.  The other one was in Reno,
Nevada.  Both times it involved what triggers my seizures.  My problems tend
to happen when I eat something with MSG - this triggers irritable bowel
syndrome (severe cramping in my stomach and diarrhea) - this has triggered
seizures several times in the past, but I was able to stop from having the
grand mal (tonic clonic seizure) both of these times..

Both times I was helped by paramedics they could tell that my vital signs
were showing I was in distress.  In Reno they put me on a gurney and took me
to a quiet place, by my request.  I have medication to take to stop the
cramping.  They got me to a restroom and had me lay down and gave me oxygen,
while they continued to monitor my vital signs.  Finally I started to
recover.  Both instances I did not have a tonic clonic seizure.

The first instance the paramedics told my husband to take me home.  I was
very disappointed because it was a double header and we didn't see our team
play.  But I was feeling pretty lousy.

When I had the episode in Reno I felt more in control of what was going on.
I had my husband take me right to the paramedics, I told them I have
epilepsy, I was having an irritable bowel attack and needed to lay down right
away and needed to get to a quiet place.  They complied.  After it was over
and I was stabilized once again we were told that it would be best for us to
leave.  Once again I had not seen the team play.  This time I spoke up and
said "people with epilepsy need to have a life too".  I didn't want to leave
I wanted to stay.  A woman who worked there told the paramedics that she
would put me in a wheel chair and if I had problems she would get me right
out of there.  I was happy to sit in the wheel chair and root on the team.

Take care,
Julie